TODAY is #CADASILAwarenessDay!
@cureCADASIL invites everyone to join in showing support for those living with CADASIL, a rare genetic disease that affects the brain’s small blood vessels and can lead to strokes, migraines, and memory loss.
curecadasil.org/cadasil-awar...
Their partnership will include the sharing of biospecimens and experimental model systems to accelerate translational progress.
Fanny Elahi, MD, PhD, Director of the VascBrain Study at the Icahn School of Medicine at Mount Sinai in New York, and Anne Joutel, MD, PhD at INSERM in Paris announce a formal collaboration to advance research in CADASIL biomarker development and drug discovery. @fanny-elahi.bsky.social
Sunday, Nov 16 is #CADASILAwarenessDay!
Show support for those living with CADASIL.
-Change your profile picture using the CADASIL image
-Get yours here: conta.cc/47ElLgC
-Use the hashtag #CADASILAwarenessDay
-Share this thread to spread the word.
#CADASIL #cureCADASIL
Join our next #cureCADASIL Webinar!
Topic: Repurposing a Pill Therapy for the Treatment of #CADASIL
🗓 Wed, Nov 18 | 🕛 12 PM ET
🎙 Dr. Joseph Arboleda-Velasquez, Harvard Medical School
Register: us06web.zoom.us/webinar/regi...
#CADASILresearch #RareDisease #Neuroscience #Harvard
Join the @thinkCADASILorg community for the Brighter Tomorrows Luncheon on Nov 8!
Connect with CADASIL families, hear from Dr. Arboleda-Velasquez, and support life-changing research.
Get your tickets today! conta.cc/4hnuSGZ
Join the next CADASIL Consortium Webinar!
📅 Mon, Oct 27, 2025
🕔 3 PM PT | 4 PM MT | 5 PM CT | 6 PM ET
💬 Topic: Identifying psychiatric symptoms due to early neurological illness.
🔗 Register: conta.cc/4gX5mbn
#CADASIL #Neurology #MentalHealth #Research
📺 Missed our webinar? The recording is now live!
“Prioritizing People: Building Trust & Community in Rare Disease Research”
w/ Dr. Chelsey R. Carter & Dr. Brett Maricque
👉 Watch: www.youtube.com/watch?v=qhRy...
#RareDisease #Genomics #CommunityResearch
Join the CADASIL Consortium webinar!
“CADASIL & Naturopathy: A Holistic Approach to Coping & Resilience” with Dr. Crystal Sciarini
📅 Mon, Sept 29 | ⏰ 7PM ET
Register today: conta.cc/46d6sL1
#CADASIL #cureCADASIL #raredisease #CADASILconsortium
Happening TODAY! Join the CADASIL Consortium at 5pm CT for a free webinar:
“Prioritizing People: Building Trust in Community-Engaged Research”
Featuring Drs. Chelsey Carter & Brett Maricque
🔗 Register: conta.cc/45iN6E1
❓Questions: info@cadasil-consortium.org
Thank you to everyone who joined us for this year’s Patient-Investigator Meeting 💙
From powerful patient stories to exciting research progress, it was a fantastic day full of learning and connection. #CADASIL
Recordings are now available: conta.cc/4mSSrca
📢 CADASIL Research Grant LOI OPEN!
$80K (1 grant) via Team CADASIL & Million Dollar Bike Ride
LOI Deadline: Sept 19, 2025, 8 PM EST
Researchers in CADASIL - don’t miss out! Please share.
🔗 conta.cc/3Jj18hK
On June 6, our cureCADASIL Scientific Advisory Board met and welcomed new expert members! The group shared fresh insights that will shape our work ahead.
🔗 Learn more about our SAB: conta.cc/3UOKGba
Join the CADASIL Consortium for a free webinar: “Prioritizing People: Building Trust in Community-Engaged Research” 📅 Aug 27 | 🕔 5pm CT | 🎙️ Drs. Chelsey Carter & Brett Maricque ✅ Free & open to all
🔗 Register: curecadasil.org/cadasil-cons...
❓Questions: info@cadasil-consortium.org
Dr. Elahi’s team continues making exciting strides in Year 3 of their @cziscience grant—advancing CADASIL research and building key collaborations. Huge thanks to all study participants! 🙌 Every contribution brings us closer to a cure.
Read More: conta.cc/3zYm09w
Virtual attendees: Don’t forget to join us TOMORROW for the 2025 cureCADASIL Patient-Investigator Meeting!
Stay informed, get involved, and help advance research.
Haven’t registered yet? It’s not too late!
🔗 conta.cc/3CoQpPG
#CADASIL #cureCADASIL #ULFConference #raredisease #clinicalresearch
Each year, we close our Patient-Investigator Meeting with a Q&A panel discussion.
This session is always a highlight and a reminder of the value of learning from one another as we search for a cure for #CADASIL.
Learn more and register:
curecadasil.org/2025-curecad...
Join us June 30 for the CADASIL Consortium webinar!
Dr. Jane Paulsen shares 2025 study updates & what's next.
🕓 4PM PT / 7PM ET
🔗 Register: conta.cc/3ZAjLD1
#CADASIL #Neurology #Webinar #RareDisease
Webinar Replay! Watch “Immunization Therapies for CADASIL” ft. Helena Karlström (Karolinska Institute)
register.gotowebinar.com/recording/81...
#CADASIL #Immunotherapy #RareDisease #Neurogenetics #cureCADASIL #WebinarReplay
📣 Leading #CADASIL researchers will be sharing new information about their studies at this year’s Patient-Investigator Meeting.
Join us on June 28 to hear about the exciting progress they’re making toward finding treatments for CADASIL.
Register here: curecadasil.org/2025-curecad...
🚴♀️ Big news! @cureCADASIL + CADASIL Eradication Project are teaming up to accelerate research! 💙
Our first mission: the #MillionDollarBikeRide on 6/14/25!
Goal: $70,605 for CADASIL research.
Join us 👉 conta.cc/4dT2mv7
Donate 👉 conta.cc/43yTQ0R
#cureCADASIL
Just 1 week until our #CADASIL webinar with Dr. Helena Karlström! Discover new immunotherapies targeting Notch3 protein buildup.
June 11 | 11AM EDT | 5PM CET
🔗 Register: conta.cc/4dDTY2B
#cureCADASIL #Neuroscience #RareDisease #WebinarReminder
Only Two Weeks Left Until the Million Dollar Bike Ride!
Time is running out! With just two weeks to go, we need your help more than ever.
Donate today and help make this event a success!
conta.cc/49yDqX2
#MDBR2025 #CADASIL #RideForACure #TeamCADASIL
🔬 Why We Ride: Raising Funds for CADASIL Research 🔬
Your donations to the Million Dollar Bike Ride, fund groundbreaking research that could change lives.
❤️ Donate now and make an impact! curecadasil.org/million-doll...
#MDBR2025 #CADASILResearch #RideForACure #cureCADASIL
We’re excited to feature Community Advisory Group members at this year’s Patient-Investigator Meeting 🧑🤝🧑
Ki & June will share their unique perspectives on living with #CADASIL and highlight topics that matter most to patients.
Register here: curecadasil.org/2025-curecad...
It's today! Join the CADASIL Consortium for their webinar: Prioritizing People: How to Develop Trust and Meaningful Relationships through Community-Engaged Research
📅 Tuesday, May 27th
🕐 12 PM CT / 11 AM MT / 10 AM PT
conta.cc/4301BLO
#CADASIL #cureCADASIL
Join us June 11, 11AM EDT | 5PM CET for a webinar with Dr. Helena Karlström (@karolinskainst) on targeting Notch3 in CADASIL with immune therapies.
🔗 Register: attendee.gotowebinar.com/register/649...
#Immunotherapy #Neuroscience #RareDisease #Webinar #cureCADASIL #CADASIL
It's time to register for May's webinar hosted by the CADASIL Consortium! Prioritizing People: How to Develop Trust and Meaningful Relationships through Community-Engaged Research
📅 Tuesday, May 27th
🕐 1 PM ET
📍 FREE Registration → conta.cc/4301BLO
💬 Questions? Email: info@cadasil-consortium.org
🚴♀️ Ride. Donate. Cure.
Team #CADASIL is riding in the #MillionDollarBikeRide to fight for a cure.
Every mile fuels rare disease research. Join us!
🔗https://conta.cc/49yDqX2
#RideForACure #MDBR2025 #TeamCADASIL #RareDisease
Dr. Elahi and her research team are excited to be in Year 3 of their CZI Patient-Partnered Collaboration grant. This year, they’re happy with the progress they’re making toward finding treatments for CADASIL.
Learn more about the study: conta.cc/3zYm09w
