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CSF Leak Association

@csfleak.bsky.social

The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks, support sufferers and their families, and secure diagnostic and treatment advancement. csfleak.uk

84 Followers  |  14 Following  |  19 Posts  |  Joined: 22.11.2024  |  1.6873

Latest posts by csfleak.bsky.social on Bluesky

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🚨 We're excited to announce our seventh speaker, Dr. Ayman Qureshi, consultant neuro radiologist at NHNN. Join to learn about blood patching techniques for spinal CSF leaks. Register πŸ‘‰πŸ» csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleaks

16.05.2025 12:25 β€” πŸ‘ 2    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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🚨 ONE WEEK TO GO! Join us on 12th April at 2 PM as Mr Parag Sayal shares expertise on surgical options for managing CSF leaks. Still time to register πŸ‘‰πŸ» csfleak.uk/event/webina...
#CSFLeakAssociation #CSFleak

05.04.2025 08:54 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 1
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🚨 We're excited to announce our fifth speaker, Mr Parag Sayal, clinical lead for spinal neurosurgery at NHNN London. Join to learn about surgery options for managing CSF leaks. Register πŸ‘‰πŸ» tinyurl.com/bdhjtatv
#CSFLeakAssociation #CSFleak

18.03.2025 18:38 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸ’œ This #InternationalWomensDay, we celebrate our incredible female leakers, trustees, volunteers and supporters! Your strength, resilience and dedication inspire us daily and drive our mission forward. Thank you! #CSFLeakAssociation #IWD2025 #WomenInHealth

08.03.2025 06:38 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Webinars Our new CSFLeak webinar series with some of the UK’s leading experts in the field, who will generously share their insights and answer your questions.

πŸ“Ί AVAILABLE NOW! Webinars 2 and 3 in our CSF leak series are available on demand. Catch up on 'Assessment & Diagnosis' and 'Imaging' on our website or YouTube channel. Watch here πŸ‘‰πŸ» csfleak.uk/webinars
#CSFLeakAssociation #CSFleak

01.03.2025 18:58 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0
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🚨 ONE WEEK TO GO! Join us on 8th March at 3 PM as Dr. Patrick Nicholson shares expertise on procedures for managing CSF leaks, including epidural blood patches. Still time to register πŸ‘‰πŸ» tinyurl.com/yh3u92e3 #CSFLeakAssociation #CSFleak

01.03.2025 10:42 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 We're excited to announce our fourth speaker, Dr. Patrick Nicholson, Neurointerventional Radiology Consultant with over 100 published papers. Join to learn about procedures for managing CSF leaks, including epidural blood patches. Register πŸ‘‰πŸ» tinyurl.com/yh3u92e3
#CSFLeakAssociation #CSFleak

21.02.2025 12:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🎯 Making waves at #BASH2025! Our trustee Bern connected with 300+ healthcare professionals on CSF leaks, alongside Dr Sanjay Cheema's expert presentation.
Huge thanks to Bern for 3 days of tireless advocacy! πŸ’ͺ
#CSFLeaks #SIH #standupforcsfleakers #CSFLeakAssociation

26.01.2025 17:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 We're excited to announce our third speaker, Dr Indran Davagnanam, Consultant Neuroradiologist at NHNN. Join to learn about imaging techniques for CSF leak diagnosis and management. Register πŸ‘‰πŸ» tinyurl.com/5n8sunbz

#CSFLeakAssociation #CSFleak

18.01.2025 20:14 β€” πŸ‘ 1    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
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Invite your MP to meet us Invite your MP to meet the Neurological Alliance in Parliament

πŸ›οΈ We're supporting The Neurological Alliance at Parliament on 16 January to advocate for better care and support for people with CSF leaks and other neurological conditions. πŸ“ Invite your MP to attend tinyurl.com/ParliNeuroRe...
#backthe1in6 #csfleak #csfleakassociation #NeurologicalAlliance

09.01.2025 13:20 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 LESS THAN A WEEK TO GO! 🚨

Dr Brendan Davies, consultant neurologist and co-author of both NICE headache guidelines and SIH consensus guidelines, will explore clinical assessment and differential diagnosis of CSF leaks, helping to demystify the diagnostic journey.
Register now tinyurl.com/5yk932pc

05.01.2025 14:46 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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πŸŽ„ ✨ Sending warm wishes to our global CSF leak community this Christmas and holiday season. 🌟

To patients, carers, medical teams and supporters worldwide - thank you for your incredible support throughout 2024 πŸ’š πŸ™ 🌍
#CSFLeakAssociation #CSFleak

25.12.2024 09:43 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

πŸ“Ί Missed our first webinar on spontaneous CSF leaks with Dr Sanjay Cheema? It's now available to watch on demand on our website πŸ‘‰πŸ» csfleak.uk/webinars
#CSFLeakAssociation #CSFleak #SIH

19.12.2024 12:02 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 We're excited to announce our second speaker, Dr Brendan Davies, consultant neurologist and guideline co-author. Join to learn about clinical assessment and diagnosis of CSF leaks.
Register πŸ‘‰πŸ» tinyurl.com/5yk932pc

17.12.2024 18:47 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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We're proud to #BackThe1in6!

The government is launching the first ever forum to address gaps in treatment, care and support for people affected by neurological conditions.

Learn more about this landmark initiativeπŸ‘‡πŸ»
shorturl.at/O2mLq

30.11.2024 20:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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🚨 JUST 1️⃣ WEEK TO GO! 🚨

For our first monthly webinar, Dr. Sanjay Cheema will give an overview of the condition, an overview of the guidelines, and answer your questions live.

Who's joining us? πŸ™‹πŸ»β€β™‚οΈπŸ™‹πŸ½β€β™€οΈπŸ‘‡πŸ»

tinyurl.com/5yk932pc

30.11.2024 19:52 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

And our Canadian friends @spinalcsfleakca.bsky.social

24.11.2024 19:59 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Follow our US friends @spinalcsfleak.bsky.social πŸ™πŸ»

24.11.2024 14:25 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Hello BlueskyπŸ¦‹ We're the CSF Leak Association, a registered charity in the UK working to raise awareness of CSF leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.

Visit our csfleak.uk to find out more!

24.11.2024 14:06 β€” πŸ‘ 9    πŸ” 1    πŸ’¬ 1    πŸ“Œ 0

@csfleak is following 13 prominent accounts