Rosanna

One Red Leaf at a Time Greetings Cards - Raising funds for research into Myalgic Encephalomyelitis Since so many of you have asked, greetings cards featuring images from the Red Leaf Creative Collaborative are now available to purchase.

Available to buy now: One Red Leaf at a Time Greetings Cards.

All proceeds go to our #MEcfs research @uoe-igc.bsky.social.

Thank you @drjogreer.bsky.social & Dr Clare Raynor!

theredtreeandme.substack.com/p/one-red-le...
#oneredleafatatime

Thank you for covering this so well. Please could you also investigate why the new president of the Society of Occupation Medicine is a psychiatrist who works at Maudsley with Simon Wessely? #pwME #decodeME #ThereforME #MyalgicEncephalomyelitis and #GreatestMedicalScandal

Admittedly not looking good at the moment but give me time😉

The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo with the number 1. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: gold

Who do you think is behind door number 5?
#ThereForMEAdventCalendar

Thank you @rory-stewart.bsky.social l for your advocacy for people with #LongCovid & #MyalgicEncephalomyelitis My 17 yo daughter had Covid Pneumonia in Sept 21. V. sick since & now bedbound & tubefed #SevereME. She needs an NHS #ThereForME Please invite @binitakane.bsky.social on your podcast.

Gutted! Didn’t get this one. Was wrecking my head to think of someone with what looked like dark hair and a podcast and didn’t think of Rory! Ashamed! On the upside - amazing that we have so many people in our corner now that I can’t remember everyone. Thanks for being one of them @rory-stewart🙏

You’re not giving much away this time!! 😱

The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo with the number 4. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: pod

Who do you think is behind door number 4?
#ThereForMEAdventCalendar

Grateful beyond words to you @natashadevon.bsky.social
🙏🙏🙏

Big thanks to @natashadevon.bsky.social for her advocacy and for her Christmas message 👏👏👏👏

A pretend polaroid shows Natasha Devon posing for a photo holding a #ThereForME Christmas card. The image on the card shows two presents, one labelled "patient safety", the other "research". The photo is labelled "X". The design is in the #ThereForME colours.

This second image displays Natasha Devon’s handwritten message. It reads “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”

@lbc.co.uk presenter @natashadevon.bsky.social is #ThereForME!

Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”

#pwME #pwLC

Yes!!!! Think I have it! Got there just in time ahead of announcemen!!!

Up and running again for #ME people!
I have sent an amended version of the template letter to my MP, it would be great if we had as many MPs as possible attending.

💥APPG Inaugural Meeting - 17 December 2024 - All-Party Parliamentary Group on ME

The image shows 3 baubles. One is fairly gaudy, one has a big question mark in it, and one contains a very blurry photo. The caption reads "Guess who's #ThereForME!" Here's a clue for alt-texters: Leigh

Here's the clue for tomorrow's #ThereForMEAdventCalendar. Can you guess who it is? Find out tomorrow at noon.

🙋🏻‍♀️

Can you guess, can you guess?

And the fun begins… 😍

Can you guess who’s #ThereForME for 1 December?

Atlas of the plasma proteome in health and disease in 53,026 adults A large-scale proteomics study involving 53,026 individuals maps 2,920 plasma proteins to 406 prevalent diseases, 660 incident diseases, and 986 health-related traits, identifying promising biomarkers...

Atlas of the plasma proteome in health and disease in 53,026 adults 👩‍🔬🥼👨‍🔬🧪. #proteomics #proteome #plasma #MedSky 👇👇

www.cell.com/cell/fulltex...

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1-0! You win! 🥇

Thanks Emma! Am I meant to take that as a compliment?! 🤷🏻‍♀️🤔🤣

We are very sad to announce that the #ThereForME campaign has suspended our collaboration with the ME Association. Like others in the ME community, we have deep concerns about a recent editorial published by the ME Association and authored by the ME Association’s Chairman (‘Animals need to move’). We wrote to the ME Association today expressing concerns about the editorial and asking for an update on the actions that the ME Association would be taking to address them. We did not feel that the response we received was adequate and so we have taken the decision to suspend our collaboration with immediate effect. We are very proud of how we have managed to bring the ME and Long Covid communities together under a shared advocacy message since launching the campaign four months ago. We believe our community is strongest when we can work together and so this is not a decision that we have taken lightly. However, we are also very grateful for the trust we have built with the ME community. We therefore feel that we cannot in good conscience continue our collaboration with the ME Association until the very valid concerns from the community have been sufficiently addressed. We have made clear to the ME Association the actions we believe are necessary from their side in order to resume our collaboration. The door remains open to continue working together once we feel sufficient action has been taken. We very much hope that this will be the case. In the meantime, we will be focusing our time and energy on what we feel our campaign does best: speaking up for people with ME and Long Covid, who will always be at the heart of our campaign. Karen, Emma and Oonagh

We are sad to announce that #ThereForME has suspended our collaboration with the ME Association.

We feel that concerns from the community must be heard. The door remains open to continue our collaboration once action is taken and concerns addressed.

More here 👇

Love it!!!!

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Statement from the Public Health Agency of Canada: Update on Avian Influenza and Risk to Canadians The Public Health Agency of Canada (PHAC) today confirmed a human case of avian influenza (also known as bird flu) caused by influenza A(H5N1) virus in Canada.

Canadian H5 patient: sequencing confirms Influenza A (H5N1), clade 2.3.4.4b, genotype D.1.1.

Not the same genotype that is infecting dairy cattle and dairy workers in the US. Responsible for poultry outbreaks in Canada.

How the patient was infected remains unknown

www.canada.ca/en/public-he...

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Found you!

Please sign and share this petition to help Karen a severe ME patient who is not getting the help she so desperately needs from the hospital! It is so close to the 10,000 signatures!
www.change.org/p/save-karen...

Oh, we are staying tuned alright!