Lucia Feito Allonca

📢We call on leaders of all levels & geographies to use the opportunity of the Global Week for Action on #NCDs, commit to investments in NCD response & translate their promises into reality. It's time to #LeadOnNCDs #ActOnNCDs

The world can't afford weakened commitments to WHO ‘Best Buys’. Ahead of #HLM4 & beyond, we call on governments to take the #LeadOnNCDs & implement these cost-effective measures to save lives. Join our Global Week for Action campaign here 👉https://actonncds.org/take-action

⚡️A watered-down commitments won’t save lives, they will cost them. As civil society, we won’t accept vague promises. We demand measurable progress on the world’s leading cause of death. 🤝Join the call to #ActOnNCDs together 👉https://actonncds.org/take-action

YouTube video by NCD Alliance Powerful voices for NCD leadership with lived experience advocates

El poder de las comunidades y de las voces con experiencia vivida 🌍✨

Nupur, Snehal, Samuel y Chikhu demuestran cómo su experiencia personal se convierte en una herramienta de cambio.

Me reuní con ellos en el Global NCDA Forum

🎥 Mira el video completo aquí: www.youtube.com/watch?v=rIuN...

FórumCCNTs participa de proposta por carta global com apelo para a inclusão do Diabetes Tipo 1 na HLM4 Durante o evento Voices in Action: People Living with Diabetes in Global Health, no último sábado (26), FórumCCNTs participou da proposta de uma carta global, endossada por 206 líderes e 64 instituiçõ...

#voicesinaction #diabetes #UNGA

Please join us in thanking Dr. Mikkelsen for bringing her vision, deep experience, and long-standing commitment to improving outcomes for people living with #diabetes worldwide. We can’t wait to learn from her! #voicesinaction

Join us this Saturday for two lively discussions and a chance to meet fellow people living with diabetes in #globalhealth.

Register here: lnkd.in/g_JB3B-9

🚨BREAKING: Oxfam and over 130 organizations demand an immediate end to Israel's deadly distribution scheme, a return to UN-led coordination, and the lifting of the brutal blockade on #Gaza.

Read our joint statement 👉https://oxf.am/3TksrtE

The WHO Hub in Berlin: driving innovation to make the world safer from health threats Building on lessons learned from the COVID-19 pandemic, the WHO Hub for Pandemic and Epidemic Intelligence in Berlin leverages innovative tools and collaborations for more effective disease surveillan...

In a world where health threats spread faster than ever, the WHO Hub in #Berlin is developing cutting-edge tools & partnerships to help 150+ countries detect outbreaks faster & prevent future pandemics.

Learn more in the Hub’s annual report 👉 bit.ly/4n6FTyW

🔍 The future of healthcare: Integrating digital solutions beyond clinical settings, capturing value throughout the patient journey.

🌐 Digital tools aren't just technologies - they're empowerment platforms for patients, enabling better self-management and healthcare interaction. #PatientEmpowerment #HealthInnovation

🇪🇺 European HTA bodies are collaborating to create a unified approach for evaluating digital health technologies. Harmonization and innovation on the horizon! #EUHealthTech #Collaboration

🩺 Patient involvement is key in digital health solutions! Safety, data governance, and trust are top priorities for technology development. #PatientCentric #DigitalHealth

🔬 Digital health technologies offer real-time data linking and cross-therapy evidence generation. Stakeholder engagement is crucial for meaningful insights! #HealthTech #EvidenceGeneration

Diabetes and HTA 💙

Key skills for patients in health technology assessment: knowledge, communication, leadership, negotiation, and personal disease experience. #HTAi2025 #HealthcareInnovation

Challenge: increasing patient associations' participation in technology assessment. Training, clear language, and AI use can help bridge the gap. #HTAi2025 #PatientEngagement

Three pillars for fair health decisions: quality patient contributions + proper analysis + real integration of their perspective. Technology centered on people. #HTAi2025 #HealthTechnology

Patients are key in health decisions: personal experience matters as much as scientific evidence. Brazil and Argentina share strategies for patient involvement in health technology assessment. #HTAi2025 #PatientCenteredCare

FINAL THOUGHTS
• Argentina has made progress in institutionalizing patient involvement—
but gaps remain.
• Challenges include representation, technical complexity, and limited early-stage participation.
• Capacity building and accessible tools are essential
IECS

• A Patient Advisory Board supports HTA and appoints representatives to:
• Prioritization Committee (defines assessments)
• Technical Committee (discusses value and final recommendations
• Voice but not vote.

PATIENT INVOLVEMENT IN ARGENTINA 🇦🇷: NATIONAL
LEVEL - CONETEC
•Decree 344/23 promotes participation across HTA stages and requires simplified reports.
•A Citizen Participation Area manages proposals, liaises with patients, and handles ethics/legal aspects.

• New domains (e.g., environmental impact, digital technologies) call for new perspectives.
• Decisions must be ethically legitimate and socially acceptable.
• "Patient participation is no longer optional-it is essential

WHY PATIENT
INVOLVEMENT MATTERS
MORE THAN EVER?
• Access to complex, high-cost health technologies demands inclusive decision-making.
• Patients' expectations, values and real-world experiences are essential to ensure relevance.