Martin Grimshaw Has Long Covid's Avatar

Martin Grimshaw Has Long Covid

@thrivingplanet.bsky.social

Was: Facilitation & organisational culture nerd for do-gooders; climate & sustainability. Healthy, athletic; MTB, ski, mountaineering, outdoors. Everything on pause: Long Covid is brutal. A lot funnier IRL Lancaster, North West England (Plague Island) β“₯πŸ‡¨πŸ‡­

3,377 Followers  |  5,877 Following  |  624 Posts  |  Joined: 10.09.2024
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Posts by Martin Grimshaw Has Long Covid (@thrivingplanet.bsky.social)

HOPE IS HERE

200K
GREEN PARTY
MEMBERS

Green Party
Promoted by Chris Williams on behalf of The Green Party, both at PO Box 78066, London SE169GQ

HOPE IS HERE 200K GREEN PARTY MEMBERS Green Party Promoted by Chris Williams on behalf of The Green Party, both at PO Box 78066, London SE169GQ

🚨 BREAKING 🚨 The Green Party has over 200,000 members.

More members, more councillors, more MPs.

The Green Party just keep growing.

Join us ‡️

01.03.2026 10:00 β€” πŸ‘ 1436    πŸ” 454    πŸ’¬ 39    πŸ“Œ 72

Bloody marvellous! This is the cheering photo I need to see today: Hannah Spencer is sworn in as the 5th Green Party MP πŸ’š

02.03.2026 16:58 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, β€œWe are being left in some kind of void.” Attribution below: β€œMargaret O’Hara, Trustee, Long Covid Support.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Large text reads, β€œWe are being left in some kind of void.” Attribution below: β€œMargaret O’Hara, Trustee, Long Covid Support.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, β€œI struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: β€œSusannah Thompson, Former GP living with Long Covid.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, β€œI struggle to have a conversation. I’ve lost my thinking ability and short-term memory. I think that’s one of the hardest things.” Attribution: β€œSusannah Thompson, Former GP living with Long Covid.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, β€œServices that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: β€œLuke Akehurst, MP for North Durham.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

Quote graphic on a light blue background with teal silhouette borders at top and bottom. Text reads, β€œServices that were there, instead of being enhanced, are being run down. I find that shocking and want to do as much as I can in parliament to raise the need for proper care.” Attribution: β€œLuke Akehurst, MP for North Durham.” Small line reads β€œBBC News | 1 March 2026” with the Long Covid Support logo at the bottom.

β€œWe are being left in some kind of void.” - Margaret O’Hara, Trustee, Long Covid Support

BBC News North East & Cumbria reports the region’s last dedicated Long Covid clinics are due to close this month.

Read: www.bbc.co.uk/news/article...

#LongCovid #LongCovidClinics

02.03.2026 15:55 β€” πŸ‘ 22    πŸ” 10    πŸ’¬ 0    πŸ“Œ 0

As a person with Very Severe ME, I hate how articles describe ME.

β€œchronic fatigue, some people can’t exercise and work, often people have headaches and nausea”.

I haven’t
* left my bed in 2 years
* spoke in 1.5 years
* heard a human voice in 1.5 years

And that’s how you describe my illness?

20.03.2025 14:03 β€” πŸ‘ 152    πŸ” 48    πŸ’¬ 6    πŸ“Œ 1

Are we seeing a renewed attempt to erase #ME from the all NHS systems? Has a secret decree gone out? I’m seeing more and more reports from pwME about abuse in hospitals and from specialists. The feeble DHSC plan, the disregard of NICE guidelines, endless FND diagnoses from neuros. It’s all downhill.

20.02.2026 11:38 β€” πŸ‘ 18    πŸ” 9    πŸ’¬ 3    πŸ“Œ 0

The mass suffering created and amplified by psychosomatic ideology is absolutely criminal.

None of this has to happen, it's all a choice. No one is responsible or accountable for any of this filth.

And all for complete bullshit fantasies.

28.02.2026 15:43 β€” πŸ‘ 12    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
Teal text on a charcoal textured background reads β€œMarch is Long Covid Awareness Month. Year 6. We can’t wait any longer.” Small lifering icons replace the letter O’s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

Teal text on a charcoal textured background reads β€œMarch is Long Covid Awareness Month. Year 6. We can’t wait any longer.” Small lifering icons replace the letter O’s. The Long Covid SOS logo appears in the bottom left corner in white with a red lifering in SOS.

March is Long Covid Awareness Month.

Millions still live with life-altering symptoms & remain without consistent care.
Research funding does not reflect the scale of the crisis

We are calling for sustained investment into research & policy change

#longcovidawarenessmonth #wecantwait #longcovidsos

01.03.2026 17:32 β€” πŸ‘ 27    πŸ” 18    πŸ’¬ 0    πŸ“Œ 3
Preview
EXCLUSIVE: the DWP has a secret team planting benefit fraud propaganda in the mainstream media In an exclusive report, the Canary reveals that the DWP has internal guidance on placing propaganda in the MSM - including doxing claimants

The DWP has a secret team planting benefit fraud propaganda in the mainstream media

EXCELLENT investigation by my @thecanaryuk.bsky.social
colleague Hannah Sharland www.thecanary.co/uk/analysis/...

26.01.2026 19:44 β€” πŸ‘ 53    πŸ” 40    πŸ’¬ 4    πŸ“Œ 6
Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)
YouTube video by andersnordhagen Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)

Dingwalls / London soul / jazz club classic, and well sampled for dancefloor monsters by Me & You (TM Juke & @robertluis.bsky.social on @truthoughts.bsky.social) on Sneaker Thief from the Floating Heavy album, and earlier by LTJ X-perience.

#SoulJazz #JazzDance

www.youtube.com/watch?v=oQkG...

28.02.2026 14:50 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Dr Margaret O'Hara, from the pressure group Long Covid Support, said: "We feel really strongly that's it's just being swept under the carpet now. There's a real attitude of see no
Covid, hear no Covid.
"We are being left in some kind of void."

Dr Margaret O'Hara, from the pressure group Long Covid Support, said: "We feel really strongly that's it's just being swept under the carpet now. There's a real attitude of see no Covid, hear no Covid. "We are being left in some kind of void."

Six years on from the pandemic, Thompson said there were "hundreds of thousands of people" in the UK with significant long Covid who could not work and were "not acknowledged"
"I never thought I'd be someone who'd need to claim benefits. I was a doctor, I was going to be working, and I can't and that's devastating," she said.

Six years on from the pandemic, Thompson said there were "hundreds of thousands of people" in the UK with significant long Covid who could not work and were "not acknowledged" "I never thought I'd be someone who'd need to claim benefits. I was a doctor, I was going to be working, and I can't and that's devastating," she said.

#LongCovid

www.bbc.co.uk/news/article...

01.03.2026 14:05 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

πŸ™

28.02.2026 15:14 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)
YouTube video by andersnordhagen Danser's Inferno - Sombre Guitar ( Latin Jazz Fusion 1972)

Dingwalls / London soul / jazz club classic, and well sampled for dancefloor monsters by Me & You (TM Juke & @robertluis.bsky.social on @truthoughts.bsky.social) on Sneaker Thief from the Floating Heavy album, and earlier by LTJ X-perience.

#SoulJazz #JazzDance

www.youtube.com/watch?v=oQkG...

28.02.2026 14:50 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Sympathies and best wishes. I do experience what many refer to as 'brain fog', but it's only one aspect of many for me.

I use terms like cognitive dysfunction, decline, impairment, but that doesn't cover ie head aches / pressure & 'brain on fire'. I often just call it brain damage - because it is.

28.02.2026 12:15 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 2    πŸ“Œ 0

What I said, but in more detail. Thanks @northwestbylines.co.uk

bsky.app/profile/nort...

27.02.2026 21:26 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0

Long Covid: Symptoms fluctuate but often worsen, impacts on life, work & income tend to worsen, full recovery is rare (5%), 27% reported worsening after cognitive exertion, less than half had a formal diagnosis (would be much lower still in some countries), cognitive dysfunction (62%) is common.

28.02.2026 08:16 β€” πŸ‘ 13    πŸ” 4    πŸ’¬ 4    πŸ“Œ 0
Preview
Email your MP about Long Covid Awareness Day

Can you spare one minute to support children with Long Covid today?
Use our template to write to your MP.
longcovidkids.eaction.org.uk/awarenessday

#LongCovidAwareness #ChildrensRights
@lcawarenessint.bsky.social @longcovidsupport.bsky.social @longcovidphysio.bsky.social @longcovidsos.bsky.social

28.02.2026 11:35 β€” πŸ‘ 15    πŸ” 18    πŸ’¬ 4    πŸ“Œ 0

Thanks @audhdeepd1ve.bsky.social - adding this here for the benefit of anyone else reading this πŸ™

Fuck. I know there's been some (way too many) people with Long Covid who have ended their lives too. It's a fucking disgrace.

Best wishes to you.

bsky.app/profile/audh...

28.02.2026 11:53 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Thanks Milly. I don't remember ever seeing that in any research papers, but I'm pretty sure I've heard it mentioned by #pwLC several times. Suspect not common, but suspect you're not alone. No idea (& unqualified to guess) what the reasons might be. Wonder if people with #MECFS have any ideas??

28.02.2026 11:47 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Vegetarian diet lowers risk of cancer, Oxford study finds - United Kingdom The new research - published in the British Journal of Cancer - was the largest ever of its kind, and included data from various studies across the world,

Vegetarian diet lowers risk of cancer, Oxford study finds

https://www.europesays.com/uk/792718/

The new research – published in the British Journal of Cancer – was the largest ever of its…

27.02.2026 15:20 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 1

Update Fri 27/2

*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees

Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals

#MECFS

www.gofundme.com/f/severemerg...

28.02.2026 08:47 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

Hi Suz. I personally don't use the term brain fog much except to communicate with people because maybe they've heard of it or it sounds descriptive. Cognitive dysfunction is a broader term that includes 'brain fog' but also many other things that might not be working well in the brain post Covid.

28.02.2026 10:06 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
Preview
New scientific research in Cumbria explores how hidden fungal networks shape treescapes in the UK’s uplands - Inside Ecology Cumbria Connect, the landscape-scale nature recovery programme, has secured new funding for its science programme to investigate how underground fungal networks influence the success of woodland creat...

New scientific research in Cumbria explores how hidden fungal networks shape treescapes in the UK’s uplands #rewilding #nature #wildlife #biodiversity #ecology #environment #habitats #conservation #climatechange
insideecology.com/2026/02/17/n...

17.02.2026 19:22 β€” πŸ‘ 1    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
Preview
ME/CFS Scandal Follow up The ME/CFS scandal goes much deeper than my 27-minute explainer video. That was just an introductionβ€Šβ€”β€Šhow for decades patients were told…

My #MECFS scandal explainer video has just passed 200,000 views.

Given the level of interest, I’ve written a follow-up article covering key examples I didn’t include, as well as some developments since.

medium.com/@abrokenbatt...

19.01.2026 07:53 β€” πŸ‘ 116    πŸ” 65    πŸ’¬ 10    πŸ“Œ 6

bsky.app/profile/thri...

28.02.2026 09:06 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Promotional graphic for LONGCOVIDADVOC.SHOP featuring a fluffy ginger cat sitting in green grass, reaching one paw up toward large, white, hand-drawn text that reads "FREEPOST" decorated with paw prints. Below the cat, a white box says "All Orders, All Weekend" above three small t-shirt icons on hangers. The website address is displayed at the bottom on a black banner.

Promotional graphic for LONGCOVIDADVOC.SHOP featuring a fluffy ginger cat sitting in green grass, reaching one paw up toward large, white, hand-drawn text that reads "FREEPOST" decorated with paw prints. Below the cat, a white box says "All Orders, All Weekend" above three small t-shirt icons on hangers. The website address is displayed at the bottom on a black banner.

πŸ’Œ Last FREEPOST before Long Covid Awareness Day
You can get gifts, & advocacy boost tools like stickers, postcards, t-shirts 😎

πŸ–‡οΈ longcovidadvoc.shop

28.02.2026 09:01 β€” πŸ‘ 6    πŸ” 4    πŸ’¬ 0    πŸ“Œ 0

...

*With apologies to the many good people who I'm sure did their best and offered care & support.

#SARS #Covid

28.02.2026 09:00 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

2) To add to the above, I don't have a paper to hand but from memory: A high proportion of survivors of SARS1 were debilitated by Long Sars. No one* ever helped to make them better. They were abandoned* and largely not recovered 20 years later. The seriousness of #LongCovid is not a surprise.

3)...

28.02.2026 09:00 β€” πŸ‘ 7    πŸ” 1    πŸ’¬ 1    πŸ“Œ 1

Update Fri 27/2

*** CALL TO ACTION***
PLEASE continue to donate & share: we now have to cover cost of carers 24/7 as well as legal fees

Since the last update, there have been 3 different plans involving escape via private ambulance to 3 different hospitals

#MECFS

www.gofundme.com/f/severemerg...

28.02.2026 08:47 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1

What I said, but in more detail. Thanks @northwestbylines.co.uk

bsky.app/profile/nort...

27.02.2026 21:25 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0

Thanks. I don't know, others will know more but guessing it might be like dodgy coppers under investigation who retire and nothing happens. Sympathy is in short supply for him, but my wrath is focused on the whole government + public health leaders - devastating failure, made the problem even worse.

28.02.2026 08:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0