James Lind Alliance

We need your help! As part of our priority setting partnership in association with the @jameslindalliance.bsky.social we are opening our second survey to determine the highest priority questions for research! 💡

⭐Open to professionals, patients and carers!

uwe.eu.qualtrics.com/jfe/form/SV_...

📢 The Essential Tremor PSP has published its priorities for future research!

This PSP collaborated with individuals affected by essential tremor, healthcare professionals, and families/caregivers to identify the challenges and unmet needs in patient management and care.

🌐 buff.ly/w40YsYW

📢The Chronic and Recurrent Urinary Tract Infection (UTI) PSP has published its priorities for future research after collaborating with patients, carers, and clinicians.

These priorities are informed by lived and professional experience, highlighting current gaps in knowledge ➡️ buff.ly/ajsFP62

The Mental Health and the Body Clock PSP gathered uncertainties that explored the disruption of body clocks in people with mental health difficulties, and mental health difficulties in people with disrupted body clocks.

🔗 Find out more about the Top 10: buff.ly/meAZdfs

Programmes - Innovate UK Business Connect We offer a variety of innovation programmes to support businesses and researchers in developing and commercialising new products, processes, and services. These programmes can include related funding…

📢 New funding opportunity

The Office for Life Sciences has launched the £20m Addiction Healthcare Goals - Catalysing Innovation Awards, delivered by Innovate UK. This programme aims to fast-track new solutions to tackle drug and alcohol addiction challenges.

➡️Read more and apply: buff.ly/JrP85id

Research priorities for mental health and circadian science: a priority setting partnership of individuals with lived experience, carers, clinicians and researchers Background Undisturbed circadian rhythms of rest/activity are crucial to health and well-being. There is growing evidence to suggest that circadian rhythm disruptions are also associated with adverse ...

A big announcement! 📣
Our paper: "Research priorities for mental health and circadian science: a priority setting partnership of individuals with lived experience, carers, clinicians and researchers" has been published in BMJ Mental Health
mentalhealth.bmj.com/content/29/1...

Help to improve the future of transition-related care by sharing the issues that you think require further investigation. Have your say: buff.ly/KCD3laG

For more information about the Gender Incongruence in Adults (Non-Surgical) PSP, visit: buff.ly/tekXgbu

Mental Health in Children and Young People About this Priority Setting Partnership

The Mental Health in Children & Young People JLA PSP brought together young people, families and professionals to agree what research really matters.

🌟This #ChildrensMentalHealthWeek we encourage researchers and funders to align future work with these priorities:

Fill | Women's Heart Health We want to know what's really important to you to improve women's heart health.

📢PSP Initial survey!

The Women and Cardiovascular Disease PSP wants to know what's really important to you to improve women's heart health.

🔗Share your views here:

Childhood Physical Disability (Canada) About this Priority Setting Partnership

The Childhood Physical Disability (Canada) PSP worked with patients, caregivers and healthcare providers to identify and prioritise uncertainties about the diagnosis, treatment and daily functioning of children with physical disabilities.

Check out the Top 10 research priorities:

The UK Epilepsy PSP worked with the epilepsy community to identify research priorities to improve healthcare and the quality of epilepsy research. The Top 10 was published in 2022: buff.ly/UYUHpSB.

🌟We encourage researchers to use these priorities to shape their work.

#InternationalEpilepsyDay.

Do you live in Canada? Are you a patient living with or beyond cancer, a cancer caregiver, a cancer care clinician, or a health policymaker?

Help to determine the top unanswered research questions about psychedelic-assisted cancer therapies.

➡️Have your say:

📢JLA PSPs want to hear from you!

Anyone with relevant experience can share what they believe should be priorities for future research. Whether you are a patient, carer or healthcare professional your views are welcome.

Find out which surveys you can take part in:
buff.ly/g18KyMz

The Prehabilitation for Hip and Knee Replacement Surgery PSP worked with patients, carers, and clinicians to identify research priorities that reflect the real-world needs and experiences of those directly affected.

Find out more about the PSP's Top 10 in this journal article: buff.ly/4MziIo3

Your priorities for Intensive Care (ICU) research Take this survey powered by surveymonkey.com. Create your own surveys for free.

What unanswered questions about adult intensive care are important to people who have been critically ill, their families, and the health professionals who care for them?

➡️If you have any lived and/or professional experience have your say in this survey:

Help shape research into gender dysphoria & incongruence in young people focusing on what matters to you as a health, care, education and other professional.
👉Complete the short survey here: buff.ly/MXvpiTV

The Stillbirth PSP worked with families affected by stillbirth and healthcare professionals to identify a new set of priorities for researchers investigating stillbirth.

🔗 The Top 12 priorities are now available on the JLA website: buff.ly/ISfJ9Lc
🔗 For more information, visit: buff.ly/2gEzYvV

Gosh - all those familiar faces who helped us from May 2010 all the way through to publication in Jan 2013! Huge thanks to you all for keeping going and growing and strengthening the JLA to where you are now.

The History of the JLA: The First Decade Our timeline, James Lind Alliance: The History 2003-2013, demonstrates how over the course of a decade, the JLA evolved from the seed of an idea to the influential methodology that it is today.

📢What's new on the JLA website?

In our latest blog post we share the early history of the James Lind Alliance (JLA) and how it has grown into the initiative that it has become today.

🌐Check it out here:

Working with parents and professionals, we have updated the #stillbirth priority setting partnership. These are the top-12 research priorities for stillbirth in the UK. Thank you to everyone who contributed their time and to @tommyscharity.bsky.social for funding and @jameslindalliance.bsky.social

Results from the Fluids Exclusively Enteral from Day 1 (FEED1) trial have been published in The Lancet: buff.ly/4SrxJbM

🌟 The study was funded by the NIHR Health Technology Assessment (HTA) award. This research addresses priority 6 from the Preterm Birth Priority Setting Partnership (PSP).

Are you the parent or carer of a gender diverse young person? Tell us what questions you think future research needs to answer to help improve future care: buff.ly/MXvpiTV

#GenderDiversity #GenderDysphoria

JLA Activity in The Netherlands As the James Lind Alliance (JLA) methodology is widely used to identify the top questions for future health and social care research to answer, we are regularly improving our approach to supporting Priority Setting Partnerships (PSPs) across the world.

The JLA continues to support research priority setting globally. With a dedicated JLA Adviser based in the Netherlands and several Dutch PSPs underway, we are pleased to share the ongoing JLA activity taking place in the Netherlands.

🌐 Find out more in our latest blog post:

📢New Top10!

The Critical Care Medicine (Canada) PSP worked with patients, family and clinicians to identify the Top 10 priorities for future research about admission to, care in, and outcomes after intensive care unit stays.

Check out the Top 10 priorities here: buff.ly/ZicsRCE

Visit www.bristol.ac.uk/food-allergy-children to watch 'Once Upon a Plate', a video about the James Lind Alliance Priority Setting Partnership that has identified the Top 10 Research Priorities for Food Allergy in Children.
@nihrspcr.bsky.social
@riddmj.bsky.social
@capcbristol.bsky.social

⭐Our @skinandallergy.bsky.social team have completed a @jameslindalliance.bsky.social Priority Setting Partnership to identify the Top 10 Research Priorities for Food Allergy in Children. ⭐

🎬This great little film for children explains the process & why identifying these priorities is important. 🔽

Have your say on the future of research into health and care services for gender diverse young people. The Youth Gender Diversity PSP wants to know what matters to you.
📝Take the survey: buff.ly/Or9cup9

NIHR's Health Technology Assessment (HTA) Programme is looking to fund research about the use of light therapy in care/nursing homes. Apply here: buff.ly/Jq0bLyk

🌟This funding opportunity addresses the 16th priority from the Mental Health and the Body Clock Priority Setting Partnership (PSP).

Identifying Research Priorities in Neuroendocrine Cancer Survey Take this survey powered by surveymonkey.com. Create your own surveys for free.

Ae you or a loved one affected by neuroendocrine cancer? Do you support patients who have neuroendocrine cancer?
Take part in this survey to share what you think are the most important research questions for neuroendocrine cancer going forwards ➡️

Let’s make care better for gender diverse young people – your voice matters.
🔗Take the survey: buff.ly/Or9cup9
📣Please help us get as many voices heard as possible and share this post.