Millions are still waiting for answers. Ahead of #SevereMEAwarenessDay, weโre reaffirming our support and using genetic insights to develop the first non-invasive mechanostic tests to accelerate diagnosis and improve care.
๐ precisionlife.com/blog-support...
#MECFS #LongCOVID
06.08.2025 11:00 โ ๐ 11 ๐ 4 ๐ฌ 0 ๐ 0
We fully support our partners at @actionforme.bsky.social in their response to the UK government's ME/CFS Delivery Plan as a positive and necessary step forward โ but that much more is needed to deliver real change, faster, for people with ME. #pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis
24.07.2025 15:04 โ ๐ 8 ๐ 4 ๐ฌ 0 ๐ 0
PrecisionLife | Blog | Mechanism-Based Precision Medicine
Learn how mechanostics and mechanism-based precision medicine can transform the future of the UK NHS and healthcare globally - read the article.
Thanks Oevie. Weโve shown how this approach works in over 60 complex, chronic diseases including long COVID, ME/CFS, endometriosis, autoimmune conditions, ALS and type-II diabetes complications โ with multiple clinical studies running. Further details in the article: precisionlife.com/future-now
09.07.2025 15:18 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
YouTube video by Action For ME
Genetics Centre of Excellence Webinar - 06 June 2025
1-hour recording from AfMEโs Genetics Centre of Excellence webinar:
"Presentations from Audrey Ryback, Research Fellow at the University of Edinburgh (funded by Action for ME), and PrecisionLife, our Partners in the LOCOME research project."
www.youtube.com/watch?v=zhNt...
#MEcfs #CFS #PwME
29.06.2025 11:10 โ ๐ 11 ๐ 4 ๐ฌ 1 ๐ 0
Chronic diseases overwhelm health systems, yet most lack accurate risk prediction or effective treatment. In a new insight article, our CEO explores how mechanism-based precision medicine can change that.
๐ precisionlife.com/future-now
#PrecisionMedicine
#PrecisionLife
09.07.2025 10:13 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
Functional genomics explainer: A strategic opportunity for the UK
Delighted to feature in the @bia-uk.bsky.social report on functional genomics as an example of its transformative power in UK healthcare.
Proud to work at the intersection of AI and genomics - understanding complex biology to predict & prevent chronic diseases.
๐ bioindustry.org/resource-rep...
03.07.2025 10:05 โ ๐ 2 ๐ 2 ๐ฌ 0 ๐ 0
Watch our full presentation (clip below) in the recent @actionforme.bsky.social webinar on ME/CFS & long COVID.
We explore genetic risk factors, protective biology, and precision biomarkers that could transform diagnosis and treatment.
๐ฅ precisionlife.com/webinar-upda...
#MECFS #LongCOVID
01.07.2025 11:25 โ ๐ 10 ๐ 5 ๐ฌ 0 ๐ 0
PrecisionLife CEO, Steve Gardner, spoke yesterday on BBC Radio 4โs Today Show about the UK industrial strategy & why prioritizing life sciences is vital for economic growth.
#LifeSciences #PrecisionMedicine
24.06.2025 14:25 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
New in Bio-IT World: how PrecisionLife is enabling mechanism-based precision medicine for complex diseases like ME/CFS, long COVID, ALS & endometriosis.
Read the article: www.bio-itworld.com/news/2025/06...
#precisionmedicine #biomarkers #PrecisionLife
17.06.2025 10:52 โ ๐ 4 ๐ 3 ๐ฌ 0 ๐ 0
โฐ Last chance to register!
Our webinar with @actionforme.bsky.social on #MECFS & #LongCOVID is tomorrow. Join for the latest research insights and their implications for the prediction, treatment and prevention of the conditions.
๐ Register: precisionlife.com/webinar-upda...
#pwME #MyalgicE
05.06.2025 16:00 โ ๐ 2 ๐ 0 ๐ฌ 0 ๐ 0
Rowan Gardner (@rowanbio.bsky.social) joins global leaders at Oxford Nanoporeโs (@nanoporetech.com) Informatics Day tomorrow to discuss how AI and genomics can unlock new insights in complex disease biology.
๐ nanoporetech.com/about/events...
#LondonCalling25 #Genomics #AI #PrecisionMedicine
22.05.2025 11:30 โ ๐ 5 ๐ 2 ๐ฌ 0 ๐ 0
Webinar - Update on Recent ME/CFS Research | PrecisionLife
Join PrecisionLife and partners for new insights into ME/CFS genomics, diagnostics, and patient stratification from the LOCOME research programme.
We will share and discuss the latest ME/CFS & Long COVID genetic findings in a free webinar on 6 June, hosted by @actionforme.bsky.social.
Speakers include Steve Gardner, Audrey Ryback, and Sonya Chowdhury.
๐๏ธ Register: precisionlife.com/webinar-upda...
#MECFS #LongCOVID #precisionmedicine
19.05.2025 11:24 โ ๐ 10 ๐ 7 ๐ฌ 0 ๐ 2
Heading to #WCE2025?
We'll be there sharing new insights into genetic risk, patient stratification & diagnostic tools for #endometriosis and #womenshealth.
Come meet us in Sydney & explore the future of #precisionmedicine.
๐ precisionlife.com/news-and-eve...
16.05.2025 11:45 โ ๐ 4 ๐ 1 ๐ฌ 0 ๐ 1
๐งฌ ๐๐ฃ๐จ๐๐๐๐ฉ๐จ: ๐จ๐ป๐ฐ๐ผ๐๐ฒ๐ฟ๐ถ๐ป๐ด ๐ก๐ฒ๐ ๐ฃ๐ฟ๐ฒ๐ฐ๐ถ๐๐ถ๐ผ๐ป ๐ ๐ฒ๐ฑ๐ถ๐ฐ๐ถ๐ป๐ฒ ๐ข๐ฝ๐ฝ๐ผ๐ฟ๐๐๐ป๐ถ๐๐ถ๐ฒ๐ ๐ถ๐ป ๐ ๐/๐๐๐ฆ ๐ฎ๐ป๐ฑ ๐๐ผ๐ป๐ด ๐๐ข๐ฉ๐๐
This monthโs ๐๐ฏ๐ด๐ช๐จ๐ฉ๐ต๐ด newsletter explores groundbreaking progress in our understanding of complex disease biology.
Read more here:
em.precisionlife.com/insights-may...
#PrecisionMedicine #PrecisionLife
15.05.2025 09:06 โ ๐ 1 ๐ 0 ๐ฌ 0 ๐ 0
๐ฅ ๐๐
๐ฝ๐ฒ๐ฟ๐ ๐ฃ๐ฟ๐ฒ๐๐ฒ๐ป๐๐ฎ๐๐ถ๐ผ๐ป:
We highly recommend watching Dr. Sayoni Das' presentation, #PrecisionMedicine for Long COVID and ME/CFS.
๐ ๐ช๐ฎ๐๐ฐ๐ต ๐ต๐ฒ๐ฟ๐ฒ: precisionlife.com/hubfs/Video/...
13.05.2025 14:50 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Genetic risk factors for severe and fatigue dominant long COVID and commonalities with ME/CFS identified by combinatorial analysis - Journal of Translational Medicine
Background Long COVID is a debilitating chronic condition that has affected over 100 million people globally. It is characterized by a diverse array of symptoms, including fatigue, cognitive dysfuncti...
๐๐ฒ๐ป๐ฒ๐๐ถ๐ฐ ๐ฅ๐ถ๐๐ธ ๐๐ฎ๐ฐ๐๐ผ๐ฟ๐ ๐ณ๐ผ๐ฟ ๐ฆ๐ฒ๐๐ฒ๐ฟ๐ฒ ๐ฎ๐ป๐ฑ ๐๐ฎ๐๐ถ๐ด๐๐ฒ ๐๐ผ๐บ๐ถ๐ป๐ฎ๐ป๐ #๐๐ผ๐ป๐ด๐๐ข๐ฉ๐๐ ๐ฎ๐ป๐ฑ ๐๐ผ๐บ๐บ๐ผ๐ป๐ฎ๐น๐ถ๐๐ถ๐ฒ๐ ๐๐ถ๐๐ต #๐ ๐๐๐๐ฆ: 73 novel genes associated with Long COVID, and shared mechanisms with ME/CFS.
translational-medicine.biomedcentral.com/articles/10....
13.05.2025 14:50 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
Genetic risk factors for ME/CFS identified using combinatorial analysis - Journal of Translational Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a debilitating chronic disease that lacks known pathogenesis, distinctive diagnostic criteria, and effective treatment options...
๐ ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต ๐๐ถ๐ด๐ต๐น๐ถ๐ด๐ต๐๐:
๐๐ฒ๐ป๐ฒ๐๐ถ๐ฐ ๐ฅ๐ถ๐๐ธ ๐๐ฎ๐ฐ๐๐ผ๐ฟ๐ ๐ณ๐ผ๐ฟ #๐ ๐๐๐๐ฆ ๐๐ฑ๐ฒ๐ป๐๐ถ๐ณ๐ถ๐ฒ๐ฑ ๐๐๐ถ๐ป๐ด ๐๐ผ๐บ๐ฏ๐ถ๐ป๐ฎ๐๐ผ๐ฟ๐ถ๐ฎ๐น ๐๐ป๐ฎ๐น๐๐๐ถ๐: 14 novel genetic associations, paving the way for precision medicine.
translational-medicine.biomedcentral.com/articles/10....
13.05.2025 14:50 โ ๐ 1 ๐ 1 ๐ฌ 1 ๐ 0
Through our innovative AI-led combinatorial analytics platform, we've identified the first reproducible genetic associations for these complex conditions, offering hope for millions affected worldwide.
13.05.2025 14:50 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
Unraveling the Biological Drivers of ME and Long COVID | PrecisionLife
We have identified different genetic mechanisms causing ME/CFS and long COVID and used this to stratify patients. Learn more about our research.
๐ฌ ๐ ๐ ๐๐๐ฎ๐ฟ๐ฒ๐ป๐ฒ๐๐ ๐ช๐ฒ๐ฒ๐ธ ๐ฆ๐ฝ๐ผ๐๐น๐ถ๐ด๐ต๐: ๐ฃ๐ถ๐ผ๐ป๐ฒ๐ฒ๐ฟ๐ถ๐ป๐ด ๐ฅ๐ฒ๐๐ฒ๐ฎ๐ฟ๐ฐ๐ต ๐ถ๐ป ๐ ๐/๐๐๐ฆ ๐ฎ๐ป๐ฑ ๐๐ผ๐ป๐ด ๐๐ข๐ฉ๐๐
This #MEAwarenessWeek, we're proud to share our progress in understanding and treating #MECFS and #LongCOVID.
๐ precisionlife.com/longcovid-me...
13.05.2025 14:50 โ ๐ 2 ๐ 1 ๐ฌ 1 ๐ 0
World ME Alliance graphic. Photo of a person led in bed with an eye mask & ear defenders on. Text in white from top to bottom: 'Myth vs Fact. The Myalgic Encephalomyelitis Edition. Myth: ME is a mental health condition. Fact: ME is a biological illness that disrupts the metabolism & impairs the brain, immune system & autonomic nervous system. What facts do you want the world to understand this World ME Day?'
1/4
Today is #WorldMEDay ๐งก
We are supporting the World ME Alliance to help debunk 6 of the most common myths about ME & share the medical facts about ME that everyone should know
12.05.2025 10:03 โ ๐ 6 ๐ 2 ๐ฌ 1 ๐ 0
Unraveling the Biological Drivers of ME and Long COVID | PrecisionLife
We have identified different genetic mechanisms causing ME/CFS and long COVID and used this to stratify patients. Learn more about our research.
This is precision medicine in action โ made possible through our #LOCOME project and partnerships across the UK and US.
๐ Explore our first-year progress in this visual summary โ and read the full report on our website: precisionlife.com/mecfs
12.05.2025 11:29 โ ๐ 1 ๐ 1 ๐ฌ 0 ๐ 0
Weโre changing that.
๐งฌ Weโve identified novel genetic drivers of disease
๐ก๏ธ Discovered actively protective drug targets
๐งช Developed rapid, non-invasive diagnostic tools
๐ Initiated studies of repurposed, precision therapies
๐ฏ Enabled differential triage across overlapping syndromes
12.05.2025 11:29 โ ๐ 1 ๐ 1 ๐ฌ 1 ๐ 0
More than 400 million people worldwide have these debilitating conditions โ yet there are no accurate diagnostic tools or effective treatments to treat the underlying causes.
12.05.2025 11:29 โ ๐ 0 ๐ 0 ๐ฌ 1 ๐ 0
๐ข This #WorldMEDay, weโre proud to share real progress towards better outcomes for people living with ME/CFS and Long COVID.
12.05.2025 11:29 โ ๐ 5 ๐ 2 ๐ฌ 1 ๐ 0
Genetic Risk Factors for Long COVID Reproduced Across Populations | PrecisionLife
PrecisionLife study confirms reproducible genetic markers for long COVID in diverse cohorts, advancing diagnostic and treatment strategies for the disease.
PrecisionLife & Metrodora confirm the first reproducible genetic signatures for #LongCOVID across ancestries. Just in time for #WorldMEDay, this marks major progress for patients with complex chronic conditions.
๐ Read: precisionlife.com/publication-...
#PrecisionMedicine #MECFS #Genomics
09.05.2025 11:06 โ ๐ 12 ๐ 5 ๐ฌ 0 ๐ 0
PrecisionLife at LSX World Congress
Meet with PrecisionLife Co-founder Rowan Gardner at the LSX World Congress and join our panel discussion on increasing CNS and neurology R&D successes.
How can biotech and pharma partner more effectively in CNS & neurology? ๐ง
Catch @rowanbio.bsky.social and leaders from Otsuka, Eli Lilly, Avata Biosciences & Lumina Life Sciences at LSX World Congress to share strategies for success.
#LSXWorld #CNS #Partnerships
precisionlife.com/news-and-eve...
24.04.2025 13:50 โ ๐ 3 ๐ 1 ๐ฌ 0 ๐ 0
Weโre heading to Abu Dhabi Global Health Week to share how PrecisionLife is enabling th eprediction and prevention of major chronic diseases with groundbreaking insights into the mechanisms driving complex conditions. Letโs connect. ๐
๐ precisionlife.com/news-and-eve...
#ADGHW2025 #PrecisionMedicine
10.04.2025 10:47 โ ๐ 5 ๐ 2 ๐ฌ 0 ๐ 0
95% of posts on #MyalgicEncephalomyelitis, #LongCovid or #chronicillness.
With ME/CFS 36 years, severe ME 30 years.
@IrishMECFSAssoc trustee 28 years
26 publications in peer-reviewed journals
Social media: https://me-pedia.org/wiki/Tom_Kindlon
GP, medical educator, writer (BMJ columnist, Dr Helen in 'Take a Break') Independent SAGE, BMA Council.
๐Direct DNA/RNA analysis for anyone, anywhere
๐งฌShort to ultra-long reads in real-time for rapid insights
๐ฌProducts for research use only
Senior Technology Editor @ GEN
Writing about AI x Bio
โ๏ธ flin@genengnews.com
Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness
We are at the forefront of #mentalhealth & #neuroscience #research. We collaborate across industries & disciplines to find answers to global #health challenges.
Providing support & holistic healthcare services to people of all ages affected by #MECFS
Charity number: 1036419 / SC040452
Disease genomics & molecular mechanisms; ME/cfs: http://decodeme.org.uk, SequenceME @ Edinburgh University. Views - my own. He/him.
Dementia Community is a Charitable Community Benefit Society, a membership cooperative that provides learning and networking opportunities for the dementia care community. For more information please visit our website: journalofdementiacare.co.uk
Drug developer | Co-founder of Gate Bio | Fmr Big Pharma | Inventing small molecule medicines | Artist | Polymath
FirstWord is a global leader in news and intelligence for the Pharma and MedTech industries. Find our services here www.firstwordpharma.com, www.firstwordhealthtech.com, and www.firstwordreports.com
Fighting #dementia, #Alzheimers, & other degenerative conditions by sharing #brain health #science. Supporting the challenges of #caregiving. #Research #news summarized by experts. Join us & share! Not #medical advice. #NonProfit. South Bend, IN. #memory
Interested in treating/preventing age-related ill health (dementia, cardiovascular disease, cancer, frailty, etc.) by targeting aspects of the biology of aging. Learn more: https://www.c-span.org/video/?511443-1/ageless
Neuroscientist
Vision Neuroscientist
Connectomics / VolumeEM
Photographer / #Leica
In the data
bryanwjones.com
ORCID 0000-0001-5527-6643
Improving lives of people affected by Alzheimers & dementia | Early detection | Risk & protective factors | The center was established in 2009 with funding from the National Institute on Aging (NIA)
Learn more: adrc.wisc.edu
We want a world where dementia no longer devastates lives. Thatโs why we give help to everyone living with dementia today, and hope for the future. Find us at https://www.alzheimers.org.uk/
The Alzheimerโs Association is the leading voluntary health organization in Alzheimer's care, support and research. #ENDALZ
alz.org
The Society for Medicines Research ๏ฟผis a UK based charity connecting scientists engaged in drug discovery. We organise scientific mentoring events.
https://smr.org.uk