@bsky.app I live Iβm Memphis, not Mississippi, but Iβm blocked from Bluesky on my laptop. Unlike on my phone app, I donβt get a location verification pop up
27.10.2025 21:05 β π 0 π 0 π¬ 0 π 0@crankyapricot.bsky.social
Encapsulated in mylar. Archivist and historian, living with recurrent chordoma and early-stage mesothelioma. Growing tumors is my BAP1 mutant superpower. Semi-expert in philanthropic studies. Asexual/agender, she/her. Vegan. π·
@bsky.app I live Iβm Memphis, not Mississippi, but Iβm blocked from Bluesky on my laptop. Unlike on my phone app, I donβt get a location verification pop up
27.10.2025 21:05 β π 0 π 0 π¬ 0 π 0The pottery from the lastest restock! I'm planning one more for November π
26.10.2025 10:46 β π 171 π 30 π¬ 3 π 0Commentary by @needhibhalla.bsky.social et al. on the recent attacks on DEI in biomedical research. Data show that diversity in the science increases creativity & success in tackling challenging problems.
π§ͺ www.nature.com/articles/s41...
Weβve seen where this ends.
The Nazis targeted disabled people.
Those in power rely on societyβs fear and misunderstanding of disability.
The truth is thereβs nothing to be afraid of.
We arenβt less than. We arenβt βbetter off deadβ.
Weβre worth fighting for.
Just published in JOSS: 'PyPaperRetriever: A Python Tool for Finding and Downloading Scientific Literature' https://doi.org/10.21105/joss.08135
19.09.2025 08:38 β π 4 π 2 π¬ 0 π 0#datalibs #medlibs NIH Data Management and Sharing Policy question - is data that was produced from grants that are now terminated still subject to the original grant terms and conditions?
15.09.2025 14:34 β π 0 π 3 π¬ 2 π 0I don't know the answer to that dilemma, but I enjoy the middle slice where the oranges are both blue and orange.
13.09.2025 22:54 β π 2 π 0 π¬ 1 π 0Help me build the St. Jude Archives and Special Collections as our new Digital Collections Archivist! This new position will be responsible for managing our oral history collection, our future Electronic Theses and Dissertations, and some digitization. It's a great early career archivist job.
08.09.2025 21:26 β π 1 π 0 π¬ 0 π 0A quickly-drawn picture of an empty cardboard box
Today the internet lost Maru, cat of legend, so I'm putting out an empty cardboard box for him.
06.09.2025 18:48 β π 734 π 245 π¬ 26 π 45Mask up, y'all!
The mechanism seems to be that 1) you still have dormant cancer cells (DCCs) when you're in remission, 2) specific T cells keep DCCs dormant, 3) COVID makes those cells not do their job right, & 4) lets the DCCs become active cancer cells and metastasize.
www.nih.gov/news-events/...
In A Few Words essay by Alan Finkelstein, PhD:
Giving Grace
bit.ly/45JzaUX (FREE)
...
Clarivate is planning to force us all to use their AI powered "smart search" by removing the opt-out option by November.
#medlibs π
webofscience.zendesk.com/hc/en-us/art...
You've probably already seen, but they do have a clinical trial that's recruiting: www.stjude.org/care-treatme...
17.08.2025 09:48 β π 1 π 0 π¬ 1 π 0St. Jude? www.stjude.org/media-resour...
16.08.2025 23:48 β π 1 π 0 π¬ 1 π 0#chronicillness #covidconscious Bloody vaccinate your bloody kids, a valuable public health notice from Joel Gustaffson thanks heaps to
@qrky.bsky.social
www.youtube.com/watch?v=o2wo...
We have agency.
We can speak up. We can show up.
Advocating for cancer care means speaking to legislators, bringing patient stories to the front lines of policymakers, supporting & amplifying each other to continue to do the work that changes outcomes.
β‘οΈ @oncoalert.bsky.social @statnews.com
We are currently in Year 5 of the existing funding cycle. Under typical circumstances, the new RFA would have been released in June; however, it is now anticipated to be issued after the current cycle concludes on April 30, 2026. A "gap year" or a βYear 6β is expected with no additional funding, with the next funding cycle set to begin on May 1, 2027. During that interim year (May 1, 2026 β April 30, 2027), many, if not all, Regional Medical Libraries and Offices will be closed. As a result, NNLM is not expected to offer funding opportunities, professional development, or related services during this time.
Potentially catastrophic behind-the-scenes news about the Network of the National Library of Medicine (www.nnlm.gov) shared with me today.
While some NNLM host institutions were able to float the offices while funding was paused or delayed in 2025... it is unlikely that happens again.
#medlibs π
NIH comment request for public access fees on NIH grants:
30.07.2025 20:51 β π 2 π 4 π¬ 0 π 0Nooooooooo!
29.07.2025 23:12 β π 0 π 0 π¬ 0 π 0Hank Green and T. Kingfisher got me through recovery from surgery and figuring out how my body had changed afterwards. The world definitely needs that video!
20.07.2025 18:36 β π 1 π 0 π¬ 0 π 0This is incredible. Not only is it beautiful work, it's a reminder that there is no shame in being increasingly disabled as multiple cancers slowly take my health and my life. This, too, is a process. Thank you @philsinabind.bsky.social and @sfdirewolf.bsky.social.
20.07.2025 18:24 β π 20 π 5 π¬ 1 π 0photograph of kaftan on mannequin.
Drift into the weekend in full colour! This dreamy pink & green kaftan from the Dame #zandra_rhodes_ collection is made for balmy #FashionFriday vibes #fashionhistory #dmufashion #a_stitch_in_time_13 #historicfashion #dmufashionmarketing #fashion
18.07.2025 08:01 β π 5 π 3 π¬ 0 π 0As a #childhoodcancer doctor, I'm proud to be able to advocate for children with cancer in any way that I can.
Here is a piece that I recently wrote for #TheDetroitNews, who kindly published it.
#PEDCan
#CANSky
www.detroitnews.com/story/opinio...
π¨ If you havenβt seen it yetβ¦
π’ The NIH BioArt Source provides a library of FREE professionally designed illustrations and icons, available for anyone to use. They can be Downloaded in High Definition.
Check it out at bioart.niaid.nih.gov
Children have died who have recovered from Cancer, only to be lost to COVID. Same for so many patients. Itβs not acceptable that five years on there is no correct PPE in healthcare. No clean air and restricted vaccines. One life isnβt worth less than another and this is dividing families too.
05.07.2025 10:15 β π 103 π 52 π¬ 2 π 0I bought my home hoping it could eventually be a point of refuge for other community members who may need a place to land
This loan stands between me and making that a reality
If you mean what you say about helping disabled folks + other marginalized groups, please consider helping me pay this off
Introducing the 2025-2030 NIH Strategic Plan for Data Science: What Researchers Need to Know
datascience.nih.gov/director/dir...
"Remember the NIH Data Management and Sharing Policy that went into effect last year? NIH is doubling down on supporting and effectively implementing the policy"
IU has the oldest Folklore Department in the country--no longer a major. Cognitive Science? gone! PhD programs also sacrificed. Full list here: www.in.gov/che/files/In...
30.06.2025 21:15 β π 683 π 220 π¬ 30 π 313/3
27.05.2025 08:56 β π 30 π 4 π¬ 1 π 02/3
27.05.2025 08:56 β π 23 π 3 π¬ 1 π 0