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Lilly

@lillyjade.bsky.social

Autistic. Interested in autism and broader neurodivergence/disability topics + misinformation. Former cog neuro/psych researcher. Attempting to write. She/her Curates @autisticbooks.bsky.social On Gadigal Land

2,020 Followers  |  868 Following  |  405 Posts  |  Joined: 05.06.2023  |  1.9782

Latest posts by lillyjade.bsky.social on Bluesky

Happy International People with Disabilities Day Australia!

03.12.2025 00:57 β€” πŸ‘ 14    πŸ” 12    πŸ’¬ 1    πŸ“Œ 0

I'm pretty sure there was a period in the 90s where I thought this too!

05.12.2025 09:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Sounds like a more preferable activity. Hope the call was brief and productive!

05.12.2025 09:38 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Amazing 😍 Hoping it goes really well. You'll definitely have to keep us updated πŸ’œ

05.12.2025 09:37 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

To honor Aliceβ€”and all our disability ancestorsβ€”is to keep building that connective tissue she described. To love fiercely, politically, on purpose. To ensure the filaments they left behind continue to glow in us, and through us, long after the world has forgotten their names. We won’t.

16.11.2025 00:08 β€” πŸ‘ 153    πŸ” 19    πŸ’¬ 3    πŸ“Œ 0

Alice Wong taught us that disabled people don’t just leave memories behindβ€”they leave infrastructure. Lineages of care. Methods of collectivity, survival. She named the connective tissue that holds our communities together, even across death, even across the losses that come too fast and too often.

16.11.2025 00:08 β€” πŸ‘ 1895    πŸ” 537    πŸ’¬ 7    πŸ“Œ 19
Black text on a yellow background - This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing.
Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin.
We need more stories about us and our culture.
You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

Black text on a yellow background - This is Alice's friend Sandy Ho, posting. Per Alice's wishes, this message is being shared at the time of her passing. Hi everyone, it looks like I ran out of time. I have so many dreams that I wanted to fulfill and plans to create new stories for you. There are a few in progress that might come to fruition in a few years if things work out. I did not ever imagine I would live to this age and end up a writer, editor, activist, and more. As a kid riddled with insecurity and internalized ableism, I could not see a path forward. It was thanks to friendships and some great teachers who believed in me that I was able to fight my way out of miserable situations into a place where I finally felt comfortable in my skin. We need more stories about us and our culture. You all, we all, deserve the everything and more in such a hostile, ableist environment. Our wisdom is incisive and unflinching. I'm honored to be your ancestor and believe disabled oracles like us will light the way to the future. Don't let the bastards grind you down. I love you all.

β€œDon’t let the bastards grind you down. I love you all.”

15.11.2025 06:15 β€” πŸ‘ 3573    πŸ” 1178    πŸ’¬ 10    πŸ“Œ 174

Yes, this is what I was trying to say! Sorry if it wasn’t clear (I am much better at explaining myself with long passages rather than being succinct as is needed on social media) 😊

12.11.2025 11:06 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
β€˜A Lovely Safe Umbrella to Describe Yourself With’ or β€˜Meaningless’: An Online Survey of UK-Based Neurodivergent Adults’ Views of Neurodiversity-Related Terminology - Aimee Grant, Jennifer Leigh, Moni... Background: Neurodivergence refers to people with ways of behaving and thinking that diverge from the norm. Examples include Autism, Attention Deficit Hyperacti...

πŸ“£New research

Q: What do neurodivergent people think about words like "neurodiversity".

A: it's complicated; they use it, but it has limitations and could stigmatise.

Full paper: journals.sagepub.com/doi/10.1177/...

(1 of 2)

10.11.2025 14:13 β€” πŸ‘ 21    πŸ” 9    πŸ’¬ 3    πŸ“Œ 1

It became very apparent to me that this wasn't a reality once I began to learn about the experiences of earlier diagnosed autistics, both those of a similar age to me, and present day.

11.11.2025 00:42 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I completely agree. I think if you're late diagnosed, it's very easy in those early days to romanticise about a life that could have been if you were diagnosed at a young age and given all the support you needed. But those supports weren't around, and generally aren't now either.

11.11.2025 00:42 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 3    πŸ“Œ 0

I suspect I am reading the same book. I'm not very far in, but it otherwise seems good so far.

11.11.2025 00:35 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Copyright laws to protect creatives from AI data mining Tech developers will not have a "free pass" to use creative works to train AI systems, but advocates say more protections are needed against copyright theft.

The ASA welcomes the Albanese Government’s decision to rule out a Text and Data Mining (TDM) exception to Australian copyright law, which would have allowed for AI training on authors’ work.

aapnews.aap.com.au/news/copyrig...

26.10.2025 22:43 β€” πŸ‘ 17    πŸ” 13    πŸ’¬ 5    πŸ“Œ 4

πŸ₯²πŸ«‚

31.10.2025 00:09 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

That sounds amazing. Maybe one day there won't be so much physical distance

31.10.2025 00:08 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Autumn shares a poem:
β€œNothing about us without us means all of us together
The loud, the silent, the joyous, and the somber
The future is an echo that arrives before the sound”

30.10.2025 23:16 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0

The first award is the Nothing About Us Without Us Award, given to self-advocates whose work fights to make sure that our community’s voices are being heard. This year, this award goes to Autumn Lauener for their tireless work supporting both the autistic and trans community across Texas.

30.10.2025 23:12 β€” πŸ‘ 5    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

β€œMost of all, we know that, whatever laundry list of activities they can and cannot do, the life of every autistic person is worth living.” – Colin Killick, ASAN’s Executive Director

30.10.2025 23:05 β€” πŸ‘ 7    πŸ” 4    πŸ’¬ 1    πŸ“Œ 0

β€œWe know the world is full of autistic people, including those with high support needs, who do all those things amazingly, from nonspeaking poets, to policy experts with intellectual disabilities.”

30.10.2025 23:05 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

β€œWhen the government spreads lies about autism, these lies put the autistic community in danger. They threaten our access to health care, our right to make choices for ourselves, and our right to live in the community.”

30.10.2025 23:04 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
2025 ASAN Gala Awards Ceremony
At this year’s Awards Ceremony, we will be honoring several awardees for their tireless work in advocacy, community building, and so much more. We’ll also hear remarks from ASAN’s Executive Director… 2025 ASAN Gala Awards Ceremony

ASAN’s Annual Gala awards ceremony is starting now! #ASANGala

Watch the livestream on YouTube starting NOW: youtu.be/36ZQOoLlZH8

30.10.2025 23:01 β€” πŸ‘ 20    πŸ” 11    πŸ’¬ 1    πŸ“Œ 0

Oh that is the worst. Our next door neighbours added another whole story to their house and it was sensory hell for six months. I hope it doesn’t last too long for you.

28.10.2025 09:49 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yes I know! But don’t worry, the library had it back within a couple of hours of my copy arriving. I’d filled it with post-it notes marking things so had to wait for my copy to transfer them to the right spots!

28.10.2025 09:46 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I’ve already finished, it’s fantastic! I’m working on some stuff around mis/disinformation, so it’s been super interesting and really relevant. Info dumped half the book to my partner until they said they were just going to read it too. Well written and really easy to read. Brilliant work!

28.10.2025 09:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Conceptualizing and describing autistic language: Moving on from β€˜verbal’, β€˜minimally verbal’ and β€˜nonverbal’ - Kristen Bottema-Beutel, Alyssa Hillary Zisk, Jordyn Zimmerman, Betty Yu, 2025

Today in Hell yes, research: "Autistic children with little to no spoken language may understand more language than they produce, which means spoken vocabulary is not a good proxy for one’s understanding of words."

journals.sagepub.com/doi/10.1177/... #autism #autistic #neurodiversity

26.10.2025 02:36 β€” πŸ‘ 91    πŸ” 25    πŸ’¬ 5    πŸ“Œ 3
Preview
Haymarket Ebooks on sale for $2! At Haymarket, our mission is to publish books that contribute to struggles for social and economic justice. We strive to make our books a vibrant and organic part of social movements, and we believe t...

ALL Haymarket EBooks are 80% off through November 7th ✊🏾✊🏿✊🏽

27.10.2025 19:16 β€” πŸ‘ 341    πŸ” 352    πŸ’¬ 2    πŸ“Œ 83
Photo of 2 copies of the book Conspiracy Nation: Exposing the Dangerous World of Australian Conspiracy Theories by Ariel Bogle and Cam Wilson. The cover is stylised with illustrations reflecting Australia and conspiracy theories in white, orange, and black. One copy displays the library's shelf number on its spine.

Photo of 2 copies of the book Conspiracy Nation: Exposing the Dangerous World of Australian Conspiracy Theories by Ariel Bogle and Cam Wilson. The cover is stylised with illustrations reflecting Australia and conspiracy theories in white, orange, and black. One copy displays the library's shelf number on its spine.

You know you've been taken in by a book when only a few pages in to the library copy, you buy your own.

Conspiracy Nation by @arielbogle.bsky.social and @cameronwilson.bsky.social

publishing.hardiegrant.com/en-au/books/...

28.10.2025 03:13 β€” πŸ‘ 27    πŸ” 4    πŸ’¬ 3    πŸ“Œ 0

100%! and I must say your garden is looking very inviting at this time of year πŸ‚

28.10.2025 02:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Happy napping and carving! I really hope your time stays protected so you get that much needed reset.

28.10.2025 02:50 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
Price of poverty hurts us all, yet research reveals an easy fix In 2020, Australia massively increased welfare payments and conducted a live experiment in ending poverty, but when the subsidy was removed, many were thrown back into hardship. Leaving aside the mora...

Me talking about why eradicating poverty isn’t just the morally correct position but it makes economic sense as well www.abc.net.au/news/2025-10...

28.10.2025 02:39 β€” πŸ‘ 71    πŸ” 32    πŸ’¬ 2    πŸ“Œ 2

@lillyjade is following 20 prominent accounts