@jameslindalliance.bsky.social
Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address. Visit our website: https://www.jla.nihr.ac.uk/
📢 The second survey is now open for Metabolic Interventions for People with Severe Mental Illness (SMI) PSP.
Help to decide which questions researchers should focus on to improve the metabolic health of people living with SMI. Have your say: buff.ly/isjGdqQ
#JLA
The JLA is excited to join the incredible lineup of speakers at the 2025 PeDRA Annual Conference in Minneapolis this October! We look forward to sharing the work of the JLA with the pediatric dermatology community.
📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m
#PeDRA2025
The Childhood Deafness and Hearing Loss PSP has published the top priorities for future research aimed at improving our understanding of childhood hearing loss.
➡️Top 10 priorities ranked by adults: buff.ly/GQq4qNB
➡️Top 10 priorities ranked by children: buff.ly/1hR5qEu
We are thrilled to share that the JLA will be speaking at the 2025 PeDRA Annual Conference this October in Minneapolis! We look forward to forming new connections and sharing the value of JLA Priority Setting Partnerships.
📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m
Help to identify which research areas matter most to the sickle cell community, ensuring that people directly affected are at the heart of future research decisions. Whether you have sickle cell, carry the trait, or are a loved one, or a clinician, your insights are vital.
➡️ buff.ly/f20QnEM
📢PSP Shortlisting survey
The Stillbirth PSP is asking parents, professionals and anyone affected by stillbirth to prioritise the most urgent unanswered research questions. Your input will shape the future of research and care.
To take part in the survey, visit: buff.ly/jtffsUo
📢 PSP Initial survey:
You are invited to take part in a survey to help researchers understand what matters most to families and clinicians about Paediatric Sepsis. You do not need to be an expert, just share your thoughts and experiences.
👉Have your say - buff.ly/O3Vuspo
📢 PSP Shortlisting survey:
The Forensic Mental Health and Neurodiversity Priority Setting Partnership would like to hear from you. What questions relating to offending behaviour and mental health/neurodiversity would you like research to answer?
🔗Have your say - buff.ly/ZvLGS7R
🌟 Behind every PSP's Top 10 is a robust, inclusive process!
The #JLA methodology ensures that priorities are identified and agreed in a way that is fair and transparent. A full list of PSP Top 10s can be found on the JLA website: buff.ly/tJpBWwt
#ResearchPriorities
Amplifying lived experience:
A project on the Isle of Wight has helped shape local priorities in schizophrenia research & services, building on the JLA PSP. Read more in our latest blog.
➡️ www.jla.nihr.ac.uk/news/shaping...
From the formation of the Steering Group to the final workshop, JLA PSPs are designed to ensure the voices of patients, carers and healthcare professionals remain at the heart of everything they do.
💬Below is feedback shared by a final workshop participant:
If you are living with MND/ALS, have a spinal cord injury or are a stroke survivor please help with our survey on Brain-Computer Interfaces. Survey link www.surveymonkey.com/r/65Q5C8K
@mndassoc.bsky.social @spinalinjuries.bsky.social @jameslindalliance.bsky.social
JLA final workshops are a collaborative space for patients, carers and healthcare professionals to agree on the research priorities that matter most to them.
Feedback from participants highlights how valuable this process can be for individuals, and for shaping future research.
🚨 Help Shape the future of Same day & urgent care workforce research! 🚨
We're working with @jameslindalliance.bsky.social to set research priorities and we want to hear from you.
💬 Got 2 minutes? You can even send us a WhatsApp to take part quickly.
🔗 Take part at surgeworkforce.uk/priority-set...
🚨 Help Shape the future of Same day & urgent care workforce research! 🚨
We're working with @jameslindalliance.bsky.social to set research priorities and we want to hear from you.
💬 Got 2 minutes? You can even send us a WhatsApp to take part quickly.
🔗 Take part at surgeworkforce.uk/priority-set...
James Lind Alliance (JLA) final workshops are where everything comes together for Priority Setting Partnerships (PSPs). Patients, carers and healthcare professionals work together to agree the Top 10 priorities for future research.
The impact is clear from participant feedback:
At JLA final workshops, patients, carers & clinicians work together to agree the Top 10 research priorities.
🗣️Here’s what a participant had to say about the process:
All PSPs receive expert support from JLA Advisers, who are trained in the JLA methodology. These Advisers help PSPs navigate the process with confidence, ensuring they remain inclusive, transparent, and aligned with the JLA method.
➡️ Meet our JLA Advisers here: buff.ly/nxZTukI
📢New Top 10!
The Long Term Care Residents with Severe Mental Illness (Saskatchewan, Canada) PSP brought together long-term care residents, their caregivers, and care professionals to identify the top priorities for future research.
Check out the Top 10 here: buff.ly/CPX0kPH
📢 The Lung Transplantation (Canada) PSP has completed its final workshop!
The Top 10 priorities for future research into lung transplantation surgery are now available on the JLA website: buff.ly/4xlwHk6
For more information about the PSP, check out their latest journal article: buff.ly/wdYIbii
📢 New Top 10!
The Bone Marrow Transplantation in Paediatrics PSP worked with patients, families, and healthcare professionals to identify the top unanswered questions about bone marrow transplants and related complications.
🔗Explore the PSP's Top 10 priorities: buff.ly/4EnkAKF
📢New Top 10!
The top priorities for future research relating to childhood and adolescence cancer in Australia have been published.
Here's what patients, their families and the healthcare professionals that support them thought were the most important unanswered questions: buff.ly/bOqZtsf
Feedback from a Steering Group member involved in a recent PSP highlights the value of the JLA initiative.
By bringing people with lived and/or professional experience together as equal partners, JLA PSPs ensure research priorities reflect the needs of those most impacted by the research.
The Pregnancy and Childbirth (Uganda) PSP has had a letter published in The Lancet, Obstetrics, Gynaecology, & Women's Health about how JLA methods were adapted for a rural community in Africa.
📝Read here: buff.ly/XN5UIkW
🌐Find out more about the PSP here: buff.ly/BOKm5v5
🗣 Have your say in shaping the future of health research by taking part in a James Lind Alliance Priority Setting Partnership survey.
All open PSP surveys are available on our website - have your views heard: buff.ly/ZFihRLJ
💬"... a whole new way to generate knowledge."
A Steering Group member from the Pediatric Migrant Health PSP reflects on the power of the #JLA process to shape research that matters through the collaboration of healthcare professionals and individuals with lived migration experiences.
The Dutch Diabetes Association is identifying research priorities together with people with type 1 diabetes, their loved ones and the healthcare professionals that support them.
Take part in the survey to share the questions you think are important for future diabetes research: buff.ly/vg1P0Vv
Help shape the future of #PCOS research!
The Polycystic Ovary Syndrome (PCOS) PSP is working with patients & experts to identify the Top 10 priorities for #PCOSResearch in the UK.
🔗 Take the Survey: buff.ly/64zNjKR
📣 Please share this post with your networks
📢New JLA PSP Top 10!
Discover the Top 10 priorities for future research into managing and supporting the emotional and physical well-being of individuals awaiting hip or knee replacement surgery: buff.ly/eCLg3we
📢New Initial Survey:
What questions should research answer about Irritable Bowel Syndrome (IBS) or Functional Abdominal Pain (FAP-NOS) to better help children who have long-term abdominal pain?
Take part in the IBS and FAP-NOS in Children (Netherlands) PSP survey here: buff.ly/6pmNVo1
