Karen Macpherson #MDANT

Thats @alexmac06.bsky.social off to school for his very last day after 17 years!😢
Trying to keep it together but an emotional day
Got summer holidays to try & keep him occupied before he starts college in September!! Onwards and upwards
#ProudMum
(📷2011 when he started full time vs today)

Dropped @alexmac06.bsky.social off at his new college for his taster day…Yes, my boy is GOING TO COLLEGE in September🤩 #MegaProudMum
Thought I’d check out the beach in Morecambe for a bit of🪁flying but sand too wet then the heavens opened…so now trying to dry out with a brew+ sea view!!

19 years, 4 months and counting!!
But even though it’s affecting my health at the moment, I’ll always be there for my boy ❤️ #ProudMum #SENDMum #HesMyHero @alexmac06.bsky.social

My ‘bed’ for the night…again 🤦🏻‍♀️ Sleep or no sleep 🤔
At least sleeping beauty seems to be on the mend thankfully @alexmac06.bsky.social

Going to be very strange not going back.. we’ve spent a lot of time there over the years, from clinics.. to routine surgery to make his life better… to saving his life when things got really bad, they are all very special people there ❤️

I’ve lost count how many times I’ve seen The Alarm/Mike Peters over the years…so sad that his battle against cancer could not be won, he will be greatly missed 💔 Rest easy Mike

Soooooo…. After a day spent in 2 A&Es (we needed urology so had to go back to Preston hospital), we’ve got another nights stay to look forward to 🤦🏻‍♀️
as the Drs just want to keep an eye on his fluid levels overnight #AnotherNightOfNoSleep
( I swear this kid was sent to try me 😂)

We have smiles!!! 😍
After a night of no sleep, we’re waiting on results of a CT scan of his bowels to see what happens next…. 🤞🤞🤞🤞🤞 nothing serious!!! @alexmac06.bsky.social

Thanks everyone got your messages, @alexmac06.bsky.social finally got a bed in A&E at about 1am…had tests, seen some drs waiting for more drs… oh and he’s still wide awake!!!! Mind you I won’t get much sleep in a chair anyway 🤦🏻‍♀️ #ICantGetNoSleep

Well we hadn’t planned to be in A&E with Alex this evening.. he should have been at respite 😢 #LongWait #StressedParents

Sunday was a nice day for a walk in the country…made me realise how lucky I was to grow up in such beautiful surroundings!! Didn’t really appreciate it back then 😂

…..cont Having fun!!!!

Happy days … On This Day 2019 ❤️❤️❤️ #WalkingHandInHandWithMyBoy😍
Think it’s time we got a new trike and try & undo the effects of puberty since then which messed with his joints & muscles, made worse by lockdown🤦🏻‍♀️ Growing can be really cruel with cerebral palsy
#MySuperhero

It’s like a planning a military operation 😂
Tickets & seating✔️
Wheelchair access & extra bags allowed in✔️
Logistics for somewhere to do feed & meds✔️
Parking 🤞
@alexmac06.bsky.social prepared for a night out with Mum🤞🤞
Primal Scream at Liverpool Uni here we come😁

Thanks kiddo 😘 😘

Thank you sweetie…I owe it all to you ❤️😘🦸🏻‍♂️

Bit of a crazy morning, @alexmac06.bsky.social had a wheelchair appointment at 10:30am to pick up a new one…but that had to wait cos I had to buy some @edwyncollins.bsky.social tickets first!!
Getting my priorities right 😂 (we did make it just in time!) …Manchester gig here I come 😎 #HappyMum

Wishing my amazing son a Very Happy 19th Birthday…he didn’t have the best start in life but has more than made up for it 🥰
HAPPY BIRTHDAY @alexmac06.bsky.social xx
🥳 🎁🎈🎉🎂 #MySuperhero #LastYearAsATeenager😳

Pretty sky this evening

a black and white drawing of a man wearing a military hat with a skull on it . ALT: a black and white drawing of a man wearing a military hat with a skull on it .

#ActionmanAlex IS BACK!!! @alexmac06.bsky.social has been to BendriggTrust today with school & after zip-lining, rock climbing and abseiling has come home in a very good mood!!! Pictures to follow when I get them #BeMoreAlex #AdrenalineJunkie

I certainly did!!! 😎

After all the stress and worry, it seems @alexmac06.bsky.social has had a good night so best getting packing for my road trip to Glasgow!!
See you all later 😁 🎶 💃

I swear my kid is sent to try me 🤦🏻‍♀️ … this weekends respite is at risk cos he’s a bit off colour this morning 😳
No respite = no Bluebells tomorrow 😭
Come on @alexmac06.bsky.social 🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞🤞

Totally swamped in admin paperwork for @alexmac06.bsky.social over the last couple of months…from college applications to keeping up with medical appointments to today’s joy of checking through his amended draft EHCP🤦🏻‍♀️ + a ☎️ Drs appointment for him #FullTimeJob #INeedABreak #RunningOnEmpty

Looking forward to a trip north for this … an evening of the best music and catching up with lots of people!! Just got to work on keeping young @alexmac06.bsky.social well for respite so I can escape!!! #CantWait #MuchNeededBreak #TheBluebells

Oh how I hate having to catch up on sleep during the day….but when my little superstar @alexmac06.bsky.social keeps me up all night then I need to sleep before I fall over!!!
Wouldn’t mind, but he’s bright & breezy this morning 🤷🏻‍♀️
Oh to be a teenager again 😂

Been a crazy couple of days on the 📞 to nurses/Drs secretaries to get meds upped for @alexmac06.bsky.social as his epilepsy raised its ugly head again after 4.5 years😢
Turns out its been so settled, hes dropped off the neuro radar🤦🏻‍♀️
But teatime call from consultant-on the way to sorted🤞

Had a trip over to Yorkshire to Skin Magick to get a touch up done on my wrist tattoo & we thought we’d stop off at The Atom Panopticon on the way for a walk…. Bit too wild up there though so didn’t get to stay long 😂 Will definitely have to go back on a better day!
#WhileTheKidsAway

After a panic that me & @alexmac06.bsky.social had Covid again for Christmas, tests done and thankfully we’re all clear *phew*, just feeling a bit ropey!

So we wish everyone a wonderful Christmas and a Happy New Year!! 🎄🎅🏻

A memory popped up on my FB of a 3yr old @alexmac06.bsky.social playing in the snow!!! Life was so much easier with a little Alex! 😂