How as the mum of an ME sufferer could you vote for it? Do you not realise hundreds of thousands of ME sufferers will be affected by this & it only delays it doesn't stop it.
03.07.2025 12:39 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0@susand1408.bsky.social
I have #MECFS, Fibromyalgia, Peripheral neuropathy, Asthma, POTS, Vasovagal syncope and a ton of other things. Mum of 1 Son, Husband of 20 yrs
How as the mum of an ME sufferer could you vote for it? Do you not realise hundreds of thousands of ME sufferers will be affected by this & it only delays it doesn't stop it.
03.07.2025 12:39 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0Look at who supports the other parties. Foreigners have been playing their part in this country for years
01.12.2024 09:52 โ ๐ 3 ๐ 0 ๐ฌ 8 ๐ 0Yes but our current system is currently completely broken. There are only 2 main parties who seem to want to make anyone who isn't rich extremely poor. Apparently as a mass we should bow to them & if not useful to them die
01.12.2024 09:52 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0A pretend polaroid shows Dr William Weir posing for a photo holding a #ThereForME Christmas card. The design shows two presents, one labelled "patient safety", the other "research". The photo is labelled "1".
This second image displays Dr Weir's handwritten message. It reads โBest wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weirโ
Dec 1: It's Dr William Weir, who has worked with and supported patients with ME for decades.
His message: โBest wishes for Christmas to everyone with ME or Long Covid. You all deserve excellent and appropriate treatment, with a full understanding of its causes. William Weirโ
Good morning. 1st December, flashback time!!!
Happy Sunday
#gardening ๐ฑ
I did. I said I have multiple health conditions that put me at risk with respiratory infections which is why I wear a mask to stop catching them. Made no difference
30.11.2024 18:49 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0So am I but I got treated like I was mental in my hospital. I have 21 conditions. High risk. They offer me jabs every year because I am so high a risk but treat me badly if I wear a mask
30.11.2024 18:48 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Both. My dog helps reduce my panic attacks but when he need the loo at 5:47am and I am really suffering it's too much responsibility. I still do it but pay the price.
30.11.2024 18:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0I stopped wearing my mask to hospital appointments because I was treated like I had a mental health condition for still masking. One Nurse even asked if I was paranoid
30.11.2024 18:01 โ ๐ 2 ๐ 0 ๐ฌ 2 ๐ 0I am waiting for my cardiology scan since getting Covid. I have ME and POTS already but after the last time I caught it I have been having problems with Angina like pain. A&E just send me home so been dealing with it myself.
30.11.2024 15:05 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0Managed the trip to B&Q. Literally walked in door to the paint. Picked the paint. Walked out. Now in bed completely exhausted. They had their Christmas decorations but too exhausted to look
30.11.2024 15:03 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Going and try and go for a trip out today. Nothing exciting going with hubby to get paint. Then straight back to bed.
30.11.2024 11:53 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0A lot of people in the UK going into hospital catch Covid. It's awful and everyone seems to be just ignoring it.
30.11.2024 06:41 โ ๐ 4 ๐ 1 ๐ฌ 1 ๐ 0I can't even imagine how difficult that is.
29.11.2024 14:13 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Why did it. Just don't drink
29.11.2024 14:12 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0No and hopefully it will be the same here as in most other countries that do it and have done for a long time. I want the choice for terminal patients so they don't have to commit suicide or starve. But I don't want it forced on anyone including disabled & chronically ill like Canada
29.11.2024 14:11 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Really worried about my son. He was vomiting again last night. Dizzy spells and stomach pain. Couldn't come home for 2 hrs this morning till things settled down. Having at least 2-3 attacks a week now & fatigue is huge. Blood test for Cushings isn't till 13th Dec
29.11.2024 13:46 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0This was on the news today. I think it may be due to them being a death penalty state and a lot of drug companies won't supply their drugs to them because of that
29.11.2024 12:44 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0This has only been heard of in Oregan. In the US they have more problems because companies won't supply the drugs in case they use them on death row. This isn't a problem elsewhere in the world.
29.11.2024 12:43 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0I have a friend online who is bed bound with ME. Is struggling to stay alive. They have rung her to say she needs to go in and see a work coach. No treatment no cure but have a miracle & come in so you can work.
29.11.2024 12:41 โ ๐ 3 ๐ 0 ๐ฌ 0 ๐ 0It's as usual it's just the pace trial by another name. When a paper says probably can help and maybe helpful. That isn't a scientific paper.
29.11.2024 12:39 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0Beautiful.
29.11.2024 12:38 โ ๐ 1 ๐ 0 ๐ฌ 1 ๐ 0Right
26.11.2024 12:26 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0