💙 Will you take the next step with us? Join our community of Hope Builders by becoming a monthly donor to #OMF!! 👉 https://ow.ly/aJCP50VjlWq
Your support fuels #MECFS and #LongCOVID research, bringing us closer to solutions.
🧬Science Wednesdays: Estimating Lifetime Prevalence of #MECFS
Based on published research, the lifetime prevalence of ME/CFS is over 279 million people, which is around 1 in 29. 🔗 Read more about lifetime prevalence of ME/CFS: https://ow.ly/iR4q50Ysroa
📚OMF Journal Club: March 11 at 11 am ET
Dr. Meadows will discuss the latest paper from Dr. Jonas Bergquist and collaborators: "Plasma proteomic profile reveals persistent immune activation in post-acute sequelae of SARS-CoV-2 infection (PASC)."
👉 Sign up: https://ow.ly/qyW950YrjKe
From his bed, Sebastian creates Drum & Bass 🎶
Two years ago, he was active, sporty, and highly driven. Today, he is around 90% bedbound. He works on music when he can & his work has reached over 1.5 million streams on Spotify. Read Sebastian's story👉 https://ow.ly/n2KZ50YpIqX.
Hope for people with #MECFS and #LongCOVID starts with research.
When you become a monthly donor — a Hope Builder — you provide steady support that helps sustain critical research programs and move discoveries forward.
👉 Become a Hope Builder today: https://ow.ly/V98M50YpHsm
In the context of research, calling something “significant” is a statistical description. It’s a term that indicates it’s unlikely that random chance could explain a result.
🔗Learn more about calculating significance in #MECFS research: https://www.omf.ngo/significant/
Dr. Bergquist & his collaborators published a paper looking at protein levels in people with post-acute sequelae of SARS-CoV-2 infection and controls who recovered from a SARS-CoV-2 infection.
🔗 Learn more about this publication and the next Journal Club: https://ow.ly/mwbX50YoHEn
In 2025, OMF launched a large-scale #MECFS biomarker project called BioQuest. Cort Johnson’s article explores the study and includes insights from Dr. Danielle Meadows, OMF’s Vice President of Research Programs & Operations.
🔗 Read the article here: https://ow.ly/zgGn50YocTW
🤝 Be a Catalyst for Change: Join Hope Builders
Hope Builders are our cherished monthly donors. This March, we’ve embarked on a mission to welcome 30 new Hope Builders by the month’s end.
Will you be one of them? 💙Join us and fuel progress: https://ow.ly/Ep7m50YnEOO
From the OMF-supported Medical Education Resource Center (MERC) with @batemanhornecenter.bsky.social ⬇️
Encephalopathy generally describes a condition that affects brain function. There are different causes of it, including infection, exposure to toxins & more. Learn more about encephalopathy and the Uppsala CRC investigation into post-viral encephalopathy: https://www.omf.ngo/encephalopathy/
🎉15,000 Participants and Growing: The OMF StudyME Registry
🌎 StudyME is a free global participant registry, serving as a recruitment tool to accelerate research on #MECFS, #LongCOVID, and other related illnesses.
Learn more and join StudyME today: https://ow.ly/3ALK50Yl576
OMF honors and recognizes the dedication of caregivers who provide daily support, advocacy, and stand beside loved ones living with #MECFS, #LongCOVID, and related diseases.
To every caregiver: thank you. You make a difference. You matter.💙
In Case You Missed It: A newly published protocol in npj Women's Health introduces the MELLOW study, a global collaboration between OMF’s Melbourne and Uppsala teams.
🔗 Read the full protocol: https://ow.ly/pJlC50Y0new.
Dose titration is the process of gradually changing (titrating) the dose of a drug to get the best effect while minimizing side effects.
Learn more about dose titration and OMF's Life Improvement Trial (LIFT): https://www.omf.ngo/dose-titration/
Dr. Christopher Armstrong and his team at OMF's Melbourne ME/CFS Collaboration have been awarded nearly $1 million through the Australian government’s Medical Research Future Fund (MRFF) for the project Energy inefficiency in #LongCOVID and #MECFS.
👉 Learn more: https://ow.ly/hj9F50Yh6TY
Reminder: Today, we celebrate you and the strength you show every day. You are strong, you are resilient, and you are not alone. 💙
Brief description: double-blind, placebo-controlled investigation of pyridostigmine (Mestinon) and low dose naltrexone (LDN)
Time required: 3 months, 3 onsite visits, 4 virtual visits
Study tasks: sub-maximal exercise test(s), biweekly questionnaires and brain games, blood draws
The Mestinon/LDN Life Improvement Trial (LIFT) is seeking eligible research participants now within 300 miles of Brigham and Women’s Hospital at Harvard Medical School.
Learn more about the LIFT: https://clinicaltrials.gov/study/NCT06366724
Because of our incredible community, 2025 was a year of meaningful progress.
We’re proud to share our 2025 Annual Report, highlighting the milestones we reached together and the momentum we’re building for the year ahead. 🤝
🔗 2025 Annual Report: https://www.omf.ngo/2025-achievements/.
Precision medicine is a way of treating a disease differently based on a person’s symptoms, genes, environment, or other factors.
Learn more about precision medicine and OMF’s Melbourne Collaboration project: https://www.omf.ngo/what-is-precision-medicine/
🔬Help advance #MECFS and #LongCOVID research by joining OMF’s StudyME, a free global participant registry that connects you with researchers conducting studies in these areas. Healthy volunteers are needed too!
👉 Sign up today: https://www.omf.ngo/studyme/
We’re releasing a new State-by-State Resource Directory to help people living with ME/CFS and other disabling chronic illnesses find local and national support.
Free, practical, and built for real life.
🔗https://bit.ly/3ZBBIAC
A #phenotype is an observable characteristic (e.g., physical trait, presence of disease), and it is determined by the interaction of a person’s #genotype (genetic makeup) and their environment.
Learn more about phenotype: https://www.omf.ngo/phenotype/
Get the latest on OMF research in 2026.
➡️ Add impact to your inbox! Subscribe to OMF newsletter 👉 https://ow.ly/w0TO50WwRs4
🌟 When you subscribe, you’ll get the latest on OMF research, announcements, campaigns, and more—delivered straight to your inbox.
#pwME #MECFS #LongCOVID #pwLC #OMFResearch
From the OMF-Supported Medical Education Resource Center (MERC) with @batemanhornecenter.bsky.social
A retrospective study is one that is conducted on existing data, in contrast to a prospective study that actively collects data. In #MECFS research, both retrospective and prospective studies are important.
👉 Read more: https://www.omf.ngo/retrospective-vs-prospective-study/
🩺 Share OMF’s VuMedi channel with your healthcare professional: https://ow.ly/CFVu50Y4lpZ
OMF’s expert-led channel features research-informed videos on #MECFS, #LongCOVID & related conditions to support evidence-informed care. Access limited to licensed healthcare providers.
TELEHEALTH UPDATE: The House passed the Department of Health and Human Services’ funding bill yesterday, including telehealth extensions.
Under the proposal, Medicare telehealth flexibilities would be extended by 2 years, until Dec. 31, 2027. They are not permanent so there is still work to be done.
A newly published protocol in npj Women's Health introduces the MELLOW study, a global collaboration between OMF’s Melbourne and Uppsala teams.
🔗 Read the full protocol: https://www.nature.com/articles/s44294-025-00120-9.
#WomensHealth #MECFS #LongCOVID #CircadianRhythm #HormoneResearch
