I agree Julia. However vaccines can stimulate immunity... potentially unmasking persistent viral infection. www.sciencedirect.com:5037/science/arti...
29.11.2025 22:12 β π 0 π 0 π¬ 0 π 0@biologistbunk.bsky.social
Battling Long COVID for 5 years. Had 2 recoveries early on, still trying for a 3rd! Ran a LC clinical trial exploring two degrees of Intermittent Fasting and we got postive results! I love science, nature and helping others...
I agree Julia. However vaccines can stimulate immunity... potentially unmasking persistent viral infection. www.sciencedirect.com:5037/science/arti...
29.11.2025 22:12 β π 0 π 0 π¬ 0 π 0βWhen people asked, Why do you think it hit you so hard? it seemed to carry a tinge of suspicion. I must have done something wrong to bring #LongCovid upon myself as opposed to it being the cosmic car accident that illness so often isβ
@philipandrewhoover.bsky.social thesicktimes.org/2025/11/28/y...
To learn more, here is a 40 min video about the trial. youtu.be/BP9s5hG9Fc8
24.11.2025 12:05 β π 1 π 0 π¬ 0 π 0I agree that periodic induction of autophagy may be beneficial for Long COVID. In our Intermittent Fasting trial, on average the top-half of participants saw an 81% decrease in their composite Long COVID severity scores and 70% of their symptoms went away completely. doi.org/10.1038/s415...
23.11.2025 16:20 β π 2 π 1 π¬ 1 π 0Germanyβs SchΓΆn Klinik surveyed 3,345 people with long COVID.
Only 36% saw improvement after nearly 3 years of symptoms.
Almost 90% were on long-term sick leave and 97% rated their care as poor or very poor.
www.thieme-connect.de/products/ejo...
Pleased to share our positive #LongCOVID trial results. A patient-friendly, low burden, all remote trial. The top half of participants had a mean 80% decrease in their Long Covid symptom burden.
doi.org/10.1038/s415...
Pleased to share our positive #LongCOVID trial results. A patient-friendly, low burden, all remote trial. The top half of participants had a mean 80% decrease in their Long Covid symptom burden.
doi.org/10.1038/s415...
Pleased to share our positive #LongCOVID trial results. A patient-friendly, low burden, all remote trial. The top half of participants had a mean 80% decrease in their Long Covid symptom burden.
doi.org/10.1038/s415...
And perhaps SARS-CoV-2... Long COVID certainly feels like viral persistence.
25.10.2025 00:48 β π 2 π 1 π¬ 0 π 0A 'mum whose daughter has struggled for years with the effects of Covid is inviting SNP health secretary Neil Gray to hear her story in person at their home'
βHer room is like a hospital. Sheβs very sick and thatβs what I want him to see.β @helen-goss.bsky.social
bit.ly/3IJ3PZY #LongCovidKids
In her #Blog Katie explains more about the masterclass she gave on the three key elements of #storytelling.
"In my workshop, I first asked the participants to think of one word that encapsulated their Long Covid experience"
www.longcovidkids.org/post/self-ex...
#LongCovidStars #CreativeWriting
π to LCK trustee, Sarah Craner for her article
'Every Day Hurts: Reframing School Absence For Families Living with Chronic Illness'
Out now in the special #SEND edition of Attendance Magazine.
heyzine.com/flip-book/1f...
#AttendanceMagazine #Attendance #Education #Disability
#LongCovidKids
The CDC quietly neutered the best Covid data on the planet yesterday. ED data visualization has been stripped of age stratification, and state-by-state trends.
ED data has been far better for state by state trends than WW. Poof.
This is BIG! It counters the viral inhibition of autophagosome-lysosomal fusion.
"SB431542 directly binds to SARS-CoV-2 ORF3a and disrupts its canonical function in inhibiting autophagosome-lysosome fusion. This interaction restored lysosomal acidification"
Mine is just a few days away from submission. Great to have lunch with you in Santa Fe!
29.08.2025 12:52 β π 0 π 0 π¬ 0 π 1My hypothesis, www.sciencedirect.com/science/arti...
28.08.2025 01:15 β π 1 π 0 π¬ 0 π 0From my informal survey of over 225 long-haulers. 9.3% reported that their symptoms first began within minutes, hours a a few days of Covid-19 vaccination. This is a real phenomenon. Another 7.1% with Long Covid said their symptoms got much worse soon after a Covid-19 shot.
28.08.2025 01:13 β π 1 π 0 π¬ 0 π 0Text: Long COVID Treatment Trial Join Scripps Research for a live webinar introducing the Long COVID Treatment Trial (LoCITT). Register today! [image of a person with dark skin and long dark hair leaning against a couch and looking at a tablet]
You're invited to a webinar introducing the Long COVID Treatment Trial (LoCITT) on August 26th at 2pm eastern / 11 am pacific:
scrippsresearch.zoom.us/webinar/regi...
We'll talk our remote study design & how you can contribute from wherever you are. There will be lots of time to discuss.
I love all remote trials for Long COVID as traveling for in person visits frequently triggers PEM or symptom flare-ups.
23.08.2025 15:28 β π 2 π 0 π¬ 0 π 0Great to meet in person at the conference Charlie! Very impressed you made the effort to be there. Hope you survived without a big flair-up, or pem crash.
15.08.2025 19:43 β π 1 π 0 π¬ 1 π 0Graphic designer & advocate Derrick Kardos passed away last month due to complications of Long COVID π―οΈ
"I am 52 and I have experienced more discrimination and stigma for being openly disabled by #LongCOVID than I ever did for being openly gay," he wrote in 2024.
thesicktimes.org/2025/08/08/b...
Health(s)care.
A short talk for the 8th of August #severemeday2025 about how healthcare can be a frightening place for those of us living with severe ME.
We urgently need things to change. We need support, and you can help.
Because speaking,
1/
#pwME
www.youtube.com/watch?v=qVDw...
NK cell activation:
IL-15 is a potent activator of NK cells, which are important for eliminating virus-infected and tumor cells.
IL-15 can stimulate the production of other cytokines, such as IFN-Ξ³, further boosting immune responses.
Yes, RECOVER-TLC is trailing the pack instead of leading the pack. But the GLP-1 RAs seem a good choice. But how it is dosed for weight loss may not be the best way to dose it for Long COVID - so many unknowns.
06.08.2025 18:35 β π 2 π 0 π¬ 0 π 0Thank you for sharing. Eye-opening essay, even for someone with Long COVID!
03.08.2025 13:05 β π 1 π 0 π¬ 0 π 0A YouTube video presentingΒ our postive #LongCOVID #clinicaltrial results in a patient-friendly manner.Β Note, the video is 38 minutes long... so be careful of cognitive fatigue!
youtu.be/BP9s5hG9Fc8?...
This is a very exciting opportunity! Who are your fav science and health communicators? Maybe tag them in so they donβt miss this!
01.08.2025 00:08 β π 8 π 6 π¬ 0 π 0Another way to induce strong autophagy: periodic short fasts. Here is a YouTube video of me presentingΒ the trial results in a patient-friendly manner.Β Note, the video is 42 minutes long... so be careful of cognitive fatigue!
youtu.be/BP9s5hG9Fc8?...
Very pleased to share our positive trial results - at last! Jeff Novack PhD of PNWU opened doors, made key contributions and otherwise made this possible. A patient-friendly, low burden, all remote Long COVID trial. And a big THANK-YOU to all the trial participants!
www.nature.com/articles/s41...