Kerry Wong πŸ¦‹ Float Like a Buttahfly's Avatar

Kerry Wong πŸ¦‹ Float Like a Buttahfly

@buttahflyk.bsky.social

Writer & Patient Advocate bit.ly/floatlikeabuttahfly πŸ¦‹ Creator/Editor/Illustrator | Kaleidoscope: Rare Disease Stories πŸ“— https://a.co/d/brVzf0s πŸ¦‹ Columnist | Sarcoidosis News πŸ₯„πŸ•ŠοΈ #🟦 #BLM #defy🧹#resist #SarcStrong #ZebraStrongπŸ¦“ #AlwaysCoordinated😘 she/her

418 Followers  |  308 Following  |  356 Posts  |  Joined: 16.11.2024  |  2.2051

Latest posts by buttahflyk.bsky.social on Bluesky

Fascism is here. We are not β€œgetting closer” or β€œin danger of.”

This matters because it frames our discussion: We aren’t trying to prevent it, we’re trying to defeat it. It’s not taking over our institutions, it’s taken them over.

Otherwise, we’re always behind, fighting a past we’ve already lost.

12.08.2025 00:29 β€” πŸ‘ 6008    πŸ” 2241    πŸ’¬ 116    πŸ“Œ 87

We can see that. The registration is what are YOU going to do about it? 😱🀬

09.08.2025 17:23 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Video thumbnail

An update from us here at PBS πŸ’™

07.08.2025 18:27 β€” πŸ‘ 3867    πŸ” 2216    πŸ’¬ 56    πŸ“Œ 137
Preview
Like this photo? Vote now! America’s Favorite Photos: Discover your new favorite photos!

Please vote for this photo in the America’s Favorite Photos competition to help my friend @chriswantspeace.bsky.social support the Michael J. Fox Foundation for #Parkinsons Research
~πŸ¦‹
americasfavoritephotos.com/v/nxffmk

08.08.2025 16:18 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sending gentle hugs and hope you get some relief soon!
πŸ¦‹

08.08.2025 15:18 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
FLaB background with screenshot of Sarcoidosis News column titled "Diet and exercise choices aren't so obvious with sarcoidosis"

FLaB background with screenshot of Sarcoidosis News column titled "Diet and exercise choices aren't so obvious with sarcoidosis"

β€œY’all think there are vampires that eat garlic even tho they’re not supposed to?"

That Q inspired this week's #SarcoidosisNews column. We don't always make the "best" choices, but sometimes that is what's best for us.
~πŸ¦‹
#sarcoidosis #ChronicIllness #SpoonieSky
sarcoidosisnews.com/columns/diet...

08.08.2025 14:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Instead of telling a disabled person what they should or shouldn’t be able to do… ask them how you could help them accomplish what they need.

Listen to their struggles. Approach the situation with compassion.

Offer genuine support.

That’s the best way to be an ally.

08.08.2025 02:46 β€” πŸ‘ 437    πŸ” 119    πŸ’¬ 13    πŸ“Œ 4

Dean Cain was the worst Superman ever (even before this).

The real Superman knows ...
"THAT KIND OF TALK IS UN-AMERICAN."

ICE goes against everything this country stands for.
~πŸ¦‹

06.08.2025 22:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

If voting wasn’t powerful, extremist lawmakers wouldn’t be trying so hard to keep us from doing it.

We won’t back down from fighting for our right to vote.

06.08.2025 17:15 β€” πŸ‘ 835    πŸ” 244    πŸ’¬ 18    πŸ“Œ 6
Post image

The stories we tell matter. I know this not from watching but from memory. I was just a child, held behind barbed wire in a U.S. internment camp, when an atomic bomb obliterated Hiroshimaβ€”killing members of my family.

06.08.2025 17:20 β€” πŸ‘ 18876    πŸ” 4740    πŸ’¬ 449    πŸ“Œ 158

Let it be known that disability and disabled are not dirty words, please don’t try to replace them 🫢🏻

05.08.2025 18:32 β€” πŸ‘ 59    πŸ” 20    πŸ’¬ 2    πŸ“Œ 0

*with
(I hate when I notice a typo after someone has already replied!)
~πŸ¦‹

05.08.2025 21:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
πŸ‘‰ Sadly I do need to explain because people wouldn't understand otherwise. When I say I can't handle 10 days of visits and noise and doing things, I mean it. It WILL make me crash hard.

πŸ”΄ Things you don't have to explain to anyone... (but probably should) 

βœ”οΈ why you need rest
βœ”οΈ your boundaries
βœ”οΈ your healing journey
βœ”οΈ your eating habits
βœ”οΈ why you are saying no 
βœ”οΈ why you are making changes
βœ”οΈ how you spend your free time
βœ”οΈ your body size or shape 
βœ”οΈ what makes you happy in life

Credit: @wholehealthbydebs

#ChronicTruths #SelfAdvocacy 
#ChronicPainWarrior

πŸ‘‰ Sadly I do need to explain because people wouldn't understand otherwise. When I say I can't handle 10 days of visits and noise and doing things, I mean it. It WILL make me crash hard. πŸ”΄ Things you don't have to explain to anyone... (but probably should) βœ”οΈ why you need rest βœ”οΈ your boundaries βœ”οΈ your healing journey βœ”οΈ your eating habits βœ”οΈ why you are saying no βœ”οΈ why you are making changes βœ”οΈ how you spend your free time βœ”οΈ your body size or shape βœ”οΈ what makes you happy in life Credit: @wholehealthbydebs #ChronicTruths #SelfAdvocacy #ChronicPainWarrior

Things you don't have to explain...
βœ”οΈ why you need rest
βœ”οΈ your boundaries
βœ”οΈ your healing journey
βœ”οΈ your eating habits
βœ”οΈ why you are saying no
βœ”οΈ why you are making changes
βœ”οΈ how you spend your free time
βœ”οΈ your body size/shape
βœ”οΈ what makes you happy in life
Credit: @wholehealthbydebs
#SelfAdvocacy

05.08.2025 15:50 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

I don't understand either. I self-published my book last year because I didn't have the $$ or spoons to work witg editors, publishers, illustrators, etc. I won't get the publicity that others could get for me, but it means I did all of those jobs combined. So I say ... go us!
~πŸ¦‹

05.08.2025 19:55 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

Texas Democrats aren’t running away from anything. They’re fighting, with every tool they have, to save our democracy.

Kudos to each and every one of them for taking this stand. We should be inspired by their courage and reminded that tyranny is only possible if we submit to it.

04.08.2025 16:42 β€” πŸ‘ 4664    πŸ” 1192    πŸ’¬ 111    πŸ“Œ 34
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Morality begins where legality ends.

04.08.2025 23:52 β€” πŸ‘ 137    πŸ” 30    πŸ’¬ 3    πŸ“Œ 2

If CBS & ABC have bent the knee

And the Washington Post, NYTimes, & the LATimes have bent the knee

And the Congress & SCOTUS have bent the knee

All to a demented child rapist

Then it is all the more imperative that we the people never bend

We are who we have

#RemoveTrump #EpsteinFiles

18.07.2025 19:08 β€” πŸ‘ 16793    πŸ” 5144    πŸ’¬ 459    πŸ“Œ 276

If only there were actual people who could talk about what happened and who hurt them ... oh, wait.

04.08.2025 06:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Just (finally) watched the @cnn.com broadcast of "Good Night and Good Luck" on Broadway.
Wow.
So much to say, yet my words feel insufficient.
Thank you, Clooney & company, for reflecting and redirecting that spotlight for today.
πŸ¦‹

03.08.2025 23:25 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This is no time to go high. If GOP states redraw maps, then Democratic states should redraw maps.

Give the same energy. They will never play fair or by the rules. Ever.

02.08.2025 21:21 β€” πŸ‘ 14954    πŸ” 3746    πŸ’¬ 703    πŸ“Œ 230
1 - a skeleton looking out window
2- sleeping beauty is in bed

chronically ill girl summer

3 - woman in bed with candle next to her

4 - woman on fire

1 - a skeleton looking out window 2- sleeping beauty is in bed chronically ill girl summer 3 - woman in bed with candle next to her 4 - woman on fire

02.08.2025 12:17 β€” πŸ‘ 176    πŸ” 25    πŸ’¬ 2    πŸ“Œ 6
Post image 01.08.2025 12:39 β€” πŸ‘ 7143    πŸ” 1665    πŸ’¬ 152    πŸ“Œ 60

"Call it democracy, or call it democratic socialism, but there must be a better distribution of wealth within this country for all God's children." β€”MLK Jr.

31.07.2025 17:21 β€” πŸ‘ 11153    πŸ” 2537    πŸ’¬ 203    πŸ“Œ 85
Wall Street Journal headline and deck: "New York Shooting Puts Mamdani on the Spot Over Policing Views: The killing of four people in a Midtown office building rattled a city where mass attacks are rare and violent crime has declined."

Wall Street Journal headline and deck: "New York Shooting Puts Mamdani on the Spot Over Policing Views: The killing of four people in a Midtown office building rattled a city where mass attacks are rare and violent crime has declined."

It's really weird to demand accountability from a NYC mayoral candidate for a deadly NYC shooting rather than the current NYC mayor, an ex-cop who campaigned on a "tough on crime" platform and promptly got indicted for crimes

31.07.2025 16:53 β€” πŸ‘ 30557    πŸ” 7615    πŸ’¬ 759    πŸ“Œ 428

You are under no obligation to involve people, churches, or communities who hurt you in your recovery. Even if they share your name or DNA, or played a significant role in your history.

You do not "owe" anybody else anything. You owe YOURSELF realistic safety & stability.

31.07.2025 01:24 β€” πŸ‘ 121    πŸ” 34    πŸ’¬ 1    πŸ“Œ 0
"You should never feel ashamed of using something that helps keep you safe."

Credit: Nicole Believes

Top left corner: weekly pill box, service dog, compression socks, cane, medications, monitor, wheelchair, forearm crutches, walking rollator with seat, IV bag, shower bench 

#DisabilityPrideMonth #MySeveralWorlds #DisabilitySupport #DisabilityAwareness

"You should never feel ashamed of using something that helps keep you safe." Credit: Nicole Believes Top left corner: weekly pill box, service dog, compression socks, cane, medications, monitor, wheelchair, forearm crutches, walking rollator with seat, IV bag, shower bench #DisabilityPrideMonth #MySeveralWorlds #DisabilitySupport #DisabilityAwareness

"You should never feel ashamed of using something that helps keep you safe."

Credit: Nicole Believes

Pill box, service dog, compression socks, cane, meds, monitor, wheelchair, crutches, rollator, IV bag, shower bench

#DisabilityPrideMonth #MySeveralWorlds #DisabilitySupport #DisabilityAwareness

30.07.2025 16:49 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Post image

In this blog post, Eileen Davidson shares how occupational therapy can transform life for those living with AiArthritis diseases. From managing fatigue & pain to reclaiming independence, her story sheds light on an often-overlooked part of care.

Read more ➑️ www.aiarthritis.org/ot-aiarthritis

30.07.2025 15:35 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
1 - a guy with knives sticking out of him - please help, doctor, something's seriously wrong
2 - plague doctor says 'it's probably anxiety
3 - guy with knives sticking out of him just stares
4 - plague doctor says 'and you're fat. don't forget to pay on your way out'

1 - a guy with knives sticking out of him - please help, doctor, something's seriously wrong 2 - plague doctor says 'it's probably anxiety 3 - guy with knives sticking out of him just stares 4 - plague doctor says 'and you're fat. don't forget to pay on your way out'

30.07.2025 15:21 β€” πŸ‘ 241    πŸ” 49    πŸ’¬ 4    πŸ“Œ 1

And thank you for creating such a space here πŸ’™πŸ¦‹

30.07.2025 02:03 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you so much for this! I have seen that "you must write every day" directive in so many versions, from so many sources, and all they do is trigger my impostor syndrome. We work so hard to overcome internalized ableism, only to face it everywhere we turn. Grateful for you & spoonie authors πŸ’š
~πŸ¦‹

30.07.2025 01:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

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