The 2026 #MPNChallenge™ is here! We’ve already invested over $20M in high-risk, high-reward research to accelerate breakthroughs in ET, PV & MF and we’re not done yet. 

Join our community & stay informed. 

👉 Subscribe here: https://f.mtr.cool/etmbcodmjc

Fewer patients. More questions. For #MPNs, gaps in data mean delayed answers and care. 

This #RareDiseaseMonth, help move science forward.
Donate today: https://f.mtr.cool/pmvtnkoejx

Med students learn: “When you hear hoofbeats, think horses, not zebras.” For rare disease patients, that mindset can delay diagnosis. 

This #RareDiseaseMonth, show your stripes and support #MPNresearch. 

#Donate 👉 https://goto.mpnresearchfoundation.org/3Nj1xmb

MPN Research Foundation invites #MPNpatients to take the 2026 Global #MPN Patient Unmet Needs Assessment, open now through March 18, 2026.  

https://f.mtr.cool/vscmdfvwbn prelim results in Summer 2026  

Please share widely to help identify unmet needs worldwide.

2026 NCCN guidelines now list ropeginterferon alfa 2b njft (besremi®) as a category 1 preferred option for certain high-risk essential thrombocythemia (ET) patients! While use in ET remains investigational and under FDA review, more options are important for people with #MPNs.

Rare Disease Month’s theme this year is Equity. What do you think equity means in the MPN space? Comment here.

Learn about ongoing efforts in #MPNresearch and real-world data at our Feb. 10, 2026, webinar: The Importance of an MPN PROGRESSion Registry™ for Research Progress: Key ASH 2025 Takeaways. Register for this panel discussion today: https://f.mtr.cool/xeeuxnaixn

Stephanie was just 16 when she was diagnosed with ET, a rare blood cancer. Today, she’s championing MPN research and patient education. 

Join her mission this #RareDiseaseMonth. 

👉 Donate today: https://goto.mpnresearchfoundation.org/3Nj1xmb

#MPN #PatientVoice #SupportResearch #Donate

This observational research study will follow myeloproliferative neoplasm (MPN) patients for 5-10 years. It combines electronic medical records and patient reported outcomes to help researchers better understand MPNs. https://f.mtr.cool/gmrfryflty

The January edition of ‘“Under the Microscope’” hit your inboxes at 5PM CT today! Join our community to receive these stories and so much more with this link: https://goto.mpnresearchfoundation.org/4pFAFKC

Global insights matter. Encourage MPN patients to join the 2026 Unmet Needs Assessment and shape future research priorities. 

Assessment link: https://www.tfaforms.com/5184100 

#MPN #PatientEngagement #RareDisease

Progress in MPN Therapies!
 
The FDA has received a New Drug Application (NDA) for rusfertide, an investigational therapy for polycythemia vera that aims to reduce phlebotomies and improve hematocrit control. Stay tuned for updates!
 
#MPNResearch #PV #ClinicalTrials

New year. New opportunity to contribute to future #MPNresearch outcomes. 
If you’ve been thinking about ways you can participate this year, be a catalyst for change. Join the MPN PROGRESSion Registry™. A future without MPN progression starts with you. https://goto.mpnresearchfoundation.org/3VSmaqq

The 2026 Global MPN Patient Unmet Needs Assessment is open. Help us capture patient voices worldwide. Your network can make a difference. Share widely!

Take the survey: https://goto.mpnresearchfoundation.org/4bv9XAR

#MPN #PatientVoice #GlobalHealth #RareDisease

MPN Research Foundation invites #MPNpatients to participate in the 2026 Global #MPN Patient Unmet Needs Assessment, open now. https://www.tfaforms.com/5184100 prelim results in Summer 2026 

Please share widely with international communities to help identify unmet needs worldwide.

The MPN Challenge™ funding cycle is now open. Find further details on eligibility, proposal guidelines, and deadlines. https://goto.mpnresearchfoundation.org/49ixqCH. Proposals are due by March 23, 2026 at 11:59PM CT. #2026MPNChallenge #MPNChallenge #RFA #MPNFundingOpportunity #MPNRF

Our newest Good Marrow feature shines a light on their resilience and the support systems that can make the journey a little lighter. Because caregivers deserve care, too. Learn more, feel seen, and find support. https://goto.mpnresearchfoundation.org/4pzuxV1

With your help, we can reach our goal of $2 million.  

Let’s finish strong and honor those we’ve lost, uplift those still on their journey, and accelerate the future we’re building together. Donate today: https://secure.qgiv.com/event/mpnresearchfoundation/

A bold step toward curative MPN treatments.

MN Research Foundation is funding the first CRISPR project designed to eliminate mutated MPN stem cells while sparing healthy ones. 

Donate today to help fund groundbreaking research like this: https://secure.qgiv.com/event/mpnresearchfoundation/

Big news!

We’re excited to introduce Good Marrow, our new magazine. Dive into stories that inspire, challenge, and connect.

Read online or enjoy the print edition by subscribing to our mailing list.

Explore Issue #1 today: https://goto.mpnresearchfoundation.org/4pzuxV1

The countdown is on! The 2026 MPN Challenge™ opens on January 6, 2026. Two special focus areas: AI/ML-driven discovery and MPL-centered research. Early-career investigators are encouraged to apply! 

More details coming soon | #2026MPNChallenge #MPNRF #MPNResearch

Jeremy Smith, a lifelong entrepreneur, approached his #MPN diagnosis as a business challenge. “Failure is not an option.” Your donation helps give patients like Jeremy real options. Donate now: https://goto.mpnresearchfoundation.org/48Xj643

72% of respondents say #MPNs affect their quality of life, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment from the #MPNResearchFoundation. These voices are at the heart of our MPN research and advocacy. Learn more about Abstract: abs25-3936 at #ASH25

#MPNResearchFoundation presents abstract:abs25-3936 at #ASH25: Patients & caregivers with MPNs still face significant gaps in communication, symptom monitoring, clinical trial awareness, and individualized care, per the 2024 MPN Patient and Caregiver Unmet Needs Assessment

At #ASH25, patients and clinicians called for aligning patient-care goals and improving patient-physician communication for polycythemia vera treatment, according to research results from Haymarket Medical Education & #MPNResearchFoundation. See abs25-11724

At #ASH25, review results from parallel surveys on gaps in patient-centered care for polycythemia vera from patient and clinician respondents. Learn more about this joint research effort from the #MPNResearchFoundation and Haymarket Medical Education via abs25-11724

The #ASH25 Annual Meeting is where major insights in #MPNs, clinical trials, and future treatment strategies emerge. 

We’re proud to see board members, advisors, and grant awardees on this year’s list of #ASH25 presenters! Safe travel and best of luck!

We’re stronger together. Your story and data could help us better understand MPNs and change someone’s future. Join the MPN PROGRESSion Registry™ and give back to the MPN community. Enroll today! https://goto.mpnresearchfoundation.org/3VSmaqq
#PatientRegistries #MPNprogression #ClinicalResearch

Dr. @BrandiReeves1 #MPNChallenge ™ study is uncovering how MPNs damage the kidneys and if interferon-alpha might protect them. Donate today to help make more research like Dr. Reeves' a reality: https://goto.mpnresearchfoundation.org/48Xj643

#MPNResearch #RareDisease #Interferon

Maddie’s fight with a rare blood cancer inspired her to study molecular biology and join efforts to improve MPN care. This Giving Tuesday, fund  #MPNresearch that turns patient stories into breakthroughs. Every discovery starts with hope.
Donate now: https://goto.mpnresearchfoundation.org/48Xj643