Sam Roods

YouTube video by Sequoia Project Moving Towards Computable Consent: Findings and Next Steps

IMHO, the webinar offers one of the most comprehensive overviews--including challenges & opportunities from policy, operational, AND technical perspectives--of the health data privacy and consent landscape.

You can watch the recording at the the link: www.youtube.com/watch?v=gJd_...

On Monday I joined interoperability and privacy experts in a discussion and presentation of the recent Sequoia Project white paper on #privacy and #consent.

This webinar recap is part of a weeklong series for #HealthDataWeek where we’re highlighting the power of health data to drive better care and outcomes for patients.

👇 Check out the key takeaways from the conversation I co-led with Kyle Probst on the evolving state policy landscape and what it means for the use of health data.

www.datavant.com/hipaa-privac...

Y'all! It's National #HealthDataWeek: a time to spotlight the issues and innovations shaping the future of health data.

I’m proud to be part of a team that’s leaning into some of the most important and complex questions in health data policy today, from privacy to interoperability to AI.

Headlines: Datavant acquires Aetion - Akido Labs raises $60M - VA hopes to go live at 20 sites in 2027 - Sprinter Health raises $55M histalk2.com/2025/05/15/m...

10/ 📅 Register here: webinar.datavant.com/datavant/sta...

#HealthPrivacy #HealthAI #HealthcareCompliance #HealthIT #DataPrivacy #AIinHealthcare #RegulatoryCompliance #HealthPolicy

9/ For all of my tired and overused self-deprecation, it’s a serious topic that deserves serious attention. I hope you can join us.
#HealthPolicy #DataPrivacy

8/ 🧭 Practical strategies for tracking and responding to a rapidly evolving landscape
#RegulatoryCompliance #HealthPrivacy

7/ 📣 Best practices for communicating state-level changes to staff, leadership, and customers
#HealthcareCompliance #HealthIT

6/ 🏛️ Topics to monitor across states: AI, sensitive data segmentation, record retrieval pricing, and consumer privacy
#HealthPolicy #AIinHealthcare

5/ ❓ Common areas of uncertainty—like how states define “health data” and treat de-identified data
#HealthIT #DataPrivacy

4/ 🔐 How emerging privacy laws impact health data both within and beyond HIPAA
#HealthPrivacy #RegulatoryCompliance

3/ 📜 Key state legislative trends, including consumer privacy laws and efforts to regulate AI in healthcare
#HealthAI #AIinHealthcare

2/ If you want to understand how state legislatures are reshaping the future of health data privacy (and can tolerate me getting a smidge too excited about policy), join me and my much more qualified colleague Kyle Probst for a webinar on:
#DataPrivacy #HealthcareCompliance

For reasons still unknown, I’ve been entrusted to talk about state health data legislation and regulation at an upcoming Datavant webinar. 😬
#HealthPrivacy #HealthPolicy

📅 Register here (details in 🧵): webinar.datavant.com/datavant/sta...

🧵 1/

Headed to DC.

No additional comments at this time I’m just sleepy.

Wow @healthapiguy.bsky.social was right. @heyepic.bsky.social is on BlueSky.

Me, every day.

Deleted an April Fools' post I made earlier because today, of all days, is unfortunately not a day for humor and levity.

The Federal government is being reshaped before our very eyes, at the expense of the individuals who dedicated their lives to public service & the vital programs they supported.

Former FDA Commissioner:

Hearing from all corners of HHS this morning about a total bloodletting — firings of scientists, analysts and many more as delayed RIFs take effect.

Many folks didn’t see early AM email and showed up, only to be turned away when badges didn’t work. Was sent this photo of long lines at one HHS site.

a small white dog is sitting in the back seat of a car looking out the window ALT: a small white dog is sitting in the back seat of a car looking out the window

15/15 That’s it. That’s the thread. Happy Monday!

(gif related, I'm the one on the left)

14/ Lastly, stay grounded in your moral and ethical convictions. Live them as much as you can.

13/ Look to the states that continue to push ahead in value-based care and social service coordination beyond simply clinical care… (and scale it)!

12/ #Standards will fall back on industry to set and implement. (Call me an ANSI alumn here, but) Standards help everyone, and evidence shows the very real cost savings of collecting and addressing SDOH/SOGI data elements.

11/ They (industry associations) will also need to lead the push for harmonized state legislation in the absence of federal guidance.

10/ Industry associations will play increasingly important roles, to step in and bring together the smartest people in the room, not just the biggest. They have an obligation to participate and enhance the health data ecosystem, supporting #publichealth, #research, and improved #patientaccess.

9/ So what can happen? What should happen?

8/ States will fill legislative and enforcement gaps in transformative ways.