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05.03.2026 00:20 β π 1 π 0 π¬ 1 π 0ππ«
05.03.2026 00:20 β π 1 π 0 π¬ 1 π 0Iβm so sorry π’ Solidarity π«
05.03.2026 00:20 β π 1 π 0 π¬ 0 π 0Announcement for ME/CFS Advocacy Week 2026 from March 23 to 27 with upward arrows and a megaphone graphic. Megaphone in top corner. Solve M.E. logo and MEAction logo under each arrow.
#MECFS affects millions but is NOT part of standard clinical training.
This Advocacy Week (Mar 23β27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce ME/CFS questions into qualifying national medical exams.
Register: https://ow.ly/Tqet50YoPG7
The moon going from full moon to a red moon and starting to go back to a normal full moon, then my camera battery door fell off.
Here's my first edit on the March 3rd Lunar Eclipse. 15 moon shots, 1 foreground. Taken over a 3 hourish period.
04.03.2026 04:22 β π 8723 π 1846 π¬ 142 π 70Also the beginning of a lot of Long Covid first wavers having their bodies & lives demolished
04.03.2026 02:37 β π 39 π 11 π¬ 1 π 1And by creeps I mean criminals & pedophiles because everyone knew the girls were girls
04.03.2026 01:07 β π 1 π 0 π¬ 2 π 0Yeahh, I just finished reading Nobodyβs Girl & the MO was very much that the sheβd be βsentβ to do a job & never even introduced to the creeps. She only learned who a lot of them were years later from identifying them in pictures
04.03.2026 01:05 β π 2 π 0 π¬ 2 π 0
ME/CFS affects millions but isn't part of standard clinical training. This Advocacy Week (Mar 23β27), Solve M.E. & #MEAction Network will ask patient safety agencies to support our mission to introduce #MECFS questions into qualifying national medical exams.
Sign up:
πhttps://ow.ly/GbOp50YoTVe
I have family in Abu Dhabi so this is personal for me & is making my extremely underfunded neuroimmune disease worse. Fuck the US, man. Stop bombing people, stop abandoning people, & #TripleTheNIHBudget π
03.03.2026 20:57 β π 15 π 5 π¬ 3 π 0
Click Participate Now at the top to leave a comment:
eplanning.blm.gov/Project-Home...
Such wild synchronicity! I love that we were in dreamland together π And I donβt usually tell people when I dream about them so Iβm so grateful she texted too
03.03.2026 03:44 β π 2 π 0 π¬ 0 π 0My freshman roommate texted today to say we were at an event together in her dream last night & she got down on her knees & started bawling because she was so happy to see me for the first time in years, which is extremely weird BECAUSE I DREAMT THE SAME THING!
02.03.2026 22:56 β π 11 π 0 π¬ 2 π 0
Today is Disability Day of Mourning, remembering disabled people murdered by caregivers/family.
Any journalist who portrays these stories as anything short of murder is doing serious journalistic malpractice, yet it happens so often. disability-memorial.org
Do you have #LongCovid and feel like you have to consciously control your breathing?
An NIH researcher studying this wants to connect with patients.
Free link to my story: tinyurl.com/a8e8v4xv
Email me confidentially: j.gale@bloomberg.net
A government which does not want trans people to exist, and is legally allowed to force detransition in prisons, has created incentive for itself to put more trans people in prisons.
02.03.2026 03:58 β π 554 π 285 π¬ 0 π 2Nevra is a beloved member of the ME community who has been fighting so hard & for so long to stay alive in a horrible situation. Please share/boost & donate if you can afford to!
02.03.2026 00:45 β π 1 π 1 π¬ 0 π 0March is Long Covid Awareness month, because March is a lot like long covid in that every time you think it looks nice enough to go be active outside, you quickly regret it.
01.03.2026 18:27 β π 294 π 87 π¬ 3 π 7All the βwhat I have is SO MUCH MORE SERIOUS & HORRIFIC than fatigueβ was hard to stomach. Like, yes buddy, we know! Please donβt marginalize all of us, including yourself, even further
28.02.2026 03:07 β π 11 π 1 π¬ 0 π 0I donβt know if I would have registered the red flags without prompting, but the very first thing he did when they got married was take away the opportunity she had pretty ingeniously secured for herself to finally become educated & able to support herself independently π
27.02.2026 08:30 β π 4 π 0 π¬ 0 π 0Nobodyβs Girl is so upsetting on so many levels, including that you know from the forward that her fairytale escape into her husbandβs arms was actually trading one (albeit extremely horrific) abuser for another.
27.02.2026 08:30 β π 4 π 0 π¬ 1 π 0Noooooo
27.02.2026 04:36 β π 1 π 0 π¬ 0 π 0This happened to me recently & it went back to normal after I turned my phone off & on π€·π»ββοΈ
27.02.2026 04:28 β π 0 π 0 π¬ 2 π 0Shared this quote from the depths of cognitive fog so Iβm relieved to be able to say I stand by it π The harm ignorant therapists/psychs cause to clients with Long Covid can be just as enormous as the harm MDs inflict. (APAB until proven otherwise!)
26.02.2026 20:05 β π 45 π 20 π¬ 3 π 1
Part of the reason the whole country hasn't been screaming about trans Kansans who drive being made criminals overnight is because there's so much else that's unconstitutional and horrifying.
But part of it is because it's happening to trans people.
Nurul Amin Shah Alam's violent arrest, by police who saw his walking stick as a weaponβand who, like the Border Patrol officers who dumped him, apparently made no attempt to reckon with his disability or his mental stateβset off events that ended in his death. www.motherjones.com/mojo-wire/20...
25.02.2026 22:57 β π 590 π 322 π¬ 5 π 36
There is so much anger in me for the "let it rip," "we don't need to mask/you don't need to mask" "All schools and universities must be in person" people, I think its possibly unhealthy for me
Archived link here, thanks to @jacky.wtf for sharing
archive.ph/qBbZJ#select...
It helped. It was getting so bad it was spilling into day to day life, like I started feeling panic in my buildingβs elevator. So it calmed the triggers & intensity way down, but I still feel panicked at the mere thought of another brain MRI π
25.02.2026 21:57 β π 1 π 0 π¬ 0 π 0Iβm really looking forward to his book! Donβt want to count my chickens but I think it will be good!
25.02.2026 21:48 β π 2 π 0 π¬ 1 π 0I already had claustrophobia but it made it so much worse! I ended up doing EMDR for it to endure all the claustrophobic medical testing Iβve had to do for Long CovidβMRIs, CT scans, being strapped down on a tilt table, being in a tiny sound booth for hearing testsβ¦
25.02.2026 21:47 β π 0 π 0 π¬ 1 π 0π―π― And we need to stop pathologizing & punishing girls for their reasonable, life-preserving reactions to harm caused by men
25.02.2026 21:11 β π 1 π 1 π¬ 0 π 0