Bateman Horne Center

Scientist handling test tubes in a lab. Text reads: "Advancing Science. Building Access. At BHC, leaders transform research for ME/CFS, Long COVID, IACC community."

Science matters most when it becomes care.
See BHC's top ME/CFS & Long COVID research blogs of 2025 → https://bit.ly/4pTVse6
#BuildAccessNow

We're hoping to get there soon!

Donate $175+ to Bateman Horne Center and we'll send a Clinical Care Guide directly to a provider of your choice (U.S. only). bit.ly/3KfdDvj

Giving Tuesday donation promotion by Bateman Horne Center. Donate $175+ for a printed Clinical Care Guide to a U.S. provider of your choice.

It’s Giving Tuesday! We’re raising $500k to launch BHC’s Access to Care framework, bringing informed, compassionate care to patients everywhere.

Give $175+ to send a Clinical Care Guide to your provider, or give any amount to support the model: https://bit.ly/3KfdDvj

#BuildAccessNow

Upcoming events in December 2025: - Dec 9, 1:00 pm MST, Support Group on managing holidays with chronic illness. - Dec 10, 10:00 am MST, 'Coffee with a Clinician' on pacing for holidays. - Dec 16, 1:00 pm MST, Support Group on freedom from thinking traps amidst chronic disease. Visit BatemanHorneCenter.org/Events for more.

The holidays can be overwhelming, you don’t have to navigate them alone.

BHC’s December online events offer a supportive space to talk through challenges, learn pacing strategies, and connect with others who truly understand.

💙 Register at https://bit.ly/4npZ4Ud

Giving Tuesday, Dec 2. Spread the word! Bateman Horne Center logo at the bottom.

Giving Tuesday is coming up soon. 💙

This year, we’re rallying our community to help expand access to informed, compassionate care for people with ME/CFS and Long COVID.

More details coming soon, stay tuned.

We’re entering a new chapter at the Bateman Horne Center. After years of building evidence-informed tools like the Clinical Care Guide, we’re now turning kno... BHC Redefines Access to Care

A new chapter is beginning at BHC: https://bit.ly/3KfdDvj 

We’re moving from creating resources to expanding access through the Access to Care Model, helping patients with ME/CFS, Long COVID & other IACCs receive informed, coordinated care, no matter where they live.

Blue heart with the text "Self-Care for Carers" in front. Emerge Australia logo is in the bottom left corner.

Being a caregiver often means putting another person’s needs first. @emergeaustralia.bsky.social's Self-Care for Carers guide offers strategies to help protect and balance their own wellbeing.

🩵 Read it here 👉 https://bit.ly/47xsysl

#mecfs #caregiverawarenessmonth #unitedforme

Text "We see you" and "happy thanksgiving" with autumn leaves, berries, and a small pumpkin on white wood. Bateman Horne Center logo at bottom.

On this Thanksgiving, BHC is mindful of those living with ME/CFS, Long COVID, and related chronic conditions. You’re seen, and you’re held in our thoughts.

When a loved one with #MECFS or #LongCOVID experiences a crash, knowing how to respond matters. 💙 Our Caregiver Guidance resource offers practical steps for safe, compassionate support during post-exertional malaise (PEM).

Read it now: https://bit.ly/44ZtO4R
#UnitedForME

Too many have waited years for informed care. BHC’s Access to Care Model brings multidisciplinary evaluation, personalized plans, collaboration, and real support closer to home.

Learn more: https://bit.ly/3Xf1SIf
#BuildingAccessNow

1 in 4 people with #MECFS are housebound or bedbound. 💙 @emergeaustralia.bsky.social’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing.

Read more: https://bit.ly/4nD2Add
#UnitedForME

A person using a laptop displaying "Online Support Group". Event details: "Tuesday, Nov 18 | 1:00 pm MST. Acquainted with Grief: Growing through Ambiguous Loss". Bateman Horne Center logo at the top.

Join us Tues, Nov 18 | 1 PM MST for BHC’s Online Support Group-
Acquainted with Grief: Growing through Ambiguous Loss

We’ll reflect on what we’ve lost, how we heal, and what helps us move forward.

Register now: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #ChronicIllness #IACCs

Quote from Anthony Komaroff, MD, at the 2025 IACFSME Conference, urging people to read the extensive literature on ME/CFS and Long COVID.

Quote by Anthony Komaroff, MD: "Every month brings new progress toward the goal of preventing and curing this disease." 2025 IACFSME Conference.

"I came away from the conference feeling hope."
In a new blog, Dr. Bateman reflects on the #IACFSME2025 Conference, sharing about 40 years of research and progress. 
🔗 https://bit.ly/4hS9YjF
#MECFS #LongCOVID

In this IACFSME 2025 conference highlight, Suzanne D. Vernon, PhD, Research Director at Bateman Horne Center, explains how oxaloacetate may strengthen the fa... IACFSME 2025 Conference Susan Vernon, PhD

Fatigue & cognition are linked in #MECFS & #LongCOVID.

At #IACFSME2025, Dr. Suzanne Vernon (BHC Research Director) shared how oxaloacetate may restore energy metabolism & cognitive clarity by strengthening the fatigue-cognition axis.

Watch:

ME/CFS caregiving often requires navigating many logistics. Last year, we partnered with caregiver Galen Warden @galen2.bsky.social to share a practical guide covering medical proxy, disability, transport, clinic accommodations, and more: https://bit.ly/4hCSpDP
#CaregiverAwarenessMonth #UnitedForME

Invitation to "Coffee with a Clinician" online event on Nov 11, 2025, at 10:00am MST about "Navigating Clinical Uncertainty: Part 2".

Flyer for "Coffee with a Clinician: Navigating Clinical Uncertainty: Part 2," discussing patient-caregiver-clinician communication.

☕ Join us Wed. Nov 12 at 10 AM MST for “Coffee” with a Clinician: Navigating Clinical Uncertainty Pt 2.

Hear patients, caregivers & clinicians share ways to bridge communication in complex care.

Free | $5 optional donation.
🔗 https://bit.ly/3JCHAFq

#MECFS #LongCOVID #IACCs

Woman sitting on a couch using a laptop showing "Online Support Group." Text below: "Tuesday, Nov 11 | 1:00 pm MST. Denial, Resistance and Gaslighting: Coping with Others' Unhelpful Reactions to Our Illness." Bateman Horne Center logo at the top.

Join us Tues, Nov 11 | 1 PM MST for BHC’s Online Support Group:
Denial, Resistance & Gaslighting — Coping with Others’ Unhelpful Reactions

Let’s talk about communication, boundaries & advocacy in chronic illness.

🔗 Learn more: https://bit.ly/4npZ4Ud
#MECFS #LongCOVID #IACCs

A woman tending to a patient in a bright room. Text reads: "For the carers making a difference. Carer Resource Hub." Emerge Australia logo.

Caring for someone with ME/CFS or Long COVID takes compassion & strength. 💙
This #CaregiverAwarenessMonth, we honor caregivers everywhere, and highlight @emergeaustralia.bsky.social's  Carer Resource Hub, a valuable guide to those who give so much: https://bit.ly/4nzChVk

#MECFS #LongCOVID

Logos of organizations above the text: "Together, we’re highlighting Caregiver resources & events with one united hashtag: #UnitedForME" for National Family Caregivers Month.

This November, for National Family Caregivers Month, we’re joining forces with @solveme.bsky.social, @openmedf.bsky.social & @meactnet.bsky.social to highlight caregiver resources, events & support.

Together, we’re stronger, and united in care. 💙
Follow and share using #UnitedForME

It’s National Family Caregiver Appreciation Month 💙 We’re sharing resources from @meactnet.bsky.social , @openmedf.bsky.social & @solveme.bsky.social — all supporting families caring for those with ME/CFS, Long COVID & other IACCs. #UnitedForME

Upcoming events for November 2025: Support groups on Nov 11 and 18 at 1:00 pm MST, and a clinician session on Nov 12 at 10:00 am MST.

Join BHC’s November events on gaslighting, grief & uncertainty:
💙 Nov 11 | Denial & Resistance
☕ Nov 12 | Navigating Uncertainty: Part 2
💙 Nov 18 | Acquainted with Grief

🔗 https://batemanhornecenter.org/events
#MECFS #LongCOVID

Clinical Care Guide on a tablet screen, highlighting Chapter 7 on managing orthostatic intolerance in ME/CFS and Long COVID.

October is POTS Awareness Month, a time to spotlight BHC resources. Our Clinical Care Guide includes a full chapter on orthostatic intolerance (OI) & dysautonomia, core features of #POTS.
Download ➡️ https://batemanhornecenter.org/clinical-care-guide/ (navigate to chapter 7 for info on POTS & OI)

Long COVID and Post-Infectious Syndromes ECHOA Practical Approach to Complex Long COVID & ME/CFS Patient CasesBateman Horne Center and the University of Utah... Pelvic Health Considerations: Physical Therapy Perspective

Pelvic pain & dysfunction can be part of post-infectious conditions like #LongCOVID & #MECFS.
In our latest ECHO session, Katie Woolf, DPT, PRPC, shares how gentle pelvic floor therapy can help improve comfort, stability, & daily function.
Watch: https://youtu.be/sA-ue_B1uZk
@uofuhealth.bsky.social

Orthostatic Intolerance Overview with resources for individuals, caregivers, and healthcare providers. Download at BatemanHorneCenter.org.

It’s POTS Awareness Month!
#OrthostaticIntolerance (OI) includes #POTS, orthostatic hypotension & more. Our OI Overview covers evaluation (Passive Standing Test, EKG), lifestyle approaches, meds, and further resources.
🔗 https://bit.ly/4pCeOoA
#POTSAwarenessMonth #Dysautonomia #MERC

Inaugural 2025 IACC Long COVID Case Competition at UMich Ross School of Business, October 31, 2025, from 9 AM to 5 PM ET.

Exciting News!
Dr. Melanie Hoppers will be an expert panelist at the first-ever Infection-Associated Chronic Conditions (IACC) Case Competition hosted by the @umisr.bsky.social 
A major step toward innovation in #LongCOVID, #MECFS & #POTS care.

Learn more: https://bit.ly/3KXI3T7
#IACC2025

White ribbon on teal background with the text "Today is POTS Awareness Day" in bold white letters.

Today is POTS Awareness Day.

We’re raising visibility for POTS and orthostatic intolerance (OI), common in ME/CFS and Long COVID.

Look back at this month’s posts & next week for more.

#POTSAwarenessDay #POTS #MECFS #LongCOVID #OI

White pills on a blue background with the text: "New Blog Post: Deep Dive into the research behind Oxaloacetate (OAA) and its potential role in ME/CFS."

Following high community interest, we’ve published a deeper look at the Oxaloacetate (OAA) study in ME/CFS.
Learn how targeting cellular energy may support both fatigue and cognition.

🔗 Read the full blog: https://bit.ly/4opeqbw
#MECFS #Oxaloacetate #Research #BatemanHorneCenter

This presentation is part of the Institute for Neuro-Immune Medicine (INIM) Clinicians' Meeting Research Series. INIM is part of the Dr. Kiran C. Patel Colle... Orthostatic Intolerance: Clinic Assessment and Treatment

Dr. Lucinda Bateman presented “Orthostatic Intolerance: Clinic Assessment and Treatment” for the INIM Clinicians’ Meeting Research Series, part of the Dr. Kiran C. Patel College of Osteopathic Medicine at Nova Southeastern University.

Watch here ➡️

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Orthostatic intolerance is an umbrella term for conditions where being upright can trigger disabling symptoms. One of the most common forms is Postural Orthostatic Tachycardia Syndrome (POTS).
Clayton Powers, DPT explains in this video: https://bit.ly/3J5Bcq3
#POTSAwarenessMonth