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ALS United Rocky Mountain

@alsunitedrm.bsky.social

Our mission is to unite and empower the ALS community through a collaborative approach of providing comprehensive care and support to individuals and families affected by ALS, advancing national and state advocacy, and fostering bold research

18 Followers  |  10 Following  |  110 Posts  |  Joined: 19.02.2025  |  1.4313

Latest posts by alsunitedrm.bsky.social on Bluesky


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Advocacy delivered real progress for the ALS community. The FY26 federal funding package includes new and sustained investments in ALS researchโ€”bringing renewed hope to families. This happened because advocates spoke up. Your voice matters. Read more on our website and join the fight to #EndALS.

22.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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We are saddened by the passing of Eric Dane, beloved for his role on Greyโ€™s Anatomy.

Today, we honor his life and recommit to advancing research, expanding care, and fighting for a future without ALS.

21.02.2026 06:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Happy National Love Your Pet Day! ๐Ÿพ

At ALS United Rocky Mountain, we love our pets. Whether theyโ€™re walking beside us, curling up close, or making us laugh when we need it most, pets are family.

Give your furry (or feathered!) friend some extra love today!
#ALS #ALSUnited #NationalLoveYourPetDay

20.02.2026 21:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Today, we honor the caregivers in our ALS communityโ€”spouses, partners, parents, children, and friends who show up daily with strength and love. You are advocates, problem-solvers, and steady support. Your impact is immeasurable. We see you. We support you. You are not alone. ๐Ÿ’™ #ALSCaregivers

20.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Your impact can go twice as far. ๐Ÿ’™
Many employers offer matching gift programs, meaning your donation to ALS United Rocky Mountain could be doubled at no extra cost to you. Check with your company and maximize your support today.
#ALS #MatchingGifts #ALSUnited

19.02.2026 17:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Justice for veterans living with ALS cannot wait. Too many who served our country now face this devastating disease and deserve timely care, clear answers, and strong support. The Justice for ALS Veterans Act pushes for accountability, access, and dignity.
#TogetherWeEndALS #ALS

18.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Fresh powder. Big turns. Bigger impact. โ›ท๏ธ๐Ÿ’™
Join us in Park City for Ski ALS on March 21st and help support individuals and families living with ALS. Rally your team, hit the slopes, and make every run count.

Register today at skialsutah.org
#ALS #Ski #ALSUnited

17.02.2026 18:52 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This Presidentsโ€™ Day, weโ€™re reminded that leadership matters.
We honor the legacy of those who have served our nation and recommit ourselves to advocating for policies that support individuals and families living with ALS.
#ALS #PresidentsDay #ALSUnited #Advocacy

16.02.2026 21:01 โ€” ๐Ÿ‘ 1    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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For 30 years, ALS United Rocky Mountain has stood beside families across Colorado, Utah, and Wyomingโ€”providing care, equipment, advocacy, and hope when itโ€™s needed most.

We wonโ€™t stop until there is a cure.
#ALS #ALSUnited

16.02.2026 17:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Weโ€™re excited to share our ongoing partnership with Road Runner Sports!ย 

Even better, theyโ€™re supporting our ALS community with 10% off your purchase, and donating 10% back to ALS United Rocky Mountain. Use online discount code C6X2R277

Shop today https://www.roadrunnersports.com/
#ALS #ALSUnited

15.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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This Valentineโ€™s Day, weโ€™re celebrating the kind of love that shows up every day through care, connection, and community. ๐Ÿ’™

To our ALS families, caregivers, and supporters: you are at the heart of everything we do.
#ALS #ValentinesDay #ALSUnited

14.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Which would you join?
There are so many ways to support the ALS communityโ€”at a walk, on the slopes, at the Capitol, or from home.
Cast your vote below โฌ‡๏ธ
๐Ÿšถ Walk ALS | โ›ท๏ธ Ski ALS | ๐Ÿ›๏ธ Advocacy Day | ๐Ÿ’ป Virtual Fundraiser

#ALSUnited #ALSCommunity #ALS

13.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Donโ€™t Miss Your Chance to Support ALS. When you purchase the Pride of the Yankees T-shirt,100% of the net proceeds go directly to the nonprofit to help battle ALS.

Every shirt fuels research, hope, and support for families affected.
Your purchase matters. https://rockinart.com/334ย 
#ALS #Yankees

12.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Please join us for an informative educational session on ALS and Genetic Counseling, presented by a Genetic Counselor from the University of Colorado Hospital.

To register, please email us at careservices@alsrockymountain.org.ย 
#ALS #GeneticCounseling #ALSUnited

11.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Mobility Works shares our belief that independence, dignity, and access matter. Their support helps us walk alongside families facing ALS with the care and resources they need. We are proud to have Mobility Works as part of our Family of Support.ย ย 
#TogetherWeEndALSยฎ#ALS #ALSUnited #Sponsor

10.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Your community. Your passion. Your impact.
Host a Fundraise Your Way event and turn what you love into meaningful support for people living with ALS and their families.

Email Events@alsrockymountain.org to get started!
#ALS #FundraiseYourWay #ALSUnited

09.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Hit the slopes for a cause ๐Ÿ’™โ›ท๏ธ
Registration is open for our ski event! Gather your team, enjoy a day on the mountain, and help support individuals and families living with ALS. Sign up today at skialsutah.org
#ALS #Ski #OurALSCommunity #ALSUnited

08.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โ€œI serve because ALS United Rocky Mountain shows up for familiesโ€”every day, in real and meaningful ways. Being part of a community that leads with compassion, action, and purpose is incredibly important to me." #TogetherWeEndALSยฎ #ALS #ALSUnited

07.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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On Time To Talk Day, weโ€™re reminded how important connection is.
Living with or caring for someone with ALS can take a toll on mental healthโ€”and talking about it matters.

A simple conversation can be powerful. ๐Ÿ’™ ๐Ÿ’™ย ย 
#TimeToTalkDay #MentalHealthMatters #ALSCommunity #ALSUnited #ALS

05.02.2026 20:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Your Pride of the Yankees T-shirt has a Tap-Tee (NFC) chip in the sleeve.
The scan takes them to your nonprofitโ€™s replicated ALS fundraising page.
If they buy a shirt, the organization earns a commission.
https://rockinart.com/334
ย #TogetherWeEndALSยฎ #ALSUnited #ALS

05.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

On Saturday, January 31, we celebrated and launched our 2026 Volunteer/ Ambassador Program with an incredible group of dedicated supporters. ๐Ÿ’™

These volunteers will represent ALS United Rocky Mountain throughout the year. Weโ€™re so grateful for your time, passion, & commitment!ย 

#ALS #ALSUnited

04.02.2026 17:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Because of your sustained advocacy and engagement, the FY 2026 federal funding package includes $45M additional funding for ALS research and related programs!

Thank you to all of our advocates and members of the ALS community whose efforts helped make this possible. #ALS #ALSUnited #Advocacy

03.02.2026 22:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Every heart tells a story. ๐Ÿ’™
Q & A from you. Has ALS United Rocky Mountain impacted you or your community?
Comment โค๏ธ below.ย ย 
#ALSUnited #ALS #TogetherWeEndALS #Support

02.02.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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At ALS United Rocky Mountain, weโ€™re committed to equity, inclusion, and supporting Black individuals and families impacted by ALS, today and always.

#BlackHistoryMonth #ALSUnited #HealthEquity #ALS

01.02.2026 20:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Join one of our monthly virtual support groups. We offer several specialty groups, including those for individuals living with ALS, Caregiver Support, Bereavement, and Community-focused support groups.

Find out more online at https://alsrockymountain.org/navigating-als/support-groups/
#ALS #Support

01.02.2026 17:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Donโ€™t Miss Your Chance to Support ALS.
Youโ€™ve seen the shirt. You know the impact.

Now itโ€™s your moment to join the fight against ALS.

Your purchase helps the nonprofit, supports families, and unlocks Tap-Tee earning power.
Make your impact today. https://rockinart.com/334
#ALS #ALSUnited #Yankees

31.01.2026 17:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Every conversation helps build awareness, support families, and move us closer to a cure.
#ALS #TogetherWeEndALSยฎ #ALSUnited

29.01.2026 17:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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You shop, and Kroger donates! You can enroll your loyalty card to send donations with each purchase to ALS United Rocky Mountain as your Community Rewards Partner! It doesn't cost you a thing!ย 

Set up your Community Rewards at: https://www.kroger.com/i/community/community-rewards
#ALS #Kroger #Shop

28.01.2026 17:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Our mission is rooted in family, fueled by community, and driven by hope.

#ALS #Mission #ALSUnited

27.01.2026 23:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Get ready to hit the slopes for ALS! ๐ŸŽฟโ„๏ธ

2026 SKI ALS is heading to Park City, UT! Register today, start fundraising, and score awesome rewards- hats, mugs, face buffs, and even ski day lift tickets. ๐Ÿ™Œ

Register now, skialsutah.org

#ALSUnited #NationalAbilityCenter #SkiingForAll #SkiParkCity

26.01.2026 19:39 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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