Lost in the System. Lost in My Head.
 
#FabricOfOurLives #BCAM25 #BreastCancerAwarenessMonth #BCAM #SeverityModifier #METUPUK

The Fabric of Our Lives

MBC lives in the shadows of pink-no clear data, little funding, limited support. We are forgotten. It’s time to show the darker side of pink and demand change. Share. Speak up. Support those with MBC.
#FabricOfOurLives #Stage4NeedsMore #DarkerPink

At the Northern Ireland Cancer Charities Coalition Summit 2025, our NI Lead Ann McBrien amplified voices of people with metastatic breast cancer. With 35 charities united, we demand faster diagnosis, better treatment access & patient-first policies. #FabricOfOurLives #BCAM25

It’s the 2nd of the month, which means it’s time for #SecondsOnThe2nd - shining a light on the signs and symptoms of Metastatic Breast Cancer (MBC).

#MetastaticBreastCancer #MBCAwareness #SecondaryBreastCancer

#BreastCancerAwarenessMonth reminds the world to pay attention - but for those living with MBC, every month is awareness month. We are over 60,000 strong in the UK. Join the Fabric of Our Lives campaign: visibility, support, change.

#FabricOfOurLives #BCAM25 #BreastCancerAwarenessMonth #METUPUK

The Darker Side of Pink exhibition is coming to Newcastle City Library from Wednesday 1st October to Friday 31st October to coincide with Breast Cancer Awareness Month. Come and see this powerful installation and learn more about the reality of secondary breast cancer. #MetastaticBreastCancer

Do you know the difference between recurrence and progression?

It’s a distinction that matters - especially for people living with Metastatic Breast Cancer.

Understanding what they mean can help patients, caregivers, and loved ones better advocate for the right support and next steps.

In 2021, Philippa Hetherington led #TrodelvyNow, fighting to bring a game-changing mTNBC drug to the UK. Despite her own MBC, she worked tirelessly - driving approval and giving others #MoreTime. Her brilliance, resilience & impact live on. #METUPUK #BreastCancerAwareness

Myth or Fact: Palliative care isn’t just for end of life. For those with MBC, it can start anytime - managing symptoms, easing side effects & supporting wellbeing. Everyone deserves early, ongoing care. Swipe to learn more. #METUPUK #MBC #PalliativeCare #CancerMyths

Meet Jo Taylor, founder of METUPUK. Since 2016, she’s led a patient-led movement for change in metastatic breast cancer - fighting for access to treatment, policy reform, and awareness. Jo is not just a founder, but a campaigner, changemaker, and #BusyLivingWithMets.

How do people with MBC use social media, and how does it affect mental health? In 2021 we asked - now we want to know if it still resonates. Should we run another survey? Comment & share to help us reach more voices. #MentalHealthAndMBC #SocialMediaAndCancer #METUPUK #MBCVoices

What I Wish You’d Said

A moving reminder from Rebecca Brown that life with Metastatic Breast Cancer doesn’t stay frozen in fear or sadness - it shifts, stretches, softens.

#BusyLivingWithMets #Stage4NeedsMore

Stay in the loop with METUPUK!

Sign up for our newsletter for campaign launches, site updates & key news. No spam, no data sharing - promise.

🔗 Join here: dashboard.mailerlite.com/forms/95734/...

#METUPUK #MBC #Stage4NeedsMore #CancerEquity

Our Friends: Not Forgotten 💔
 
Mary Richards was a force; a fierce advocate, a dedicated campaigner, and a passionate voice for the Secondary Breast Cancer community.
 
#OurFriendsNotForgotten #METUPUK #MetastaticBreastCancer #SecondaryBreastCancer #Stage4NeedsMore #MBCVoice #BusyLivingWithMets

Clinical trials shouldn’t feel impossible - but for many with MBC, they do. Our UK trial dashboard helps cut confusion with monthly updates, access info & options. Talk to your oncologist & explore new possibilities. 🧪 metupuk.org.uk/research-and...

“How do we get better outcomes and survival for Metastatic Breast Cancer?”

Read Jo’s full blog now via the link: lnkd.in/eM9uxYFi

Megan and Bren are taking on the Vitality 10k in London on 28th September to raise funds for METUPUK.

Megan’s mum, Laura Ashurst, is a Trustee and patient volunteer at METUPUK. She has been living with incurable, Metastatic Breast Cancer since 2007.

GoFundMe: tinyurl.com/4u5yf758

It’s the 2nd of the month and we’re back with #SecondsOnThe2nd - raising awareness of the signs and symptoms of Metastatic Breast Cancer (MBC) that are still too often overlooked. #MetastaticBreastCancer

Count us in. Stop leaving us out.

METUPUK recently joined global partners including Breast Cancer Network Australia, Breast Cancer Now and Rethink Breast Cancer to demand urgent action on Metastatic Breast Cancer (MBC) data.
#CountUsIn #MBCDataMatters #MetastaticBreastCancer #Stage4NeedsMore

Myth vs Fact: NEAD (No Evidence of Active Disease) = Cure? 🤔

#MetastaticBreastCancer #MBC #NEDStatus #BreastCancerAwareness #Stage4NeedsMore #METUPUK #Myths

🚴‍♀️ Nicky’s Taking on 500km Across Sri Lanka for METUPUK!

This September, Nicky Hopper is cycling an incredible 500km across Sri Lanka - all to raise vital funds and awareness for METUPUK and people living with Metastatic Breast Cancer.

Want to take on your own challenge? Get in touch today.📲

Many of you will remember Mary Huckle - a fierce advocate and friend - who dedicated herself to raising awareness of #MetastaticBreastCancer. Her final blog post is a raw reflection on mental health, grief, and coping while living with stage 4 cancer. metupuk.org.uk/2023/05/the-...

Kelly shares the moment she was told her breast cancer had spread. No two journeys are the same, but these stories highlight the importance of self-advocacy in getting answers - though it shouldn’t have to be this way. #MetastaticBreastCancer

Clinical trials shouldn’t be a last resort - they should be part of the conversation from the start. Helen, an MBC patient and nurse, had to do her own research. That’s why we maintain our own trial database.
#TrialAccess #MBCAdvocacy #ClinicalTrials #PatientVoice

Ever felt like you need a science degree to access treatment? This post breaks down key terms like CDK4/6 & HER2-low - because language shouldn’t be a barrier to care.

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🔗 More info: @owisebreast

#MBCAdvocacy #CancerEquity #TreatmentAccess

Today is #SecondsOnThe2nd - our regular reminder to pause and check the signs and symptoms of secondary (metastatic) breast cancer.

#METUPUK #Stage4DeservesMore #MetastaticBreastCancer #SecondaryBreastCancer

Meet our Trustee, Phil Southwell. Phil joined METUPUK in 2023, initially volunteering his IT expertise before stepping into the role of Finance Trustee, following the death of our friend and former Trustee, Connie Johncock.
#METUPUK #CharityTrustee

S was diagnosed with triple positive breast cancer in 2018. After developing Metastatic Breast Cancer, her subtype changed multiple times - including to HER2-ultra-low. Read the full post below and get in touch with your MP today to help push for change: breastcancernow.org/get-involved...

Asha Umrawsingh was a doctor and advocate who lived with Metastatic Breast Cancer for almost a decade. In this blog, written before her death in March 2024, she shares the challenges she faced accessing treatment due to outdated NHS guidelines.
 
#METUPUK #MBCVoices #MetastaticBreastCancer

We’re fighting for access, equity, and policy change - because people with Metastatic Breast Cancer deserve better. From sharing a post to raising funds, your support powers our work. Swipe to see how you can help.

#METUPUK #Stage4NeedsMore #MBCAdvocacy