ukmsregister

Help shape the future of MS research in the UK.

Join the UK MS Register if you:
✅ Live in the UK
✅ Are 18 or over
✅ Have a confirmed MS diagnosis

Find out more: ukmsregister.org/Account/Regi...

New study from researchers at University of Birmingham looking into the experiences of pregnant women with MS.

More details below 👇

Campus Research Day Dec ’25 - UK MS Register Blog In December 2025, the Register team were delighted to host a Campus Research Day bringing together researchers and supporters of the MS Society for an engaging and inspiring visit. This event was the ...

In December 2025, the UK MS Register hosted a Campus Research Day at Swansea University which brought together researchers and supporters of the MS Society UK.
blog.msregister.org/campus-resea...

UK MS Register Campus Research Day Dec ’25 - Population Data Science UK MS Register News. Published 1/14/2026. In December 2025, the Register team were delighted to host a Campus Research Day bringing together researchers and supporters of the MS Society for an engagin...

The @ukmsregister.bsky.social hosted a Campus Research Day in December, @swanseauni.bsky.social, bringing together researchers and supporters of the @mssocietyuk.bsky.social, to see how their fundraising activities support important MS research in Wales.

👉 popdatasci.swan.ac.uk/uk-ms-regist...

NIHR Associate PI Scheme Now Available Through the UK MS Register - UK MS Register Blog Unlocking Research Potential — The NIHR Associate PI Scheme Now Available Through the UK MS Register At the UK MS Register, we are committed not only to driving high-quality Multiple Sclerosis researc...

📣 We are pleased to share that the Register are now part of the NIHR (National Institute for Health and Care Research) Associate PI Scheme 🎉

Read more about the scheme, and how to be involved, in our blog:

lnkd.in/e5tBExBJ
blog.msregister.org/nihr-associa... @nihr.bsky.social

Law Firm Raises More Than £6,600 for MS Society Cymru Convey Law have raised a £6,609 for MS Society Cymru following months of fundraising activity, including their August Waggy Tails Walk at Kenfig Nature

Congrats to Jess Smith and the team at Convey Law for raising over £6k for the MS Society 👏 🙌 We were delighted to welcome Jess and her father Mike to Swansea University back in August as part of an MS research visit, in partnership with the MS Society Cymru.

businessnewswales.com/law-firm-rai...

Finding purpose in volunteering: My journey with MS Susan reflects on the variety of volunteering she’s done with us, at both a local and national level. And shares the thrill of her recent skydive in aid of our Stop MS Appeal.

There's a fantastic new blog post available on the MS Society website written by volunteer Susan Crane. Susan is a participant on the UK MS Register, and a valued member of our Patient and Public Involvement group - the Brainstormers. Read Susan's blog here 👇

www.mssociety.org.uk/support-and-...

PhD researcher Hannah Hollinger, from the University of Highlands and Islands, is currently recruiting to her study.
If you have RRMS and currently use a method of cooling yourself please contact hannah.hollinger@uhi.ac.uk directly if you would like more information. Please also feel free to share.

Register PI Dr Rod Middleton is in London today at the National meeting of the ACORD Collaboration.

The ACORD Collaboration consists of a variety of groups currently developing, running and reporting MAMS platform trials in neurodegenerative conditions : lnkd.in/geKi-Kpu

How the MS Register helps everyone with MS Our MS Register introduction session will explain how it works, and share how this valuable resource is helping shape the future of MS.

Earlier this month Rod from the Register joined MS-UK @ms-uk.bsky.social for an online information session. You can read more about the event, or sign up to watch the recording, by following the link below.

Thank you MS-UK for inviting us along!
www.ms-uk.org/ms-register-...

Attack is Back! - UK MS Register Blog A UK clinical trial is testing whether rapid treatment with a highly effective multiple sclerosis (MS) drug (within just two weeks of the first presentation) could change the course of the disease. Th...

In our most recent blog we hear from Professor Klaus Schmierer at Queen Mary University of London about the AttackMS trial which has recently reopened.

This trial is the first study to treat individuals with suspected MS at the first demyelinating event.

blog.msregister.org/attack-is-ba...

Funding for researchers We're the largest charitable funder of MS research in the UK. Find out more about our application and review process.

The MS Society 2026 grant rounds are now open for applications! 📣

Did you know that you can apply for any of these Awards with a research project that's using the UK MS Register?

Find out more here: www.mssociety.org.uk/research/res...

Want to take your research to the next level?🚀

Sign up for the @ukmsregister.bsky.social's free one-day workshop and learn how to manipulate and analyse synthetic data from the MS Register using the R statistical programming environment.

👉https://popdatasci.swan.ac.uk/uk-ms-register-data-workshop/

Great to hear that Chiara! It certainly seems to be going from strength to strength!

📣 Today we’re at ECTRIMS Patient Day in Barcelona! The Register are proud to be a supporting partners of this important event, which brings people affected by MS together with researchers, clinicians, and organisations from across the world 🌍

The Register is at #ECTRIMS in Barcelona this week. Our team has been busy presenting research highlighting the importance of real-world data.

Special congratulations to Imogen Collier, who won a prize for her poster on menopause and MS based on data collected through the Register 🏆

🎉 What a whirlwind first day at #ECTRIMS2025 in Barcelona!

The Register team has been incredibly busy – sharing our research, connecting with global MS experts, and showcasing how patient-powered data is driving real change.

📊 Huge thank you to everyone who has stopped by our stand (N14) so far!

🎉 We're exhibiting at #ECTRIMS2025 24th - 26th September!

Visit us at Stand N14, NPO Village, to learn more about how we're driving forward MS research through real-world data and collaboration.

Could a citrus extract improve Cognition and Fatigue in Multiple Sclerosis? A team from Swansea Uni are conducting research on the effects of citrus extract supplementation on people with RRMS. Register your interest to take part in this study:

research.sc/participant/...

Largest study of cognition in MS highlights often-overlooked group - Population Data Science A new study, published in Nature Communications, has revealed that many people with multiple sclerosis (MS) experience significant problems with thinking and memory despite having little physical disa...

Largest study of cognition in MS highlights often-overlooked group🔎

New study from @ukmsregister.bsky.social has revealed that many people with multiple sclerosis (MS) experience problems with thinking and memory despite having little physical disability.

👉 popdatasci.swan.ac.uk/largest-stud...

MS Pregnancy Register Update – Summer 2025 - UK MS Register Blog The UK MS Pregnancy Register continues to go from strength to strength. We now have over 350 registered participants, and are working to make sure that we have as much follow up information as possibl...

Did you know the UK MS Register host the MS Pregnancy Register. The Pregnancy Register launched in 2021 to learn more about the experiences of women in the UK with #MS, and their fertility journeys. Read the latest update from the Pregnancy Register 👇
blog.msregister.org/ms-pregnancy...

The Refuel MS clinical trial has started🎉 We’re testing how effective the Refuel MS intervention is vs usual care🔎

Recruitment is now by invite via @ukmsregister.bsky.social📝 Thank you to all who helped us get here🧡

@ronamoss-morris.bsky.social

#multiplesclerosis#msresearch#digitalintervention

Why can’t I sleep? Night-time MS symptoms uncovered If you live with multiple sclerosis and struggle to get a good night sleep, this episode is for you. We uncover the hidden impact of night-time MS symptoms, from nerve pain, spasms, and restless legs ...

📣 Out Now 📣 new episode of the MS Trust podcast featuring the UK MS Register's Dr Rod Middleton and focusing on sleep disruption in #MS Listen to the episode to hear Rod discussing the Register's recent collection of sleep data from participants.

mstrust.org.uk/information-...

#Red4Research 2025 - UK MS Register Blog On Friday 20th June we celebrated #Red4Research day. The aim of this special calendar day is to get as many people as possible wearing red to show their support and appreciation for everyone who parti...

We have a new blog now available on our website. This time we look back on #Red4Research day in June: blog.msregister.org/red4research...

We are delighted to be one of the supporting partners of this year’s Patient Community Day at ECTRIMS. Join us for this free event:

🗓️ Friday, 26 September 2025
📍 Barcelona International Convention Center, Spain, and online
➡️ Sign up: www.ectrimspatientcommunity.eu/registration

We’re thrilled to announce we are once again hosting an intern as part of Health Data Research UK (HDR UK) Black Internship Programme 2025 in partnership with The 10,000 Interns Foundation.

Join us in welcoming Olufemi to the team! 👋

We are delighted to welcome Rolake to the UK MS Register team 👋 She joins us on an exchange from the University of Houston College of Medicine. We look forward to working together over the coming weeks 😊

On Friday some of the Register team travelled to Helsinki to attend the EAN Congress 2025 🛫

The theme this year is neurology within society. We are thrilled to have had a number of abstracts accepted this year and are looking forward to presenting posters showcasing the work of the Register 🙌

It’s #Red4Research day! Today we are wearing red to show our recognition and appreciation for all those participating, undertaking and supporting research.

The Register wouldn’t exist without our participants, our NHS clinical teams, our network of researchers, and our funders the MS Society 🙏