Health Research Charities Ireland

3 people standing in Leinster House - Dr Avril Kennan HRCI, Peter Roche T.D. and Linda McGrath, HRCI

HRCI was delighted to meet with Peter Roche T.D. and Senator Manus Boyle in Leinster House yesterday to brief them on the three key asks in our Position Paper 2025. Find the Position Paper on our website hrci.ie/hrci-positio...
#HealthResearchMatters

Thanks again to @avrilkennan.bsky.social for the opportunity to share some thoughts on research integrity and methodological rigor with a room full of Irish health research funders via @hrci.bsky.social. 🙏

youtu.be/5q8l-OV9Msc

Are you interested in keeping up to date with the work of HRCI? Our next newsletter will be published shortly- sign up to our mailing list to make sure you receive news, Irish Health Research Forum invitations and links to our latest publications. http://eepurl.com/gF...

Researchers! Expressions of Interest closing dates under the HRCI/Health Research Board (HRB) Joint Funding Scheme are fast approaching. Interested in learning more? Follow this link to see the current open calls hrci.ie/joint-fundin...
#HealthResearchMatters

HRCI was delighted to attend the launch of the National Rare Disease Strategy 2025-2030 @roinnslainte.bsky.social yesterday. We warmly welcome the Strategy’s strong commitments to foster innovation in rare disease research and to establish a National Rare Disease Registry. #HealthResearchMatters

📣HRCI-HRB Joint Funding Scheme 2026 opening soon.

📆Applications open: 1 September 2025 at 1pm
⌛Research projects of 12-36 months duration & up to €300,000 supported.

Full details below including @hrci.bsky.social step by step video⬇️

Further info: www.hrb.ie/funding-sche...

#HealthResearchMatters

The Irish Thoracic Society are now inviting EOI's under the HRCI/@hrbireland.bsky.social Joint Funding Scheme that supports their Research Mission. Funding up to €100,000, for projects of 24 months is available. Find further info on the call hrci.ie/joint-fundin... #HealthResearchMatters

The latest charity to open an EOI call under the HRCI/@hrbireland.bsky.social Joint Funding Scheme is The Alzheimer Society of Ireland. Up to €240,000 is available for projects of 24 months. The closing date for receipt of EOIs is 12/9/2025. More info hrci.ie/joint-fundin...
#HealthResearchMatters

Information Session for Researchers on Epilepsy Ireland Research Funding Call 28.8.25 Epilepsy Ireland were delighted to recently launch our 9th Research Funding Call, which is run in conjunction with the Health Research Board/Health Research Charities Ireland Joint Funding Scheme (HRB...

Researchers and research institutions - this online event on our latest research call may be for you! Find out more on our website below. Delighted to have colleagues from the @hrci.bsky.social
joining us as part of the session as well.

The closing date for the Expressions of Interest call from Breakthrough Cancer Research under the Joint Funding Scheme is fast approaching. Find more info on the HRCI Open Calls page hrci.ie/joint-fundin... #HealthResearchMatters

Parkinson's Ireland have launched an Expressions of Interest call under the HRCI/ @hrbireland.bsky.social Joint Funding Scheme 2025/26. Closing date for EOI's: September 5th 2025
Find more info:https://hrci.ie/joint-funding-open-calls/
#HealthResearchMatters

Under the HRCI/HRB Joint Funding Scheme 2025/26, the Irish Cancer Society has opened an Expressions of Interest call.The focus of the call is Translational Biomedical Research – Cancers of Unmet Needs. €300,000 is available for projects up to 36 months. Closing date:3 Sept. hrci.ie/joint-fundin...

Muscular Dystrophy Ireland (MDI) is taking part in the HRCI/HRB Joint Funding Scheme 2025/26 & are currently seeking expressions of interest for projects that align with MDI’s Research Strategy. Find more info on the call hrci.ie/joint-fundin... https://hrbireland.bsky.social‬ #HealthResearchMatters

@epilepsyireland.bsky.social have launched a call for Expressions of Interest as part of the HRCI hrbireland.bsky.social‬ (HRB) Joint Funding Scheme. Find more information on the call by visiting the Open Calls page on our website https://hrci.ie/joint-funding-open-calls/
#HealthResearchMatters

We're delighted to announce the HRCI/HRB Joint Funding Scheme is once again running for 2025/26. Researchers, visit our website hrci.ie/joint-fundin... to get all the info you need, including a video which goes through the scheme step by step #HealthResearchMatters @hrbireland.bsky.social

Baby gets world's first personalised gene therapy treatment Nine-and-a-half-month-old KJ Muldoon has a rare metabolic condition that meant he spent the first months of his life in hospital on a very restrictive diet.

We're delighted to see the work of Dr Rebecca Ahrens-Nicklas, a gene therapy expert at the Children's Hospital of Philadelphia (CHOP), being highlighted in this piece. news.sky.com/story/baby-g... Dr Ahrens Nicklas was previously funded via the HRCI HRB Joint Funding Scheme and MSD Action Foundation

Have you seen our video, created for the May Irish Health Research Forum event on patient registries? It brings together the voices of patients, advocates & clinicians to show how registries can transform care, drive research & improve decision-making. ➡️ www.youtube.com/watc...

We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.

More information here: ilfa.ie/blog/ilfa-we...

Member's story 2024: Adelaide Health Foundation - Niamh Gavin's testimonial on benefits of Health Research Charities Ireland - HRCI membership for Adelaide Health Foundation 2024

In this year’s HRCI Annual Report Member Story, Niamh Gavin, CEO of Adelaide Health Foundation, reflects on the impact we've had on AHF's approach to PPI, research funding, and the value of the HRCI members network.
hrci.ie/impact/membe...
#HealthResearchMatters

Lung Fibrosis patients demand urgent reform amid growing crisis in care Lung Fibrosis is a progressive, life-limiting condition that causes scarring of the lungs, making breathing increasingly difficult

Thanks to @irishmedicaltimes.bsky.social for helping us get the word out about #lungfibrosis! www.imt.ie/news/lung-fi...

Today our members @ilfa-ireland.bsky.social launch groundbreaking research which provides a pathway for a future where all lung fibrosis patients receive the care they need to live longer, healthier lives. ilfa.ie/wp-content/u... #HealthResearchMatters

🚨 Exciting news from HRCI! 🚨
We’re proud to launch our **Annual Report 2024** — capturing a year of advocacy, collaboration, and impact in health research. 📖
Find the full report here 👉 hrci.ie/hrci-annual-...

#HealthResearchMatters

Are you interested in keeping up to date with the work of HRCI? Our next newsletter will be published shortly- sign up to our mailing list to make sure you receive news, Irish Health Research Forum invitations and links to our latest publications. http://eepurl.com/gF...

There's great momentum around patient registries right now! The FoRT report, Sustaining Patient Registries in Ireland, calls for a bold, Dept of Health-backed vision for their future. A vital roadmap for care, research & policy. Worth a read 👉 cfri.ie/wp-content/u...

#HealthResearchMatters

🌟 A fantastic day of collaboration and momentum—thanks to everyone who joined us. We can’t wait to share what comes next, keep an eye out for the Forum report later this year! #HealthResearchMatters

Our network manager, Suzanne McCormack, chaired a panel conversation 'Why Registries Matter Now More Than Ever' at the Irish Health Research Forum today. A great discussion with Dr Robyn Doherty and Prof Sean Dinneen!

We are delighted to attend @hrci.bsky.social Irish Health Research Forum which is taking place this morning. Today's event focuses on the importance of patient registries, "Why Patient Registries Matter Now More Than Ever"
Finding Solutions, Moving Forward Together" #healthresearchmatters #advocacy

At the Irish Health Research Forum, we're discussing the vital role of patient registries. We’ve just shown this powerful video on why they matter. @hrci.bsky.social
#HealthData #PatientRegistries #RareDisease #HealthResearchMatters

m.youtube.com/watch?v=1hKH...

Attendees are now in breakout discussions—sharing insights, challenges, and ideas to shape a stronger registry landscape in Ireland. These conversations will directly inform the Forum report later in the year. Stay tuned!

We kicked off with a powerful video featuring researchers and patient advocates setting the scene about registries. Now, a panel with rich conversation about the "here and now" of where we are with registries in Ireland.