There is dignity in a diagnosis. Once a research & clinical OD and international speaker, now 10+ yrs bed-bound by spontaneous Spinal Fluid Leaks. I miss life and life misses me.

The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks, support sufferers and their families, and secure diagnostic and treatment advancement. csfleak.uk

We are a United States 501(c)3 nonprofit organization that helps raise awareness, educate, and support research on intracranial hypotension and spinal cerebrospinal fluid (CSF) leaks. spinalcsfleak.org

We are a United States 501(c)3 nonprofit organization that helps raise awareness, educate, and support research on intracranial hypotension and spinal cerebrospinal fluid (CSF) leaks. spinalcsfleak.org

official Bluesky account (check username👆) Bugs, feature requests, feedback: support@bsky.app