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Chronicallyillgoddess

@spooniegoddess.bsky.social

๐Ÿ˜ทJust a chronically ill, disabled, neurodivergent warrior and mom tired of the collective mindset. ๐Ÿ›ก๏ธBattling #longcovid since February 2020. ๐ŸฉธBlood clot survivor ๐ŸŽ—๏ธMecfs, pots, mcas, autoimmune and the list goes on.

74 Followers  |  35 Following  |  50 Posts  |  Joined: 08.11.2024  |  1.8294

Latest posts by spooniegoddess.bsky.social on Bluesky

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Long COVID is Now the Number One Chronic Illness in Children Repeatedly mass infecting kids with COVID is not a public health strategy. It's a fast pass to declining population health

After abandoning every mitigation and infecting kids repeatedly, our media wants to know: why do so many children have Long COVID?

My latest looks at the newest research, the comforting lies that just won't die, and how we got here:

www.thegauntlet.news/p/long-covid...

16.06.2025 02:20 โ€” ๐Ÿ‘ 709    ๐Ÿ” 365    ๐Ÿ’ฌ 16    ๐Ÿ“Œ 41

When you become chronically ill, your world shrinks.

You canโ€™t do a lot of the things you used to. People disappear. It can be an isolating existence.

That said, you learn to slow down, simplify your life & reject rampant consumerism.

These skills will be invaluable when facing whatโ€™s to come

10.05.2025 04:57 โ€” ๐Ÿ‘ 357    ๐Ÿ” 66    ๐Ÿ’ฌ 11    ๐Ÿ“Œ 1
11.04.2025 11:55 โ€” ๐Ÿ‘ 2    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I donโ€™t know who needs to hear this but if youโ€™re letting your kid catch covid over & over, they can still get things like measlesโ€”even if theyโ€™re vaccinated. Why? Because vaccines arenโ€™t as effective in immunocompromised people. And what does covid do really well? It makes people immunocompromised

07.04.2025 15:37 โ€” ๐Ÿ‘ 3    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Providers like them are rare gems in a broken system and society.

25.03.2025 14:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Just got an email this morning that Iโ€™m losing my neuro ophthalmologist. Sheโ€™s leaving to pursue other things. ๐Ÿ˜ญ I loved this doctor so much! Sheโ€™s helped me in so many ways. I already lost my amazing primary care doctor last year (still havenโ€™t replaced them), and now this.

25.03.2025 14:19 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

COVID, flu, measles, and all airborne viruses can seriously harm anyone, not just people who are immunocompromised. EVERYONE has a medical reason to wear a mask at any time and in any place.

21.03.2025 22:17 โ€” ๐Ÿ‘ 2161    ๐Ÿ” 668    ๐Ÿ’ฌ 27    ๐Ÿ“Œ 23

While also failing to realize that chronic illness and disability from ignoring the science will cause them inconvenience of all kinds too.

21.03.2025 18:46 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Ppl are so mad at RFK Jr. But let's stop pretending that ppl actually care about the science. Bc if they did, they would still be in masks right now & demanding/pushing for clean air in our schools, healthcare, etc. Ppl only care about the science that doesn't cause them inconvenience of any kind.

21.03.2025 18:46 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Soooo whereโ€™s those masks they said were required at their event? So unserious ๐Ÿ™„๐Ÿ˜’

21.03.2025 15:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Soooo whereโ€™s those masks they said were required at their event? So unserious ๐Ÿ™„๐Ÿ˜’

21.03.2025 15:29 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ“ฃ CALL TO ACTION FOR ILLINOISANS ๐Ÿ“ฃ

The Clean Air for Healthy Equitable Schools bill (SB2193) is now in the Appropriations-Education committee. Please email/call your state senator to voice your support/ask them to co-sponsor the bill. See the script below.

Not from IL??? Then pls repost. Thanks!

20.03.2025 00:09 โ€” ๐Ÿ‘ 2    ๐Ÿ” 3    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 1

Yep. Weโ€™re bombing cancer centers. This country disgusts me.

18.03.2025 18:11 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

It is understandable that you
feel unwell,
for you live in sickening times:
the state of the world
will nauseate you,
the fear for the future
will exhaust you,
the spreading viruses
will infect you,
in these sickening times
what would be worrisome
is if you felt fine.

18.03.2025 16:02 โ€” ๐Ÿ‘ 122    ๐Ÿ” 47    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 1

Fascists want us divided, uninformed and sick. A sick, apathetic population wonโ€™t put up much of a fight.

Protect your health. Read local independent journalists. Support libraries, community fridges & food banks. Give to mutual aid. Wear a mask.

Strong inclusive communities will save lives

18.03.2025 05:35 โ€” ๐Ÿ‘ 487    ๐Ÿ” 183    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 4

In terms of the pandemic, this problem is worldwide with governments and societies. It isnโ€™t isolated to just the U.S.

17.03.2025 23:10 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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TODAY IS LONG COVID AWARENESS DAY!

On #LongCOVIDAwarenessDay, help raise #awareness by sharing facts about #LongCOVID! #FactsMatter

15 Facts | 15 Hours | #FiveYearsLater

See the thread below for individual facts to post! Share them all, tag a friend. #longcovidawareness2025

15.03.2025 13:54 โ€” ๐Ÿ‘ 38    ๐Ÿ” 22    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 3

Today marks the five year anniversary of Covid being declared a pandemic. Some things I want people to remember:

The threat is not gone. People are still dying and becoming disabled every single day

COVID is airborne. Itโ€™s always been airborne.

๐Ÿงต

12.03.2025 05:12 โ€” ๐Ÿ‘ 858    ๐Ÿ” 332    ๐Ÿ’ฌ 9    ๐Ÿ“Œ 17

When someone becomes disabled or chronically ill, people will twist themselves into knots finding a way to blame them. They need to find fault so they donโ€™t have to face the randomness of life.

The truth is, anyone can become disabled at any time.

Good health is not a guarantee.

11.03.2025 04:40 โ€” ๐Ÿ‘ 1840    ๐Ÿ” 541    ๐Ÿ’ฌ 44    ๐Ÿ“Œ 34

Meanwhile we have schools like my childrenโ€™s that have the nerve to spotlight their 20+ absences during an IEP meeting & ask if thereโ€™s anything they could do to help. Yeah, advocate for masks and clean air in your school. But all we get are responseโ€™s like, โ€œyeah, viruses can be tricky. Iโ€™m sorryโ€

09.03.2025 01:11 โ€” ๐Ÿ‘ 30    ๐Ÿ” 9    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Vaccines work best when we reduce transmission. Letting c19 rip fuels chronic illness, disability, weakens immune responses, and makes even the best vaccines less effective. If you care about public health, you should care about masking too.

03.03.2025 18:06 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Itโ€™s 2025 and people are still mad at anti vaxxers while refusing to maskโ€”actively creating more immunocompromised people and making vaccines less effective. You canโ€™t be pro science while ignoring how repeated infections fuel long term vulnerability.

03.03.2025 18:06 โ€” ๐Ÿ‘ 1    ๐Ÿ” 1    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Yesterday morning on my way to drop my kids off at school, I see a train on the train tracks up ahead. As Iโ€™m getting ready to pass under the bridge, I see an oil tanker pass by w/ spray paint on it that read โ€˜Are you paying attention yet??โ€™ It definitely got my heart palpitations going & triggered.

28.02.2025 15:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Itโ€™s hard to explain the hope I had at the beginning of the pandemic. I was scared, but I also thought we were going to become a more inclusive society. We would care more about chronic illness.

Having that hope ripped away and replaced with eugenics & fascism has been incredibly painful.

25.02.2025 04:50 โ€” ๐Ÿ‘ 1211    ๐Ÿ” 213    ๐Ÿ’ฌ 35    ๐Ÿ“Œ 12

I am 38. Covid aged me by 30 years. No, thatโ€™s not an exaggeration. And yes it took 4 infections in 5 years to reach this point. My partner jokingly makes fun of me and my old lady ways ๐Ÿ’€

19.02.2025 16:26 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Long covid is making adjustments you never wanted to makeโ€”like cutting your hair because you canโ€™t take care of it anymore.

13.02.2025 23:43 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Yep, happened here in Illinois too with one of the health systems. I donโ€™t think it was a big one, but still. ๐Ÿ˜ž

13.02.2025 14:33 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

When youโ€™re chronically ill, your baseline is everything. Managing it can be a full time job.

Non disabled people canโ€™t understand how hard we work to ration energy, avoid infections & minimize setbacks.

Even when you do everything โ€œrightโ€, progress can be wiped out in an instant ๐Ÿงต

12.02.2025 03:31 โ€” ๐Ÿ‘ 590    ๐Ÿ” 147    ๐Ÿ’ฌ 10    ๐Ÿ“Œ 13

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