@covidchronicles.bsky.social
Chronicling my journey through purgatory, graphically. Former athlete/composer/writer/woodworker. Saddled with debilitating COVID-induced metabolic dysfunction since Nov 2022. #LongCOVID #LC #MECFS #PEM #SickJokes
#LongCovid
www.theguardian.com/society/2026...
"You go from running marathons to barely able to run errands…Suddenly, you can't work, parent, or play. But the world's moved on, as if it weren't even a thing. Research goes underfunded, prevention's the butt of jokes. Welcome to Long COVID — The disease that disables hope."
#MedSky #ChronicIllness
Caught my cat being cute, then spotted the reflection of where I've spent the last 1277 days—so I made a thing.
#LongCOVID un-awareness hurts.
It invalidates an already unbearable reality. COVID is 'no longer a threat', see. So surely, none of this must be happening to me.
Journalism should be about seeking the truth behind the headline. Not clicks. Not engagement. Not some special-interests agenda. And this, to my knowledge is very much that.
Left- vs Right-leaning is a FoxNews construct.
Is it factual? Based on sound analysis?
Look at the authors of last week's story "America's Latest Middle-East Fiasco":
A Bush neo-con, an Iranian constitutional scholar, the authors of "On Tyranny' and "Why Nations Fail".
Rigor > Bias
Bruh, trigger warning!!!!
Some of us have PTSD!
#Windows95
More facts about Long Covid we wish were not true.
March is Long Covid Awareness Month. Learn more at longcovidcollective.org
#longcovidawareness
🔈 Join us on April 20, 2026 at Columbia University (in-person and virtually) for a free and public one-day symposium on "Long Covid and Society".
🔗 Learn more and register: longcov.id/society
The Hidden Link Between Inflammation and Hypermobility in Long COVID, ME/CFS, POTS, and MCAS
(Skip Ex-Twitter, here it is straight from the horse's mouth):
jeanniedibon.com/me-cfs-eds-l...
To those who say:
"I'm still on X because they are on X"
A quick reminder:
People are still on X because you are on X.
#BeTheChange you want to see in the world. The change we desperately need. Please pass it along to your twitter feed.
Apparently it's #LongCOVID awareness month. Saw an opportunity to raise said awareness.
Of course the original post was subsequently "removed by Reddit's filters" 😑
To quote myself: "Not cool"
(For the record, I didn't think it was fake, but. never let the truth get in the way of a good story)
There’s no denying what happened to me. There’s a clear before—infection—and after. I’m now disabled; unable to work/play. If millions were like me, we’d know
Until we have diagnostic tests—biomarkers—actual Long COVID prominence will remain speculative
That’s a problem, because we need help (2/2)
What I find so demoralizingly paradoxical is how utterly unknown it remains for something so allegedly widespread.
At a friend’s bday party last week (for 20 min) w/College teachers, osteopaths, all I got were blank stares. ALS, MS, Parkinson’s they know. Long COVID? No.
Widespread? Really? (1/2)
There’s no denying what happened to me. There’s a clear before—infection—and after. I’m now disabled; unable to work/play. If millions were like me, we’d know
Until we have diagnostic tests—biomarkers—actual Long COVID prominence will remain speculative
That’s a problem, because we need help (2/2)
What I find so demoralizingly paradoxical is how utterly unknown it remains for something so allegedly widespread.
At a friend’s bday party last week (for 20 min) w/College teachers, osteopaths, all I got were blank stares. ALS, MS, Parkinson’s they know. Long COVID? No.
Widespread? Really? (1/2)
What I find so demoralizingly paradoxical is how utterly unknown it remains for something so allegedly widespread.
I was at a friend’s bday party last week (20 minutes). College teachers, osteopaths. All I got were blank stares. ALS, MS, Parkinson’s they know. Long COVID? No.
Barely. They reduce viral load (which is good), but transmission can be asymptomatic. It's why COVID never went away.
Oh, hey. Yesterday was the 1-year birthday of my piece The King In Black. It holds a lot of meaning and significance for me. A return to artistic and technical form, and a representation of living with Long Covid. Added bonus is a lot of you really like it too, which I sincerely appreciate.
To be clear, the vaccines are not evil — they're just not very good. They don't reduce the risk of developing Long COVID anywhere as much as reinfections increase said risk.
Bottom line: Don't. Catch. COVID.
Public Health's failure is everywhere. And Kristin, I agree with everything you posted, except re: the vaccines. They prevent hospitalizations and death in the acute phase—not #LongCOVID disability. 🙋♂️
We need to better ventilate, mask when sick, use common sense. And fund research. Please.
Someone send this to Kristaps Porzingis. #LongCOVID #POTS
At 3 Air Changes per Hour the probability of inhaling the Omicron strain through mouth breathing is 96%. At 10 ACH? 94%.
HOWEVER: nasal breathing is found to be safer than mouth breathing.
When ACH = 30, THE PROBABILITY OF INFECTION THROUGH NASAL BREATHING IS LESS THAN 5% (!!!)
#COVID #CleanAir
Elevator, 2 mins, no masks. Some interesting insights:
• Top-to-bottom airflow is best
• Breathing through the nose reduces virus intake
• 30 ACH significantly reduces the cumulative dose
• Sneezing by infected host results in 99% infection probability; speaking loudly? Below 20%
#COVID #CleanAir
Don't look up:
"what does SARS CoV-2 do to you"
"is there a cure for Long COVID?"
"why do some people get disabled after a mild infection whereas others don't?"
Don't look any of it up and you'll be fine. Or irreversibly crippled. Either way, have a wonderful day. 😑
Don't look up:
"what does SARS CoV-2 do to you"
"is there a cure for Long COVID?"
"why do some people get disabled after a mild infection whereas others don't?"
Don't look any of it up and you'll be fine. Or irreversibly crippled. Either way, have a wonderful day. 😑
The dismissing of #LongCOVID as a possible outcome is a source of frustration for those of us who've been kneecapped by the disease. On darker days, "Why me and not them?" morphs into "Is this even a thing?"—knowing full well that it is. It's why I salute Dr. Sutterer for stating the obvious:
(4/4)
In this, #LongCOVID parallels the climate crisis: Its implications are terrifying, so people look away.
Science: You're in danger.
Society: "Fuck that. I'll take my chances"
Long Haulers: "May it bite you in the ass as it did me"
Reality: It rarely does. At least enough to move the needle.
(3/4)
In the absence of a smoking gun—biomarkers, diagnostic tests—the reality of #LongCOVID will remain buried because of its implications:
• Not enough is being done to keep you safe
• No, you are not safe
• No, YOLO isn't a strategy
• Yes, you're going to have to be an adult about this
(2/4)
Remember when the WHO & CDC refused to call COVID airborne? It wasn't because they didn't know, but rather because society didn't 'want' to know. That political pressure made public health (and continues to make most people) ignore the clear and damning evidence.
Long COVID is no different: 🧵(1/4)
