emily fraser 🌿🐌✨

This is also how I speak French & Spanish & Italian. It’ll take you further than you might expect

I mean, I too dislike the NYTimes & would like a pat on the back for all the medical exams I’ve had to take

This shit is gonna happen globally now. There are a ton of reasons why digital rights activists were always dead set against enforcing real ID for using the internet.

The psyche really goes THROUGH it with this illness. No part remains untouched

Realized I’ve started to be chronically ill in my dreams. I never used to be. Feels like a sad watershed moment. But it made me reflect on another moment like that: the last time I felt angry at my body. I haven’t felt that in forever—just loving, protective, & sorry I didn’t treat her better sooner

Salmon spotted in Bay Area creek, marking return for 1st time in decades after restoration project A restoration project we reported on is turning into a major environmental success story. Just weeks after our report, fish are being spotted in a scenic stretch of an East Bay watershed for the first...

Chinook salmon swimming back home after 7+7 lifetimes 😭

abc7news.com/post/salmon-...

I imagine this happens with most disabilities but ME in particular has been so erased by the medical system, the government, insurance companies, the media, so that every single horrific way it devastates our lives can be neatly explained away as our own fault & a personality flaw

This this this this this

A lot of the medical establishment is eugenics (this treatment works for good patients; You must have a mental illness that u WANT to be sick!) A lot of the anti-medical establishment is eugenics (if u have a “strong” immune system u dont need vaccines).

Its all eugenics. Hope that clears it up!

And if you’re not new, please consider contributing! The site badly needs more people adding to and fact-checking it.

If you need help getting started, let me know, happy to try to help.

#MECFS #LongCovid

And disability justice never took root in America because the sick see themselves not as disabled but (as @katieklocksin.bsky.social has put it) as temporarily embarrassed healthy people

FYI if you need a site that lists clinical trials for #MECFS without the BPS brigade 👇

Please do this action. So many people have these diseases and more to come.

Beige background with the words "Freakin' Frail" in black and red. At the bottom, reads the sentence: "Protect Medicaid Access for People with ME/CFS and Long COVID."

New Medicaid work requirements will take effect at the end of 2026 - it will FAIL sick people and cut off their care.
Tell HHS to recognize people with #MECFS and #LongCOVID as “medically frail” so our access to Medicaid is protected.

SIGN THE LETTER: actionnetwork.org/petitions/fr...

I can’t emphasize enough that we have essentially no chemical regulation in the US. Of the 40,000+ chemicals in commerce, most have never been tested, many are certainly dangerous, but only a handful have been banned. Asbestos is on that tiny list, but guess what? It wasn’t fully banned until 2024

ICE Nativity scenes: Churches reimagine Christmas story amid deportations (RNS) — 'We know that Jesus was born into a Roman imperial occupation, and pretty much immediately becomes a refugee in Egypt, has to flee and faces political violence,' the Rev. Michael Woolf said.

In Chicago, a Nativity scene features a zip-tied baby Jesus and Roman centurions in "ICE" vests.

Near Boston, Mary, Joseph, and Jesus are absent from a Nativity scene, replaced with a sign reading "ICE was here."

It's all part of growing religious blowback to ICE. religionnews.com/2025/12/05/i...

Bronze plaque saying "A Letter to the Future. Ok is the first Icelandic glacier to lose its status as a glacier. In the next 200 years all our glaciers are expected to follow the same path. This monument is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it. August 2019. 415ppm CO2"

TIL about a memorial ceremony in Iceland in 2019 to mark the end of a glacier, changing the place name from Okjökull to Ok (jökull = glacier). Uncompromising wording on the bronze plaque:
"This is to acknowledge that we know what is happening and what needs to be done. Only you know if we did it".

Here we are 3 decades later & I’d argue the treatment got even worse/more entrenched in the years since

She mentions that her editor, who also worked on Randy Shilts’s acclaimed book “And The Band Played On” (so he knew all about both epidemics in the 80s/90s), said this, comparing ME patients to AIDS patients:

“I never thought I would say this, but the government treated these patients worse.”

How I Got That Story An author with PTSD

Osler’s Web is an incredible feat of journalism about what people w/ ME (& now LC) have been up against for decades at the CDC & NIH. It’s 30 yr anniversary is coming up soon & this reflection by the author is another jaw dropping peek behind the curtain

hillaryjohnson.substack.com/p/how-i-got-...

Love this one

Also & always Kay Ryan’s “Winter Fear”

Is it just winter
or is this worse

Be like the fox who makes more tracks than necessary, some in the wrong direction. Practice resurrection.

(From Wendell Berry’s Manifesto: The Mad Farmer Liberation Front)

More context

bsky.app/profile/ripp...

@chromatowski.bsky.social has suggested a patient union for things like this. In the meantime we can spread the word & protect each other. Trials like these can cause real harm to participants but they also prop up an ideology that should have been put to rest long ago. Let’s not feed the zombies! 🧟

Anyway, just thinking about how even a psychological drama/fever dream-esque film explicitly crafted to be TOO MUCH couldn’t hold everything real women are holding without completely collapsing, so if you’re a mother barely holding it together 🫂🫂🫂❤️‍🩹❤️‍🩹❤️‍🩹

And they didn’t even show her juggling care for elderly parents. As absurdly stressful as that movie is I know a lot of women going through worse in real life

I watched If I Had Legs I’d Kick You & I think it was technically a good movie but ugh I already know being a mother in America is hell & being a mother to a sick child is like the 9th circle of hell & then I think of all the mothers with sick kids who are also sick themselves & 😱

I had to give a full medical history for a research study recently & I realized I was mostly keeping track of the timeline by my memories of whichever male partner I was dating in each year getting angry at me for my health getting in the way of his good time 🫠