Kelly shares the moment she was told her breast cancer had spread. No two journeys are the same, but these stories highlight the importance of self-advocacy in getting answers - though it shouldn’t have to be this way. #MetastaticBreastCancer

Clinical trials shouldn’t be a last resort - they should be part of the conversation from the start. Helen, an MBC patient and nurse, had to do her own research. That’s why we maintain our own trial database.
#TrialAccess #MBCAdvocacy #ClinicalTrials #PatientVoice

Ever felt like you need a science degree to access treatment? This post breaks down key terms like CDK4/6 & HER2-low - because language shouldn’t be a barrier to care.

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🔗 More info: @owisebreast

#MBCAdvocacy #CancerEquity #TreatmentAccess

Today is #SecondsOnThe2nd - our regular reminder to pause and check the signs and symptoms of secondary (metastatic) breast cancer.

#METUPUK #Stage4DeservesMore #MetastaticBreastCancer #SecondaryBreastCancer

Meet our Trustee, Phil Southwell. Phil joined METUPUK in 2023, initially volunteering his IT expertise before stepping into the role of Finance Trustee, following the death of our friend and former Trustee, Connie Johncock.
#METUPUK #CharityTrustee

S was diagnosed with triple positive breast cancer in 2018. After developing Metastatic Breast Cancer, her subtype changed multiple times - including to HER2-ultra-low. Read the full post below and get in touch with your MP today to help push for change: breastcancernow.org/get-involved...

Asha Umrawsingh was a doctor and advocate who lived with Metastatic Breast Cancer for almost a decade. In this blog, written before her death in March 2024, she shares the challenges she faced accessing treatment due to outdated NHS guidelines.
 
#METUPUK #MBCVoices #MetastaticBreastCancer

We’re fighting for access, equity, and policy change - because people with Metastatic Breast Cancer deserve better. From sharing a post to raising funds, your support powers our work. Swipe to see how you can help.

#METUPUK #Stage4NeedsMore #MBCAdvocacy

Chemotherapy and immunotherapy are both systemic treatments for Metastatic Breast Cancer - but they work in very different ways.

In this post, we break down what each treatment does, when they might be used, and why side effects vary. #METUPUK

When breast cancer spreads to other parts of the body - like the bones, liver or brain - it doesn’t become a new type of cancer. It’s still breast cancer.

Understanding this matters - for treatment, support, and awareness.

#MetastaticBreastCancer #MBCFacts #SecondaryBreastCancer

Every day, 31 women die from Metastatic Breast Cancer. The Darker Side of Pink makes this visible with 31 transparent figures sharing real MBC stories. This powerful installation is touring the UK - where should it go next? Get in touch to host it. #TheDarkerSideOfPink

METUPUK joined a tour of the Cancer Genomics Lab at Guy’s Hospital with MBC patients whose care has been shaped by genomic testing. A huge thank you to the teams behind the science - your work drives progress and changes lives.
#METUPUK #CancerGenomics #MBCCommunity

We’re saddened by the death of our friend and “Pink Lady” Sarah Walton. A passionate MBC advocate and part of The Darker Side of Pink, Sarah’s warmth, kindness, and courage touched many. Our thoughts are with her family, friends, and all who loved her. #SarahWalton #METUPUK

Regan, son of our founder Jo, is taking on the 3 Peaks Challenge with friends to raise funds for METUPUK, @thechristiecharity & @mssocietyuk. Taking place on 12th July, every step helps fuel action for MBC. Support them here: www.givewheel.com/fundraising/...

We’re deeply saddened by the death of Lynda Cowell (1964–2025). A tireless advocate, Lynda raised vital awareness of MBC and red flag symptoms. Warm, courageous, and deeply loved, she leaves behind a powerful legacy. Our thoughts are with her loved ones.

#METUPUK #LyndaCowell

Our Friends, Not Forgotten.

We remember those in our METUPUK community who have died from MBC. Their strength and spirit continue to guide our work. They were more than a diagnosis - they were loved, they mattered, and always will.

#OurFriendsNotForgotten #METUPUK #Stage4NeedsMore

“I was 39. A mum of three. Told I had 2–3 years to live.”

This is MBC: endless appointments, stolen time, and constant uncertainty. It’s not rare - it’s happening every day.

Read the full blog via the link in our Instagram bio.

#MBC #MetastaticBreastCancer #MBCReality #METUPUK

It’s the 2nd, which means #SecondsOnThe2nd - our spotlight on the lesser-known signs of Metastatic Breast Cancer. These red flags are often missed but can be the first sign cancer has spread. Early recognition matters. Swipe to learn, share to raise awareness. #METUPUK #Stage4NeedsMore

Miranda “Mizzie” Ashitey (1982–2025) was a powerful voice in the MBC community. As a Black LGBTQI+ woman, she championed visibility and equity in cancer care. Bold, funny, and full of purpose - she’ll be deeply missed. Our thoughts are with her loved ones. #METUPUK #Stage4NeedsMore

Metastatic Breast Cancer isn’t always a recurrence. Some are diagnosed de novo - at Stage 4 from the start - after symptoms like bone pain or a persistent cough. Knowing the realities of MBC can lead to earlier recognition and better outcomes. #Stage4NeedsMore #METUPUK

Where you live shouldn’t determine the treatments you can access.
Equity of access is one of METUPUK’s key objectives - yet right now, major disparities in drug availability exist across the UK.

#METUPUK #MetastaticBreastCancer #MBC #Stage4NeedsMore #CancerInequality #PostcodeLottery

Metastatic Breast Cancer is underfunded and patients are paying the price. Despite 30% of early-stage patients progressing to Stage 4, only 13% of research focuses on MBC. We need urgent investment, especially in treatment resistance. #Stage4NeedsMore #METUPUK #MBCResearchMatters

After months of persistence, Welsh METUPUK volunteers were invited to speak at a GP training event on MBC red flags - reaching 100+ professionals. When patients are given a platform, real change happens. And this is just the start.

The language around Metastatic Breast Cancer can be complex and confusing - yet understanding it is essential. From staging to receptor status, this post breaks down key terms to help people advocate, access trials, and make sense of their diagnosis.

#METUPUK #MBCAdvocacy

“What does Enhertu mean to you?”

For some in the METUPUK community, Enhertu brought stability, NEAD, and time for what matters. For others, side effects or progression meant a different reality. These stories show why access, innovation, and continued research are vital.

#METUPUK #Enhertu

Being a caregiver can be overwhelming, emotional, and uncertain - but it can also be full of love, humour and shared strength.

Andy shares his honest advice as a husband and caregiver to Carole, who is living with MBC.

His reflections are a powerful reminder that support comes in many forms.

Metastatic Breast Cancer can’t be cured - even when it’s a first diagnosis. But some subtypes respond well to treatment, with patients staying stable or reaching NEAD. MBC is complex. We need more options, more research, and more time.

#METUPUK #Stage4NeedsMore #BusyLivingWithMets

What’s next for MBC research and innovation?

We spoke to Professor Sacha Howell, a leading Breast Cancer researcher based in Manchester, to hear his thoughts on what’s coming down the pipeline for Metastatic Breast Cancer.

#METUPUK #MetastaticBreastCancer #MBCResearch #ClinicalTrials #ASCO2025

Today is #SecondsOnThe2nd - our monthly reminder to spotlight the red flag signs and symptoms of Metastatic Breast Cancer. For some people, they’re the first signs that their cancer has spread. For others, they’re missed or dismissed for too long.
#SecondsOnThe2nd #METUPUK #DarkerPink

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