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Savvy Spoonie

@savvyspoonie.bsky.social

I have ADHD, Small Nerve Fiber Neuropathy, and Fibromyalgia. I manage constant, high level pain with mindfulness, a medical pain team, cold plunging, art, and writing. I seek kindness in people and would dearly love to punch a nazi.

36 Followers  |  9 Following  |  30 Posts  |  Joined: 16.11.2024  |  1.7144

Latest posts by savvyspoonie.bsky.social on Bluesky

Handmade Holidays I've fallen into the trash panda handmade holidays. If I can't use it for it's original purpose anymore but I can keep it out of a landfill I'm making decorations or gifts out of it. All of these involved hot glue, bamboo toilet paper tubes (they are nicer than regular ones) and fabric scraps, broken ornament scraps, or cardboard scraps. I even used some parfait jars!

Handmade Holidays

I've fallen into the trash panda handmade holidays. If I can't use it for it's original purpose anymore but I can keep it out of a landfill I'm making decorations or gifts out of it. All of these involved hot glue, bamboo toilet paper tubes (they are nicer than regular ones) and…

12.11.2025 19:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Handmade, Thrifted, or Small BusinessΒ Holiday This year let's prove we don't need them. Make it, Thrift it, or support a small business. The QR codes in the first image will take you to Denver resources for all those options. We don't have to keep living this way.

Handmade, Thrifted, or Small BusinessΒ Holiday

This year let's prove we don't need them. Make it, Thrift it, or support a small business. The QR codes in the first image will take you to Denver resources for all those options. We don't have to keep living this way.

04.11.2025 17:12 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Today we are 50… Nearly 20 years into the onset of my disease I feel accomplished to be here. It's been a long, difficult road with pain my most stalwart companion. However, as I enter the second half of my life I want to remember some of my most important lessons from the first half. Spend time with the people you love when you can.

Today we are 50…

Nearly 20 years into the onset of my disease I feel accomplished to be here. It's been a long, difficult road with pain my most stalwart companion. However, as I enter the second half of my life I want to remember some of my most important lessons from the first half. Spend time…

17.10.2025 13:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
One foot in front of theΒ other… It has become my motto. Literally. My legs are starting to wobble a bit, the feeling in them uncertain and my faith in them wavering. So with an aim to increasing their strength I am walking. Rather a lot. I have started mapping the Little Free Libraries within 30-45 minutes (on foot) from my house. Four to five days a week I load up a backpack with books we no longer want, clip on my leash belt, a water bottle for me, a water bottle for the dogs, a treat bag for the dogs, and lastly, Bear and Penny.

One foot in front of theΒ other…

It has become my motto. Literally. My legs are starting to wobble a bit, the feeling in them uncertain and my faith in them wavering. So with an aim to increasing their strength I am walking. Rather a lot. I have started mapping the Little Free Libraries within…

07.10.2025 04:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Untitled

Untitled

29.09.2025 16:11 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Untitled Once upon a time I taught Environmental Law at the Community College. My students were often surprised to learn that β€œsaving the planet” isn’t about protecting endangered species and cleaning the air and water for the sake of the planet but instead is about keeping the Earth habitable for human life. I am often surprised at how many humans aren’t interested in keeping our home habitable for humans.

Untitled

Once upon a time I taught Environmental Law at the Community College. My students were often surprised to learn that β€œsaving the planet” isn’t about protecting endangered species and cleaning the air and water for the sake of the planet but instead is about keeping the Earth habitable for…

16.09.2025 18:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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110% As someone who routinely has to give significantly less than 100% I have a tendency to give more than on should on the days I feel good. While I am aware that giving too much on good days contributes to being worse off on bad days, I seem to be unable to stop myself.

110%

As someone who routinely has to give significantly less than 100% I have a tendency to give more than on should on the days I feel good. While I am aware that giving too much on good days contributes to being worse off on bad days, I seem to be unable to stop myself.

12.09.2025 02:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
I know how the fishΒ feels Horace on the Night Shift - MMorehead. a sharp hook in the gillsI know how it feelsthe pinching, the pulling, of impatient reels. from the comfort of hometo be viciously shookby the violent tugging of an invisible hook. Just swimming alongminding my ownwhen from nowhere I know comes a yanking so strong. in incredible pain…

I know how the fishΒ feels

Horace on the Night Shift - MMorehead. a sharp hook in the gillsI know how it feelsthe pinching, the pulling, of impatient reels. from the comfort of hometo be viciously shookby the violent tugging of an invisible hook. Just swimming alongminding my ownwhen from nowhere I…

09.09.2025 18:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Mourning the emptyΒ spaces… No one told me there would be so much to miss as I grew older, had children, moved on with life's natural stages. Granted, as someone with a disability that came later in life I have some additional things I miss that others may not but I expect to miss those. Like I expect to miss my Dad, or friends who've died.

Mourning the emptyΒ spaces…

No one told me there would be so much to miss as I grew older, had children, moved on with life's natural stages. Granted, as someone with a disability that came later in life I have some additional things I miss that others may not but I expect to miss those. Like I…

08.09.2025 00:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Miss you Dad.

Miss you Dad.

06.09.2025 19:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Why creating ANYTHING is important… if your body is convinced the world is trying to kill you all the time. I am more than 16 years into my chronic pain journey. In that 16 years I haven't gone a day without a headache or pain somewhere in my body, usually both. I've spent a fortune visiting the country's most knowledgable doctors, having the most in depth tests, and trying the most outlandish treatments.

From paintings to gnome houses creating things is the best meditative pain control you'll get.

04.09.2025 20:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A constant house of cards… is the best description for life with a chronic illness. Sometimes it feels impossible to live inside this body. It's as though I am built out of a house of cards and the slightest puff of air can send me spiraling apart. Every day I have to balance environment, medication, diet, exercise, mood, rest, etc. in order to minimize my pain and maximize my health.

A constant house of cards…

is the best description for life with a chronic illness. Sometimes it feels impossible to live inside this body. It's as though I am built out of a house of cards and the slightest puff of air can send me spiraling apart. Every day I have to balance environment,…

31.08.2025 18:59 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
A flicker…

A flicker…

29.08.2025 15:06 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Pain like a vise on myΒ head… It's not as though I can just get up and do all these things feeling this way. Have you ever managed to go about your daily life with a rhinoceros on your head?

Pain like a vise on myΒ head…

It's not as though I can just get up and do all these things feeling this way. Have you ever managed to go about your daily life with a rhinoceros on your head?

27.08.2025 17:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Furry Physical Therapists… Pets make the best PT's! Adopting from a rescue saves a life but in my case, the saving goes both ways. Chronic pain and chronic illness is isolating, depressing, and scary. Having soft, warm, loving creatures who just want to be with, on, or around you can be the difference between a fighting spirit and despair. My team of furry Physical Therapists keep me fighting fit.

Furry Physical Therapists…

Pets make the best PT's! Adopting from a rescue saves a life but in my case, the saving goes both ways. Chronic pain and chronic illness is isolating, depressing, and scary. Having soft, warm, loving creatures who just want to be with, on, or around you can be the…

25.08.2025 18:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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The weight of pain andΒ politics… It's been a horrible couple of months for those of us with pressure sensitive chronic pain issues. The daily pain levels I live with have been significantly higher than normal and while I am not making a plan or seeking end of life measures I do - at times - fantasize about Wile E. Coyote dropping an anvil on my head so I don't have to do this shit anymore.

I've been sequestered away with a broken body and sorrowful spirit. I'm coming back out into the world, such as it is.

24.08.2025 21:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Addendum They can't erase everything we write. Keep the ink flowing. Spread information. We are not alone.

I am limited by my disability in what I can do but a lifetime of training in writing pointed me towards collecting and sharing information. Especially while it is being erased.

addendum.media

21.02.2025 02:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Save America boycott February 28th. #America #Unitedstates #stopthecoup

19.02.2025 04:38 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Chronicles of a Chronic Pain Superhero
YouTube video by Misty Ewegen (Savvy Spoonie) Chronicles of a Chronic Pain Superhero

youtu.be/lDu-1HlSnfE

Living your life in constant daily pain is an experience that creates strong, resilient individuals who are heartily sick of having to be strong and resilient. These videos are for them and the people who love them. #chronicpain #chronicillness #fibromyalgia #spoonie

18.02.2025 17:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Post image 31.12.2024 17:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#fyp #disability #spoonie #smallnervefiberneuropathy #chronicillness #fibromyalgia # TikTok video by Savvy Spoonie

www.tiktok.com/t/ZTYVoT1SK/

#disability #chronicpain

19.12.2024 23:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#holidays #christmas #mood TikTok video by Savvy Spoonie

www.tiktok.com/t/ZTYQDwn1R/

15.12.2024 03:10 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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I love rescuing vintage bakeware and turning it into candles.
It's really soothing.

13.12.2024 04:12 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#fibromyalgia #chronicillness #disability #spoonie #grief #loss #smallnervefiberneuropathy TikTok video by Savvy Spoonie

www.tiktok.com/t/ZTY53caPr/

08.12.2024 18:19 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#emotionalsupportanimal #cats #chronicillness #fibromyalgia #catsoftiktok TikTok video by Savvy Spoonie

www.tiktok.com/t/ZTYPpyrLJ/

07.12.2024 04:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#catsoftiktok #cats #chronicillness #fibromyalgia #emotionalsupportanimal TikTok video by Savvy Spoonie

www.tiktok.com/t/ZTYfbtogK/

06.12.2024 01:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#grief #daddy #loss TikTok video by Savvy Spoons Shop

www.tiktok.com/t/ZTYUwruyu/

04.12.2024 03:08 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Redirecting...

The ultimate GenX anthem:
www.facebook.com/share/v/1JWx...

25.11.2024 17:04 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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#spoonie #disability #invisibleillness #chronicpain #fibromyalgia

22.11.2024 14:37 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Pippin greets you with a tiny blep.

18.11.2024 04:36 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

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