Wondering how #amyloidosis may be affecting your gut and what you can do about it?
Join ARC and Dr. Melissa Hershman from Oregon Health & Science University on March 18 at Noon ET for our next #ARCTalks Webinar!
Register Today: us02web.zoom.us/webinar/regi...
Dr. Ahmad Masri invites you to join us on February 25 at Noon ET for an informative #ARCTALKS #webinar about the role of imaging in #amyloidosis diagnosis and management.
Register Today: us02web.zoom.us/webinar/regi...
Where should I go? Who truly understands this disease? Are there clinical trials for someone like me? For too many patients and caregivers, these questions can feel overwhelming, and the path forward can seem unclear.
Read how ARC is clearing the path: arci.org/a-smarter-wa...
Clinical #amyloidosis update:
US FDA has lifted the clinical hold on Intellia Therapeutics' MAGNITUDE-2 Phase 3 trial of nex-z in ATTRv-PN.
The global study will resume with enhanced liver safety monitoring.
The ATTR-CM study remains on hold.
Learn more: ir.intelliatx.com/news-release...
An #amyloidosis diagnosis brings a rush of questions. Where should I go? Who understands this disease? Are there trials for me?
For too many patients and caregivers, these questions can feel overwhelming, and the path forward can seem unclear.
Meet MAP: arci.org/a-smarter-wa...
Are you looking to know more about the #ATTR #amyloidosis clinical trial landscape?
ARC's Executive Director of Research, Kristen Hsu, will share the latest updates in the next #ARCTalks webinar on January 22 at Noon ET.
Register Today: us02web.zoom.us/webinar/regi...
Rare Disease Week on Capitol Hill is a great chance to advocate to US Members of Congress and their offices about the needs of #amyloidosis patients and families!
Learn more at: everylifefoundation.org/rare.../rare...
Interested? Email us at: support@arci.org. #RareDC2026
Progress in rare disease doesn’t happen by accident. It takes vision, persistence, and your support.
ARC works every day to accelerate research, improve care, and support those living with #amyloidosis.
Help us continue improving the lives of patients: arci.org/givenow
By supporting emerging experts, this fellowship invests in the next generation of amyloid experts and strengthens the future of patient care and research.
Learn more: arci.org/fellowship
This year ARC launched our inaugural class of Clinical Fellowship participants. This ARC fellowship invests in the next generation of #amyloidosis specialists by providing expert training, mentorship, and research opportunities.
22.12.2025 19:36 — 👍 2 🔁 0 💬 1 📌 0
This holiday season, we here at ARC want to take a moment to thank our incredible community. Your dedication and compassion help us shine a light of hope for all those affected by #amyloidosis.
We wish you and your loved ones a wonderful holiday season and a hopeful new year.
#ARCTALKS Webinar | Dec 18 | 12 PM ET
This "Coffee Chat" webinar is your chance to connect with ARC staff & hear about the work we’ve done in 2025.
If you're new to ARC or a long-time supporter, we invite you to join and learn more: us02web.zoom.us/webinar/regi...
By breaking down barriers that slow down research, ARC helps advance diagnosis, treatment, & care for people living with #amyloidosis through innovative research and strategic collaborations.
Help support our work to get more treatments to more patients: arci.org/givenow
Thirty years ago ARC founder Isabelle Lousada's life was transformed. In 1995 she earned her master’s in architecture, married her husband, and days later was diagnosed with a life-threatening illness: #amyloidosis.
Read her story: arci.org/isabellestory/
The Amyloidosis Research Consortium (ARC) is Shining a Light on #amyloidosis — driving discovery, supporting patients and their families, and investing in the future of expert care.
With your support we can do even more: arci.org/givenow
10 years ago, ARC was founded to improve and extend the lives of people living with #amyloidosis.
Thank you to everyone whose support sustains our work and helps drive progress in care and research.
See your impact at work: arci.org/ImpactAtWork2025
The 2025 annual #AmyloidosisForum was the most well attended meeting yet.
Discussions covered:
• Current Challenges & Innovative Solutions
• Imaging Standardization
• Prognostic Factors
• Endpoint Development
Watch the recordings here: amyloidosisforum.org/2025-meeting...
The #ATTR #amyloidosis MAGNITUDE clinical trials have been temporarily put on hold by @intelliatx and the @US_FDA.
Learn more: arci.org/magnitudehold/
Thank you to our supporters who have made this annual meeting possible!
22.10.2025 14:04 — 👍 0 🔁 0 💬 0 📌 0
Good morning! Are you ready to hear from clinicians, drug developers, and regulatory members discuss the most important topics facing #amyloidosis?
Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/
Don't miss a special ARC Talks webinar for #Caregivers & #CarePartners, Oct 15 at Noon ET!
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
Know an #amyloidosis patient who could benefit from connecting with those who know what they're going through?
Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement.
Connect your patients to a PEER Today: arci.org/peer-link
Over the past decade ARC has driven bold science, sparked critical breakthroughs, and brought new hope to people living with #amyloidosis.
Donate today to support the next 10 years of progress: donate.arci.org/campaign/701...
Alison was a nurse before becoming an #AL #amyloidosis patient. ARC gave her clarity, support, and hope. Now her legacy gift ensures others get the same.
This #MakeAWillMonth, consider the impact your gift can have.
Learn more of Alison's story: arci.org/a-legacy-of-...
🎉 ARC is 10!
We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development.
Thanks to everyone we’ve partnered with over our first 10 years!
See our impact & support the next decade: arci.org/anniversary/
#ARC10Years
Join ARC + the American Association for Hand Surgery for a CME webinar Aug 5 at 8PM ET.
Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for.
👉 us06web.zoom.us/meeting/regi...
#CME #RareDisease
📢 Don't miss our #ARCTALKS webinar next week!
ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area.
🗓️ Register now: us02web.zoom.us/webinar/regi...
#ClinicalTrials #RareDisease
This activity is supported by an independent educational grant from AstraZeneca and Ionis Pharmaceuticals.
22.07.2025 17:54 — 👍 0 🔁 0 💬 0 📌 0
And thank you to the centers mentoring these wonderful #amyloidosis fellows!
Boston Medical Center
Boston University School of Medicine
Columbia Medical Center
Mass General Brigham
Northwestern University
Oregon Health & Science University
University of Chicago
Endeavor Health
UTSW Medical Center
🎉 Congrats to the first ARC #ClinicalFellowship awardees! Thank you for helping shape the next generation of #amyloidosis experts. Together, we're building a brighter future for patients. 💙
Learn more: arci.org/fellowship/
