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EGFR Positive Lung Cancer UK

@egfrpositiveuk.bsky.social

The only UK charity for EGFR+ lung cancer advocacy, empowerment & support πŸ’œ Our community offers hope & learning for those living with EGFR+. Get involved β†’ linktr.ee/egfrpositivelungcanceruk

723 Followers  |  837 Following  |  64 Posts  |  Joined: 20.11.2024  |  2.0025

Latest posts by egfrpositiveuk.bsky.social on Bluesky

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Our award-winning See Through the Symptoms campaign is back!

Launched today for World #LungCancer Day, the campaign returns with a brand-new website - ready to support early diagnosis in primary care.

See Through the Symptoms is part of All You Need Is Lungs.
www.seethroughthesymptoms.uk #LCSM

01.08.2025 05:50 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
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Tina πŸ’Ÿ was one of our brilliant volunteers for 2024 & found it a really positive experience for her & her family.

It’s your last chance to send your #lungcancer story & be guaranteed to be included in our 2025 campaign.

Portal closes 31 July.

www.allyouneedislungs.org.uk/volunteer-hub #LCSM

26.07.2025 07:32 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Wow - blown away doesn’t cover it!! All You Need Is Lungs is a finalist in the 2025 #UKSocialMediaAwards! πŸ’Ÿ A campaign with no media budget, no agency - just real voices from people living with non-smoking #lungcancer. Thank you πŸ™ to all our incredible β€˜voices’ for making this possible! #LCSM

30.06.2025 06:42 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Tina β€” ALL YOU NEED IS LUNGS

Tina, a mum & grandma, refuses to let Stage 4 ALK+ #lungcancer stop her from planning for the future. Being diagnosed in 2021 was a huge shock, esp as a never-smoker. Symptoms included a persistent cough & ongoing chest/upper back pain. #LCSM www.allyouneedislungs.org.uk/volunteers-v...

15.06.2025 07:18 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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What #ASCO25 results could shift clinical practice in the UK?
πŸ’‘ From immunotherapy breakthroughs to precision diagnosticsβ€”get the key insights in just 1 hour!
πŸ—“οΈ Mon 16 June | πŸ–₯️ Free BTOG webinar
www.btog.org/asco-update-...

#LCSM #LungCancer #ThoracicOncology
#BTOGASCO2025Webinar

10.06.2025 10:17 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Volunteer Hub | Share Your Lung Cancer Story β€” ALL YOU NEED IS LUNGS Take Part in the 2025 All You Need is Lungs campaign to raise lung cancer awareness through personal stories, photos, and videos. Share hope and inspire others.

πŸ“£ Our volunteer hub is now open!

Share your story of living with mutation-driven #LungCancer 🫁 for this year’s Lung Cancer Awareness Month (November).

We’re looking for real UK experiences to show: anyone can get lung cancer
#AllYouNeedIsLungs.

πŸ‘‰ www.allyouneedislungs.org.uk/volunteer-hub

08.06.2025 08:49 β€” πŸ‘ 5    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Gini & Deepa from our #AllYouNeedIsLungs team spoke at SELCA’s Early Diagnosis of Lung Cancer Community of Practice this week, highlighting our 2 campaigns:

πŸ’Ÿ All You Need Is Lungs - for the public
πŸ’‘ See Through the Symptoms - for HCPs

Awareness is key to earlier #lungcancer diagnosis. #LCSM

06.06.2025 07:37 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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πŸš΄β€β™€οΈ Mel, amazing member of our EGFR+ UK community, appeared on BBC Breakfast this morning alongside Sir Chris Hoy to talk about #TourDe4 & living with stage 4 #lungcancer.

She shared her story, her strength, & why this ride matters.

πŸ“Ί Watch here: youtu.be/HqGqmuL5Q7E

#EGFRPositive #LCSM

02.06.2025 14:37 β€” πŸ‘ 8    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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26 Real-life lung cancer stories from our community β€” ALL YOU NEED IS LUNGS Discover 26 powerful stories of individuals living with lung cancer. From the first symptoms and challenging diagnoses to finding strength and hope, these real-life experiences shine a light on the re...

Discover 26 powerful real-life stories from people living with #LungCancer - from first symptoms to challenging diagnoses to finding strength & hope.

Showing the realities of lung cancer & the resilience of those affected.

www.allyouneedislungs.org.uk/volunteers-v... #LSCM

31.05.2025 16:47 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Facial paralysis was a surprising red flag of #lungcancer for Jenny diagnosed with Stage 4
EGFR+. Since she's embraced a new perspective, finding joy in life's little moments.

Jenny’s story: www.allyouneedislungs.org.uk/volunteers-v...

We're now accepting submissions for our 2025 campaign! #LCSM

30.05.2025 08:40 β€” πŸ‘ 4    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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It’s time to challenge the stereotypes & raise awareness that anyone can get #lungcancer regardless of age or smoking status. #AllYouNeedIsLungs

We’re looking for β€˜voices’ for our 2025 campaign. Help us change the narrative. #LCSM

Submit your story: www.allyouneedislungs.org.uk/volunteer-hub

29.05.2025 07:42 β€” πŸ‘ 22    πŸ” 11    πŸ’¬ 0    πŸ“Œ 0
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Being told you have lung cancer is life-changing - EGFR Positive Lung Cancer UK - OncoDaily Being told you have lung cancer is life-changing - EGFR Positive Lung Cancer UK / cancer, EGFR, EGFR Positive Lung Cancer UK, Lung cancer, National Nurses

EGFR Positive Lung Cancer UK - Being told you have lung cancer is life-changing
@egfrpositiveuk.bsky.social

oncodaily.com/blog/egfr-po...

#OncoDaily #Oncology #Cancer #Health #Medicine #MedEd #MedOnc #MedNews #LungCancer

13.05.2025 22:07 β€” πŸ‘ 9    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Run the London Marathon for EGFR+ UK! We’re excited to have 2 places in next year’s London Marathon – one of the most iconic races in the world – and we’re looking for two passionate runners to take on the challenge for EGFR+ UK.

We have 2 spaces in #LondonMarathon2026 πŸƒπŸƒβ€β™‚οΈ run for us to help support people living with EGFR+ #lungcancer.

7,000 people in the UK are diagnosed with EGFR+ every year - no one should have to face this alone. #LCSM

mailchi.mp/egfrpositive...

04.05.2025 12:23 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Great to see this important step for our EGFR mutant patients: FLAURA-2 approval by NICE. Interesting to note that the reimbursement (Blueteq form) allows a single cycle of chemo if clinically urgently indicated, but no access if PD on adjuvant osi. @btog.bsky.social @egfrpositiveuk.bsky.social

10.04.2025 10:19 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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New pharmacy funding = more chances to spot #lungcancer early.

allyouneedislungs.org.uk & seethroughthesymptoms.uk/ collab initiatives by ALK+ UK, EGFR+ UK & the Ruth Strauss Foundation have resources to help pharmacy teams raise the red flag 🚩 when symptoms don’t feel right. #LCSM

05.04.2025 06:51 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Looking forward @lungcancereurope.bsky.social’s AGM in Berlin next week. It’s a tremendous opportunity to work cohesively across Europe bringing synergies in patient advocacy.

We’re particularly interested to take part in the masterclass on AI for #lungcancer patient advocacy. #LCSM

04.04.2025 08:36 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

🧐 Are you a πŸ‡¬πŸ‡§ Healthcare Professional treating lung cancer?

πŸ€” Do you want to learn how clinical research runs, whilst advancing your career?

πŸ’₯ Be an Associate PI of a trial!

πŸ₯³ eVOLVE-Lung02 (I am πŸ‡¬πŸ‡§ CI) accepted into NIHR Associate PI programme

Details here πŸ‘‡
www.nihr.ac.uk/career-devel...

04.04.2025 08:19 β€” πŸ‘ 7    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Tonight on ITV, β€˜Cancer Under 50’ examines the worrying increase in cancer diagnoses among people under 50.

The programme features Sylvie from London, who was diagnosed with stage 4 ALK+ #lungcancer at 46. Sylvie, who has never smoked, experienced symptoms that were initially overlooked. #LCSM

03.04.2025 08:30 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Natasha Loveridge steps down as Marketing Trustee of EGFR+ UK after 18 impactful months. Known for her relentless energy & warmth, Natasha has significantly raised awareness about #lungcancer in non-smokers.

While stepping back we’re grateful she remains a key part of our team. πŸ™ Natasha! #LCSM

01.04.2025 07:12 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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An Agrin–YAP/TAZ Rigidity Sensing Module Drives EGFR‐Addicted Lung Tumorigenesis The study identifies agrin-EGFR mechanotransduction as a critical driver of lung adenocarcinoma which enhances EGFR signaling through an integrin-FAK-actomyosin dependent positive feedback on YAP/TAZ....

New insights: Targeting the agrin-EGFR interaction could lead to new treatment options for advanced EGFR+ #lungcancer. Learn more about this study: advanced.onlinelibrary.wiley.com/doi/10.1002/... #EGFR #LungCancerResearch #LCSM

01.04.2025 07:03 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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New data from the LAURA trial shared at #ELCC25 today shows promising results for Stage 3 unresectable EGFR+ #lungcancer.

Giving osimertinib after chemoradiation meant people went much longer before needing further treatment β€” over 40 months, compared to just 9 months without it. #LCSM

28.03.2025 17:38 β€” πŸ‘ 5    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Just presented at #ELCC25:
MARIPOSA confirms a survival benefitβ€”amivantamab + lazertinib shows a 25% OS advantage (60% alive at 3 years) vs osimertinib in advanced EGFR+ #lungcancer.

A breakthroughβ€”but people in the UK are still waiting for access.

#LCSM

26.03.2025 16:40 β€” πŸ‘ 7    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Yesterday EGFR+ UK trustees met for a full strategy day.

We worked through priorities for the year ahead, all with one goal in mind: improving outcomes for people with EGFR+ #lungcancer.

Thanks to Angela, Gini, Soumitra, Natasha & Liz for their energy, focus & commitment πŸ’œ. #LCSM

26.03.2025 07:55 β€” πŸ‘ 9    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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It’s time to challenge the stereotypesβ€”& raise awareness that anyone can get #lungcancer regardless of age or smoking status. #AllYouNeedIsLungs

We’re looking for β€˜voices’ for our 2025 campaign. Help us change the narrative. #LCSM

Show your interest: www.allyouneedislungs.org.uk/2025-volunte...

25.03.2025 08:09 β€” πŸ‘ 8    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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MARIPOSA shows a 25% OS benefit for amivantamab + lazertinib vs osimertinib in newly diagnosed EGFR+ advanced #lungcancer.

A big momentβ€”but not simple. Side effects, IV treatment & QoL all matter.

& right now, this option isn’t available for our UK EGFR+ community.

Full results at #ELCC25 #LCSM

24.03.2025 09:41 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

πŸ”₯ @natmedicine.bsky.social πŸ†™
βœ…Molecular residual disease analysis of adj osimertinib in resected EGFR-mutated stage IB–IIIA NSCLC
🎯MRD preceded imaging DFS by a median of 4.7
🩸RaDaR MRD analysis
πŸ‘₯ Dr. Roy Herbst @drtomjohn.bsky.social
#LCSM @oncoalert.bsky.social
www.nature.com/articles/s41...

22.03.2025 17:28 β€” πŸ‘ 4    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

Thank you! @oncodaily.bsky.social πŸ™

22.03.2025 20:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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One story can change medical practice - EGFR Positive Lung Cancer UK - OncoDaily One story can change medical practice - EGFR Positive Lung Cancer UK / cancer, EGFR Positive Lung Cancer UK, Lung cancer, OncoDaily, Oncology

EGFR Positive Lung Cancer UK - One story can change medical practice
@egfrpositiveuk.bsky.social

oncodaily.com/blog/egfr-po...

#Cancer #CancerResearch #LungCancer #EGFR #LCSM #Medicine #Health #Oncology #OncoDaily

22.03.2025 19:59 β€” πŸ‘ 11    πŸ” 2    πŸ’¬ 1    πŸ“Œ 0
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Antibody-drug conjugates in NSCLC with actionable genomic alterations: Optimizing smart delivery of chemotherapy to the target With the increasing use of next-generation sequencing (NGS) for genomic profiling of lung cancer, it has been estimated that up to 50Β % of non-squamous non-small cell lung cancer (NSCLC) may harbor an...

New review on ADCs in #lungcancer
β€œThese are now being explored in other oncogene-driven subsets, including ALK…”

Still early daysβ€”but could help when TKIs stop working. Worth watching #LCSM

www.cancertreatmentreviews.com/article/S030...

22.03.2025 19:42 β€” πŸ‘ 6    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

The training was for staff in roles across the surgery, along with their own GPs and others who join them as a training centre.
I’m very grateful to BCHC for taking this on, and hope it can inspire other surgeries to remind staff that #AllYouNeedIsLungs to get #LungCancer.

20.03.2025 09:00 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0

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