COVID Chronicles

Was this during flight or takeoff/taxiing?

Faites-nous part de votre expérience de covid longue - Société canadienne de la covid Nous voulons montrer au public les répercussions crève-cœurs de la covid longue.

On cherche des témoignages. Date limite, 1er mars.
@cancovsoc.bsky.social

I FEEL GREAT RIGHT NOW 😞*

"Tell me you have ME without telling me you have ME"
#TellMeYouHaveME #pwme

*Explainer for ppl w/out ME: It won't last and if I do anything, I'll suffer a PEM crash. So 'feeling great' for an hour is little more than a reminder of the life #LongCOVID took from me. Hence 😞

What Cats Can Teach Us About Long Covid - Catster For years, the prevailing belief was that the virus infected just one type of immune cell, but in a recent interview with Amir Kol, lead author of the scientific study shared the exciting discovery.

"The research found that traces of the virus remained in immune cells after treatment had ended and the cats appeared to have made a full recovery. Because some immune cell types live for years, this could explain why some clinical signs persist or relapse." #LongCOVID

Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"Pharma groups have come to us and said, 'We're not interested in COVID. We're not interested in any anti-infective,' (…) If a long COVID trial were to fail, that could leave a negative perception of their drug’s usefulness in acute COVID-19."

Evil. Incarnate. #Medsky #LongCOVID

Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"Pharma groups have come to us and said, 'We're not interested in COVID. We're not interested in any anti-infective,' (…) If a long COVID trial were to fail, that could leave a negative perception of their drug’s usefulness in acute COVID-19."

Evil. Incarnate. #Medsky #LongCOVID

Long COVID studies stymied by pharma’s lack of cooperation Academic researchers want to repurpose drugs for the condition. Manufacturers aren’t supplying them

"…pharmaceutical firms want to await a concrete biomarker that could serve as a clinical trial end point before putting any resources toward long COVID studies, but it’s not possible to find such a metric without more studies."

They need proof. We need hope. #Medsky #LongCOVID

"I've opened it in safari so it's on my list"

Tabs.
More tabs.
So. Many. Tabs.
It's not that I don't want to...
#WhenFirefoxCrashesItsARelief

#pwME

Try to explain two totally different ME symptoms:
1) Put your foot flat on accelerator & car won't do more than 5mph ➡️ Absence of power.

2) Put foot down, car drives at good speed, but only get 5 miles to a gallon & engine won't start for next 3 days.
➡️ Fuel inefficiency, plus intermittent.

Had to shovel some snow off the roof yesterday.
Only took me 15 minutes.
My heart-rate barely climbed.
I'm in danger.

"Tell me you have ME without telling me you have ME"
#LongCOVID #MECFS

(6/6) I saved a copy of the article for the next time a progressive militant tries to convince me shame is a sound marketing strategy. Those who know, know: it might 'feel' good to those doing the shaming, but it's the wrong approach.

And facts don't care about your feelings.

Rigueur, esti.

(5/6) Social media is making that much, much harder (by design). Homo sapiens (barely evolved apes that we are) are hard-wired for prejudice, a scarcity mindset, fight-or-flight. All things being exploited by the far right. It's easy to tap into, hard to pull someone out of…

(4/6) The author is absolutely correct: We can't successfully counter the human emotions behind the irrationality with facts.

We have to do it emotionally; through empathy…

(3/6) Those who know, know. And wish they didn't have to coddle those who've been misled. There lies our own emotional trap: it 'feels' better to shame wrongheadedness than to address it with gentle understanding. Particularly when one doesn't understand "why the heck you'd even think that"… #MedSky

(2/6) Those of us who trust the science face a very real challenge: Showing compassion when confronted with folly (that will also cost you nights of sweaty, sticky, bad sleep — i.e. environmental collapse, measles and polio outbreaks, Long COVID, creeping oligarchy, authoritarian ascendancy)...

Opinion | I’m an Immunologist. I Grew Up Unvaccinated.

Wild that an immunologist would still hesitate: Like thinking—as many Koreans still do—that having a fan on while you sleep can kill you:

- Just to be safe, let's turn off the fan.
- But it's 42 degrees!
- Still. Just in case.
- ??!! Fine.

The broader point is an important one, however:
🧵(1/6)

What's the opposite of tall?
"Short"
And what's the opposite of long?
"…short"
Do you see the problem?

#LongCOVID cuts life short

Good policy. Normally, I wouldn't have given it a second thought, but this case has left me utterly baffled. She appears to be a legitimate composer... classically trained and all. estherhopkins.com

And her COVID-related posts were often on point. So I don't get it. I really don't. 🤷‍♂️ #Weird

Much beauty is being lost. It isn't just democratization, it's enshittification.

Nothing against you personally. I get why you did it. I hope you don't begrudge me my reservations. Sorry you're in purgatory. None of us deserve this. I wish you well. ✌️

I trust that your words are your own, so I'll gladly check out your blog. I've been trying to hone LC messaging myself (100% human-made).

TBH, I'm a little heartbroken tonight. Genuinely worried for our species. It's not the spreading of the cancer that worries me—it's its normalization. (4/5)

I appreciate that you, at least, have an A.I. disclaimer. More and more people are passing generated text, artwork and music as their own creations. Dating site convos, even. We're losing sight of what is even real anymore. And the end product is, literally, slop. Not bad, but not good. (3/5)

I was a published lyricist before COVID took my creative spark. I was an multinational session singer before it took my voice. It took me DECADES to hone my craft—the prosody, but also the singing.

A.I. voids all of it—while hoarding HDs and killing the planet. (2/5)

Hi Fred. This ↓ just happened to me, so I did some digging for songs about Long COVID and came across yours.

Respectfully, AI is not the answer.

You're a writer? How do I know every word you write isn't A.I. generated.? Why does it matter? Because it does. Same goes for music, artwork, etc. (1/5)

When a person who calls herself "a composer" posting "about music" and "CLIMATE CHANGE" (!!!) promotes A.I. slop and then blocks me for criticizing the fact that it wasn't even credited as such… it makes you wonder…

What's going on here?!
I'm not just disappointed, I'm bewildered: (2/2)

Hey, could someone do me a solid and ask @elhopkins.bsky.social why she blocked me for pointing out that a "song" about Long COVID by Mack Barnhardt was exploitative, disingenuous, A.I. generated slop?

I didn't get a response. No discussion. Just an immediate block. 🤨 I have some questions: (1/2)

Like revolutionary solid state batteries, room-temp superconductors, nuclear fusion... a lot of good hypotheses, very little actionable data.

And the actionable data is what would break me out of this prison. Progress is good. Actual breakthroughs would be better.

THIS IS AI SLOP
I was a career musician prior to Long COVID crippling me. Passing off prompts as creative work—as Barnhardt does—is grotesque. The real thing takes time, money, collaboration & heart. This took server farms, corporate greed & an individual's ego. Humanity needs us to be better.

A cure.

(This hits different when you're on your 1262nd day of COVID-induced disability. Can't work, can't play, can't plan; only wait, and hope that science will find a way. I know you have it bad. But trust me. This is worse.)

#LongCOVID #MECFS

Getting long covid will make it much harder to do organizing or mutual aid work. If you want to preserve your ability to help, wear an n95 when you share air.

CANADIAN LONG COVID COMMUNITY

Please join us by participating and sharing your story as patient and/or caregiver. All hearts will be displayed at our in-person events on March 15. Help us share far and wide! We all deserve to be seen.
#LongCovid #LongCovidHeartbeats #LongCovidAwarenessDay