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@retinauk.bsky.social

89 Followers  |  7 Following  |  302 Posts  |  Joined: 03.12.2024
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Posts by (@retinauk.bsky.social)

#Accessible A photo of a male volunteer smiling as he takes a Helpline call, with the quote above as the caption: “Retina UK has helped me in so many ways - emotionally & practically.”

04.03.2026 11:32 — 👍 0    🔁 0    💬 0    📌 0
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Monthly gifts and memberships help us reach our 2026 goals. “This charity has helped me emotionally and practically. The sense of community and warmth is indescribable and I’m so grateful to Retina UK for always being there for me.”

Support us today: https://retinauk.org.uk/get-involved/donate

04.03.2026 11:32 — 👍 0    🔁 0    💬 1    📌 0
#Accessible featuring a white wearable assistive device with a padded band and compact control module, photographed on a light background. The text “#TopTechTuesday” appears at the top, and “The Sixth Sense” is displayed in bold orange text at the bottom.

#Accessible featuring a white wearable assistive device with a padded band and compact control module, photographed on a light background. The text “#TopTechTuesday” appears at the top, and “The Sixth Sense” is displayed in bold orange text at the bottom.

New navigation tech for people with sight loss from Hope Tech. Sixth Sense is worn like headphones, detects objects up to 3m using sonar, echolocation and computer vision, and offers GPS voice guidance via an app. Overview here: https://retinauk.org.uk/resource/toptechtuesday/

03.03.2026 14:01 — 👍 0    🔁 0    💬 0    📌 0
Retina UK logo with a gold “50” to it’s right.

Retina UK logo with a gold “50” to it’s right.

We are excited to have @retinauk.bsky.social take over our social media as part of #RPAwarenessMonth to raise awareness of the eye condition retinitis pigmentosa and the support they offer.

25.02.2026 09:00 — 👍 2    🔁 2    💬 0    📌 0
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Welcome to Visionary - Visionary Visionary is a membership organisation for local sight loss charities. Our Vision is for a world in which people living with sight loss can access the services they need at...

Out now February newsletter with updates from the sight loss sector!

We're talking Lived Experience in strategic decision making, SEND VI sector letter, @retinauk.bsky.social Scotland Research Update and much more!

Read on our Knowledge Hub (members only): https://www.visionary.org.uk

26.02.2026 10:00 — 👍 1    🔁 2    💬 0    📌 0
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Research update Join us to hear the latest inherited sight loss research news at a special in-person Retina UK event in Scotland in March.

Join @retinauk.bsky.social at Sight Village Scotland on 17 March for a free research update from 12noon -1pm at the Glasgow Science Centre.
Hear about inherited sight loss research, support and enjoy a free cuppa.
Register now and enter the prize draw: https://ow.ly/4vnx50Yk8Zp

27.02.2026 10:00 — 👍 0    🔁 1    💬 0    📌 0
#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Ger involved: Retina UK lived experience panel” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

#Accessible On a green background, large text reads “Science Saturdays,” with “Saturdays” highlighted in yellow. Below, text states: “Ger involved: Retina UK lived experience panel” An atom illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

For our final Science Saturdays of #RPAwarenessMonth, we’re highlighting the chance to shape future RP research. Join our Lived Experience Panel to share your insights and guide studies. Learn more: retinauk.org.uk/get-involved/lived-experience/

28.02.2026 14:02 — 👍 2    🔁 1    💬 0    📌 0
#Accessible grandient colour of blue across the post. In the centre is the white text "We support Rare Disease Day, 28 February 2026!. Bottom left is the white text "#RareDiseaseDay geneticalliance.org.uk/rdd26" with the Genetic Alliance and Rare Disease logos.

#Accessible grandient colour of blue across the post. In the centre is the white text "We support Rare Disease Day, 28 February 2026!. Bottom left is the white text "#RareDiseaseDay geneticalliance.org.uk/rdd26" with the Genetic Alliance and Rare Disease logos.

Happy #RareDiseaseDay!

We are joining @GeneticAll_UK and their 220+ members to call for an equitable future for everyone
living with rare conditions.

Add your voice to ours by sharing geneticalliance.org.uk/rdd26

28.02.2026 10:02 — 👍 4    🔁 1    💬 0    📌 0

#Accessible A smiling female runner, proudly holding her medal, with the caption: “Run the Great North Run with Retina UK!”.

27.02.2026 16:02 — 👍 0    🔁 0    💬 0    📌 0
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Do you want to run with #TeamRetinaUK in the world’s biggest half marathon on 13 September 2026? 🏃

If so, please visit https://retinauk.org.uk/event/great-north-run-2026 to secure one of our final spots today! 🥇We can’t wait to cheer you on in #Newcastle later this year! 🎉 #GreatNorthRun #GreatRun

27.02.2026 16:02 — 👍 0    🔁 0    💬 1    📌 0

#RetinaUK50 #LeaveALegacy #Legacies #Accessible A photo of 2 holding hands, with the caption: “Leave a lasting legacy through Retina UK...”

25.02.2026 12:01 — 👍 0    🔁 0    💬 0    📌 0
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Leave a lasting legacy with our free Will writing service. Every gift helps support people affected by inherited sight loss and drives vital research toward future treatments.

Learn more about supporting Retina UK with a free Will: https://retinauk.org.uk/remember-retinauk-in-your-will/

25.02.2026 12:01 — 👍 1    🔁 0    💬 1    📌 0
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding

#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “You don't look blind.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding

This week’s Myth Busting Monday tackles the phrase “you don’t look blind.” Sight loss isn’t always visible. RP varies day to day and person to person, and no one should have to “look” a certain way to be believed. Every experience is valid. #RPAwarenessMonth

23.02.2026 15:01 — 👍 1    🔁 0    💬 0    📌 1

#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Talk and Support service” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

For our final Support Sundays of #RPAwarenessMonth, we're highlighting our Talk and Support service. Get regular phone catch-ups with a trained volunteer who understands life with RP. If you'd welcome a friendly call, contact 0300 111 4000 or email us at helplined@retinauk.org.uk

22.02.2026 10:01 — 👍 3    🔁 0    💬 0    📌 1
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This week’s Science Saturdays looks at early research exploring whether eye drops could one day deliver treatment for retinal disease. Scientists are testing nanoparticles that may reach the retina. Read more: https://retinauk.org.uk/news/could-eye-drops-treat-retinal-disease-in-the-future/

21.02.2026 12:01 — 👍 1    🔁 0    💬 0    📌 1

#RetinaUK50 #TeamRetinaUK #5KADayInMay #Accessible A photo of a supporter, smiling in her Retina UK t-shirt, with her dog. The caption reads: “5K A Day In May is back for 2026!”

20.02.2026 12:02 — 👍 0    🔁 0    💬 0    📌 0
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5K A Day In May is back for our 50th anniversary year! 🥇
May is National Walking Month - donate £10 to take part, complete 5K of exercise every day, and ask friends and family to sponsor you. 💙

Sign up: https://retinauk.org.uk/event/5k-a-day-in-may-2026 🚶

20.02.2026 12:02 — 👍 0    🔁 0    💬 1    📌 0
 the background features a view of Glasgow’s Clyde Arc bridge and surrounding cityscape beside the river. Overlaid text reads: “Are you coming to Sight Village Glasgow? Join our free Retina UK research update event.” The Retina UK 50th logo is in the bottom left corner.

the background features a view of Glasgow’s Clyde Arc bridge and surrounding cityscape beside the river. Overlaid text reads: “Are you coming to Sight Village Glasgow? Join our free Retina UK research update event.” The Retina UK 50th logo is in the bottom left corner.

Heading to Sight Village Glasgow?

Make sure you’re registered for our free Retina UK research update event, featuring guest speaker Dr Birthe Hilgen from Newcastle University.

Register today: https://retinauk.org.uk/event/glasgow-research-update/

19.02.2026 18:30 — 👍 1    🔁 1    💬 0    📌 0

#Accessible A photo of a skydiver mid-air.

19.02.2026 09:30 — 👍 0    🔁 0    💬 0    📌 0
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Time’s running out to sign up for our Spring Skydive campaign! 🪂

If you’ve ever thought about facing your fears and doing something unforgettable, this is your moment. Take the leap, feel the rush and help support Retina UK.

Sign up: https://retinauk.org.uk/event/spring-skydive-2026. ✈️

19.02.2026 09:30 — 👍 0    🔁 0    💬 1    📌 0
#Accessible Navy blue background with a green speech bubble in the centre. Text says: "AAVantgarde Completes Enrolment in Phase 1/2 Clinical Trial for Usher Syndrome Type Be".

#Accessible Navy blue background with a green speech bubble in the centre. Text says: "AAVantgarde Completes Enrolment in Phase 1/2 Clinical Trial for Usher Syndrome Type Be".

Research news! 🔬

AAVantgarde Bio has announced the completion of enrolment in LUCE-1, their Phase 1/2 clinical trial evaluating AAVB-081 for the treatment of RP associated with Usher syndrome type 1B (USH1B): 

Read more: https://shorturl.at/PmYWH

18.02.2026 15:01 — 👍 0    🔁 0    💬 0    📌 0
#Accessible A picture of a previous male London Marathon runner, wearing his Retina UK vest and holding his medal.

#Accessible A picture of a previous male London Marathon runner, wearing his Retina UK vest and holding his medal.

Run the Virtual London Marathon with Retina UK and earn an official 2026 medal and t‑shirt! A perfect option if you missed out on the main event or want to take on the challenge from home. Secure one of our remaining places: https://retinauk.org.uk/event/tcs-london-marathon-myway-2026-virtual-event

17.02.2026 12:02 — 👍 2    🔁 1    💬 0    📌 0
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding

#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP affects everyone the same.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding

This week’s Myth Busting Monday tackles the idea that RP affects everyone the same. RP varies hugely from person to person - in symptoms, speed and impact. Every journey is different, and every experience is valid.

Let’s continue to bust the myths this #RPAwarenessMonth.
.

16.02.2026 13:01 — 👍 1    🔁 0    💬 0    📌 1
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Local Peer Support Groups.” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Local Peer Support Groups.” A cartoon white hand with a pink heard above is to the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

This week’s Support Sundays highlights our Peer Support Groups, bringing people affected by inherited sight loss together to share experiences and connect. Join online or in person across the UK. Learn more: retinauk.org.uk/information-and-support/services/local-peer-support-groups/

15.02.2026 11:01 — 👍 1    🔁 0    💬 0    📌 1
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This week Science Saturdays we're sharing news that jCyte, who have begun dosing participants in their Phase 2 trial of jCell, a stem-cell-based treatment for RP. Read more: https://retinauk.org.uk/news/cell-ebrating-the-dosing-of-patients-with-jcell-in-a-phase-2-clinical-trial-for-rp/

14.02.2026 08:30 — 👍 1    🔁 1    💬 0    📌 0

#Accessible A heart-shaped video, with the caption: "Share the love for Retina UK on Valentine’s Day!".

13.02.2026 12:02 — 👍 0    🔁 0    💬 0    📌 0
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Valentine’s Day is nearly here! 💘

If you would like to share the love for your favourite charity, please text ANNIVERSARY to 70560 to donate £10 to Retina UK. 💕

Please note that your donation will cost £10 plus 1 standard network rate message. ❤️‍🔥

13.02.2026 12:02 — 👍 0    🔁 0    💬 1    📌 0
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From collecting stamps to birthday fundraisers to Easter bake sales, there are lots of ways to support Retina UK this spring. 🌸 Our Stamps Appeal has already raised over £7,000 thanks to supporters like Rose. Find out more: retinauk.org.uk/get-involved 💙

10.02.2026 15:03 — 👍 1    🔁 1    💬 0    📌 0
#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP only affects older adults.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

#Accessible on a dark blue background, large text reads “Myth Busting Mondays,” with “Mondays” highlighted in yellow. Below, the myth is stated: “RP only affects older adults.” A yellow lightbulb illustration appears on the right. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

This week’s Myth Busting Monday tackles the idea that RP only affects older adults. RP can begin at any age, with early signs often appearing in childhood or teenage years. Every timeline is different, and every experience is valid.

Let’s bust the myths this #RPAwarenessMonth.

09.02.2026 12:02 — 👍 2    🔁 1    💬 0    📌 2
#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Helpline.” A cartoon white hand with a pink heard above is to the right.. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

#Accessible On a purple background, large text reads “Support Sundays". Below, text states: “Retina UK Helpline.” A cartoon white hand with a pink heard above is to the right.. At the bottom are the hashtag “#RPAwarenessMonth” and the Retina UK logo with “50 years” branding.

Welcome to Support Sundays for #RPAwarenessMonth. Today we’re signposting the Retina UK Helpline, run by volunteers with lived experience of sight loss. If you need information, reassurance or someone who truly gets it, we’re here to listen. Call 0300 111 4000 or email helpline@RetinaUK.org.uk.

08.02.2026 13:01 — 👍 2    🔁 1    💬 0    📌 1