Dr @binitakane.bsky.social explains how a theory that #MECFS is caused by deconditioning and a fear of exercise permeated medicine and framed the illness as psychological. This led to the patients being neglected, gaslit, and some would say abused. Causing huge trauma for the community.

Clip 2 (WDR German TV): Dr Astrid Weber from the Long Covid Clinic in Koblenz says ME/CFS cases have exploded since Covid. ME/CFS isn’t new — despite being around for decades, many doctors know little about it. She wants to educate them. It’s a physical, not a mental, illness.

need one of those german train-car noun constructions for ‘the sense of betrayal a woman suffers when a thinker who was hugely influential to her turns out to be the same bog standard worthless misogynist as everyone else’

Touching, beautiful images💙

Te puhuitte teoin -mielenosoitukset kautta Suomen
14.2.2026 kello 14. Alla olevissa paikoissa.

Listasta puuttuu Tampere, jossa on mielenosoitus myös Hämeenpuisto, Vapauden patsas.

Laittakaa tietoa eteenpäin. Täällä ei ole organisoijien puolesta ollut tietoa. Se löytyy Facesta tai IG:stä.

Shame, was a little late😓

Tämä on oikein hyvä👏

@dear_chronic_pain i had plans, my body cancelled them (it's in front of some blue and some sparkles and bubbles)

@dear_chronic_pain

Image of a rope being held together with by a tiny thread “Screaming Immune Activation”: Major Lipkin Study Finds ME/CFS Systems Folding Under the Stress A couple of major themes are present. Immune activation on a massive scale. Failures on multiple levels to provide the muscles with the necessary energy to exercise. Metabolic inflexibility that prevents the body from getting into “exercise mode”. A toxin and free radical-laden system that’s co-opting resources needed to deal with exertion. An extracellular matrix is under attack, but is unable to defend itself, and a variety of systems are so stressed that they fold when stressors show up. The really remarkable thing is that a coherent argument can be made that, like dominoes falling, virtually every one of the abnormalities cited above can be linked together. They may be the logical conclusion of an energy-depleted, toxin-overrun system. Read more here>>

“Screaming Immune Activation”: Major Lipkin Study Finds ME/CFS Systems Folding Under the Stress

www.healthrising.org/blog/2025/09...

Screenshot from AMMES December 2025 newsletter

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Wow this is a great essay.

#NEISvoid

Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise - The Sick Times An analysis by The Sick Times find that less than 15% of Long COVID clinical trials testing the benefits of exercise or cardiopulmonary rehabilitation measured post-exertional malaise, according to th...

The Sick Times @thesicktimes.org : Less than 20% of Long COVID trials involving exercise even mention post-exertional malaise

thesicktimes.org/2025/11/21/l...

Experts say testing exercise is “money down the drain” and won’t advance understanding of Long COVID.

#LongCovid #PEM

Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!

Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!

#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono

Drawing of very wilted plants camilla @predi_cam_ents The plants from @thechronicchloe ’s room have all been moved🪴. She barely tolerates any light lately and they were slowly wilting. Every time I see them I’m reminded of yet another thing she’s lost to ME/CFS 😔

Shared with permission

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

Tää suomen säästöpuhe velan taittamisesta vertautuu mun mielestä hevosen hoitoon.

Leikataan hevoselta ruoasta 20% ja ihmetellään, miksi se ei jaksa juosta kovempaa. Leikataan ruoasta 50% ja ihmetellään samaa. Lopuksi hevoselta leikataan kengät ja mietitään, miksi se ei taaskaan juokse kovempaa.->

Hope they get the required amount!!

One of the big COVID facts that tend to make people go deer in headlights is the high percentage of asymptomatic infections. Unfortunately these infections can still cause you or others problems months or years later. This was known back in 2020 but shushed up afterwards.

Long COVID-19: a Four-Year prospective cohort study of risk factors, recovery, and quality of life — Kamal et al. "This four-year prospective cohort study was conducted in Saudi Arabia, enrolling adults with confirmed acute COVID-19 from multiple affiliated healthcare centers between March 2020 and March 2024." "Nearly 29% of post-acute COVID-19 patients developed long COVID-19"

"Long COVID-19: a Four-Year prospective cohort study of risk factors, recovery, and quality of life"

bmcinfectdis.biomedcentral.com/articles/10....

"Nearly 29% of post-acute COVID-19 patients developed long COVID-19"

#LongCovid #PASC #Novid

Gorgeous - i love it😍

See you soon for our genetic results webinar! Spots are limited to 3000, and registering does not guarantee a spot. Don't worry - we will also be sharing it live to our Facebook page at the time facebook.com/decodeMEstudy
as well as recording it so that you can watch it back.

On tärkeää, että pitkää koronaa käsitellään edelleen mediassa – aihe on yhteiskunnallisesti merkittävä ja koskettaa monia. Käsittelyn tulee kuitenkin olla monipuolista, tasapainoista ja rohkeaa. Tällä hetkellä kukaan ei tunnu uskaltavan kyseenalaistaa HUS:n Pitkittyneiden oireiden klinikan […]

I feel like I'm trapped in a symptoms cyclone

#freedomflotilla #madleen #gaza #palestine #greta

#madleen #flotilla #gaza #greta

Clips from The Golden Girls (1989): Dorothy sees a neurologist after months of #MECFS symptoms. He tells her there’s nothing wrong, it’s just ageing — and suggests a psychiatrist. She begins to doubt herself—until Rose comforts her saying “Doctors don’t know everything.”

Mikä pettymys, (vaikkei yllätäkään), hallitukselta jää uupumaan teot palestiinalaisten kansanmurhan pysäyttämiseksi.

Kas, kerrankin muutakin kuin liiran laarumia!

Espanjalaiskanava keskeytti Euroviisujen finaalilähetyksen ja esitti Palestiinaa tukevan lausunnon ”Kun ihmisoikeudet ovat vaakalaudalla, hiljaisuus ei ole vaihtoehto”, RTVE:n viestissä kirjoitettiin. RTVE:n mukaan se sai Ebulta varoituskirjeen kannanottoaan edeltäen.

Israel suorittaa kansanmurhaa: EBU päästää palkintopallille.

Espanja puolustaa ihmisoikeuksia: EBU uhkaa sakoilla!

– Kun ihmisoikeudet ovat vaakalaudalla, hiljaisuus ei ole vaihtoehto. Rauhaa ja oikeutta Palestiinalle!

Germaine's poem from 25 years ago is deeply moving and a powerful reminder of why awareness and support are still so needed. Thank you for sharing💙
#mecfs #MEawarenessday.”

Israel is starving Gaza. It’s a cheap, silent and brutal way to kill | Ahmed Moor Starvation is a slow, painful way to die. And unlike bombs and tanks, it’s easy for western leaders to ignore

Reminder that half the population of Gaza are children.

www.theguardian.com/commentisfre...

In what world is this acceptable? In what world can any country continue to provide weapons to a nation who declares it will seize all of the land of another people and remain there as long as it wishes, perhaps forever? In what world do other governments remain silent about this?
Sadly, in ours.