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CVSA UK

@cvsuk.bsky.social

The UK Charity for Cyclical Vomiting Syndrome Supporting users, research, and awareness www.cvsa.org.uk

9 Followers  |  1 Following  |  7 Posts  |  Joined: 05.04.2025  |  1.5834

Latest posts by cvsuk.bsky.social on Bluesky

Pediatric Guidelines Update Project

Paediatric Guidelines for CVS Published.
www.cvsaonline.org/pediatric-gu...

02.05.2025 19:24 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Nominate a charity - Movement for Good Nominate a charity for a Movement for Good award now.

Please nominate us and help us help sufferers of CVS.
#charity #health #cyclicalvomiting #cvs

health.movementforgood.com#nominateACha...

28.04.2025 15:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Survey advertisement

Survey advertisement

Survey

If you haven't completed it, there is still time, please help us help you.
The second stage, interviews now has enough participants but we still need replies to the survey itself.

18.04.2025 16:38 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Image of Charles and description of CVS affecting health  and school attendance, now vastly improved through effective treatment

Image of Charles and description of CVS affecting health and school attendance, now vastly improved through effective treatment

Charles

April is Autism Awareness Month, and Month of the Military Child, it is meaningful to celebrate this incredible milestone 9yr old Charles has been awarded a 100% attendance certificate at school.

16.04.2025 16:04 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Image of, and quote from, Dr Chong

Image of, and quote from, Dr Chong

Did You Know?
CVS can cause 24 hours of severe vomiting, continuous nausea, and lethargy. At its most intense (every 5 minutes), it is the most severe form of vomiting suffered by humans. 51% of sufferers require IV hydration 38 times more likely than someone with gastroenteritis. – Dr. Sonny Chong

09.04.2025 16:35 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Image of Cece with medal for swimming lake Windermere  with caption I deserve to be well.

Image of Cece with medal for swimming lake Windermere with caption I deserve to be well.

Stronger
After years of battling CVS, Cece hit a breaking point. The constant pain, setbacks, and lost time had taken a tollβ€”not just on her body, but on her mind.
Cece shared her story and you can read more about it in our newsletter! Join CVSA UK and get the full newsletter!

05.04.2025 14:13 β€” πŸ‘ 0    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
Post image

CVS Survey

βœ”οΈ 15-minute online survey
🎁 Entry into a £50 prize draw for participation
πŸ“ž Optional follow up interview

Closes: 26th May

Help shape CVS research! Take part here: ⬇️
πŸ”— qualtrics.kcl.ac.uk/jfe/form/SV_...

05.04.2025 14:06 β€” πŸ‘ 4    πŸ” 5    πŸ’¬ 0    πŸ“Œ 0

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