My Name Is Fibromyalgia's Avatar

My Name Is Fibromyalgia

@mynameisfibro.bsky.social

Our official account. Raising awareness and helping fibromyalgia warriors find the help, support, guidance and advice they need 24 hrs a day worldwide

736 Followers  |  584 Following  |  46 Posts  |  Joined: 14.11.2024  |  2.2191

Latest posts by mynameisfibro.bsky.social on Bluesky

My Name Is Fibromyalgia -

You should check out our website as it has lots of information about fibromyalgia.

mynameisfibromyalgia.com

04.05.2025 17:40 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

How can we support you

04.03.2025 10:46 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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We know we have days where our moods change. It's very easy to do when you are in pain all the time.

We care about you and send gentle hugs πŸ€—πŸ«‚πŸ€—πŸ«‚ your way!

#mynameisfibromyalgia #fibromysupport
#Spoonie
#fibrolife
#invisibleillnesses
#pain
#fibro
#Fibromyalgia
#fibrosupport

04.03.2025 09:52 β€” πŸ‘ 24    πŸ” 6    πŸ’¬ 2    πŸ“Œ 0
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Do you ever wonder how you got where you are today?

Because of the strength you hold inside.

We are stronger than we know. We are amazing people and we have a warriors mentality and strength within.

Gentle hugs πŸ€—πŸ«‚πŸ€—πŸ«‚

#mynamisfibromyalgia
#fibromyalgiawarrior

02.02.2025 02:37 β€” πŸ‘ 32    πŸ” 2    πŸ’¬ 3    πŸ“Œ 0

We are so sorry that you are going through so much. We know how bad things can get and you can always reach out to us on here or send our page a direct message for any help or support if you need it hun.

24.01.2025 04:51 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are so sorry that you are going through so much. We know how bad things can get and you can always reach out to us for any help or support if you need it hun.

Please πŸ™ please πŸ™ remember that we are always here for you.

Darren and Tanya

24.01.2025 04:49 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Fibromyalgia fog is a horrible symptom of fibromyalgia that unfortunately we all have to deal with at some point in our fibromyalgia journey.

Have you ever felt like this before, I know I have.

#mynameisfibromyalgia
#fibromyalgialife
#spooniewarrior
#fibromyalgia
#spoonie

23.01.2025 22:57 β€” πŸ‘ 37    πŸ” 2    πŸ’¬ 4    πŸ“Œ 0

How can we support you?

23.01.2025 22:54 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

How can we help you

23.01.2025 22:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

Thank you we will get graphic design to correct that. Fibro fog strikes again most likely.

20.01.2025 04:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are always looking for additional volunteers to be on our fibromyalgia awareness team and panel as well if that interests you.

20.01.2025 04:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Looking for answers about fibromyalgia?

Looking for help and advice about managing your fibromyalgia ?

Then check out our website.

mynameisfibromyalgia.com

12.01.2025 14:31 β€” πŸ‘ 14    πŸ” 3    πŸ’¬ 1    πŸ“Œ 0
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Here is the do’s and dont’s of shopping with fibromyalgia.

mynameisfibromyalgia.com/fibro-tips-a...

#mynameisfibromyalgia
#Spoonie
#Fibromyalgiaisreal
#fibrolife
#invisibleillnesses
#pain

01.01.2025 10:07 β€” πŸ‘ 8    πŸ” 2    πŸ’¬ 2    πŸ“Œ 0
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TRAVELING WITH FIBROMYALGIA IS A CHALLENGE TRAVELING WITH FIBROMYALGIA IS A CHALLENGE: Do you need to prepare yourself to travel, and are suffering from Fibromyalgia, we have some guidelines for you...

mynameisfibromyalgia.com/traveling-wi...

28.12.2024 19:34 β€” πŸ‘ 6    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What is your most favourite meal of the day,week, or even year.

I must say I do love a good roast with all the trimmings. Whether that’s on a Sunday, special occasion or even Christmas Day. I love it!!!

#fibro
#pain
#spoonie
#fibromyalgia
#fibrowarrior
#chronicpain

30.11.2024 22:09 β€” πŸ‘ 4    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0

We have sent you a message

29.11.2024 23:31 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are so sorry that you are going through so much. We know how bad things can get and you can always reach out to us for any help or support if you need it hun.

Please πŸ™ please πŸ™ remember that we are always here for you.

Darren and Tanya

29.11.2024 23:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are so sorry that you are going through so much. We know how bad things can get and you can always reach out to us for any help or support if you need it hun.

Please πŸ™ please πŸ™ remember that we are always here for you.

Darren and Tanya

29.11.2024 23:27 β€” πŸ‘ 2    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

We are so sorry that you are going through so much. We know how bad things can get and you can always reach out to us for any help or support if you need it hun.

Please πŸ™ please πŸ™ remember that we are always here for you.

Darren and Tanya

29.11.2024 23:27 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Are you wanting to raise awareness of what fibromyalgia really is and what it does to the people who have it?

We are now looking for additional volunteers to be on our awareness team and panel if that interests you in any way.

29.11.2024 19:09 β€” πŸ‘ 8    πŸ” 0    πŸ’¬ 3    πŸ“Œ 0
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Time to check in on all our fantastic Fibro Warriors.

Let us know how you’re getting on by posting your coloured heart below.

For me today is a πŸ’œ
So,what is yours?

#mynameisfibromyalgia
#actuallydisabled
#fibromyalgialife

29.11.2024 14:49 β€” πŸ‘ 12    πŸ” 1    πŸ’¬ 19    πŸ“Œ 0
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Ok here is our first question of the week.

What is your most favourite meal of the day,week, or even year.

I must say I do love a good roast with all the trimmings. Whether that’s on a Sunday, special occasion or even Christmas Day. I love it!!!

#mynameisfibromyalgia
#Spoonie
#fibrolife

25.11.2024 12:49 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 3    πŸ“Œ 0
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Happy Weekend everyone. Time to work on you and to relax the week away.

#chronicpain #chronicillness #fibromyalgia #fibromyalgiasupport #fibromyalgiaawareness #fibromyalgiapain #fibromyalgiawarrior
#fibromyalgialife
#fibromyalgiaproblems #fibromyalgiafighter
#fibro
#mynameisfibromyalgia

24.11.2024 21:14 β€” πŸ‘ 5    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Preview
Welcome to Becoming Like Water. - Hello. I’m Dr. Emmett Smith. My team and I would like to personally welcome you to Becoming Like Water, a website dedicated to helping you learn how to hurt less, and to manage your pain better. There...

The CBS report that opioid overdoses are down for the 12th month makes no distinction between Rx + illicit opioids.

They should. The cutbacks in Rx availability has been causing great suffering for the pain community.

Becominglikewater.com

24.11.2024 20:01 β€” πŸ‘ 6    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Hi warriors. Hoping your weekend is going well thus far.

So, tell me something good in your life?

Finding positives are great for your mental wellbeing which in turn helps when you are in chronic pain.

Practice finding the positive as much as you can.

#mynameisfibromyalgia
#pain
#fibro

23.11.2024 05:39 β€” πŸ‘ 7    πŸ” 0    πŸ’¬ 1    πŸ“Œ 0
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Hi warriors

Fibromyalgia warriors often have a low level of serotonin which is supposedly a factor in Dreaming.

So, my question to you is how often do you dream?
And how vivid are those dreams?

I seem to get extremely vivid dreams that wake me up repeatedly.

#Fibromyalgia
#spoonie

20.11.2024 07:56 β€” πŸ‘ 18    πŸ” 1    πŸ’¬ 11    πŸ“Œ 0
Preview
Introduction by Becoming Like Water

Hello I’m Dr Emmett Smith. This is our first weekly video. We want to welcome you all and let you learn a bit about us. We are wanting to introduce ourselves and give you an insight into who I am and what the β€œBecoming Like Water Program” is all about.

zoom.us/clips/share/...

#pain
#BLWprogram

18.11.2024 18:35 β€” πŸ‘ 10    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Our business partners @blwprogram.bsky.social and I are extremely proud to have you following us. And we feel honoured that you have allowed us to follow you back.

18.11.2024 03:26 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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All that matters is today. You can't change yesterday, only today. What you do today can change tomorrow.

#BecomingLikeWater
#cpp
#pain
#BLWprogram
#Fibromyalgiaisreal
#fibrolife
#pain
#chronicfatigue
#fibro
#Fibromyalgia
#fibrosupport
#spoonies
#chronicillness

18.11.2024 03:08 β€” πŸ‘ 15    πŸ” 2    πŸ’¬ 0    πŸ“Œ 1
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Self care is so important for our daily care.

Caring for ourselves body, mind and spirit is the only way we will live a well rounded life for us and our families and friends.

What kind of self care to you practice?

For me it's meditating.

#chronicpain #chronicillness #fibromyalgia

17.11.2024 04:15 β€” πŸ‘ 18    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0

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