Teal text on a charcoal textured background reads βMarch is Long Covid Awareness Month. Year 6. We canβt wait any longer.β Small lifering icons replace the letter Oβs. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.
March is Long Covid Awareness Month.
Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis
We are calling for sustained investment into research & policy change
#longcovidawarenessmonth #wecantwait #longcovidsos
01.03.2026 17:32 β
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YouTube video by andersnordhagen
Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)
Dingwalls / London soul / jazz club classic, and well sampled for dancefloor monsters by Me & You (TM Juke & @robertluis.bsky.social on @truthoughts.bsky.social) on Sneaker Thief from the Floating Heavy album, and earlier by LTJ X-perience.
#SoulJazz #JazzDance
www.youtube.com/watch?v=oQkG...
28.02.2026 14:50 β
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Dr Margaret O'Hara, from the pressure group Long Covid Support, said: "We feel really strongly that's it's just being swept under the carpet now. There's a real attitude of see no
Covid, hear no Covid.
"We are being left in some kind of void."
Six years on from the pandemic, Thompson said there were "hundreds of thousands of people" in the UK with significant long Covid who could not work and were "not acknowledged"
"I never thought I'd be someone who'd need to claim benefits. I was a doctor, I was going to be working, and I can't and that's devastating," she said.
#LongCovid
www.bbc.co.uk/news/article...
01.03.2026 14:05 β
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28.02.2026 15:14 β
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YouTube video by andersnordhagen
Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)
Dingwalls / London soul / jazz club classic, and well sampled for dancefloor monsters by Me & You (TM Juke & @robertluis.bsky.social on @truthoughts.bsky.social) on Sneaker Thief from the Floating Heavy album, and earlier by LTJ X-perience.
#SoulJazz #JazzDance
www.youtube.com/watch?v=oQkG...
28.02.2026 14:50 β
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Sympathies and best wishes. I do experience what many refer to as 'brain fog', but it's only one aspect of many for me.
I use terms like cognitive dysfunction, decline, impairment, but that doesn't cover ie head aches / pressure & 'brain on fire'. I often just call it brain damage - because it is.
28.02.2026 12:15 β
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What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
27.02.2026 21:26 β
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Long Covid: Symptoms fluctuate but often worsen, impacts on life, work & income tend to worsen, full recovery is rare (5%), 27% reported worsening after cognitive exertion, less than half had a formal diagnosis (would be much lower still in some countries), cognitive dysfunction (62%) is common.
28.02.2026 08:16 β
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Email your MP about Long Covid Awareness Day
Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday
#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social
28.02.2026 11:35 β
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Thanks @audhdeepd1ve.bsky.social - adding this here for the benefit of anyone else reading this π
Fuck. I know there's been some (way too many) people with Long Covid who have ended their lives too. It's a fucking disgrace.
Best wishes to you.
bsky.app/profile/audh...
28.02.2026 11:53 β
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Thanks Milly. I don't remember ever seeing that in any research papers, but I'm pretty sure I've heard it mentioned by #pwLC several times. Suspect not common, but suspect you're not alone. No idea (& unqualified to guess) what the reasons might be. Wonder if people with #MECFS have any ideas??
28.02.2026 11:47 β
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Update Fri 27/2
*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees
Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals
#MECFS
www.gofundme.com/f/severemerg...
28.02.2026 08:47 β
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Hi Suz. I personally don't use the term brain fog much except to communicate with people because maybe they've heard of it or it sounds descriptive. Cognitive dysfunction is a broader term that includes 'brain fog' but also many other things that might not be working well in the brain post Covid.
28.02.2026 10:06 β
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ME/CFS Scandal Follow up
The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introductionβββhow for decades patients were toldβ¦
My #MECFS scandal explainer video has just passed 200,000 views.
Given the level of interest, Iβve written a follow-up article covering key examples I didnβt include, as well as some developments since.
medium.com/@abrokenbatt...
19.01.2026 07:53 β
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bsky.app/profile/thri...
28.02.2026 09:06 β
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Promotional graphic for LONGCOVIDADVOC.SHOP featuring a fluffy ginger cat sitting in green grass, reaching one paw up toward large, white, hand-drawn text that reads "FREEPOST" decorated with paw prints. Below the cat, a white box says "All Orders, All Weekend" above three small t-shirt icons on hangers. The website address is displayed at the bottom on a black banner.
π Last FREEPOST before Long Covid Awareness Day
You can get gifts, & advocacy boost tools like stickers, postcards, t-shirts π
ποΈ longcovidadvoc.shop
28.02.2026 09:01 β
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...
*With apologies to the many good people who I'm sure did their best and offered care & support.
#SARS #Covid
28.02.2026 09:00 β
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2) To add to the above, I don't have a paper to hand but from memory: A high proportion of survivors of SARS1 were debilitated by Long Sars. No one* ever helped to make them better. They were abandoned* and largely not recovered 20 years later. The seriousness of #LongCovid is not a surprise.
3)...
28.02.2026 09:00 β
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Update Fri 27/2
*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees
Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals
#MECFS
www.gofundme.com/f/severemerg...
28.02.2026 08:47 β
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What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
27.02.2026 21:25 β
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Thanks. I don't know, others will know more but guessing it might be like dodgy coppers under investigation who retire and nothing happens. Sympathy is in short supply for him, but my wrath is focused on the whole government + public health leaders - devastating failure, made the problem even worse.
28.02.2026 08:25 β
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Long Covid: Symptoms fluctuate but often worsen, impacts on life, work & income tend to worsen, full recovery is rare (5%), 27% reported worsening after cognitive exertion, less than half had a formal diagnosis (would be much lower still in some countries), cognitive dysfunction (62%) is common.
28.02.2026 08:16 β
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On #GortonandDenton by-election, #Covid, #LongCovid and the Loudest Silence
27.02.2026 19:24 β
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What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
27.02.2026 21:26 β
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What I said, but in more detail. Thanks @northwestbylines.co.uk
bsky.app/profile/nort...
27.02.2026 21:25 β
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YouTube video by ITV News
We uncovered the redacted climate report the government didnβt want you to see
BREAKING NEWS
The Joint Intelligence Committee report Starmer & Co. didn't want you to see in full is uncovered
Listen to what they didn't want you to hear, and you will understand why
youtu.be/59DZiPdsOc8
27.02.2026 18:36 β
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The loudest silence
As Gorton and Denton went to the polls in a close-run contest, one thing seemed to be forgotten: the reason for the by-election is met with silence
As Gorton and Denton went to the polls in a close-run contest, one thing seemed to be forgotten: the reason for the by-election is met with silence Β |Β Pen Scrivener
27.02.2026 17:07 β
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