Noek

The problem with the vast majority of conversations about transness on any broad scale is it’s just making up a guy—like it’s not about actual individual trans people with lives and needs, it’s about the specter of Transness™ dredging up the anxieties of cisheteronormativity.

+ the seeing everyone as enemy can be a trauma response for sure but people who lead with this type of behavior in activism probably haven’t had a lot of experience with actual activism and harm reduction and should maybe take a step back/connect with some experienced peers

Thanks for talking about this - it makes me feel very sane and less isolated to see Covid cautious people admit our movement has issues. I think we are shutting out future victims (and there are probably already a lot of pwLC in the community no don’t feel like they can admit they didn’t mask)

Wij Zeggen Voorgoed NEE tegen GET en CGT - Petitie24.nl

Please, if you’re #Dutch sign this petition to get the #Netherlands to stop using #GET as a treatment for #ME. We know it doesn’t work, it nearly killed me and cost me 8 long years of my life #bedridden. It didn’t have to be this hard. RIP ages 28-36. tinyurl.com/ystekut2

A black and white photo of a man, Niko with a buzz cut and a dark beard, resting in bed, his head on a white pillow, with his eyes closed, wearing a grey sweatshirt.

In need of some rest.

Last Saturday, I drank an alcohol-free beer, listened to music, and sat upright (in my hospital bed) for about 30 minutes. And now, because of that, I have PEM (post-exertional malaise, a hallmark symptom of ME/CFS). 1/8

#pwME #MECFS #SelfDocumentary #Photography

Both adults and children are good at pretending, but it's only adults who will pretend they don't know a place is haunted, that they haven't sped their steps to leave it. Children know the haunting and celebrate it. – Dario & Janet Tóth, 'Clockless Hours Revisited', Ransom & Waterhouse, 1982

Ngl I don't really buy into not pursuing transition related things to preempt government crackdowns and discrimination. Usually just feels like doing their job for them, denying yourself before they can deny you. However X markers on IDs? You couldn't pay me

‘The pandemic isn’t over’: my year of long Covid – video Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...

The Guardian has spent a year with Darren - one of about 2 million people living with Covid in England and Scotland.

Watch it in 7 minutes.

V. important from my video colleagues.

www.theguardian.com/society/vide...

Watch this!!! Thanks Anil for making this <3

Taking DXM for PEM feels like an angel is pissing on my brain stem and nervous system, bless me

I was gonna go the funny route but forgot I had this saved

I know we’re amidst the holidays and times are tight for everyone but I’m still in disability appeal limbo and need help with bills. I’m @ bimbotheory on Venmo and PayPal and anything goes a long way 💞

I'm not exaggerating when I say we have no care.

We have less access to care than healthy people because we aren't well enough to access A&E and hospitals can be dangerous for us.

There are no specialist treatment centres, no consultants, nothing.

Urgent callout for local support (individual/group/mutual aid orgs) from ME allies in *Manitoba, Canada* - please repost. TW DV ⬇️

MAAR. Als ik ooit beter word, prop ik het allemaal, de hele ervaring zeer zeker in een docu of boek! :)

Mensen zijn te getraumatiseerd (in de breedste zin vh woord haha) denk ik. Long covid patiënten bijv ervaren vooral de sfeer dat niemand er nog over na wil denken. En het raakt ook een spanningsveld van in hoeverre erken je in kunst dat er *nu* nog steeds mensen ziek worden en long covid krijgen.

No worries :) at all. Agree

Oh this is not for me, I’ve had ME for 7 years haha. Thanks for the recs :)

Thank you!

What’s a good resource to send people who JUST developed long covid? Realistic but not overwhelming.

Wow wat is dat voor iets fantastisch? Een eco lodge

Heeft iemand in NL of BE ketotifen over?

Lucky me! Was definitely already repeating the negative pattern all on my own when I got the diseases lol

Wow hoe vindt men zoiets en kan dat zonder PGB of WLZ?

The organization HypAccess.

We really need a community oriented approach. The time of “you have no choice but to…” is over. People are only gonna be poorer and sicker under capitalism. We need to invest in structures that are based in solidarity. Telling a marginazlied person to “just figure it out” is harmful and isolating

There’s also a large accessibility component: shelf stable food is not only cheap, but also the only food access option some #pwME have. Severe ME leads to poverty too, but even getting rid of things without replacing them costs energy. + the cognitive energy of elimination diet

The first step of #MCAS treatment is removing triggers, which can mean anything from moving house (!) to changing diet (usually more expensive/fresh). Then there’s cost of HEPA filters, meds, clothes and furniture you can start reacting to and need to throw out…

##MEcomorbidity : #MCAS treatment requires money and privilege. If you try to seek support for that online, you’re mostly met with redundant repetition of “well, it’s the only way.” We need a harm reduction mindset and DIY community structures for meds + money

Kunnen jullie van elkaar isoleren?