๐ **Hydrocephalus & Spina Bifida Parent Support Group** ๐
**Caregiver Support Night: Sharing Tips & Stories**
๐๏ธ **Tuesday, November 11**
โฐ **8:00โ9:00 PM (EST)**
๐ **Online via Zoom**
๐ **Register here:**
[https://us02web.zoom.us/meeting/register/07s96JEmTRK_yXwCWCEwJg]
03.11.2025 15:20 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ฌ Casting Call:
Weโre creating videosย featuring accessible sports & arts programs. You will be featured across Canadaย A thank you to @Toronto-Foundation for their grant making this possible! ๐
โจ Join us & inspire more families to get involved!
๐ง Sign up or learn more: info@hydrocephalus.ca
30.10.2025 14:01 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ผ Participate in Research ๐ผ
Enhancing Healthy and Productive Work for Sex/Gender Minoritized Youth with Disabilities
Are you 15โ30 who has a disability and identifies as part of a sex/gender minoritized group?
We want to hear from you!
๐ง Interested?
Contact Sarah Leo โ trail@hollandbloorview.ca
29.10.2025 14:20 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ค๏ธ We are looking for superstars ๐ค๏ธ
Weโve partnered with TAP Toronto
and sponsored by the Toronto Foundation to feature accessible sports and arts activities for children and youth with Spina Bifida or Hydrocephalus across Canada.
๐ Learn more about how to join: info@hydrocephalus.ca
22.10.2025 14:37 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
22.10.2025 14:33 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Turn your celebration into impact! Skip the gifts, spread the support to families, youth, and young adults living with hydrocephalus and spina bifida.
๐ Host a fundraiser: forms.gle/5Uwbeb1osvWB...
๐ง Questions? info@hydrocephalus.ca
#SkipTheGift #SpreadTheSupport #HydrocephalusCanada
22.10.2025 14:31 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
โจ Make your holiday party meaningful! Place QR codes for donations and help fund:
๐ One-on-one support sessions
๐ Peer support groups
๐ Healthcare resources & support kits
๐ง info@hydrocephalus.ca
| ๐ Host: forms.gle/5Uwbeb1osvWB...
#GiveBackThisHoliday #SpinaBifidaSupport #HydrocephalusCanada
22.10.2025 14:30 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ Skip the Gift. Spread the Support.
Host a holiday party that gives back! Ask guests to donate to Hydrocephalus Canada instead of gifts. Every dollar helps with hydrocephalus and spina bifida.
Sign up: forms.gle/5Uwbeb1osvWB...
Contact: info@hydrocephalus.ca
#SkipTheGift #SpreadTheSupport
22.10.2025 14:27 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
22.10.2025 14:25 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Want to participate in research. Check out the poster
22.10.2025 14:24 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ถ From childhood through adulthood, lifelong care coordination is critical in spina bifida & hydrocephalus.
๐ hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:05 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ง Did you know normal pressure hydrocephalus can mimic dementia? Early detection can prevent decline.
๐ hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:04 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐งญ Teens with spina bifida and hydrocephalus face tough transitions. Healthcare professionals your support matters. Help us bridge the gap.
๐ hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:03 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ฉบ Adults with spina bifida are living longer but often lose access to care. Healthcare in Canada can help close the gap.
๐ hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
๐ง Delayed hydrocephalus diagnosis can cause irreversible harm. Learn the red flags & act early.
๐ hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:02 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Youโre not alone with hydrocephalus or spina bifida. Find tools, support & care resources at hydrocephalus.ca
๐ง info@hydrocephalus.ca
03.07.2025 14:00 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
Hydrocephalus Canada is now on BlueSky!
Support, resources & updates for hydrocephalus, spina bifida & healthcare in Canada.
๐ต Learn more at hydrocephalus.ca
02.07.2025 14:41 โ ๐ 0 ๐ 0 ๐ฌ 0 ๐ 0
51m from Yorkshire, England. SWFC supporter, Level 2 Qualified Gym Instructor. Spina Bifida haver.
No DM's without proof of ID.
25โ๏ธ|Spina Bifida Warrior๐๐| Chicago๐๐| Gamer ๐ฎ
Born with Spina Bifida/Chiari Malformation, 62 years young. Love cooking, photography, travel, animals, nature, reality TV, all things BB and Traitors and more. If I could change the world...but it takes a million villages!
Wife most importantly. Interest in disability topics (have spina bifida). Cricket loving. Fan of British comedy esp Russell Howard.
42. Spina Bifida. Wheelchair User.
Daughter. Sister. Aunt. Genealogist.
5th Generation Missourian.
Owned by Alice.
#Heartie #Ghostie #Swiftie #POstable
Lead Draft Analyst for Arrowhead Addict | Film/ Charting FTN analytics | Husband | Spina Bifida Dad |#GBR๐ฝ
I have a disability called spina bifida
Stay at home mom to a Spina bifida superhero. Love to read and take photos! No trump no maga no racism ! No dms please.
Anti-fascist โ Obsessed with cats โ MN health care policy โ ๐disability services policy๐ โ that spina bifida bitch - I have no new takes
Biomedical engineer | PhD Candidate Wayne State University, Detroit, MI, USA | Organ-on-a-chip models, brain-barriers, choroid plexus, hydrocephalus, neurosurgery |
Cerebral Palsy & Hydrocephalus - Hampton & Richmond Borough First Team & Academy Kit Manager from 1st July 2025,Previous - Hampton & Richmond Borough Kitman 2013 - 2023, Hanworth Villa Kitman 2023 - 2025
Ashley/She/Her/Spina Bifida Hydrocephalus๐๏ธ/Puerto Rican ๐ต๐ท/Gamer ๐น๐ค๐ฎ/ Author โ๏ธ๐
https://youtube.com/@ashleythagamer
Email: AshThaGamerGirl@gmail.com
Welsh
Born with Spina Bifida + Hydrocephalus.
Ostomate.
Wheelchair User.
Manchester United Fan.
Fisherman.
Sweary.
Tories needn't bother following.
I am Filipino with Cerebral Palsy who likes to collect cologne and cook. Hydrocephalus and Cerebral Palsy advocate.
Born at 25 weeks. Happily ๐ taken. #Hydrocephalus #Hidradenitis Suppurativa #Disabled #Photography #Food #LGBTQIA+ #Cooking #Coffee ๐ณ๏ธโ๐ NO DM's.
Books et Veritas. Bringing truth to light for more than one hundred years.
official Bluesky account (check username๐)
Bugs, feature requests, feedback: support@bsky.app