A tired human

Both my kids graduate this year, one from preschool and one from 5th grade and I won't be able to be there. Sending you so much love, such a cruel disease.

Some people find magnesium citrate effective for inducing diarrhea, or certain other forms of magnesium.

Even if I could have only one of these 3 things, my quality of life would be so much better. Of course, most of all I just want to be with my children again. Then food. Then everything else.

Even if I could just have 1 day a week where I could have a break. but there are no breaks in this illness.

2) not being able to eat food and relying on tpn, being hungry most of the time and malnourished. I used to be a foodie, now I eat nothing.

3) the empty days:i can't read,watch shows, listen to audio or use my phone more than a few mins every few days w/out suffering.

For me, the hardest things abt being very severe are: 1) the isolation, only being able to have minimal interaxn w/ caregivers. Most of all missing my children(they were 2 and 8 when i got sick, they are 5 and 11 now). I've spent as much time with them in the last 2 yrs as I used to in a single day.

I have thus far not figured out how to balance physical and mental health while very severe. Any small thing I do for my mental health destroys my physical health which in turn destroys my mental health. It feels like a trap. I need help, but it seems nothing and no one can help.

I haven't been well because of severe #mecfs from #longcovid, Lyme disease and mold. That means I can't be online more than every week or two, or sometimes every month. But I hear this is where all the cool kids are hanging out, away from evil Elon.