Pediatric Palliative Care Coalition

Register for the Nov 2025 PPC Webinar - The Father Experience in the Pediatric Healthcare System.

Dr. Chrissy Salley, from @CourageousCPN will facilitate a panel discussion among a group of fathers.

mailchi.mp/ppcc-pa/regi...

#pedpc #pedspc #hapc #hpm

Register for today's PPC Webinar - Using Photo-Narratives to Enhance Humanistic Care.

In this webinar, presenters will explore what photo-narratives are and how they have been used in serious illness care for children and families.

mailchi.mp/ppcc-pa/regi...
.
#pedpc #pedspc #hapc #hpm

October 10 Webinar: Navigating Periviable Birth

Explore survival, outcomes, and NICU care for infants at the edge of viability. Learn about ethical challenges, emerging treatments, and the role of palliative care in supporting families and care teams.

www.ppcwebinars.org/deeper-dive

Join us for a 3-part Deeper Dive into Ethics in Perinatal and Neonatal Care with presenters, Dr. Brian Carter, Dr. Christopher Collura and Dr. Robert Macauley.

October 3rd, 10th and 17th, 12pm ET.

www.tfaforms.com/5164780

#pedpc #pedspc #hapc #hpm #medicine #neonatal #perinatal

Woman holding a phone to her ear and engaged in a conversation beside a logo for the Lantern Initiative featuring a lantern with a flame and the acronym spelled out.

PPCC is excited to announce the launch of the LANTERN Initiative, providing peer support to PA families of children with medical complexity and intellectual/developmental disabilities as part of the new Resource Matching Program.

Learn more and get involved today!

www.ppcc-pa.org/resource-mat...

There is still time to register for the Sept PPC Webinar - Living in the Gray: A Case Series of "Everything But" for the Chronically, Critically Ill Child and Their Families.

This webinar will discuss compassionate strategies for aligning with families and overcoming barriers.

www.ppcwebinars.org

Betsy Hawley was featured on the Remembering a Life podcast.

This caring conversation focused on how to help ensure families have the resources and support they need while caring for a child at end of life and honoring that child in meaningful ways.

www.rememberingalife.com/blogs/podcas...

Our next PPCC Firefly Chat, Managing Pediatric Complex Care, will highlight the importance of communication, collaboration and strategies to support patients and families.

Firefly Chats are FREE, but registration is required.

Learn more and register at www.ppcc-pa.org/firefly-chat

We're excited and honored to be part of this quarter’s Register Round-Up at the East End Food Co-op!

Betsy had a great time today connecting with Co-op patrons, sharing the heart behind our mission and the impact of our programs.

There is STILL TIME to register for the June 2025 PPC Webinar - Addressing Health Equity and Racism in Pediatric Serious Illness.

Presenters will discuss ways health inequalities impact children facing serious illness.

mailchi.mp/ppcc-pa/regi...

PPCC is excited to announce the launch of the Resource Matching Program!

We are looking for Pennsylvania-based participants for our pilot program which will connect families with reliable resources, aiming to reduce the burdens on caregivers.

To sign up, visit docs.google.com/forms/d/e/1F...

The March 2025 PPCC Newsletter is now available!

This edition focuses on pediatric palliative care, hospitalizations and music therapy and features an article by Nicole Steele, MS, MT-BC, NICU-MT.

We hope you will take a few minutes to check it out!

mailchi.mp/ppcc-pa/ppcc...

*NEW* PPC Webinar Series Presents - Deeper Dive

Join us for a 3-part series which will take a Deeper Dive into pediatric pain and symptom management with presenter Melissa Hunt, PharmD, BCPPS.

This program will take place over 3 consecutive weeks in April. Noon-1:00pm ET

www.tfaforms.com/5164780

Register now for the March 2025 PPC Webinar - Medical Cannabis Therapy in Pediatric Palliative Care presented by Sarah Friebert, MD.

In this presentation, Dr. Friebert will outline the use and monitoring of medical cannabis therapy in a pediatric palliative care clinic.

mailchi.mp/chpcc.org/re...

The February 2025 PPCC Newsletter is now available!

This edition focuses on the role of social work in pediatric palliative care and features an article by Stacy S. Remke, MSW, LICSW, APHSW-C.

We hope you will take a few minutes to check it out!

mailchi.mp/ppcc-pa/ppcc...

Join us for our upcoming PPCC Firefly Chat on Tuesday, February 12th - A Discussion on POLST Forms for the Pediatric Patient in the Home Setting.

Firefly Chats are free, but registration is required.

For more information and to register, visit mailchi.mp/ppcc-pa/ppcc...

The January 2025 PPCC Newsletter is now available!

This edition focuses on Communicating with Adolescents and features an article on motivational interviewing by Rachel Kentor, Ph.D.

We hope you will take a few minutes to check it out!

You can find it here: mailchi.mp/ppcc-pa/ppcc...

Now in press at Academic Pediatrics, PaRC's Justin Yu & Pitt Med M3 student Kevin Huynh have published on emotional well-being among family caregivers of children. Kevin used a machine learning approach on data from the National Survey of Children's Health. https://buff.ly/3VaiDUl

New CMS Medicaid, CHIP Guidance Could Help Clarify Pediatric Palliative Care Payment The U.S. Centers for Medicare & Medicaid Services (CMS) recently released new guidelines intended to better support state-based pediatric

This is an important step forward for the often-overlooked CHIP and for #PedPC.

A scoping review of guidelines and frameworks for advance care planning for adolescents and young adults with life-limiting or life-threatening conditions. #hpm #hapc #palliativecare #pedpc buff.ly/4ccGKrN

Opinion | If My Dying Daughter Could Face Her Mortality, Why Couldn’t the Rest of Us? A bereaved mother’s case against our grief-phobic culture.

So many thoughts and feelings about this.
Their #pedpc #hospice experiences were so poor. Her pain wasn’t controlled. Her mother never heard clearly she wouldn’t be cured. Heart-breaking.
What are others thoughts?

www.nytimes.com/2024/11/25/o...

Spending the day teaching #Pediactric residents how to support and communicate with families of children who are dying or bereaved.

Grateful for our donors, residency program leadership, and @pittpediatrics.bsky.social for gifting us this day! #PedPC #hapc