J.B. Negrón's Avatar

J.B. Negrón

@negronjb.bsky.social

#publichealth, #healthpsychology, and #socialsciences i apply #qualitativeresearch methodology and methods to better understand human behavior and HOW things work rethinking sexuality in rheumatic diseases www.reumasutra.com PUR/BCN

503 Followers  |  755 Following  |  95 Posts  |  Joined: 27.07.2023  |  2.5132

Latest posts by negronjb.bsky.social on Bluesky

The advocacy effect: a grounded theory study on the inclusion of caregivers or nearest support persons in research to better understand patient outcomes in rheumatoid arthritis

rdcu.be/ezXyf

09.08.2025 04:53 — 👍 0    🔁 0    💬 0    📌 0
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New article out today. A more timely title might have been “How Doctors Become Fascists.”

I’ll have another essay out next week on the minority of doctors who refuse to simply go along with violence and who build underground care systems in response.
kwnsfk27.r.eu-west-1.awstrack.me/L0/https:%2F...

24.07.2025 16:13 — 👍 9    🔁 3    💬 0    📌 0
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On medical ideology and the production of docile doctors: The politics of care in an age of authoritarianism The United States is the only high-income nation that does not provide universal healthcare as a fundamental public service to its citizens. Instead, …

www.sciencedirect.com/science/arti...

24.07.2025 18:02 — 👍 0    🔁 0    💬 0    📌 0

Uncharacteristcally long 🧵 (sorry) re: #Qualitative methodologies, science, and 'AI'.

As Qualitative researchers, we should definitely care and remain curious about what 'good work' can look like - but we should be very wary about assuming that a focus on 'rigour' will address this question. 1/13

26.11.2024 13:51 — 👍 41    🔁 20    💬 3    📌 7
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The challenges of open data sharing for qualitative researchers ‘Open Science’ advocates for open access to scientific research, as well as sharing data, analysis plans and code in order to enable replication of results. However, these requirements typically fail ...

pmc.ncbi.nlm.nih.gov/articles/PMC...

02.07.2025 01:37 — 👍 0    🔁 0    💬 0    📌 0
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In the face of anti-science politics, silence is not without cost More scientific leaders need to speak out about anti-science agendas and threats to academic freedom across the world.

Important editorial in @nature.com.
As I said a decade ago in an op-ed in the @nytimes.com (back when they were publishing stuff like that), "If You See Something, Say Something" (www.nytimes.com/2014/01/19/o...)
www.nature.com/articles/d41...

26.06.2025 12:44 — 👍 166    🔁 76    💬 4    📌 3
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Three years after Roe fell, more women are managing their abortions without doctors A growing body of research demonstrating the safety and effectiveness of self-managed abortion with pills, coupled with the global pandemic in 2020 and the fall of Roe in 2022, has many U.S. doctors changing their views.

A growing body of research demonstrating the safety and effectiveness of self-managed abortion with pills, coupled with the global pandemic in 2020 and the fall of Roe in 2022, has many U.S. doctors changing their views.

24.06.2025 15:37 — 👍 405    🔁 96    💬 9    📌 3
OP0233-PARE UNDERSTANDING SEXUALITY IN RHEUMATIC AND MUSCULOSKELETAL DISEASES: EXPANDING THE REUMASUTRA PROJECT TO THE GENERAL POPULATION In EULAR 2020, the results of our ongoing project Reumasutra were presented. The aims were to (i) understand the complexities and the difficulties of sexuality in people with rheumatic and musculoskel...

ard.eular.org/article/S000...

21.06.2025 15:50 — 👍 0    🔁 0    💬 0    📌 0
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#EULAR2025

18.06.2025 08:59 — 👍 1    🔁 0    💬 0    📌 0
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🥲😱...

17.06.2025 19:31 — 👍 0    🔁 0    💬 0    📌 0
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If you need to remember something from my presentation at #EULAR2025 remember this:

16.06.2025 22:17 — 👍 1    🔁 0    💬 0    📌 0

Lovely to know!😊

15.06.2025 17:09 — 👍 1    🔁 0    💬 0    📌 0

I hope they were able to assist you with the unexpected elevator issue so that you could be on time. It was a pleasure meeting you!

15.06.2025 09:48 — 👍 1    🔁 0    💬 1    📌 0
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#EULAR2025 #PARE #Highlights:
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd

14.06.2025 11:59 — 👍 2    🔁 1    💬 1    📌 0
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Kudos to @eular.org , because now I really feel that I can be part of without losing my identity. Thanks!
#EULAR2025

14.06.2025 21:53 — 👍 2    🔁 0    💬 0    📌 0
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Very important topic at this PARE session!
Prof José B. Negrón presents the Reumasutra project.

Sex & intimacy should be addressed from the moment of diagnosis — they are key aspects of living with a rheumatic disease

#EULAR2025

12.06.2025 11:44 — 👍 6    🔁 3    💬 0    📌 1
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If you are attending #EULAR2025 and want to know what is happening with Reumasutra, I invite you to the session on Thursday: Let's talk about relationships – conception to birth (1:30 p.m. at C3).

11.06.2025 07:35 — 👍 1    🔁 0    💬 0    📌 0
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Next week I will be participating in #EULAR2025 with an oral presentation. If you are interested in the topic, I hope we can chat.
Meet you there!

04.06.2025 05:50 — 👍 1    🔁 1    💬 0    📌 0
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Next week I will be participating in #EULAR2025 with an oral presentation. If you are interested in the topic, I hope we can chat.
Meet you there!

04.06.2025 05:50 — 👍 1    🔁 1    💬 0    📌 0

Reviewed an ethics application where "AI" would be used to record therapy sessions. No details on the "AI" software/provider and zero concern for data protection around its use. Obviously this gets kicked back to sponsor but it's also kind of wild for it to be described so causally.

31.05.2025 12:43 — 👍 25    🔁 6    💬 2    📌 1
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Scott Pelley—American author and reporter for CBS News for more than 31 years, did not hold back

27.05.2025 03:32 — 👍 14188    🔁 4737    💬 397    📌 439

No matter how much money you have. You're closer to being homeless than to being Elon Musk.

16.05.2025 14:07 — 👍 1    🔁 0    💬 0    📌 0
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A card reads: "The world's richest man has been involved in the deaths of the world's poorest children." Bill Gates, discussing Elon Musk's cuts to USAID, in an interview with The New York Times

A card reads: "The world's richest man has been involved in the deaths of the world's poorest children." Bill Gates, discussing Elon Musk's cuts to USAID, in an interview with The New York Times

In a wide-ranging interview with The New York Times, the billionaire Bill Gates discussed Elon Musk’s “stunning” reductions to USAID. He also spoke about his decision to accelerate the end of his foundation’s giving and his plans for his personal fortune. nyti.ms/3Si2WJ7

09.05.2025 17:00 — 👍 375    🔁 95    💬 16    📌 6
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Exclusive: the most-cited papers of the twenty-first century A Nature analysis reveals the 25 highest-cited papers published this century and explores why they are breaking records.

The most cited papers of the 21st century, including @vicclarke.bsky.social and @ginnybraun.bsky.social
www.nature.com/articles/d41...
As they told us in this 2021 interview, 'thematic analysis has travelled to places we've never heard of'!
www.bps.org.uk/psychologist...

15.04.2025 15:59 — 👍 31    🔁 9    💬 2    📌 3
What makes a successful EULAR 2025 Abstract: Insights from the Scientific Programme
YouTube video by EULAR What makes a successful EULAR 2025 Abstract: Insights from the Scientific Programme

What makes a successful #EULAR2025 Abstract?

1️⃣New data - not published before 15/01/2025
2️⃣Clear title, concise background, objectives, methods
3️⃣Results must be factual - only pivotal findings, no extra info
4️⃣Base your conclusion on the results

Webinar by Prof Dejaco youtu.be/gXjXpfEI2f8?...

26.11.2024 19:31 — 👍 1    🔁 1    💬 0    📌 0

Erasing science doesn’t make ‘undesirable’ problems go away—it makes them worse.

The #NIH is terminating grants. LGBTQ+ health research is a clear target.

LGBTQ+ people face stigma & violence. This research saves lives. Let’s not stay silent.

Terminated grants 👇🏻
taggs.hhs.gov/Content/Data...

19.03.2025 16:36 — 👍 47    🔁 15    💬 0    📌 1
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“Orchestrated assault”: New tsunami of NIH grant cuts hits South Africa hard Agency moves to terminate nearly 1000 awards, including programs involving “DEI”

Exclusive from me and Jon Cohen @science.org: NIH is terminating nearly 1000 grants in a series of batches. One, which conducts HIV and TB clinical trials in South Africa, was labelled as a "DEI" study that "harms the health of Americans." www.science.org/content/arti...

22.03.2025 01:39 — 👍 48    🔁 42    💬 5    📌 4
First page of the paper Being really confidently wrong by Victoria Clarke et al.

First page of the paper Being really confidently wrong by Victoria Clarke et al.

Qualitative researchers' experiences of methodologically incongruent peer review feedback

w/ @ginnybraun.bsky.social @jeffnz.bsky.social @janeemcallaghan.bsky.social @andrealamarre.bsky.social & @joannasemlyen.bsky.social

psycnet.apa.org/fulltext/202...

17.12.2024 22:26 — 👍 96    🔁 53    💬 4    📌 4
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