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28.02.2026 15:14 β π 0 π 0 π¬ 0 π 0@thrivingplanet.bsky.social
Was: Facilitation & organisational culture nerd for do-gooders; climate & sustainability. Healthy, athletic; MTB, ski, mountaineering, outdoors. Everything on pause: Long Covid is brutal. A lot funnier IRL Lancaster, North West England (Plague Island) β₯π¨π
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28.02.2026 15:14 β π 0 π 0 π¬ 0 π 0
Dingwalls / London soul / jazz club classic, and well sampled for dancefloor monsters by Me & You (TM Juke & @robertluis.bsky.social on @truthoughts.bsky.social) on Sneaker Thief from the Floating Heavy album, and earlier by LTJ X-perience.
#SoulJazz #JazzDance
www.youtube.com/watch?v=oQkG...
Sympathies and best wishes. I do experience what many refer to as 'brain fog', but it's only one aspect of many for me.
I use terms like cognitive dysfunction, decline, impairment, but that doesn't cover ie head aches / pressure & 'brain on fire'. I often just call it brain damage - because it is.
What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
Long Covid: Symptoms fluctuate but often worsen, impacts on life, work & income tend to worsen, full recovery is rare (5%), 27% reported worsening after cognitive exertion, less than half had a formal diagnosis (would be much lower still in some countries), cognitive dysfunction (62%) is common.
28.02.2026 08:16 β π 13 π 4 π¬ 4 π 0
Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
Thanks @audhdeepd1ve.bsky.social - adding this here for the benefit of anyone else reading this π
Fuck. I know there's been some (way too many) people with Long Covid who have ended their lives too. It's a fucking disgrace.
Best wishes to you.
bsky.app/profile/audh...
Thanks Milly. I don't remember ever seeing that in any research papers, but I'm pretty sure I've heard it mentioned by #pwLC several times. Suspect not common, but suspect you're not alone. No idea (& unqualified to guess) what the reasons might be. Wonder if people with #MECFS have any ideas??
28.02.2026 11:47 β π 4 π 0 π¬ 0 π 0
Vegetarian diet lowers risk of cancer, Oxford study finds
https://www.europesays.com/uk/792718/
The new research β published in the British Journal of Cancer β was the largest ever of itsβ¦
Update Fri 27/2
*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees
Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals
#MECFS
www.gofundme.com/f/severemerg...
Hi Suz. I personally don't use the term brain fog much except to communicate with people because maybe they've heard of it or it sounds descriptive. Cognitive dysfunction is a broader term that includes 'brain fog' but also many other things that might not be working well in the brain post Covid.
28.02.2026 10:06 β π 3 π 0 π¬ 1 π 0
New scientific research in Cumbria explores how hidden fungal networks shape treescapes in the UKβs uplands #rewilding #nature #wildlife #biodiversity #ecology #environment #habitats #conservation #climatechange
insideecology.com/2026/02/17/n...
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, Iβve written a follow-up article covering key examples I didnβt include, as well as some developments since.
medium.com/@abrokenbatt...
bsky.app/profile/thri...
28.02.2026 09:06 β π 1 π 0 π¬ 0 π 0Promotional graphic for LONGCOVIDADVOC.SHOP featuring a fluffy ginger cat sitting in green grass, reaching one paw up toward large, white, hand-drawn text that reads "FREEPOST" decorated with paw prints. Below the cat, a white box says "All Orders, All Weekend" above three small t-shirt icons on hangers. The website address is displayed at the bottom on a black banner.
π Last FREEPOST before Long Covid Awareness Day
You can get gifts, & advocacy boost tools like stickers, postcards, t-shirts π
ποΈ longcovidadvoc.shop
...
*With apologies to the many good people who I'm sure did their best and offered care & support.
#SARS #Covid
2) To add to the above, I don't have a paper to hand but from memory: A high proportion of survivors of SARS1 were debilitated by Long Sars. No one* ever helped to make them better. They were abandoned* and largely not recovered 20 years later. The seriousness of #LongCovid is not a surprise.
3)...
Update Fri 27/2
*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees
Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals
#MECFS
www.gofundme.com/f/severemerg...
What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
Thanks. I don't know, others will know more but guessing it might be like dodgy coppers under investigation who retire and nothing happens. Sympathy is in short supply for him, but my wrath is focused on the whole government + public health leaders - devastating failure, made the problem even worse.
28.02.2026 08:25 β π 1 π 0 π¬ 0 π 0Long Covid: Symptoms fluctuate but often worsen, impacts on life, work & income tend to worsen, full recovery is rare (5%), 27% reported worsening after cognitive exertion, less than half had a formal diagnosis (would be much lower still in some countries), cognitive dysfunction (62%) is common.
28.02.2026 08:16 β π 13 π 4 π¬ 4 π 0On #GortonandDenton by-election, #Covid, #LongCovid and the Loudest Silence
27.02.2026 19:24 β π 4 π 3 π¬ 0 π 0
What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
BREAKING NEWS
The Joint Intelligence Committee report Starmer & Co. didn't want you to see in full is uncovered
Listen to what they didn't want you to hear, and you will understand why
youtu.be/59DZiPdsOc8
As Gorton and Denton went to the polls in a close-run contest, one thing seemed to be forgotten: the reason for the by-election is met with silence Β |Β Pen Scrivener
27.02.2026 17:07 β π 12 π 11 π¬ 2 π 4Make Votes Matter protest at Westminster. One activist holds a banner that says, "Our FPTP voting system fails to give us representation in govt".
Hereβs the truth, writes Jenny Riddell-Carpenter: the only reason a Farage-led majority is even conceivable is First Past the Post. Disproportionate systems distort outcomes β & amplify extremes. Fair votes arenβt a luxury. Theyβre democratic self-defence.
eastangliabylines.co.uk/democracy/el...
There's an update on Savannah's gfm. TW so much medical abuse.
Please keep sharing and donating!
By trying to find somewhere less unsafe, she has now lost her NHS provided carers. She's too unwell to do without, so needs to self fund them.
Thank you ππ»
#SaveSavannah #SevereMErgency #ME/CFS
Petition is being suppressed. We are so close. Please,SHARE, SHARE, SHARE
petition.parliament.uk/petitions/75...
What will be overlooked in all the analysis of Hannah Spencer's incredible victory for @greenparty.org.uk - a minor factor perhaps, but it's no surprise science-led pw #LongCovid + people who care or are indirectly affected, disabled, chronically ill, now skew heavily toward Greens.
π§΅ 1/2