VoiceForIBD

Did you know #IBD doesn't just affect your gut? #Fatigue #Anemia & eye inflammation #Uveitis are extraintestinal manifestations or #ElMs that often go unnoticed. Early recognition can make a difference.

Watch my latest reel 👇🏼 & join the #EIM webinar Tues, 10/7! bit.ly/CommunityHou...

Supporting & celebrating all ostomates today on World Ostomy Day🥳Apoyando y celebrando a todos los ostomizados hoy en el Día Mundial de la Ostomía 🥳 #WorldOstomyDay2025
#WorldOstomyDay #OstomyLife

@uoaa-ostomy.bsky.social
@crohnscolitisfdn.bsky.social

Oct. 1 is National Latino Physician Day! While Latinos make up 19% of the 🇺🇸 population, only 6% of physicians identify as Latino/a 🤔Today, I share a heartfelt letter to all Latino physicians on behalf of the American Board of Internal Medicine(ABIM) @abimcert.bsky.social

Read 🗒️ 👉🏼 bit.ly/3Y9oc7C

Honored to join @amergastroassn.bsky.social for #AGAAdvocacyDay on Capitol Hill 🏛️

100+ GIs 🥼➕ 20 patient advocates = 100+ meetings in 30 states!

Our message ⬇️

✂️Cut prior auth burdens
🛡️Protect NIH research
💪🏼Strengthen Medicare reimbursement

Patient voices matter more than ever 👊🏼

During Hispanic Heritage Month, join the @crohnscolitisfdn.bsky.social for a 🆓 webinar re: IBD Extra-Intestinal Manifestations or EIMs in #Hispanic #Latino #IBD patients

📅 Tues, 10/7
⏰ 4 PT · 6 CT · 7 ET
💻 In English w/ Spanish captions
🔗 Register: bit.ly/CommunityHou...

My first in-person Day On The Hill with the @crohnscolitisfdn.bsky.social was powerful💙

60 advocates, 22 states, 75 meetings 🤯

All to make sure #IBD voices are impossible to ignore. Grateful, empowered & more determined than ever to keep raising my voice🗣️

#IBDinDC #IBDDayOnTheHill

Still inspired by the inaugural @cedarssinai.bsky.social #IBD & Women’s Health Conf.💜Honored to share my #Crohns patient journey & learn from sessions on #fertility #pregnancy #genetics #nutrition #microbiome etc. Grateful to Cedars-Sinai, Dr. Abreu, Dr. Khanna & all presenters 🙏🏼

#HispanicHeritageMonth is here 🌎💜 #IBD affects more than digestion. It impacts #nutrition #culture & #family. This month I’ll be sharing new content Más Allá del Intestino: Salud y Resiliencia Latina or Beyond the Intestine: Latino Health & Resilience 👀 Watch and learn…

Protein is power, but which ones are recommended for #IBD patients? In this new video from the @crohnscolitisfdn.bsky.social , I asked a gastroenterologist & a registered dietitian for their guidance on proteins for #Crohns & #UC patients. Watch the full video on YouTube 🎥
bit.ly/IBDandProtein

In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to discuss practical tips for dining out while living with IBD 🍽️

Watch the full video on YouTube 🎥 bit.ly/EatingOutWit...

🧠 GI Psychology is enrolling for an 8-week virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy Offered in partnership with @amcollegegastro.bsky.social
& @crohnscolitisfdn.bsky.social

Learn more👇🏼
🔗 bit.ly/IBDGIPsych

What does professionalism in #healthcare mean today? At the ABIM Foundation. Forum, I represented #patients in conversations about #professionalism #advocacy #equity & the future of medicine. 🔑 Professionalism must begin with the patient.✨ #PatientsFirst #PatientVoicesMatter

GI Psychology is enrolling for an 8-wk virtual #IBD #psychotherapy group for adults living w/ #Crohns or #ulcerativecolitis - combining #CBT & gut-directed #hypnotherapy It’s being offered in partnership w/the @amcollegegastro.bsky.social & @crohnscolitisfdn.bsky.social

🔗 bit.ly/IBDGIPsych

To register for the conference:
🔗 bit.ly/IBDWomensHea...

The 2025 @cedarssinai.bsky.social #IBD & #WomensHealth Conference is tackling what others haven’t👇🏼
📈 #hormones
🤰🏼 #fertility
🧠 #mentalhealth
🍽️ #nutrition

Created by Dr. Puja Khanna &Dr. Maria Abreu this inaugural #CME conference offers✌🏼tracks for both #patients & #clinicians Registration link👇🏼

Living w/ #IBD means #hydration isn’t just important. It’s essential for all patients. In this month’s Live for 5, join Dr. Megan Riehl & @voiceforibd.bsky.social over on Instagram as we discuss the challenges of staying hydrated w/IBD. Join us Fri, 7/25 at 8 AM PT/10 am CT/ 11 AM ET on Instagram

Have you wondered what happens during the @abimcert.bsky.social Specialty Board meetings? Learn more about the recent spring 2025 #Gastroenterology Board where I spoke about the impact of federal #research funding cuts on the #IBD community😔

Read the full summary 👀
bit.ly/44OvPSY

To access the @crohnscolitisfdn.bsky.social #IBD patient financial assistance programs, click here: bit.ly/IBDFinancial...

Absolutely gutted for #IBD patients AND the millions of people who will be affected by cuts to #Medicaid & #ACA 😢 Every single person deserves #healthcare Below is info from the @crohnscolitisfdn.bsky.social
re: support for #Crohns & #UlcerativeColitis patients 👇🏼

🔬Join us to hear about the latest advances in #IBD research - from #genetics to #biosensors - in the Spanish virtual support group! The group is 💯 in Spanish 👀

📧adultoeiigrupodeapoyo@gmail.com

📣 Este mes, nuestro #grupodeapoyo en #español recibe al Dr. Andrés Hurtado-Lorenzo del @crohnscolitisfdn.bsky.social
para hablar sobre las últimas #investigaciones en la #EII

📆Lunes 21 de julio (por Zoom)
🇪🇸 100% en español
🙋🏻‍♀️ Ven con tus preguntas
🧠 Sal con conocimiento

In this new video from the @crohnscolitisfdn.bsky.social I join a gastroenterologist & a registered dietitian to explore the role of grains & starches in an IBD-friendly diet🍽️

Watch the full video on YouTube 🎥
bit.ly/IBDandGrains

Grupo de Apoyo para Adultos con EII ¿Vives con la EII? ¡No estás solo! Únete al Grupo de Apoyo para Adultos con la EII, una comunidad solidaria para adultos hispanohablantes que enfrentan los desafíos de la EII. Comparte experiencias, a...

📧Escríbenos a adultoeiigrupodeapoyo@gmail.com para el enlace o haz clic aquí para más información 🔗 bit.ly/3PgXNis

¿La #EII se puede heredar? El #grupodeapoyo en #español del @CrohnsColitisFn da la bienvenida a la Dra. Olave-Pichon para hablar sobre factores #genéticos y familiares de la EII, el riesgo de transmitirla a tus hijos y qué señales observar en niños con antecedentes familiares👇🏼

Highlights from a #DDW2025 session on #IBD #Monitoring & evolving from reactive to proactive care 👇🏼

🔑 Continuous monitoring
🔑 #IUS gives real time info
🔑 #Wearables detect #flares through heart rate, activity & sweat
🔑 AI can help ⬇️CT scans & ⬆️response tracking

Watch & learn more 👇🏼

#Fatigue #Pain #EIMs Even when inflammation is controlled, #IBD patients are still suffering & too often, these symptoms are overlooked. At Digestive Disease Week, I was in the room as experts called for clinical care that treats the whole patient #DDW25

Watch/learn more👇🏼

At #DDW2025 #mentalhealth in #IBD wasn’t just mentioned - it mattered🧠 For years #anxiety #depression & #trauma have shaped how we live but the conversation is changing! In one of the most valuable sessions on mental health, GI leaders emphasized: mental health is inseparable from IBD care 🙌🏼

What’s shaping the future of #IBD care? At #DDW2025 I sat in sessions that didn’t just talk about new drugs💊 💉, but how clinicians are making smarter, more tailored decisions using the tools ⚒️ & data📊 we already have 👏🏼
#InsideDDW #DDW2025

@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social

What’s it like to attend ☝🏼 of the 🌍’s biggest #GI conferences as a patient? I attended #DDW2025 to deepen the work I do in #IBD #patient #advocacy & because the #science🔬 conversations🗣️ & collaborations🤝🏼 directly impact my life w/ #Crohns
@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social