Bateman Horne Center

New Hope in Fibromyalgia Treatment: Understanding Tonmya Quick Take Fibromyalgia has long been a frustrating condition for both patients and doctors. It causes widespread pain, poor sleep, exhaustion, “fibro-fog” (trouble with memory and concentration)…

Correct link bit.ly/3VOM3r1

Big news in fibromyalgia care:
The FDA just approved Tonmya, the first new treatment for fibromyalgia in 15+ years.

What it is, what trials showed, and what it means for patients: https://bit.ly/3WiAo3R

#Fibromyalgia #ChronicIllness #NewTreatment

Upcoming events in October 2025 by Bateman Horne Center: Coffee with a Clinician on Oct 8, and Support Groups on Oct 14 & 21.

Upcoming in Oct! 💙
☕ Oct 8 – Coffee with a Clinician: Navigating Clinical Uncertainty
💬 Oct 14 – Support Group: Healthcare & Self-Advocacy
💬 Oct 21 – Support Group: Parenting w/ Chronic Illness

Free & open to all. Register: https://bit.ly/48DiM7Q

Text-based graphic with one photo. Text: New publication. Managing myalgic encephalomyelitis/chronic fatigue syndrome: a new narrative. a chapter in a new Elsevier textbook written by coauthors from #MEAction, Mayo Clinic Rochester and the Bateman-Horne Center. “I was honored to co-author this chapter with colleagues from Mayo Clinic and the Bateman-Horne Center to give clinicians and researchers the tools they need to better recognize, study and treat ME/CFS.” Jaime Seltzer, Scientific Director, #MEAction Photo: Jaime Seltzer (white woman with long, dark hair) wearing glasses and cream blazer and red top slightly smiling.

Stellar new work from @grachstephanie.bsky.social, @exceedhergrasp1.bsky.social, @batemanhornecenter.bsky.social's Bell and Yellman & @raviganeshmd.bsky.social in the Elsevier text 'The Scientific Basis of Fatigue'! The book has chapters on #MECFS, COVID, Parkinson’s, stroke, and multiple sclerosis.

White ribbon on teal background with text: "October is POTS Awareness Month."

October is #POTS Awareness Month!
POTS is a serious condition where simply standing can cause rapid heart rate, dizziness, fainting, and crushing fatigue. It often strikes those with #MECFS & #LongCOVID. All month we’re sharing resources & raising visibility. Stay tuned!

Hands of diverse individuals joined in unity; text reads "September Recap" with a note about outreach events, under tabs "BHC," "Support Group," and "Peer Perspectives."

September at BHC:
Support Groups: humility & purpose
Final Peer Perspectives: Favorite Things

PPC has closed, but connection continues with new events ahead. 💙
📬 Subscribe: https://bit.ly/3rnvhjq
📖 Access past recaps: https://bit.ly/4pKFYth

#MECFS #LongCOVID

Screen displaying a joint with a magnifying glass and a virus icon, titled "New Blog Post." Text above: "The next expansion: Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions." BatemanHorneCenter.org/blog/

#Rheumatology once expanded from joints to systemic autoimmune disease. Now, it must prepare for infection-associated chronic conditions like ME/CFS, #POTS & dysautonomia, or risk leaving millions in limbo. Read more on today's blog → https://bit.ly/4mByFl3

#MECFS #LongCOVID

Quote from August 19 Support Group Attendee: "This group is a soft space for us to land when the world kicks us down. We keep showing up for each other."

A soft space to land. 💙
BHC holds 2 support groups each month, 2nd & 3rd Tuesdays, 1:00 pm MDT.

Join us: http://batemanhornecenter.org/events/
#MECFS #LongCOVID #PeerSupport

PEM is a debilitating & hallmark feature of ME/CFS.

New free module covers:
• What PEM is
• Triggers & warning signs
• Pacing & management tips

📘 Learn at your own pace: emerge.org.au/lea-ea-bhc/

Create your account today!
#PEM #MECFS #LongCOVID
@emergeaustralia.bsky.social

ME/CFS scored lower in quality of life than cancer, stroke & MS in one study. Millions, many post-COVID, are now disabled. This illness is real and requires greater recognition, research, and education. 💙Support these efforts today: https://batemanhornecenter.org/donate/ 

#MECFS #LongCOVID

Invitation to "Coffee with a Clinician" on Wednesday, October 8 at 10:00 am MDT. Visit batemanhornecenter.org/events to register

☕ Introducing Coffee with a Clinician, launching Oct 2025!

Free monthly Zoom (30–45 mins) led by expert knowledge. Learn from the Clinical Care Guide or join Q&A.

An optional $5 “coffee” donation helps us connect with more clinicians worldwide: https://bit.ly/4grlbXr

#MECFS #LongCOVID #Fibro

Thank you for sharing

Link works now!

Illustration of a mitochondrion glowing in orange against a dark background with silhouettes of a man and woman, titled "Mitochondria in the Spotlight".

For decades, people with ME/CFS faced stigma and little research funding. Now, NIH has spotlighted ME/CFS in its feature on mitochondria—a step toward recognition. Learn about the mitochondria connection & why this matters for #MECFS, #LongCOVID, & related conditions: https://bit.ly/4mjda8g

World map background with text: "INTERNATIONAL COLLABORATION ME/CFS & Long COVID Education." Logos of Bateman Horne Center and Emerge Australia. Text: "Collaborating to improve global support for individuals with ME/CFS, Long COVID & IACCs."

Back in May, we partnered with @emergeaustralia.bsky.social  🌍
Now we’re highlighting the powerful tools that came from it.

These free education modules help you:
✔️ Understand PEM
✔️ Recognize orthostatic intolerance
✔️ Build a pacing plan

Explore them now: https://emerge.org.au/lea-ea-bhc/

Woman sitting on a couch with a laptop, smiling. Text highlights event "Peer Perspectives & Connections" on Sept 18, 2025, at 11:30 am MDT. Online event by Bateman Horne Center with registration details.

🌟 Final Peer Perspectives & Connections → Sept 18, 11:30am MDT
Theme: Favorite Things—what helps, comforts, or uplifts you.
💙 Join us one last time in this shared space.
🔗 Register: https://buff.ly/WRhsRXQ

Journal of Clinical Medicine highlights that nearly all people with ME/CFS have autonomic dysfunction linked to illness severity.

Journal of Clinical Medicine: "Recognition is the first step to better care." Encourages reading the full study in the journal.

A major multi-site study shows 97% of people with ME/CFS have autonomic symptoms, from dizziness to GI issues. These are strongly linked to illness severity.

Better recognition through tools like COMPASS-31 & NASA Lean Test can improve care.

Read more: https://buff.ly/VldyR9X

A woman is seated on a couch using a laptop displaying "Online Support Group." Text reads: "The Chronic Illness Experience: Creating Purpose and Meaning," with event details.

Tues, Sept 16 • 1:00 pm MDT • Zoom
The Chronic Illness Experience: Creating Purpose & Meaning
Facilitated by Timothy Weymann, LCSW.
✨ Reflection Questions: values, meaning, growth, authenticity.
🔗 Register: https://buff.ly/uf0bWiz 
#MECFS #LongCOVID

BHC graphic with four illustrated panels highlighting key focus areas. Top left: 'Concentrated Expertise' with an icon of a target and a person. Top right: 'Evidence-Informed Tools' with an icon of a checklist and shield. Bottom left: 'Education at Scale' with an icon of a graduation cap over three people. Bottom right: 'Research and Innovation' with icons of a microscope and atom symbol. The Bateman Horne Center logo and tagline 'Research | Clinical Care | Education' appear at the top.

ME/CFS patients couldn’t wait for a government-funded Center of Excellence, so Dr. Bateman created one.
Read how urgency met vision in this BHC blog post: https://buff.ly/1B0915b

#MECFS #LongCOVID #CenterOfExcellence

Illustrated graphic with the text: 'Where Conversations Began, Connection Continues.' Below the text, a diverse group of people stand in a large circle, arms around each other, symbolizing community and unity.

A decade of growth. From Lunch & Learn ➡️ Peer Perspectives & Connections, we’ve built community & shared wisdom together. 💙

This month we say goodbye to PPC—next up: Coffee with a Clinician launches Oct 2025 ☕

#MECFS #LongCOVID #PeerSupport

A group of masked advocates with Long COVID who attended the RECOVER-TLC workshop on new Long COVID clinical trials

The two-day RECOVER-TLC workshop on new #LongCOVID clinical trials has concluded. You can read our live-blog of every session from the workshop at The Sick Times: bit.ly/4giPmAi

White background graphic with elegant script and bold text. It reads: 'Thank You for Your Generosity. We raised nearly $434,000 through our One Guide. One Goal. campaign.' A simple heart illustration is in the center. At the bottom left is the Bateman Horne Center logo with the words 'Research | Clinical Care | Education.'

Because of you, we raised nearly $434K through our #OneGuideOneGoal campaign! 💙

Your support equips providers worldwide with the tools to better recognize, diagnose & treat #MECFS, #LongCOVID & other IACCs.

From all of us at BHC: thank you.

Research announcement graphic. At the top, citation text reads: 'Che, X., Ranjan, A., Guo, C. et al. Heightened innate immunity may trigger chronic inflammation, fatigue and post-exertional malaise in ME/CFS. npj Metab Health Dis 3, 34 (2025).' Below is an illustration of a person with a magnifying glass examining papers, charts, and a large question mark. Text reads: 'Nature. New Research Uncovers Immune-Metabolic Clues in ME/CFS.' Website link at the bottom: www.nature.com

Why does exertion worsen #MECFS?
This study finds the immune system overreacts & energy metabolism breaks down after activity—fueling post-exertional malaise.
📖 buff.ly/Nd1Bs7F

#PEM #ChronicIllness #LongCOVID @nature.com

Motivational graphic with textured paper pinned against a layered blue and brown paper background. The paper reads: 'Daily Motivation. It is important to do things that bring us joy and make us feel alive because we deserve to feel alive. – Meredith Mehner, LCSW, May 12, 2025.' Below the paper, text says: 'Support Group Tuesday, September 9, 1:00 PM MDT.

Continuing Aug’s convo: moving from humiliation & shame → humility & pride. Join our Sept 9 support group, 1 pm MDT on Zoom, facilitated by Timothy Weymann, LCSW. 🔗 buff.ly/JGxIAz6
#MECFS #LongCOVID

Illustrated graphic with the text 'Closing a Chapter, Honoring the Journey.' Below, an illustration shows five people sitting around a dinner table, sharing food, drinks, and conversation. The table is set with plates of salad, rolls, and desserts, creating a warm, communal atmosphere.

From Lunch & Learn → Peer Perspectives & Connections, our events have built community through shared experiences. 💙

This Sept marks the final PPC. Thank you to all who shared your wisdom + stories along the way. Stay tuned...

#MECFS #LongCOVID #CommunitySupport

🌱This summer, BHC intern Ashley Johnson learned from people with ME/CFS and Long COVID—and from dedicated BHC clinicians.

“This cemented that this is the field I want to pursue.”

BHC trains future providers to care for people with #MECFS and #LongCOVID. #SeedsOfKnowledge

These are excellent additions. Thank you!

Graphic with a blue gradient background. Large quote text reads: 'We must make the correct diagnoses, rather than telling patients they ‘don’t have anything’ or labeling them with ‘functional neurological disorder.’ This type of dismissal can no longer be tolerated.' – Brayden Yellman, MD. Below, text says: 'Medscape article: Where Is the Medical Home for Post-infectious Illness?' At the bottom, text reads: 'Read full article: https://bit.ly/47Mndzb .' On the right side is a smiling male doctor in a white coat, blue checkered shirt, tie, and stethoscope.

“We must make the correct diagnoses, & stop dismissing patients with IACCs as having ‘nothing’ or Functional Neurological Disorder. This dismissal can no longer be tolerated.” –Dr. Brayden Yellman, @medscape.com buff.ly/3DxvK9H

#MECFS #LongCOVID

Flyer titled 'Upcoming Events Sept 2025.' Three events are listed: – Tuesday, September 9 at 1:00 pm MDT: Support Group, 'Moving from Humiliation and Shame to Humility and Pride. (Back by request) – Tuesday, September 16 at 1:00 pm MDT: Support Group, 'The Chronic Illness Experience: Creating Purpose and Meaning.' – Thursday, September 18 at 11:30 am MDT: Peer Perspectives & Connections, 'Share Your Favorite Things!' At the bottom is the Bateman Horne Center logo and website link: BatemanHorneCenter.org/Events/

September at BHC 💙

Sept 9 – Moving from Humilitation and Shame to Humility and Pride
Sept 16 – Creating Purpose and Meaning
Sept 18 – Peer Perspectives: Share Your Favorite Things!

Register: batemanhornecenter.org/events/

#MECFS #LongCOVID #ChronicIllness

Dark room with light filtering through lace curtains, casting tree shadows on the fabric. White text below reads: “YOUR KINDNESS CAN CHANGE LIVES. DONATE TODAY. Reaching our goal funds the accredited continuing medical education (CME) built from the guide, so providers learn it deeply and use it in practice.

Today is the final day of our campaign & your last chance to double your gift in John’s honor. His family matches up to $20k to get the Clinical Care Guide in more clinicians’ hands. We’re at 85%—help close the gap!
💙 givebutter.com/OneGuide_One...