MND Education

MND Education

@mndeducation.bsky.social

Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.

90 Followers 74 Following 196 Posts Joined Jan 2025
Posts Following
1 day ago
Terracotta background with the event title "Understanding and discussing genetic test options." and the dates, 15 April 2026 and 1 July 2026. On the bottom, there are the MND Association logo and the icon of a laptop. Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand the basics of MND genetics; introduce professionals to the genetic testing pathway and their role in it; consider how and when to discuss genetic testing and counselling with people in their care; explore case studies on the delivery of genetic test results.".

Genetics plays a role in both familial and sporadic #MND

Referrals to genetic counselling could help people access new therapies & identify potential risks for relatives

Join our workshop to learn more about the genetic testing pathway & your role in it👉 mndassociation.org/education-events

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5 days ago
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, there is he title of the event, "ACT principles for health and social care professionals" and the dates: 10 March 2026, 19 May 2026 and 15 July 2026 Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand psychological challenges in MND and how to apply ACT; practice how to apply ACT to these challenges; consider how to integrate ACT into your practice; recognise the common barriers to using ACT.

Registrations for our ACT competency session close today at 5pm!

This online workshop is open to all HSCPs. You'll gain skills in integrating ACT principles in your practice e.g. to help people with #MND consider therapies & make decisions

Book now👉 mndassociation.org/education-events

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1 week ago
Terracotta background with a white icon of a laptop n on the bottom right and the MND association logo on the bottom left. On the top left there is the name of the course, "Multidisciplinary working - making it effective for MND." and the dates of the course, 2 March - 17 April and 14 September - 30 October. Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I now feel more confident approaching multidisciplinary team meetings." Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I found the course very interesting and will certainly apply the knowledge I have gained."

Don't miss out! Register for our online course on multidisciplinary team working applied to #MND care & learn how you can improve MDT working in your area

Self-paced & free, it includes discussion forums & supporting resources for ongoing development

mndassociation.org/online-courses

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2 weeks ago

Today is #HelplineAwarenessDay!

Our MND Connect Helpline is available Mon-Fri 9am-4pm to anyone affected by #MND, including HSCPs

Our advisors can provide guidance and support on MND & our services, including signposting you to information resources

☎️0808 802 6262
✉️mndconnect@mndassociation.org

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2 weeks ago
Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left there are the title of the event, "ACT principles for health and social care professionals. " and the dates: 10 March 2026, 19 May 2026 and 15 July 2026. Terracotta background with a white laptop icon on the bottom right and the MND association logo on the bottom left. On the top left, the text says: "Aims: understand psychological challenges in MND and how to apply ACT; practice how to apply ACT to these challenges; consider how to integrate ACT into your practice; recognise the common barriers to using ACT.

Bookings for our competency session on acceptance and commitment therapy close soon!

Join us to learn how to use ACT principles to help people with #MND in making care decisions and considering therapies

🗓️10 March
📍Online
🔗 mndassociation.org/education-events

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3 weeks ago
Terracotta background with a white icon of a laptop n on the bottom right and the MND association logo on the bottom left. On the top left there is the name of the course, "Multidisciplinary working - making it effective for MND." and the dates of the course, 2 March - 17 April and 14 September - 30 October. Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I now feel more confident approaching multidisciplinary team meetings." Terracotta background with a yellow fingerprint pattern on the bottom right and the MND association logo on the bottom left. On the top left there is a quote from a course participant saying: "I found the course very interesting and will certainly apply the knowledge I have gained."

Register for our online course on multidisciplinary team working, starting on 2 March!

— includes information, supplementary resources & discussion forums to explore how to improve MDT practice in your area
— self-paced learning over 9 weeks
— free

mndassociation.org/online-courses

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3 weeks ago
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Webinars Our Association webinars run throughout the year – to bring you thought provoking content on a range of practice areas presented by subject experts.

Last month Dr Liam Knox kicked off our 2026 webinars! 27 HSCPs joined to explore how digital health technology can help #MND care delivery, improve patient outcomes & enhance system efficiency

Watch the recording: mndassociation.org/webinars

See future events: mndassociation.org/education-events

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3 weeks ago
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Our competency builders are one-day online workshops designed to provide HSCPs with skills they can apply in their practice

Taught by experts with competency mastery, they include practice time and resources for further learning

Explore our offer on mndassociation.org/education-ev...

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1 month ago
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Information resources This section holds our resources and publications about MND and Kennedy's disease.

On #ChildrensMentalHealthWeek we want to share our guide to help HPSc support children close to someone with #MND

Our resource includes advice on how to discuss MND & ways to provide emotional and practical help, including with bereavement or if they are young carers mndassociation.org/publications

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1 month ago
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Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

Multidisciplinary team (MDT) working is essential to provide good and coordinated person-centred #MND care

Join our free webinar on 24 Feb to explore key principles and practical strategies that underpin an effective MDT

Learn more and register on mndassociation.org/education-ev...!

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1 month ago
A picture showing an example of the old MND Association information sheets and what they look like in the new brand. The old branding is orange for care information and purple for professional information. The new brand is terracotta/red and uses the new logo.

Our brand is changing.

We're going through a phased rebrand. During this time you'll see resources in both the old and the new brand.

A resource in the old style is not necessarily out of date, just waiting for the new style.

To check the most up to date resource see:
🔗http://bit.ly/mndassocpubs

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1 month ago
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Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

We're excited for our first 2026 workshop, Navigating emotional conversations!

Led by Dr Ray Owen, this session helps professionals build confidence and skills for compassionate and collaborative conversations with people with #MND

Secure your spot for 25 Feb: mndassociation.org/education-events

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2 months ago
The cover of the 'So what is MND, anyway?' guide. A teal blue background with 4 different hands holding paper cut-outs of question marks. The logo is in the upper right hand corner and the tagline at the bottom reads 'together, you're not alone'.

So what is MND anyway? Is our guide on MND for young people and young carers.

Find the guide with our other resources for young people: mndassociation.org/CYP

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2 months ago
Cover of the personal care booklet.

Our go-to guide on personal care. For people with MND, Kennedy's disease or their carers.

mndassociation.org/personalcare

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2 months ago
Screenshot of the front page of the information sheet "Head supports for motor neurone disease" on a wooden background

We've revised our information sheet on head supports for #MND!

It can help professionals understand how to manage neck weakness & head drop in people with this condition

It also includes a range of supports and what to consider when prescribing them

mndassociation.org/propublications

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2 months ago
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Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

Our competency builder sessions are designed to help you develop skills in #MND care & are delivered online.

Our 2026 programme:

- ACT principles for professionals
- Understanding genetic testing and talking about it with people in your care

Learn more on mndassociation.org/education-events

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2 months ago
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Online Courses Our online learning modules are in depth courses which you can complete around your work commitments.

We have developed a new online course!

"Introduction to MND2 is designed for any professional who is new to #MND care

It covers what the condition is, its symptoms and their impact

It takes 3 hrs and you can complete it in your own time for free

mndassociation.org/online-courses

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3 months ago

Our 2026 workshops are now open for registration!

These are 1-day-long in-person events focused on providing HSCPs with skills in #MND care. They always include practice time

Our first workshop will be on 25 Feb Navigating emotional conversations

Learn more on mndassociation.org/education-events

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3 months ago
Cover of the infographic for professionals on managing muscle problems in MND

We have developed a new infographic on managing muscle problems in #MND!

The publication is designed to give professionals a practical tool that summarises NICE recommendations about managing cramps, stiffness and spasticity

Learn more on mndassociation.org/propublicati...

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3 months ago
Cover of the booklet "Motor neurone disease: a guide for GPs and primary care teams"

Have you used our guide for GPs and primary care teams? We need your help!

Complete this 10-minute survey and tell us what worked well and what didn't

Your feedback will inform our next revision, helping us effectively support primary care professionals
smartsurvey.co.uk/s/GP-guide/

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3 months ago
Two screenshots of our publications on a light wood background. The screenshot on the right is of our new information sheet "Pain in motor neurone disease". It is slightly overlapped with the second screenshot of our new infographic "Managing muscle problems in MND".

We have revised our information sheet for HSCPs on pain in #MND!

Developed with experts, it covers pharmacological and non-drug treatments

Also, our new infographic is a quick practical tool to understand NICE recommendations on managing muscle problems

mndassociation.org/propublicati...

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3 months ago
Video thumbnail

The recording of this year's Stephen Hawking #MND Lecture is now live on our website!

"This year's speaker was truly outstanding. Genetics is complex, but the speaker made the subject much more accessible"-attendee

mndassociation.org/hawkinglecture

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3 months ago
Preview
Calendar of events Here is a comprehensive list of the education events and opportunities that will support your continuous professional development - from webinars to conferences.

You can now register for our 2026 #MND webinars!

They are free to attend & a great opportunity to discuss with experts new updates in MND care such as digital health, environmental controls and caring for carers

Learn more on www.mndassociation.org/education-events

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3 months ago
Screenshot of the first page of the MND Association's information sheet for health and social care professionals on managing dysphagia in motor neurone disease

Managing dysphagia in #MND needs a team effort

The MDT should collaborate to:
☑️screen people
☑️discuss equipment & feeding options eg gastrostomy
☑️maintain a nutritional care plan
☑️raise awareness with carers & families

Read more on our infosheet at mndassociation.org/propublicati...
#UKMAW2025

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3 months ago
Cover page of the MND Association's publication "Caring for a person with MND: A guide for care workers", available on www.mndassociation.org/propublications. The cover includes a picture of an old woman in a wheelchair with a younger woman helping her wipe her mouth. On the page there are also the logos of the MND Association and of the MND Professional's Community of Practice, along with the title and a lozenge reading "For health and social care professionals"

As a care worker for someone with #MND you play a key role in maintaining good nutrition at home, helping them:

☑️follow the nutritional care plan
☑️eat, drink & prepare tasty meals
☑️report any issues

Learn more information & practical tips in our guide: mndassociation.org/propublicati...
#UKMAW2025

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3 months ago
MND Association's Infographic on dietetics and nutrition available to download on www.mndassociation.org/propublications

Many people with #MND face swallowing issues, making eating & drinking difficult and increasing malnutrition risk

This can be challenging to manage as clinicians, but our infographic on dietetics & nutrition can help you understand NICE best practice

mndassociation.org/propublicati...
#UKMAW2025

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3 months ago
Slide with an illustration of a group of diverse people above a blue banner reading "We are supporting UK Malnutrition Awareness Week! 17th-23rd November 2025. Ask, Look, Listen. We're all in this together". Underneath the banner there are the logos of the promoting organisations: BAPEN, Malnutrition Task Force and UK Malnutrition Awareness week

We are supporting @bapen.bsky.social #UKMAW2025!

We'll share resources & information about the risks of malnutrition for people with #MND and how to manage them

Help spread the word and raise awareness!

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3 months ago
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Publications for professionals All publications for health and social care professionals are evidence based and reviewed by clinicians. They are regularly revised and correct at time of print.

We've revised our professionals’ guide to end of life care in #MND

The guide offers practical tools to approach sensitive discussions and provide compassionate care, covering:

✅advance care planning
✅palliative care
✅communication
✅supporting family & carers

www.mndassociation.org/propublications

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4 months ago
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Publications for professionals All publications for health and social care professionals are evidence based and reviewed by clinicians. They are regularly revised and correct at time of print.

Providing effective information is vital to help people with #MND

If you are a professional, you can contact careadmin@mndassociation.org to order information resources for the people in your care

Learn more with our infosheet 'Using our care information' on www.mndassociation.org/propublications

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4 months ago
screenshot of pages 14 and 15 of the Thumb Print magazine Autumn 2025 issue, showing an article titled "Your feedback driving better support"

Your feedback drives better support

It shapes our care and professionals' resources, making sure they are clear, relevant and practical

It also shapes our events, helping us respond to HSCPs' needs & new developments in #MND care

Read more on www.mndassociation.org/media/thumb-print!

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