Addressing inequalities in access to epilepsy care! Itโs the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio ๐คฉ๐ฎ๐น who speaks of:
โข delays to diagnosis
โข earlier interventions
โข improve standards
โข precision medicine, biomarkers & neuroimaging
Watch here: youtu.be/eWXWNjL2FGw
#epilepsy
New paper โEpilepsy and mental health disorders: current challenges and potential solutionsโ.
โSeizure control alone doesnโt equal quality of life...โ
Writing about this isnโt easy when you draw on lived experience, but itโs worth it. ๐๐ป
www.cambridge.org/core/journal... #epilepsy #mentalhealrth
๐ฉธ๐ง The Blood-Brain Barrier can influence/cause epilepsy! ๐ฑ In this weekโs @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?!
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! ๐๐ป
๐ฌ youtu.be/rBpI_-daWjw
๐ง Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma ๐ช๐ธ!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
๐ Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care ๐ฎ๐น!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
๐ฒ I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse ๐คฉ๐ฆ๐บ about #seizure diaries ๐.
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here ๐๐ป shorturl.at/SJLxN
#Epilepsy
Chatting with neurologist Dr Phillip Pearl ๐คฉ๐บ๐ธ from Boston Childrenโs Hospital re:
ใฐ๏ธ Metabolic epilepsies & the future
ใฐ๏ธ Patients we canโt yet help ๐
ใฐ๏ธ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here ๐๐ป!
๐๏ธ shorturl.at/LbjyF
๐ฌ shorturl.at/z7VzU
#epilepsy #neurology #podcast
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgiaโs podcast episodes were:
- Slicing a Brain In Half to Treat Epilepsyโ(!) ๐ง ๐ช, and;
- The Sacrifices & Benefits of a Hemispherectomyโ.
Check them out here ๐๐ป!
youtu.be/u6Sjsh5TuDo
๐ Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 ๐ can lead to an #epilepsy ๐ฑ?! Hear from Dr Phillip Pearl ๐คฉ๐บ๐ธ from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! ๐๐ป
๐๏ธ Podcast shorturl.at/5entK
๐ฌ YouTube shorturl.at/ghltc
Check him out! The cool neurologist (and upcoming podcast guest ๐ฅณ) Ching Soong Khoo from Malaysia ๐ฒ๐พ - at the International Epilepsy Congress in Lisbon ๐ต๐น!
And yes, in case you hadnโt noticed ๐ - CSโs pic is right there on the stand!
#epilepsy #neurology #IEC2025
Meeting in person really makes a difference! ๐ I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran ๐คฉ ๐ฎ๐ช face to face for the first time! ๐๐ Along with upcoming guest Claire Behan ๐ฎ๐ช! All the at International Epilepsy Congress in Lisbon ๐ต๐น!
#IEC2025 #epilepsy
Had an absolute blast chatting with Asst. Prof. Simona Balestrini ๐คฉ๐๐ฌ๐ง ๐ฎ๐น for the latest episode of Epilepsy Sparks Insights!
Learn about Transcranial Magnetic Stimulation here ๐๐ป and its potential as a future epilepsy treatment!
Watch here ๐ฌ youtu.be/hyLxVtc6ud8
๐คฉ Our team at the International Epilepsy Congress 2025 in Lisbon ๐ต๐น! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
Lisbon icons - at sunset! ๐
:
๐ฐ Castelo de Sรฃo Jorge
๐ฝ The Cristo Rei statue
๐ The Ponte 25 de Abril suspension bridge
๐
Lovely sunset
#lisbon #castle #portugal
Gorgeous, utterly fresh seafood ๐๐ in Lisbon! Fish doesnโt smell fishy - because itโs FRESH!
#lisbon #seafood #Portugal #foodlover #foodgasm #fish
Day 2 at the International Epilepsy Congress in Lisbon!
Tomorrow Iโm part of a fun talk โFrom Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and researchโ with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki!
Join us!!
#epilepsy #iec2025
๐๐ป Honestly, a fab talk by Reeta Kรคlviรคinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: โThe Clock Is Ticking: Optimizing Ongoing Seizure Response!โ
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy
๐ฅณ Reetta Kalviainen led the fab session about Epilepsy Experience Experts/Consultants and how researchers can and should work with them! Great questions and conversation had between Reetta, Jacqueline, Eli Cripps, I, & the audience at the International Epilepsy Congress in Lisbon!
#IEC2025 #epilepsy
Thank you so much to Joรฃo Ferreira & Miguel Franรงa for a brilliant NEUROSENSE EU summit in Porto ๐ต๐น! I was chuffed to be part of the round table where I spoke of my Public Patient Involvement, along with fellow leads Prof Sรกndor Beniczky, Jose Angel Aibar, and Prof. Torbjรถrn Tomson.
#epilepsy #sudep
Join us today in Porto ๐ต๐น at the NEUROSENSE EU summit where we hear all about the project, our results so far, and the potential to predict and help prevent #SUDEP!
#epilepsy #neurotech #neurology
Oh yesโฆ. ๐ข
24.08.2025 15:50 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐๏ธ Just released a new Epilepsy Sparks episode: โThey Arenโt FAKE! Non-Epileptic Eventsโ with Dr Parthvi Ravat ๐คฉ - a brill chat about #FND & #DissociativeSeizures / #NonEpilepticEvents, and the overlap with #epilepsy!
Real symptoms. Real science. Real hope. ๐๐ป
๐ง shorturl.at/iiRc1
๐ฌ shorturl.at/dzczm
Exciting Announcementโผ๏ธ
Thrilled to be working on the program for the 7th Dianalund International Conference on #Epilepsy ๐คฉ
โญ๏ธ The topic is "Developmental and Epileptic Encephalopathies: From Mechanisms to Action" ๐คฉ
๐
May 6-8, 2026, in Kรธge, Denmark ๐ฉ๐ฐ
#DICE2026
@torierobinson.bsky.social
The fabulous neurologist Tissa Wijeratne and I at the #Helsinki - for the European Academy of Neurology conference 2025!
Check out Tissaโs QR code for the World Federation of Neurology ๐๐ป!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia #migrain
Descending into #Helsinki - for the European Academy of Neurology conference 2025!
#ean2025 #neurology #epilepsy #psychiatry #brainhealth #dementia
Finnair aircraft (A321) at London Heathrow Airport, Terminal 3. Adjacent to the Control Tower.
See you soon #Helsinki ๐ซ๐ฎ! Canโt wait to be at, speak at, and moderate at the European Academy of Neurology Congress!
#epilepsy #ean2025 #neurology
Hear why neuroscientists ๐ง ๐งโ๐ฌ should be valued, globally ๐บ๏ธ! Prof Helen Scharfman ๐คฉ explains to us her #epilepsy research using mossy cells and the potential understanding them further may bring to people with anepilepsy and #anxiety! ๐๐ป
โถ๏ธ YouTube youtu.be/KHBqEYT1ThY
๐๏ธ Podcast shorturl.at/e7XWY
๐งโโ๏ธ๐บ For ~30 years, Dr. Zarine
Mogal ๐คฉ has been a force in epilepsy care & awareness in Pakistan ๐ต๐ฐ - even using TV ads to fight stigma and encourage diagnoses & treatment!
Zarineโs story is inspiring. Watch/listen/read her inspiring story ๐๐ป!
๐น YouTube youtu.be/zHio3etPTt0
๐๏ธ Podcast shorturl.at/fDgYs
๐จ People with an #epilepsy face a much higher risk of #suicideโyet itโs rarely spoken of.
Psychiatrist Prof. Andrea Cipriani joins us on Epilepsy Sparks Insights ๐๏ธ to explore why lived experience, neurology & #psychiatry must unite. ๐๐ป
๐ง shorturl.at/Wh3RF
๐น youtu.be/J8P-irnBiQc
โ๏ธ shorturl.at/Eh41T
So pleased to moderate the talk by star neurologist @rkalviainen.bsky.social ๐คฉ who was talking about rapid early seizure termination ( #REST) and the Finnish ๐ซ๐ฎ epilepsy care pathway model; inc collab of clinicians & patient orgs to improve care!
#UCBEpilepsySummit2025 #neurology #epilepsy
