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Chronic Illness Friendship Club

@chronicillnessfc.bsky.social

An inclusive community, resource hub & mutual support for people w/chronic & invisible illness. Friendship & Digital hangouts! πŸ“SF #EDS #MCAS #POTS #MECFS #PMDD #AuDHD #PTSD Mental health advocate, indigenous #LGBTQIA+πŸ‰ Sign up at the form below🀍✨

1,503 Followers  |  1,424 Following  |  83 Posts  |  Joined: 13.02.2025  |  1.7608

Latest posts by chronicillnessfc.bsky.social on Bluesky

Hi everyone, I’m sorry I haven’t followed up from the last zoom on our next group hangout, I have progressively gotten worse and am not functioning well. Promise I will set a recurring schedule for us once I am more stable 🀍πŸ₯Ί

09.06.2025 13:26 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I’d love this omg

24.04.2025 15:31 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Sensitive club here too!!!

Glad you’re good now. Sorry about your big crash. πŸ₯ΊπŸ€

16.04.2025 15:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Woah

16.04.2025 05:45 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

They don’t!?

16.04.2025 05:03 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I’ve been really wanting to try it - does it make u really exhausted to even get out of bed? Hope todays getting better🀍

16.04.2025 00:07 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Congratulations!!!!

16.04.2025 00:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Commenting so I can come back and share Resoruces as I come across them 🀍

15.04.2025 23:48 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

It’s really really wonderful. Im glad they did. Thank you!!!

I want to start something like this in the US πŸ₯Ή

We appreciate you over here!

15.04.2025 21:11 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Wow this is freaking incredible. πŸ₯Ί

15.04.2025 16:34 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Love this journey for you

15.04.2025 14:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Chronic Illness Friendship Club Sign Up Form Hi friends thank you for being here. 1. We are launching our first hangout and need to gather best time zone for anyone interested! 2. If you'd like to be informed for our mailing list, upcoming mee...

Hi Bluesky, I’m @gabbyoglesby.bsky.social & kinda new here. I’m hosting a hangout this weekend for anyone w/chronic or invisible illness to come make friends!

If you’re up for new friends & around, come, I’d love to meet you! It’ll be on zoom 🀍 Sign up here:

docs.google.com/forms/d/e/1F...

15.04.2025 02:28 β€” πŸ‘ 20    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

Thank you πŸ₯ΊπŸ€βœ¨

13.04.2025 05:49 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

When will be the next one, friends? We’d love to attend.✨

13.04.2025 01:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Your bio made me laugh so hard thank you.

#bajablastforever

12.04.2025 00:34 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Ahh The lovely cloud backups.

I wish all your data to be restored, as it was, COMPLETE AND IN ORDER

🀍🀍🀍🀍🀍

11.04.2025 16:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

as they should have!!!

I’ll be requesting a prior authorization from Aetna stat for MEDICALLY necessary treatment for all pre & post operative treatment from MD rahaeli, from now on.

Teach me your ways 🀣 I’ll pay for a masterclass

11.04.2025 16:25 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

So when will YOU be accepting new patients? πŸ˜…πŸ₯²

11.04.2025 16:20 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

😭🀍🀍🀍🀍🀍

11.04.2025 16:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

I AM CRYING. I really can not thank you enough for these resources. Seriously.

11.04.2025 16:06 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Also, I’m really sorry to hear about your laptop meltdown. I can offer some tech support if you ever need it. β€”>
I’m pretty savvy when my energy allows me to do things. I’m @gabbyoglesby.bsky.social 🀍

11.04.2025 16:02 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

πŸ₯ΊπŸ₯ΊπŸ€πŸ€ I DEEPLY appreciate you

11.04.2025 16:01 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

You just probably gave me back 6 months of my life in the next 2 years. thank you for sharing this. 😭🀍✨

11.04.2025 16:00 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

They have never heard of anyone else having this before :( even after telling them about MCAS etc - and I am supposed to have a few surgeries & procedures I’ve been putting off - any help would be much appreciated if you have any bandwidth to share ✨🀍🀍🀍🀍🀍

11.04.2025 03:50 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Hi rahaeli, I was wondering if you ever had energy to find that list or if you remember how to find it. I’ve been having extreme reactions to anesthetics and I’m trying to find some data to share with my providers. I’ve asked all my providers at UCSF & Anesthesiology at UCLA and they all say

11.04.2025 03:49 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Yes they also have that advocate nurse email / line available to call!

11.04.2025 03:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

This made me scream laugh. HAHAHA

Punk rock pole dancing sounds so epic

10.04.2025 20:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Omg I want!!!

10.04.2025 02:13 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thank you for what you’re doing ✨🀍

09.04.2025 04:19 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Love what you’re doing thank you πŸ₯ΊπŸ€

09.04.2025 04:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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