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happy to announce that, as of today, i’m a regional champion for the christopher and dana reeve foundation. 💛

Act Now: Urge Congress to Fully Fund the Paralysis Resource Center The President’s Fiscal Year 2026 Budget Proposal was released and calls for the complete elimination of the Paralysis Resource Center (PRC), along with other cuts to vital programs serving people livi...

If you’re based in the U.S. and want to help a good cause, you can sign this petition at the 🔗 below and help the Christopher and Dana Reeve Foundation maintain funding for their vital program, the Paralysis Resource Center (PRC)

www.votervoice.net/mobile/REEVE...

going to be posting more on here for a possibly future opportunity. i’d appreciate if those of you who are able can like these future posts. :)

You’re not “too intense”.

You just live in a world that rewards numbness.

You’re not “too sensitive”.

You just feel - in a culture built on suppression.

You’re not “too rigid”.

You just have boundaries that others never had to fight for.

“For more than 20 years, the National Paralysis Resource Center has helped individuals and families find their footing after injury or diagnosis. From emergency rehab placement to housing adaptations, from peer mentoring to suicide prevention, it delivers life-changing and often lifesaving support to a growing community that includes people living with spinal cord injury (SCI), stroke survivors, and people living with ALS, MS, and many other conditions. This program saves lives. And it is cost-effective. That’s why it’s earned bipartisan support year after year. Ending it now would not only halt decades of progress, it would put lives at risk.”

“The National Paralysis Resource Center has been central to politically united efforts to improve health, independence, and dignity for millions. It connects people not just to resources, but to hope, possibility, and a future. Since 2002, it has supported community members as they manage complicated health challenges, build families, pursue education, serve our country in uniform, and advance meaningful careers. Make no mistake: this budget proposal puts lives on the line. But it's not too late to change this outcome. While the President's budget recommends spending levels for the next fiscal year, Congress ultimately decides what programs are funded and at what level.”

“What Americans Lose in This Budget Proposal: One of the National Paralysis Resource Center's most essential functions is the team of certified Information Specialists (IS) who provide personalized support to individuals, families, and caregivers. On a recent winter day, a 17-year-old boy from the Midwest broke his neck while playing hockey at a tournament in Canada; his family needed help getting him safely back to the U.S. Our IS team was ready, working for days to find a rehabilitative center that could meet his complex needs and helping arrange an emergency medical flight.”

“Over two decades, the Quality of Life Grants Program -- a flagship of the National Paralysis Resource Center -- has increased independence and the ability of people with paralysis to lead active, engaged lives. We've provided medical schools with accessible equipment so they can teach future doctors how to better care for people with paralysis. We've funded the installation of ramps and platform lifts in venues that host town halls and public meetings. We've helped sustain suicide prevention programs for veterans and support groups for caregivers. And we've fostered a robust range of adaptive sports and recreation opportunities in cities and small towns alike, funding therapeutic horseback riding programs in rural Tennessee, sled hockey teams in Pittsburgh and adaptive soccer leagues everywhere.”

Hello. A question for researchers from a BA Psych student (wanting to be an academic researcher) :

How do you keep track of research in your field? Do you have notifications on in every journal pertaining to your area of interest?

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Hello everyone. Since I have more followers on here than the other place, I wanted to ask:
Does anyone have a thing where your head drops to the side often? It doesn’t hurt, but I’ve noticed it happening a lot now.

#pwME #MECFS #LongCovid

Two months ago, I would sit up from my bed in pain, walk to the kitchen, eat, and lie back down afterwards. I use a sleeping mask, took an Excedrin to relieve the migraine, and slept for 3 hours.

I do that rarely now, but I’m still constantly in pain.

I just need someone to talk to, really. Anyone

I’ve answered those questions truthfully.

*I don’t use a commode or shower chair, but I do have assistance when bathing.*

*I can “exist” in online spaces—as I’m doing now. It doesn’t affect me very much. I do my college lectures—not on time always, but I do them, and they tire me a lot.*

Hello everyone. I’ve downloaded the FUNCAP app and did the longer 55-questions. It classed me as “2.1 - Severe”

I’m not sure if this is smth to do with maybe a sort of dysautonomia or some other cardiac issue, but I’m getting worried. I don’t currently have medical insurance so I can’t book an appointment to check this

Hello all. I was wondering whether anyone has “shock” feelings around the chest area all of a sudden. It’s usually when I’m moving, or when I’ve stood up too quickly from my bedroom to my kitchen. Sometimes even, it’s just sudden. I feel it in my heart, and it makes me keel (?) over almost

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ICE's Latest Detention Data Shows Growth of Immigrants Targeted With No Criminal Histories – Exactly as Predicted ICE published new detention data today that reflects the outcomes of ICE's recent "enforcement surge." Let's take a closer look.

ICE's Latest Detention Data Shows Growth of Immigrants Targeted With No Criminal Histories – Exactly as Predicted (from @austinkocher.com) austinkocher.substack.com/p/ices-lates...

Thank you @meetinghouse.bsky.social ! I knew of both of these creators but never thought to check their links 😅

hello. i’d like to get involved in advocacy for the causes i care about. i’m already in contact with a foundation about the one cause, but i’m also wishing to know which books i could read about disability justice/and or ableism in our larger society. if anyone could help it’d be greatly appreciated

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thanks for the suggestion :)

hello. i’ve been diagnosed with major depressive disorder since 2023, and i now believe that it wasn’t that at all. i believe it was just autistic burnout.

is there anyway i can bring this up to the psychiatrist?

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ismail merchant and james ivory reading this post in 1978

Have not seen much on here on Sudan, so I'm amplifying this horrific report that shows the number who are killed is higher than previously estimated.

Adding here other writing to read to understand this war that has displaced over 11 million people; the highest displacement crisis globally. 🧵

If my followers could help me with this I'd be grateful. There was talk on the other site of the dangers of legalizing MAiD and assisted dy!ng in the context of chronic illness. Someone had a really good 🧵 on it. I'd also like if you all could share your thoughts on this. Thank you.

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Why #AltText is so important

House GOP Moves to Ram Through Bill That Gives Trump Unilateral Power to Kill Nonprofits A bill to give Donald Trump power to kill nonprofits is still supported by dozens of Democrats — giving the GOP plenty of breathing room.

Time to go to bat again, folks. They're trying to ram the bill through that would allow the Dep't of Treasury to arbitrarily label a nonprofit a terrorist organization and strip it of its 501(c) status.

Can't emphasize enough that no evidence is required to do so.

theintercept.com/2024/11/15/n...

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This person is not going to be a friend to Long Covid and ME/CFS.

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