Collage highlighting Solve ME/CFS Catalyst Awards honorees with portraits and their research topics on ME/CFS and Long Covid.

🚨 New Catalyst Awards! Solve is funding two groundbreaking studies to advance urgently needed treatment and diagnostic research for #MECFS and #Long Covid.

Read more here:
https://ow.ly/rlfQ50Yl4yN

Solve M.E. webinar announcement for April 28 on discovering target antigens for dysfunctional T cells in ME/CFS and Long COVID with four expert speakers.

📢 New webinar! Dr. Liisa Selin, Dr. Ayano Kohlgruber, & Dr. Roshan Kumar will discuss "The Discovery of Target Antigens for Dysfunctional T Cells in #MECFS and #LongCOVID."

WHEN: Tuesday, April 28 @ 3:00 pm PT / 6:00 pm ET.

Register here:
https://ow.ly/VnlJ50YmLTQ

We are excited 2 hear from Dr. Aimee Nefcy as she shares her story of being a physician & a patient! Please join us 4 our next Sunday Conversations, 3/15 @ 4pm ET

massmecfs.org/events/sunda...
#massmecfs #MECFS #MyalgicEncephalomyelitis #mecfsawareness #chronicfatigue #longcovid #fibromyalgia

Catch up on the latest, the Feb newsletter is out:
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Better yet, subscribe!
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#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicillness #iacci #longcovid #chronicfatigue

Good News! Recent legislation authorized an extension of many of the Medicare telehealth flexibilities through December 31, 2027.

Details here: telehealth.hhs.gov/providers/te...

#massmecfs #medicare #telehealth #medicaretelehealth #chronicillnessawareness

We're back to business with our January Newsletter

massme.monkeypod.io/mailcoach/we...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #chronicillness #invisibleillness #longcovid

Trump administration escalates attack on Minnesota with more immigration agents Another 2,000 ICE and homeland security agents will reportedly head to the state, targeting immigrant populations

The Guardian: 'Trump administration escalates attack on Minnesota with more immigration agents'

“I don’t think any government in history has had to fight a war against the federal government every single day,” the state’s governor said

“We are under assault.."

www.theguardian.com/us-news/2026...

Image of some pills

ME Research UK:

Netherlands research body (ZonMw) has launched a c€3.5m call for research applications into clinical research into effectiveness of existing medicines (off-patent and available in the Netherlands) which may prove effective for ME/CFS. tinyurl.com/kzrxwbwp

#MEcfs #CFS #PwME

‘This is not normal’: Minneapolis on edge and angry after ICE killing of woman amid federal surge City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable

The Guardian: '‘This is not normal’: Minneapolis on edge and angry after ICE killing of woman amid federal surge'

'City targeted by Trump has seen swarm of immigration agents on the streets – and residents say the tension is palpable'

www.theguardian.com/us-news/2026...

December Newsletter, Holiday Edition!
Sending you warm thoughts for the holiday season.

massme.monkeypod.io/mailcoach/we...
#massmecfs #MyalgicEncephalomyelitis #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness

May you find moments of beauty, connection, and gentle rest in the new year.

USA Today: 'Chronic fatigue syndrome drains millions of people, and still defies easy answers'

'The core of this illness manifests as a severe and incapacitating fatigue..." says Dr. Hector Bonilla

'The hallmark symptom..is “post-exertional malaise"

www.usatoday.com/story/life/h...

The image shows all OMF Directors, Maureen Hanson & Linda Tannenbaum. At the bottom, there’s a blue overlay with white text that reads: “Last Day to Triple Your Impact” Below that is the Giving Tuesday logo with the red heart-shaped “V.”

⏰ 3x Match Ends Today! Today is #GivingTuesday, marking the final hours of our Triple Giving November campaign!

There are just a FEW HOURS LEFT to have your donation tripled —up to $1 million! 💙 Give today and help make a difference: www.omf.ngo?form=donate-...

#pwME #pwLC #MECFS #LongCOVID

Quick Question: Do We Know What Causes Long COVID? During an interview on the Health & Veritas podcast, Akiko Iwasaki, PhD, discussed post-acute infection syndromes, like Long COVID, and what we’re learning

Yale Medicine: Quick Question: Do We Know What Causes Long COVID?

Iwasaki: "There’s been so much progress that’s been made in this area of Long COVID research...there are hypotheses that we’re testing..both at the basic science level and..through..clinical trials'

medicine.yale.edu/news-article...

Quote from Emily: “Living in constant pain is unbearable. I support OMF because their research provides hope for people like me suffering from ME/CFS and Long COVID.” In the background is a dark room with light filtering through a lace-covered window on the left.

It’s time to reduce the suffering and symptom severity faced by people with #MECFS & #LongCOVID. Your donation of any amount supports collaborative research to find answers.

Let's make these final hours count. Donate today to have your gift matched 3x: www.omf.ngo?form=donate-...

'I want to live my life': Fibromyalgia sufferers being failed by NHS Researchers and patients are calling for the NHS to overhaul its care of fibromyalgia patients.

'I want to live my life': Fibromyalgia sufferers being failed by NHS www.bbc.com/news/article...

A person holds a white notebook with the OMF Hope logo printed at the top. Below the logo, handwritten text reads “Introducing OMF Journal Club.” The notebook is held gently with both hands against a soft, neutral fabric background, with blurred white flowers visible in the upper right corner.

We want to introduce a new style of research communications that we plan on starting (on a trial basis) in 2026 when OMF publishes a research paper: OMF Journal Club. Learn more: ow.ly/iKw150XuO2G.

💛All donations to OMF are TRIPLED! Donate hope: ow.ly/3gmX50XuO2I.

NIH grant cuts have disrupted hundreds of clinical trials, study finds The second Trump administration has been defined by widespread cuts to federal spending, including at the National Institutes of Health (NIH). | The second Trump administration has been defined by wid...

Fierce Biotech: ''NIH grant cuts have disrupted hundreds of clinical trials, study finds"

'...Bhattacharya has discussed the importance of funding research on Long COVID in interviews...'

www.fiercebiotech.com/research/nih...

On the left is Dr. Moreau smiling and pointing to a colorful scientific poster filled with charts and text. On the right is Dr. Bergquist wearing a white lab coat and blue shirt. In the center overlaid text reads INTERVIEW.

In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.

👉 ow.ly/fUYM50XtwW1.

Local activist catches Massport in ICE-related lie Emails between Massport and an airfield operator at Hanscom show Massport has gotten advanced notice of ICE flights out of Hanscom. Massport has repeatedly denied getting such notice when asked.

The Massachusetts Port Authority (Massport) has been lying to locals about US Immigration and Customs Enforcement (ICE) operations at Hanscom Air Field.

Read more at this link: lexobserver.org/2025/11/12/l...

A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...

Well deserved strategic funding - €50 million *per year* for a decade - on ME/CFS and Long Covid research. Spent wisely this could be a game changer. Germany now leads & other countries need to follow. Goal to “decipher the causes and mechanisms and develop new treatments”. #MEcfs #longcovid

2) The decade runs from 2026 to 2036 and and has a total budget of € 500 million, so it will be approximately € 50 million per year.

In comparison, NIH funding for ME/CFS in the US is < $15 million.

1) 🇩🇪 Some really good news! Germany plans to invest half a billion euros in research on diseases such as ME/CFS and Long Covid.

They are calling it "The National Decade Against Post-Infectious Diseases"

A moving tribute to another young life lost to severe #MEcfs. Things have to change. #SevereMEcfs #IACC #LongCovid. www.instagram.com/p/DQwyde5ADX...

Looking forward to this!

Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack!
massmecfs.org/events/annua...

#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness

Hey, #MedSky & #SciSky! New text from Elsevier out today, "The Scientific Basis of Fatigue", with multiple chapters on different diseases, including #MECFS, COVID, Parkinson's, stroke and MS.

Proud to be the co-author of the #MECFS chapter with authors from Mayo and Bateman-Horne! More info:🧪

We are so happy to announce that we will have Beth Pollack as our guest speaker for our Annual Meeting! Details coming soon!
MassMECFS.org

NIH RECOVER TLC clinical trials for Long COVID. - Massachusetts ME/CFS & FM

MassME is proud to sign on to this letter encouraging subgroup tracking and analysis in the NIH RECOVER TLC clinical trials for Long COVID.
massmecfs.org/advocacy/nat...

#massmecfs #MEAction #SolveMe #openmedicinefoundation #batemanhornecenter #renegaderesearch #redefiningmecfs #corecommunity