Dr.rer.pol. Sabine Schwab

Honored to have had the opportunity to kick off the @the_abta.bsky.social National Conference this year. It was a huge success and great intro to the conference weekend.

💻 can’t make it to Chicago? Online participation is free! #btsm #abta2025nationalconference #braintumor

Will I see you there? #btsm
Let’s connect here or through the conference app and let’s make sure we’ll find some time to meet up.

Also, join the Campfire Connections networking session at 4pm on Friday. Hosted by yours truly. 🩶

Today is #GlioblastomaAwarenessDay.In 2021, the WHO updated CNS tumor classifications which led to me being a #glioblastoma patient.I am doing fairly well but many of my friends are not.Please consider making a donation to fuel research, it is much needed. give.abta.org/give/474321/... #btsm

PSA:

There is a no cancer that is the “good” kind. Mind you there are levels to cancer. Some less aggressive, etc. There is however, no “good” kind. #Cansky

Surround yourself with people who speak up for you, lift you up, share their knowledge, and help you grow. #sabine365

Expertise Without a Paycheck When Appreciation Doesn’t Pay the Bills

This! Great article on #patientadvocacy by Christine van Raesfeld

« Our expertise isn’t theoretical—it’s personal, hard-earned, and often traumatic. We’ve survived what others research. »

open.substack.com/pub/christin... #btsm

Chronic allergic sinusitis / rhinitis anyone? How do you manage your symptoms?

I did! It was delicious.

A4: Simply the fact that I am alive still keeps me going. I know that many others don’t have that privilege and I want to speak up for those who no longer can’t.
If you start today, don’t be discouraged by others who have been in this for many years. Start small. Every voice counts! #btsm

A3: Some organization, like @braintumor.org already do a great job with policy advocacy. We can help by not stopping to share our stories, calling our representatives, and being hopeful that breakthroughs, advancements, and treatment options won’t be completely eradicated. #btsm

A2: Policy advocacy surely has the greatest need right now, with all the cuts to research funding.
A big impact can also be made with patient advocacy for others – patients and their families benefit from our lived experience and expertise that goes along with it. #btsm

A1: I have been involved in self-advocacy since my diagnosis, then patient advocacy through mentorships, policy advocacy since 2019, and I’m focusing on research advocacy in the last 4-5 years. I am putting in all my efforts to better the lives of the #braintumor community. #btsm

Hi Everyone! I’m Sabine, member of this @BTSMchat organizer crew, and living with brain cancer for over 11 years now. Currently enjoying a nice dinner with friends, so any direct question will be answered with delay. #btsm

The things we do on a Thursday night. Being a panelist for @Ourbrainbankforgbm.bsky.social (OBB), sharing my thoughts on patient power, hope, science, and politics .
This event honored the late GBM superstar Jessica Morris, founder of OBB and author of “All in my head.” (a.co/d/8QnYrZg) #btsm

@ourbrainbankforgbm.bsky.social @preopticarea.bsky.social @roelverhaak.bsky.social‬ @sabine-nj.bsky.social @samiracle04.bsky.social @sarahfunes.bsky.social @scurrier.bsky.social @shawncarey42.bsky.social @stales.bsky.social @stuartselby.bsky.social @subatomicdoc.bsky.social @tambre.bsky.social

I have been informed by @mskcancercenter.bsky.social that they likely won’t be covered by my health insurance past July 1st, 2025.
This is extremely saddening to hear because looking for and then trusting in a new health care team is not as easy as it sounds. #btsm

We're so excited for our June 8, 2025 #BTSM #skychat on #braintumor Advocacy that we've moved our start time ONE HOUR EARLIER to better accommodate schedules. We'll start at 4 PM Pacific / 7 PM Eastern instead of 5pm/8pm. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

On this #NationalCancerSurvivorDay I’m doing the things I love to do: spreading awareness, networking, and connecting with others affected by (brain) cancer. If you/your loved one is facing a #Glioblastoma diagnosis, check out: @ourbrainbankforgbm.bsky.social #btsm

Day 3 started out with a panel titled “Empowering Voices: Becoming a Research Patient Advocate”
Bri, my #braintumor buddy with whom I’m featured on @theabta.bsky.social media kits, was one of the panelists and rocked it! #btsm

Join us in Brooklyn on June 5 for an evening of readings and conversional with: • Sabine Schwab, PhD, 11-year GBM survivor, advocate • Dr. Fabio Iwamoto, Neuro-oncologist, Columbia • Ed Pilkington, GBM Caregiver & Jessica's husband #glioblastoma #GBM #AllInMyHead #BTAM #BTSM https://secure.givelively.org/event/ourbrainbank-inc/a-celebration-of-all-in-my-head-by-jessica-morris

Join us in Brooklyn on June 5
#glioblastoma #GBM #AllInMyHead #BTAM #STSM
secure.givelively.org/event/ourbra...

At ASCO? Stop by our booth (#13000) or view our poster “Disparities in Glioblastoma Care: Insights from a Nationwide Survey” (May 31, Hall A, #451, 1:30-4:30pm). #ASCO2025 #ASCO #GBM #Glioblastoma #BTSM #BTAM

At ASCO? Stop by our booth (#13000) or view our poster “Disparities in Glioblastoma Care: Insights from a Nationwide Survey” (May 31, Hall A, #451, 1:30-4:30pm).
#ASCO2025 #ASCO #GBM #Glioblastoma #BTSM #BTAM

Meeting up with fellow #braintumor patient advocate and former #BTSM chat organizer/moderator, Jeremi Pivor, at #ASCO25 today was great. But being in the room when he got standing ovations for his #Medscape talk was the cherry on top of another successful day.

It’s been a busy second day at #ASCO25. Off to my final presentation of the day Clinical Intwgration of Therapeutic Innovation in Glioma. #btsm

Super interesting session on Precision Medicine in Glioma Treatment — Integration of Molecular Profiling to Inform Targeted Therapies.
Voilà the 3 summary slides from all 3 panelists. #btsm

It's a big weekend with #ASCO25 taking place, but we're still getting ready for our June 8, 2025 #BTSM #skychat, and reflecting on 12 years of chats our theme will be #braintumor Advocacy. We hope you can join us! #oncosky #oncsky #medsky #AYACSM #cansky

Hello from #ASCO25!
This should be an interesting session. #btsm

Anyone in my network attending #ASCO25? Would love to meet up ESPECIALLY if we haven’t met yet IRL. #btsm #cansky #oncsky

👕 Headed to ASCO? Come find me if you want a #MakeCancerLessShitty t-shirt! They’re soft, expressive, and mildly therapeutic. Like a hug… but with attitude. Limited supply—like everyone’s emotional bandwidth 💩 #ASCO2025 #SuppOnc #SurvOnc #CancerHumor #OncoSwag @cancersuckless.bsky.social

Hey #braintumor community! Save the date for our next chat - taking place the weekend after #ASCO25, on June 8, 2025, at 5 pm PT, 6 pm MT, 7 pm CT, 8 pm ET.
We would love to see some researcher/ scientists participate!
#BTSM

As someone who was personally affected by pregnancy associated cancer, I wish there was more research into this topic. Will surely listen later today. #btsm #bcsm