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@hydrocephalusca.bsky.social

7 Followers  |  18 Following  |  17 Posts  |  Joined: 02.07.2025  |  1.7686

Latest posts by hydrocephalusca.bsky.social on Bluesky

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๐Ÿ’™ **Hydrocephalus & Spina Bifida Parent Support Group** ๐Ÿ’™
**Caregiver Support Night: Sharing Tips & Stories**
๐Ÿ—“๏ธ **Tuesday, November 11**
โฐ **8:00โ€“9:00 PM (EST)**
๐Ÿ“ **Online via Zoom**
๐Ÿ”— **Register here:**
[https://us02web.zoom.us/meeting/register/07s96JEmTRK_yXwCWCEwJg]

03.11.2025 15:20 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽฌ Casting Call:
Weโ€™re creating videosย featuring accessible sports & arts programs. You will be featured across Canadaย  A thank you to @Toronto-Foundation for their grant making this possible! ๐Ÿ™

โœจ Join us & inspire more families to get involved!
๐Ÿ“ง Sign up or learn more: info@hydrocephalus.ca

30.10.2025 14:01 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ’ผ Participate in Research ๐Ÿ’ผ

Enhancing Healthy and Productive Work for Sex/Gender Minoritized Youth with Disabilities

Are you 15โ€“30 who has a disability and identifies as part of a sex/gender minoritized group?
We want to hear from you!

๐Ÿ“ง Interested?
Contact Sarah Leo โ†’ trail@hollandbloorview.ca

29.10.2025 14:20 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŒค๏ธ We are looking for superstars ๐ŸŒค๏ธ
Weโ€™ve partnered with TAP Toronto
and sponsored by the Toronto Foundation to feature accessible sports and arts activities for children and youth with Spina Bifida or Hydrocephalus across Canada.

๐Ÿ’Œ Learn more about how to join: info@hydrocephalus.ca

22.10.2025 14:37 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image 22.10.2025 14:33 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽ Turn your celebration into impact! Skip the gifts, spread the support to families, youth, and young adults living with hydrocephalus and spina bifida.

๐Ÿ’Œ Host a fundraiser: forms.gle/5Uwbeb1osvWB...

๐Ÿ“ง Questions? info@hydrocephalus.ca

#SkipTheGift #SpreadTheSupport #HydrocephalusCanada

22.10.2025 14:31 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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โœจ Make your holiday party meaningful! Place QR codes for donations and help fund:

๐Ÿ’™ One-on-one support sessions
๐Ÿ’™ Peer support groups
๐Ÿ’™ Healthcare resources & support kits

๐Ÿ“ง info@hydrocephalus.ca
| ๐Ÿ’Œ Host: forms.gle/5Uwbeb1osvWB...

#GiveBackThisHoliday #SpinaBifidaSupport #HydrocephalusCanada

22.10.2025 14:30 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐ŸŽ„ Skip the Gift. Spread the Support.
Host a holiday party that gives back! Ask guests to donate to Hydrocephalus Canada instead of gifts. Every dollar helps with hydrocephalus and spina bifida.

Sign up: forms.gle/5Uwbeb1osvWB...

Contact: info@hydrocephalus.ca

#SkipTheGift #SpreadTheSupport

22.10.2025 14:27 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
Post image 22.10.2025 14:25 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Want to participate in research. Check out the poster

22.10.2025 14:24 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿ‘ถ From childhood through adulthood, lifelong care coordination is critical in spina bifida & hydrocephalus.
๐Ÿ”— hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:05 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿง  Did you know normal pressure hydrocephalus can mimic dementia? Early detection can prevent decline.
๐Ÿ”— hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:04 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿงญ Teens with spina bifida and hydrocephalus face tough transitions. Healthcare professionals your support matters. Help us bridge the gap.
๐Ÿ”— hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:03 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿฉบ Adults with spina bifida are living longer but often lose access to care. Healthcare in Canada can help close the gap.
๐Ÿ”— hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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๐Ÿง  Delayed hydrocephalus diagnosis can cause irreversible harm. Learn the red flags & act early.
๐Ÿ”— hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:02 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0
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Youโ€™re not alone with hydrocephalus or spina bifida. Find tools, support & care resources at hydrocephalus.ca
๐Ÿ“ง info@hydrocephalus.ca

03.07.2025 14:00 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

Hydrocephalus Canada is now on BlueSky!
Support, resources & updates for hydrocephalus, spina bifida & healthcare in Canada.
๐Ÿ”ต Learn more at hydrocephalus.ca

02.07.2025 14:41 โ€” ๐Ÿ‘ 0    ๐Ÿ” 0    ๐Ÿ’ฌ 0    ๐Ÿ“Œ 0

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