The Dementia Trust

🔸58% incorrectly believe that dementia care is mostly funded by charities, however the majority of care costs are covered by families.

Read the YouGov Embed Care Poll to find out more 👉 buff.ly/4RM5hIM

🧵 3/3

🔸Less than 45% know dementia is a terminal illness.
🔸93% did not know that the number of people dying with dementia is projected to more than double by 2040 in England and Wales

🧵 2/3

🤔 What the public don't know about dementia 👇

9 in 10 members of the British public underestimate the impact of dementia.

Stats from the UK's largest end-of-life dementia care research show:

🔸94% weren't aware dementia is the leading cause of death in the UK.

🧵 1/3

Carers UK homepage We’re here for unpaid carers with expert information, advice & support and also campaign to make life better for carers.

👉 Carers UK
Contact: Helpline 0808 808 7777
Website: buff.ly/2o2MRsp

👉 Age UK
Contact: Helpline 0800 678 1602
Website: buff.ly/2WD4dQe

👉 Mind
Contact: Infoline 0300 123 3393
Website: buff.ly/tCvhB4g

♻️Share with someone you think might need to see this

Alzheimer's Society We are the UK’s leading dementia charity, we tackle all aspects of dementia by giving help and hope to people living with dementia today and in the future.

These organisations are a lifeline and can provide help, information and support. 🙏

👉 Alzheimer's Society
Contact: Helpline 0333 150 3456
Website: buff.ly/3uH1Qcr

👉 Dementia UK
Contact: Helpline 0800 888 6678
Website: buff.ly/30FZ34x

Carers often find it difficult to talk about the emotional impact of caring. 😔

Nearly 60% of people caring for a person living with dementia report experiencing feelings of guilt when seeking support, and around 90% experience stress or anxiety several times a week as a result of their caring role

Conversations with Experts: Bridging Scientific Knowledge and Lived Experience in Rare Dementia What does it mean to be an ‘expert’? Typically, we think of expertise as something gained through years of study and/or professional experience. But this definition neglects expertise gleaned…

Taking rare dementias, for example, clinical and scientific expertise can only get you so far.

💡 In his post UCL research fellow, Dr. Chris Hardy shares more about a Disruption Award funded project called 'Conversations with Experts'.

↳ Check out the conversations buff.ly/M7YNzQD

🧵 2/2

What does it mean to be an expert in rare dementias? 🧠

Typically, we think of expertise as something gained through years of study and/or professional experience.

↳ But this definition neglects expertise developed through lived experience.

🧵 1/2

It's 2025 and the Dementia Trust is celebrating nearly forty years of working to help make things better for people living with dementia and their carers.

But, this year we want to do more.

Tap the link to find out about our vision, values & mission.

🔗 buff.ly/unMM0SK

♻️ Follow us for updates

Trustees then make the final decision.

Successful projects usually start within six weeks.📅

We've received some great applications and look forward to working with successful projects later in the year. 👏

...
Want to find out more about our Awards, tap the link 👉 buff.ly/4crYWNK

📣 The 2025 Disruption Awards are now closed 📣

Thank you so much to everyone who submitted an application this year!

Short‑listed applicants chat with a Trustee and our Advisor to explore ambition, feasibility, and fit. No extra paperwork ⤵

📣 Just 2 days left to apply for a 2025 Disruption Award 📣

Applications are closing on Weds, 9th July.

If you have an idea that could challenge assumptions, inspire hope, or make everyday life better for people living with dementia, we want to hear from you. 🫵

🚨 Apply today at → buff.ly/WVUcOD9

Find out how our three new trustees are challenging assumptions, bringing a new lense to our work, and asking questions that push us forward ⤵

buff.ly/PtqqgPx

"One of the most rewarding aspects of serving as Chair of the Dementia Trust is the opportunity to sit alongside some truly remarkable people", @Dylanharper shares with us.

buff.ly/PtqqgPx

Download the RfP for full details → buff.ly/5kHXvct

📅 Apply by 18 July 2025 to admin@dementiatrust.org.

Help us change the story for people living with dementia and their carers 💜

♻️ Please share with anyone you think might be interested in this role.

🧵 3/3

We’re looking for someone with charity sector comms experience, strong writing skills, and a flair for creative, strategic storytelling.

The basics:
👉 Flexible, part-time (approx. 5 days/month)
👉 Up to £350/day DOE
👉 Collaborate with a dynamic, mission-driven team

🧵 2/3

📣 We’re hiring!
The Dementia Trust is looking for a Marketing & Comms Contractor (Sept 2025–Feb 2026).
Join our mission-led charity to lead digital comms, run campaigns, and help launch our Impact Accelerator programme. Be part of shaping the future of dementia support.

🧵 1/3

The premiere is scheduled for Friday 9 August 2025 at Nantwen, Pembrokeshire, South Wales, during the highly anticipated annual summer concert.

If you would like to attend the premiere or find out more about the project tap the link → buff.ly/qCzLMmp

🧵 2/2

📣 Following an award from the Dementia Trust we are delighted to announce that South Wales based composer, David John Roche has agreed to compose the work for the Nantwen Ensemble. 🎶 🎻

🧵 1/2

To help support your application, trust advisor Sonia Mangan will be hosting two 1hr online walk‑through & Q&A sessions.

📅 The second session is on Weds 18th June 2025, 12:30pm — 1:30pm

Sign up for the session by tapping the link → buff.ly/ycED5mD

Together, let’s reimagine what’s possible 💜

📣 The Dementia Trust Disruption Awards fuel bold, people‑first ideas that improve life with dementia, today.

This year we want to fund 2–3 projects, that continue the extraordinary legacy of innovation, inclusion, and hope.

More about TIDE → buff.ly/3LBiPa3
..

🚨 Do you have a unique or disruptive idea? Would £15,000 help your BIG IDEA take off? 🚀 The 2025 Disruption awards are now open → Tap to apply: buff.ly/5qp8PS6

🧵 3/3

The project aims to help address the unique challenges they face, like balancing work, young families, and financial commitments.

The grant from the Dementia Trust enables the TIDE team, with strong backing from the @NHS and partners like the @alzheimerssoc.bsky.social‬ to scale this project

🧵 2/3

📣 Project spotlight: Disruption Awards ⤵

@tide (together in dementia everyday), with the support of a grant from the Dementia Trust has launched a project to support carers of people with Young Onset Dementia in Liverpool.

🧵 1/3

Emily Kenward, CEO and founder at time to talk befriending shares why befriending matters for people living with dementia and how befriending can help overcome loneliness.

Read about overcoming loneliness: buff.ly/H7W33B6

@Marmalade Trust

27% of adults in the UK report feeling lonely often, always, or some of the time.

There is a common misconception that people with dementia are no longer able to form new connections, or benefit from friendship.

→ This couldn’t be further from the truth.

Watch out for Emily's post next week, as she;
👉 Challenges misconceptions
👉 Offers insights into why connection really matters
👉 Reports on the scale of the challenge of loneliness

Thank you to all the TTTB team for stepping forward and raising awareness of loneliness.

Next week, and every week. 💜

Next week Emily Kenward, CEO and founder at TimeToTalkBefriending tells us why befriending matters for people living with dementia and how befriending can help to overcome loneliness.

2/3

Loneliness Awareness Week begins on Monday 📅

It is a time to pause, reflect, but also act.

We're reminded that, for many people, especially those living with dementia, loneliness is more than a passing feeling.

→ It’s a deep, persistent sense of disconnection 😔

1/3