A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!
09.06.2025 17:16 — 👍 0 🔁 0 💬 0 📌 0A huge thank you to the European Federation of Neurological Associations (EFNA) and EAN for this opportunity. See you in Helsinki!
09.06.2025 17:16 — 👍 0 🔁 0 💬 0 📌 0It's an absolute privilege to share my experience and shed light on my diagnosis—one that could have taken much longer had I not been proactive with my #HealthLiteracy. I’m looking forward to discussing how we can refine these processes and ensure better access to vital information for all.
09.06.2025 17:15 — 👍 0 🔁 0 💬 0 📌 1
🗓 Date: 22 June 2025
🧠 Session: EFNA – Health literacy for patient and clinician communication
🎤 Presentation: Misdiagnosis and delays in diagnosis
Four years since my diagnosis this June, and here I am—speaking at the annual #EAN2025! What an incredible journey. Even more exciting, my MDS will also be presenting at the same conference.
#ean2025 #neurology #HomeOfNeurology #EANeurology@worldpdcongress.bsky.social @parkinsonseurope.bsky.social
Video 2: Part 2: Health Secretary Wes Streeting & The Baker🥊 @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social #Parkinsonsawareness in
06.06.2025 20:12 — 👍 5 🔁 1 💬 0 📌 0Was great to have Health Secretary Wes Streeting not just turn up but joined in - spoke to fellow Parkies wasn't rushed at all thank you🥊 also thank you to Gillian ( Movers & Shakers) & Gaynor Edwards (Spotlight YOPD) turn up and join in🥊 @worldpdcongress.bsky.social @parkinsons.org.uk
06.06.2025 18:06 — 👍 1 🔁 0 💬 0 📌 0
Age of the AI - maybe this is the way forward? interesting paper on ML & DL and the possibilities @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social eurjmedres.biomedcentral.com/counter/pdf/...
26.05.2025 11:43 — 👍 1 🔁 0 💬 0 📌 0@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @basbloemink.bsky.social #ParkinsonsAwreness
25.05.2025 16:14 — 👍 1 🔁 1 💬 0 📌 0
Effectiveness of the Roy adaptation model-based nursing intervention in improving physiological, psychological, and social outcomes in patients with PD: This recent paper shows the importance of a holistic approach lead by the Nurse specialist:
bmcneurol.biomedcentral.com/articles/10.....
What we eat is just as important as Exercise Long-Term Consumption of UPS Foods and Prodromal Features of Parkinson Disease | Neurology @parkinsons.org.uk @parkinsonseurope.bsky.social @worldpdcongress.bsky.social
www.neurology.org/doi/10.1212/...
This paper shows the importance and difference it makes for #Parkinsons people if a interdisciplinary gastrointestinal care is in place: @worldpdcongress.bsky.social @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net journals.sagepub.com/doi/epub/10....
05.05.2025 16:43 — 👍 1 🔁 1 💬 0 📌 0
Today the government of UK will be debating on #parkinsons in www.parliamentlive.tv/Commons @parkinsons.org.uk @parkinsonseurope.bsky.social @efna.net @worldpdcongress.bsky.social
01.05.2025 06:00 — 👍 1 🔁 0 💬 0 📌 0
What a great session today on #WorldParkinsonsDay @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social #Parkinsons
11.04.2025 16:06 — 👍 2 🔁 0 💬 0 📌 0
#parkinsonsawareness
#parkinsons
@parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social @efna.net
EFNA's 2025 #StrongerConnected workshop is taking place in Brussels today, where representatives of our member organisations, our Community Advisory Board, patient and caregiver advocates, and industry partners have gathered to discuss the topic of #healthliteracy.
09.04.2025 10:14 — 👍 3 🔁 2 💬 1 📌 0
Just waiting for my friend Neil Russell on his epic 100mile run from Oxford to Cambridge in one go 😳, will join him just under halfway mark🥊
@parkinsons.org.uk @parkinsonseurope.bsky.social
@worldpdcongress.bsky.social
Do show your support:
www.neilstillcan.run
Delighted to be invited to the special screening’Worlds Toughest Drive’ by retd Col Guy Deacon - www.guydeacon.co.uk #Parkinsonsawareness @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk
03.04.2025 07:14 — 👍 3 🔁 0 💬 0 📌 0
Thank you to The Parliament for bringing us all together for such an inspiring session. 🙌
#Parkinsons #Parkinson #EUParliament 3/3
@worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net #parkinsons
26.03.2025 09:56 — 👍 1 🔁 0 💬 0 📌 0
www.prd-journal.com/article/S135...
Debate on the role of genetic profiling in DBS candidacy assessment in Parkinson’s disease.
Supporters argue genetic profiles predict cognitive decline risk and inform patient decisions.
AI tech improves #parkinsons diagnosis @worldpdcongress.bsky.social @parkinsonseurope.bsky.social @parkinsons.org.uk @michaelokun.bsky.social
www.sciencedaily.com/releases/202...
@worldpdcongress.bsky.social @parkinsonseurope.bsky.social #parkinsons
17.03.2025 17:55 — 👍 1 🔁 1 💬 0 📌 0
Parkinsonism & Related Disorders:
Conclusions
Our observations suggest that aerobic-based combined exercise and exercise sessions lasting 60 minutes or longer may be associated with greater improvements in motor symptoms in patients with PD.
www.prd-journal.com/article/S135...
@parkinsons.org.uk
Has your ability to work or maintain employment been affected by a neurological condition? Share your experience in the comments. @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social
16.03.2025 07:40 — 👍 3 🔁 1 💬 0 📌 0
According to a recent survey, 71% of people with a #neurologicalcondition have had to adjust their role or work schedule because of their condition, of which only 35% report that their employer was accommodating of this change. #BrainAwarenessWeek #BAW2025 #invisibleillness #neurology @efna.net
16.03.2025 07:38 — 👍 5 🔁 2 💬 0 📌 1Meds in #Uganda extortionately expensive this is the case across #Africa #Parkinson @parkinsonseurope.bsky.social @parkinsons.org.uk @worldpdcongress.bsky.social
07.03.2025 11:23 — 👍 1 🔁 0 💬 0 📌 0
Village health workers and medical professionals in Bududa area of #Uganda This one gets most of them PWP or not🤣 my boxing session wi testify🥊
@worldpdcongress.bsky.social @efna.net @parkinsonseurope.bsky.social @parkinsons.org.uk
Introducing little aids like sticks to help with walking and using arms, natural resource to help improve QOL for PWP in #Uganda @parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social
05.03.2025 05:31 — 👍 0 🔁 0 💬 0 📌 0@togethershorts.bsky.social
01.03.2025 18:14 — 👍 0 🔁 0 💬 0 📌 0
Umpired a hockey match earlier met some friends hadn’t seen for long time, now awaiting flight to #Uganda to deliver an exercise program parkinsonssibuko.org
@parkinsonseurope.bsky.social @parkinsons.org.uk @efna.net @worldpdcongress.bsky.social
