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Lattesdotter

@lattesdotter.bsky.social

Cynthia White, Phd. #bloggessfam #DisabilityAdvocate #ChronicFatigue. Left Democrat. Disabled former professor (sociology and statistics). Poetry, gardening, reading, sarcasm, puns. She/her. Cis-hetero. LGBTQ+ ally. Madison, WI. Instagram: lattesdotter11.

9,499 Followers  |  10,531 Following  |  5,527 Posts  |  Joined: 06.07.2023  |  2.2612

Latest posts by lattesdotter.bsky.social on Bluesky

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Trump Cuts Leave VA Hospital Nurses and Veteran Patients in a Crisis Already burdened by years of funding cuts and understaffing, registered nurses who work at Veterans Health Administration facilities across the country are facing a crisis as the impact of the Trump a...

Already burdened by years of slashed funding and understaffing, registered nurses who work at Veterans Health Administration facilities across the country are facing a crisis.

@maximillianalvarez.bsky.social reports on the effects of cuts to the federal workforce.

inthesetimes.com/article/trum...

25.11.2025 14:39 โ€” ๐Ÿ‘ 18    ๐Ÿ” 14    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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#OtD 25 Nov 1865 Mississippi passed a Black Code to reintroduce slavery post-civil war. They prevented Black people from renting land, required them to work for whites and barred them from changing jobs. Violators could be jailed & enslaved legally stories.workingclasshistory.com/article/9774...

25.11.2025 15:35 โ€” ๐Ÿ‘ 31    ๐Ÿ” 22    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 4

malicious denial of service attack on an adhd person by scheduling something to happen at some point in the afternoon

25.11.2025 20:45 โ€” ๐Ÿ‘ 170    ๐Ÿ” 53    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 4
Underlying cause of Gulf War illness confirmed in UTSW study
Findings could lead to possible treatments for veteransโ€™ debilitating symptoms
20-Nov-2025 7:30 PM EST, by UT Southwestern Medical Center
facebook sharing buttontwitter sharing buttonemail sharing buttonsharethis sharing buttonโ™ก
Newswise: Underlying cause of Gulf War illness confirmed in UTSW study
Credit: UT Southwestern
Robert Haley, M.D., is Professor of Internal Medicine in the Division of Infectious Diseases and Geographic Medicine and in the Peter Oโ€™Donnell Jr. School of Public Health at UT Southwestern. A Distinguished Teaching Professor, Dr. Haley holds the U.S. Armed Forces Veterans Distinguished Chair for Medical Research, Honoring Robert Haley, M.D., and Americaโ€™s Gulf War Veterans.

Newswise โ€” DALLAS โ€“ Nov. 20, 2025 โ€“ Dysfunctional mitochondria, organelles that serve as cellular power generators, appear to cause the symptoms of Gulf War illness (GWI) among tens of thousands of veterans of the Persian Gulf War, UT Southwestern Medical Center scientists confirmed in a new study. The findings, published in Scientific Reports, could lead to effective treatments for this condition that has plagued former soldiers for 30-plus years.

Underlying cause of Gulf War illness confirmed in UTSW study Findings could lead to possible treatments for veteransโ€™ debilitating symptoms 20-Nov-2025 7:30 PM EST, by UT Southwestern Medical Center facebook sharing buttontwitter sharing buttonemail sharing buttonsharethis sharing buttonโ™ก Newswise: Underlying cause of Gulf War illness confirmed in UTSW study Credit: UT Southwestern Robert Haley, M.D., is Professor of Internal Medicine in the Division of Infectious Diseases and Geographic Medicine and in the Peter Oโ€™Donnell Jr. School of Public Health at UT Southwestern. A Distinguished Teaching Professor, Dr. Haley holds the U.S. Armed Forces Veterans Distinguished Chair for Medical Research, Honoring Robert Haley, M.D., and Americaโ€™s Gulf War Veterans. Newswise โ€” DALLAS โ€“ Nov. 20, 2025 โ€“ Dysfunctional mitochondria, organelles that serve as cellular power generators, appear to cause the symptoms of Gulf War illness (GWI) among tens of thousands of veterans of the Persian Gulf War, UT Southwestern Medical Center scientists confirmed in a new study. The findings, published in Scientific Reports, could lead to effective treatments for this condition that has plagued former soldiers for 30-plus years.

US press release:
"Underlying cause of Gulf War illness confirmed in UTSW study"

"Dysfunctional mitochondria, organelles that serve as cellular power generators, appear to cause the symptoms of Gulf War illness ( #GWI )"
www.newswise.com/articles/und...

Full paper:
www.nature.com/articles/s41...

22.11.2025 16:28 โ€” ๐Ÿ‘ 38    ๐Ÿ” 13    ๐Ÿ’ฌ 3    ๐Ÿ“Œ 4
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Why I Canโ€™t Just Meet You for Dinner The Reality of Post-Exertional Malaise

My recent piece on the impact of post-exertional malaise. #PEM #LongCovid #MECFS #Disability #ChronicIllness

substack.com/home/post/p-...

07.11.2025 19:04 โ€” ๐Ÿ‘ 22    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Contested and neglected: Social and medical marginalization in severe Chronic Fatigue Syndrome This study addresses the persistent invisibility of people with severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in research by centโ€ฆ

8) Link to the paper:

Nezamdoust et al. Contested and neglected: Social and medical marginalization in severe
Chronic Fatigue Syndrome.

22.11.2025 08:40 โ€” ๐Ÿ‘ 15    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Crowdfunding Now: The First Feature-Length Documentary on ME/CFS and Long COVID
We've captured well over 45 hours of footage of patients, family, and medical professionals... and still have 10+ shoots scheduled around the country. This final crowdfunding push will power us through to finish the film in March 2026. 



Watch the newest trailer and support the campaign today by clicking the button below.

Crowdfunding Now: The First Feature-Length Documentary on ME/CFS and Long COVID We've captured well over 45 hours of footage of patients, family, and medical professionals... and still have 10+ shoots scheduled around the country. This final crowdfunding push will power us through to finish the film in March 2026. Watch the newest trailer and support the campaign today by clicking the button below.

2/

Donation link for โ€œWhat Doesnโ€™t Kill Youโ€:
gofundme.com/f/the-first-...

#SevereME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid

22.11.2025 00:06 โ€” ๐Ÿ‘ 8    ๐Ÿ” 5    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0

People in the UK with #ME and #LongCOVID can complete the Big Survey, which is run every five years. There is a separate survey for under 17 year olds. The deadline is 27th January 2026. You can complete the survey online or on paper.

15.10.2025 11:49 โ€” ๐Ÿ‘ 6    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

#LongCovid costs the world economy $1 trillion each year. #CovidIsNotOver https://www.cidrap.umn.edu/covid-19/long-covid-takes-1-trillion-global-economic-toll-each-year-analysis-suggests

25.11.2025 02:07 โ€” ๐Ÿ‘ 7    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Books by Authors with ME/CFS and Related Chronic Illnesses โ€“ Chronic Market

A whole page of books by people with #MECFS!! (My book is not here bc itโ€™s been on my todo list for likeโ€ฆ 8 months to get it added ๐Ÿคฆโ€โ™€๏ธ) #BookSky #ChronicIllness

Get some books!

chronic.market/chronic-illn...

25.11.2025 16:47 โ€” ๐Ÿ‘ 13    ๐Ÿ” 6    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

In case anyone else needs this today: the best advice I ever read about #MECFS was โ€œno one else is going to lie in that bed for you.โ€ The decisions, fragile routine, the totally altered perspective on lifeโ€” they donโ€™t have to make sense to anyone else, bc they donโ€™t have to live w/ the consequences.

04.04.2025 17:25 โ€” ๐Ÿ‘ 92    ๐Ÿ” 16    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

I hate clutter. Being too tired to declutter my apartment is a nightmare. It is even worse when someone thinks I am a hoarder and refuses to acknowledge that I have chronic fatigue. I think it is the insults instead of help that I find most difficult.

25.11.2025 19:47 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0

Iโ€™ve always felt unattached, even overwhelmed, by stuff (material items). I loved a good closet clean out, like ditching dead weight. I just wanted experiences. The irony of being shut up inside my house by this illness, surrounded by stuff, kept away from experiences isโ€ฆ really something. #MECFS

24.11.2025 22:20 โ€” ๐Ÿ‘ 16    ๐Ÿ” 3    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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Canโ€™t get over this amazing photo of forever First Lady Michelle Obama. What an icon. ๐Ÿ’™

25.11.2025 17:07 โ€” ๐Ÿ‘ 793    ๐Ÿ” 108    ๐Ÿ’ฌ 47    ๐Ÿ“Œ 11

The inventor of antigravity is under investigation for pushing his wife up a flight of stairs.

14.11.2025 04:46 โ€” ๐Ÿ‘ 9    ๐Ÿ” 2    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Blue and green blown glass balls with bright sunlight illuminating them. One is even casting a colored shadow. Photo by Robert Emond.

Blue and green blown glass balls with bright sunlight illuminating them. One is even casting a colored shadow. Photo by Robert Emond.

#BlueSkyMonday #BlueMonday

Oddly the central ball is the only one my wife or I did not make.

#Photography ๐Ÿ“ธ
#WestCoastKin #EastcoastKin
#PhotographersOfBluesky
#BlueskyPhotography
#PhotographersUnited
#ArtistsOfBluesky
#BlueSkyArt #Art #Glass
#ShadowAndLight
#AbstractRealism

24.11.2025 20:26 โ€” ๐Ÿ‘ 18    ๐Ÿ” 2    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Todayโ€™s xkcd made me cry.

In a good way.

xkcd.com/3172/

24.11.2025 23:46 โ€” ๐Ÿ‘ 6323    ๐Ÿ” 1955    ๐Ÿ’ฌ 36    ๐Ÿ“Œ 0

Being an old soul is a nice way of saying, youโ€™ve been tired for 5,000 years

24.11.2025 18:45 โ€” ๐Ÿ‘ 83    ๐Ÿ” 23    ๐Ÿ’ฌ 4    ๐Ÿ“Œ 0

Ukraine has absorbed and stood as a bulwark against Russian aggression. If it had surrendered quickly as Trump thought they should do, no doubt Putin would have made a next move, making all out WWIII much more likely.

It is *we* who should be grateful to Ukraine.

23.11.2025 19:51 โ€” ๐Ÿ‘ 609    ๐Ÿ” 177    ๐Ÿ’ฌ 21    ๐Ÿ“Œ 5
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Tell Congress: Support discharge petition to force vote on ACA tax credits Contact Congress today!

Mike Johnson is big mad that we forced through a petition and forced a vote on releasing the Epstein files.

So letโ€™s do it again. This time to restore the ACA credits he stole from us:

25.11.2025 01:04 โ€” ๐Ÿ‘ 599    ๐Ÿ” 145    ๐Ÿ’ฌ 5    ๐Ÿ“Œ 1
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LBJ & the Great Society - Ken Burns This three-part, six-hour series will chronicle the life and times of Lyndon B. Johnson, one of the most capable, colorful, and controversial men ever to occupy the White House. A figure of extraordin...

By the way, Ken Burnsโ€™ next documentary series is apparently in the can โ€” LBJ & The Great Society

kenburns.com/films/lbj-th...

25.11.2025 01:02 โ€” ๐Ÿ‘ 2932    ๐Ÿ” 415    ๐Ÿ’ฌ 106    ๐Ÿ“Œ 48
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Look what we have , right hereโ€ฆ๐Ÿ‘‡

Surprised?!

No, of course youโ€™re not. ๐Ÿ˜Žโœจ

25.11.2025 01:42 โ€” ๐Ÿ‘ 147    ๐Ÿ” 68    ๐Ÿ’ฌ 7    ๐Ÿ“Œ 5

Pete Hegseth is the least qualified leader of the defense department, I refuse to call it the war department, in our history. He is also the most morally corrupt leader we have had. Attacking Mark Kelly is a big mistake.

24.11.2025 22:46 โ€” ๐Ÿ‘ 11    ๐Ÿ” 5    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Tell me you've never actually READ that part of the constitution without telling me you've never actually READ that part of the constitution #Trump

25.11.2025 00:54 โ€” ๐Ÿ‘ 557    ๐Ÿ” 132    ๐Ÿ’ฌ 42    ๐Ÿ“Œ 12
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Before today ends

REST IN POWER

At 111 years fierce the oldest living survivor of
The Tulsa Race Massacre

VIOLA FORD FLETCHER
Our deepest condolences to her family and community

Her memoir
"DON'T LET THEM BURY MY STORY"
#NeverForget

25.11.2025 01:13 โ€” ๐Ÿ‘ 861    ๐Ÿ” 305    ๐Ÿ’ฌ 28    ๐Ÿ“Œ 10

Someone posted earlier today that there's Civil War dads and WWII dads, but this is the kind of dad I am, the one who let out an audible "yesssssss" upon learning this.

25.11.2025 01:16 โ€” ๐Ÿ‘ 24    ๐Ÿ” 3    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 2
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Opinion | Trump Has Put the Military in an Impossible Situation

"It is not 'seditious' to repeat a simple legal truth to the American troops. And Slotkin said that sheโ€™d been getting questions from active duty soldiers about their legal obligations...Trumpโ€™s statements arenโ€™t just unhinged; they are putting the lawmakers at risk."

25.11.2025 00:42 โ€” ๐Ÿ‘ 15    ๐Ÿ” 8    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

I did not know the meaning of eternity until I met you. For Iโ€™ve yearned for your presence since I knew what it meant to feel. to crave. to desire. And now that Iโ€™ve met you there is no turning back. For the epitome of my existence is found in knowing you.

25.11.2025 01:19 โ€” ๐Ÿ‘ 7    ๐Ÿ” 4    ๐Ÿ’ฌ 1    ๐Ÿ“Œ 0
Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ)
Dr. Ali Kapan and colleagues from the University of Vienna are working on a new questionnaire on post-exertional malaise (PEM). In this second phase of the project, they aim to evaluate how reliably and validly the questionnaire captures PEM and how it compares to existing assessment instruments. They are looking for participants to validate the questionnaire in English and German.

Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ) Dr. Ali Kapan and colleagues from the University of Vienna are working on a new questionnaire on post-exertional malaise (PEM). In this second phase of the project, they aim to evaluate how reliably and validly the questionnaire captures PEM and how it compares to existing assessment instruments. They are looking for participants to validate the questionnaire in English and German.

Survey opportunity:
Validation of the Vienna Post-Exertional Malaise Assessment Questionnaire (V-PEM-AQ)

English:
www.soscisurvey.de/V-PEM-AQ_eng...

German:
www.soscisurvey.de/V-PEM-Q/

Questionnaire is estimated to take 20 minutes

Screenshot from latest Science for ME update

#MEcfs #LongCovid

25.11.2025 01:27 โ€” ๐Ÿ‘ 7    ๐Ÿ” 9    ๐Ÿ’ฌ 2    ๐Ÿ“Œ 0
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Air Pollution From Industrial Facilities Is Far Worse Than Estimated The Trump administration has put a stop to EPA rules that would have required more than 130 industrial facilities to install air monitors to measure pollution. Millions of people living near these pla...

About 90,000 people living near larger chemical plants face an unacceptable risk of developing cancer, the EPA says.

New rules adopted last year couldโ€™ve cut that number to 3,000 residents โ€” a drop of 97%.

But Trump has halted those efforts.

25.11.2025 01:00 โ€” ๐Ÿ‘ 895    ๐Ÿ” 506    ๐Ÿ’ฌ 25    ๐Ÿ“Œ 36

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