💡 Get Involved with CAPA!
📩 Reach out directly to CAPA’s Managing Director to share your ideas.
➡️ Contact details available on our website (link in bio and QR code).
Let’s build this resource together.
💡 Get Involved with CAPA!
📩 Reach out directly to CAPA’s Managing Director to share your ideas.
➡️ Contact details available on our website (link in bio and QR code).
Let’s build this resource together.
February 28th is Rare Disease Day
Join us in revisiting our Rare Rheumatic Disease Drop-In Event:
👉 Rare Rheumatic Disease Drop-In – Event Recording
🗓️ February 28 – Rare Disease Day
📝 A recording is available to watch anytime
🎥 Access it through the QR code in the post
SURVEY OPPORTUNITY!
Researchers with SHAPE Plus Pain are inviting 2S/LGBTQQIA+ people living with chronic pain across Canada to share their experiences through a short, anonymous survey.
👉 Learn more at buff.ly/LmyTSlB
🌟 MEMBER SPOTLIGHT: CAPA member Jenny Lorca is featured on Action on Pain! In this episode, Jenny shares their personal journey and reflects on the importance of peer connection, community support, and protecting personhood within patienthood.
Check out the episode! buff.ly/HAjariV
Climate change affects people living with rheumatic diseases. Dr. Sasha Bernatsky (McGill- EBOH; RI-MUHC-IDIGH) is part of REACT Rheum: buff.ly/Ur9dz77.
A member Dr. Tom Bush will present a Climate Health Society webinar on climate change and rheumatic conditions on Mar 25, 12–1 PM: buff.ly/cBlSmBL
Sexual and Reproductive Health Awareness Week 💜
Sexual and reproductive health is an important part of overall well-being, including for people living with chronic and autoimmune conditions. It impacts physical health, mental health, relationships, and quality of life.
RESEARCH OPPORTUNITY!
Researchers with the Inclusive Design for Employment Access (IDEA) program at the Institute for Work & Health are looking to speak with eligible participants!
👉 Learn more at buff.ly/0lHiLH9!
🎉 It's Almost Here!
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
💻 Online | Free & open to everyone
➡️ Link in bio
✨ What have we been up to?
Recently, CAPA established the Francophone Education and Resources Support Advisory Committee, a group of five French-speaking individuals living with arthritis.
Swipe through the infographic to learn more about this important initiative.
🔬 #ResearchSpotlight!
A new patient facing rheumatoid arthritis outcomes dashboard shows promise in helping people living with RA understand their disease data more clearly and make decisions alongside their clinicians.
🔗 Read more: buff.ly/WqlOq9v
CLOSING FEB 16TH!
Lupus Ontario's Lupus Patient Experience Survey to better understand how lupus affects patients and their caregivers is closing soon. The survey explores quality of life, medication effectiveness, and the financial challenges many people face.
👉 Take the survey link in bio!
✨ What We’ve Been Up To: Bringing Patient Voices to Preventive Health Care
We’ve been working to ensure the lived experiences and priorities of people living with arthritis are reflected in national preventive health care policy.
Stay tuned for more updates on how we’re amplifying patient voices!
🔬 #ResearchSpotlight!
Rheumatoid arthritis flares aren’t always easy to define or measure.
The OMERACT RA Flare Tool was co-developed with people living with RA to better reflect real world flare experiences. By centring patient voices, this tool helps improve how flares are identified.
February 2nd is Rheumatoid Arthritis Day 💙
RA is a chronic autoimmune disease that affects more than joints, it impacts energy, mental health, and daily life.
We stand with everyone living with RA and continue advocating for awareness, understanding, and better care.
🎉 Coming Soon!
Join us for an upcoming webinar on navigating the healthcare system:
👉 Navigating Care: Real-Life Perspectives on the Healthcare System
🗓️ Wednesday, February 18, 2026
⏰ 7:00 PM (EDT)
➡️ buff.ly/cXm33Rq
PiPER is proud to share our impact in 2025.
📅 Jan 28 (12–1 PM EST): Join the Community of Practice event on lessons learned engaging people with lived experience in randomized controlled trials, with James Khan, Cathy Ammendolea, Nour Ayach, Sarah Miles & Therese Lane. 🔗 buff.ly/4uwYJRh #PiPER
Lucy Kovalova-Woods, CAPA patient partner. As a Patient Partner with CAPA, Lucy brings lived experience with rheumatoid arthritis and fibromyalgia. Combining her passion for business, strategy, and career development, she advocates for people with disabilities navigating career transitions and recently published “Stronger Than Barriers” to support this journey.
🌟 Member Spotlight: Lucy Kovalova-Woods
A CAPA Patient Partner and author using her lived experience with RA and fibromyalgia to advocate for disability inclusion.
📘 Stronger Than Barriers is now available on Amazon.
This week’s 🔬ResearchSpotlight: People are continuing TNFi treatment & using fewer corticosteroids during pregnancy—reflecting growing trust in TNFi safety.
For the #CAPA community, this shows confidence & choice for those planning a family.
Read here: bit.ly/47yIjPR
Affiche promotionnelle pour un webinaire en français intitulé « La navigation des options thérapeutiques pour l’arthrite ». L’affiche souligne qu’il s’agit du premier webinaire entièrement en français. Cinq participants sont présentés avec des portraits circulaires : Marie-Eve Veilleux, modératrice Kelly-Maude Amaral, panéliste Marie-Eve Gauron, panéliste Catherine Ivory, panéliste Karine Toupin April, panéliste Les détails de l'événement sont indiqués ci-dessous : 📅 21 janvier 2026, à 18 h (HAE) 🎥 Durée : 1 heure Les logos de la CAPA (Canadian Arthritis Patient Alliance) et de l'ACA (Alliance Canadienne des Arthritiques) apparaissent en bas, à côté d'un code QR invitant les utilisateurs à s'inscrire. Le design présente un texte vert et violet avec des accents courbes
🎉 C’est demain! Ne manquez pas notre premier webinaire entièrement en français :
👉 Naviguer parmi les options thérapeutiques pour l’arthrite
🗓️ 21 janvier 2026 | 18 h à 19 h (HE)
⏰ Dernière chance pour vous inscrire!
➡️ Inscrivez-vous dès maintenant — buff.ly/eWmzEZb
#arthrite #rhumatologie
🌟 MEMBER SPOTLIGHT: Laurie Proulx is an arthritis advocate and CAPA’s Managing Director, check out the full story as she shares her experience with Juvenile RA and pregnancy in a powerful new video from the Healthy Pregnancy Hub.
👉
Affiche promotionnelle pour un webinaire en français intitulé « La navigation des options thérapeutiques pour l’arthrite ». L’affiche souligne qu’il s’agit du premier webinaire entièrement en français. Cinq participants sont présentés avec des portraits circulaires : Marie-Eve Veilleux, modératrice Kelly-Maude Amaral, panéliste Marie-Eve Gauron, panéliste Catherine Ivory, panéliste Karine Toupin April, panéliste Les détails de l'événement sont indiqués ci-dessous : 📅 21 janvier 2026, à 18 h (HAE) 🎥 Durée : 1 heure Les logos de la CAPA (Canadian Arthritis Patient Alliance) et de l'ACA (Alliance Canadienne des Arthritiques) apparaissent en bas, à côté d'un code QR invitant les utilisateurs à s'inscrire. Le design présente un texte vert et violet avec des accents courbes.
C’est dans une semaine! Rejoignez-nous pour notre premier webinaire entièrement en français! 🎉 Le sujet — naviguer parmi les options thérapeutiques pour l’arthrite — a été choisi par vous, notre communauté!
📅 21 janvier 2026 | 18 h à 19 h (HE)
🎥 L’enregistrement disponible ici: buff.ly/eWmzEZb
✨ What We’ve Been Up To: Speaking Up for Patients
We’ve been busy sharing patient perspectives to strengthen access to medications and ensure patient voices are heard in policy decisions, guiding drug evaluation and access decisions across Canada.
Stay tuned for more updates!
“Hearing someone else’s story helped me see my diagnosis in a new way.”
If you missed our lived experience webinar, catch up with the full session now available online!
✨ Watch the webinar at buff.ly/fBsthMC
Affiche promotionnelle pour un webinaire en français intitulé « La navigation des options thérapeutiques pour l’arthrite ». L’affiche souligne qu’il s’agit du premier webinaire entièrement en français. Cinq participants sont présentés avec des portraits circulaires : Marie-Eve Veilleux, modératrice Kelly-Maude Amaral, panéliste Marie-Eve Gauron, panéliste Catherine Ivory, panéliste Karine Toupin April, panéliste Les détails de l'événement sont indiqués ci-dessous : 📅 21 janvier 2026, à 18 h (HAE) 🎥 Durée : 1 heure Les logos de la CAPA (Canadian Arthritis Patient Alliance) et de l'ACA (Alliance Canadienne des Arthritiques) apparaissent en bas, à côté d'un code QR invitant les utilisateurs à s'inscrire. Le design présente un texte vert et violet avec des accents courbes.
Rejoignez-nous pour notre premier webinaire entièrement en français! Le sujet du webinaire « naviguer parmi les options thérapeutiques pour l'arthrite » était déterminer par un sondage de notre communauté – alors vous!
🎥 Enregistrement disponible ici: buff.ly/eWmzEZb
✨ What We’ve Been Up To: Patient Partnership Edition
We hosted The Patient Room, a lunchtime webinar with Linda Wilhelm and Therese Lane to support patient partners and advisors working in research and policy.
If you missed it, visit this link for more: buff.ly/wLMFUr5
✨ New year, same you — and that’s enough.
If you’re reflecting on what matters most and what you want to prioritize, we’re right there with you. This year, the spotlight is on you. 💛
Follow us as we navigate this year together!
🎄 It can be difficult to navigate pain and fatigue during the holidays.
If you’re looking for ways to protect your energy this season, our Five P’s (Priorities, Pacing, Planning, Posture, Problem-Solving) is one approach that may help!
🔗 More on this: buff.ly/iE5f1h5
🎄 Pain, fatigue, and the holidays don’t always mix — but movement can still be gentle and flexible.
Try reflecting on today’s energy level: Low energy → gentle stretching → short walk → functional movement.
Decide on what movement works for you.
More info on our website!
💬 Rejoignez-nous pour notre tout premier webinaire entièrement en français: Naviguer parmi les options thérapeutiques pour l'arthrite.
📅 21 janvier 2026 | 18 h à 19 h (HE)
💻 En ligne | Gratuit
🎥 Enregistrement disponible après la séance
👉 buff.ly/dxnSw3M
Message des fêtes de l’ACA!
Merci à notre communauté et à nos partenaires pour leur engagement en faveur de soins équitables et centrés sur les patients atteints d’arthrite. Joyeuses fêtes. Découvrez notre Rapport sur les réalisations de 2025, présenté par notre présidente: buff.ly/shD6f8J