6/6 As systems reshape, insights from families and frontline practitioners are vital.
Future provision must be nuanced enough to reflect the complexity of childrenβs needs.
@holistichv.bsky.social
π¬π§Holistic, inclusive, trauma-informed, neurodivergent experience and inequalities aware, paediatric Nurse, Health Visitor &researcher (with lived experience of ADHD, hEDS,CRPS & SEND parenting). Think KPI (not β box)- Keeping People Included! Views my own.
6/6 As systems reshape, insights from families and frontline practitioners are vital.
Future provision must be nuanced enough to reflect the complexity of childrenβs needs.
5/6 With the SEND White Paper released today, shared understanding across health, education & social care is essential.
This isnβt about βnurturingβ vs βspecialist.β
Itβs about ensuring both; and supporting professionals to distinguish trauma-driven avoidance from neurodivergent threat responses.
4/6 If PDA is understood solely through a trauma lens, strategies like graded exposure or resilience-building can unintentionally escalate distress.
PDA-affirming practice centres:
β’ Autonomy
β’ Collaboration
β’ Flexibility
β’ Novelty
β’ Reducing unnecessary demands
3/6 But the frameworks are not interchangeable.
Trauma-informed asks:
βWhat has happened to this child?β
PDA-affirming asks:
βWhat does this demand represent to this childβs nervous system?β
That distinction matters.
2/6 Trauma-informed schools can feel instinctively βright.β
They prioritise:
β’ Relationships
β’ Emotional safety
β’ Low-arousal environments
β’ Behaviour as communication
These principles align closely with PDA-affirming practice.
Choosing the right educational setting for a neurodivergent child with a PDA profile is rarely straightforward.
Increasingly, professionals are balancing autism-specific provision with trauma-informed or SEMH approaches β as more children present with overlapping needs.1/6
β¦not stopping because the need above clearly meets threshold for help. They care about those on the lower levels but their need for life saving help isnβt as obvious. Itβs not an exact analogy- Those at βfire levelβ today can still be rescued. But we must protect those on lower levels! 2/2
11.09.2025 07:47 β π 1 π 0 π¬ 0 π 0
Early intervention is key! Today, September 11th, is apt to explain my thoughts; itβs like planes have crashed into the metaphorical Towers of the SEND and mental health systems. All the services are rushing up to the top- theyβre passing casualtiesβ¦ 1/2
www.instagram.com/reel/DOa15DO...
THIS is what leadership in public life and press looks like
Anything less is quite frankly a disgrace
πIn a new blog on the hub today, our Associate Director @safetynurse999.bsky.social talks about the opportunities to improve patient safety and the risks associated with the use of barcode technology in healthcare. www.pslhub.org/learn/improv... #patientsafety
06.08.2025 07:49 β π 5 π 4 π¬ 0 π 3The current focus is on quantitatively clearing the backlog. However, the qualitative content of the plans must be considered. If they are not fit for purpose, the children will jump from a long wait for EHCNA conclusion to a long wait for tribunal- with needs growing as they wait.
30.07.2025 12:16 β π 0 π 0 π¬ 0 π 0
β¨ What Are Glimmers? β¨
Glimmers are small, powerful moments of Autistic joy that emerge when weβre deeply immersed in what matters to us.
π± Discover how monotropism & flow create space for joy in an often overwhelming world. π«
Find out more: autisticrealms.com/glimmers-aut...
#Oliverscampaign
A dying mother called 999 pleading for help, yet no ambulance came. Her body went unnoticed for months, alongside her dead disabled daughter, who had been left alone and helpless.
This is what happens when our systems fail the most vulnerable.
www.bbc.com/news/article...
Lottie Fitzgerald, 35, from Southsea, has developed a strong attachment to a blue studio pottery mug she was given last Christmas. She reports that she is beginning to feel intensely anxious about the effect on other mugs that she owns.
21.07.2025 10:22 β π 206 π 34 π¬ 10 π 15I remember a nursing matron throwing out my favourite mug once because someone else used it and didnβt wash it. Thatβs work place reasons right there π
21.07.2025 11:18 β π 2 π 0 π¬ 0 π 0
This article covers the problem. Itβs across the whole of the UK
onthewight.com/isle-of-wigh...
@bbclooknorth.bsky.social @bbcnewsnight.bsky.social @jamesfitzjourno.bsky.social @davidmilliken.bsky.social @marthe.co.uk @asylummatters.bsky.social @asylumadvocacy.bsky.social @uk.unhcr.org @carers-uk.bsky.social @koppensteiner.bsky.social
20.07.2025 19:43 β π 1 π 0 π¬ 0 π 0Is anyone else affected by EML/ Prepaid financial services data migration glitch? Carers have not been unpaid and families of vulnerable children and adults plus asylum seekers havenβt been able to access essential funds for a week. Yet the media is silent. Help! @martinlewis.moneysavingexpert.com
20.07.2025 19:30 β π 1 π 2 π¬ 2 π 0My muscles were tested carrying end of term gifts into school today. But itβs clear that such hydration is merited for the wonderful bunch of humans who have nurtured my orchid so well this year, despite his (much needed) EHCP being stuck in the system - 56 weeks since EHCNA request!
17.07.2025 13:49 β π 3 π 0 π¬ 0 π 0
Good to be me!
Sharing the most amazing video from @spectrumgaming.bsky.social a charity for Autistic young people in UK. Many Autistic people struggle with their autism diagnosis; they made a wonderful video about it.
youtu.be/0pibDq98raQ?...
I cry happy tears EVERYTIME I watch this - beautiful!
π§΅Fit notes are a legal statement of whether you are unfit for work, based on medical judgment. If the pilot announced this week steers GPs and allied professionals to only issue a fit note if you engage with support plans, it will become conditionality by the back door.
12.07.2025 21:43 β π 55 π 16 π¬ 7 π 0Thought for the day: When we focus solely on how we diverge, we get on each otherβs nerves! We must remember what connects humanity.
11.07.2025 12:44 β π 1 π 0 π¬ 0 π 0For SEND parents, the system is like being forever stuck in Minecraft survival mode. Creative mode- the place where you feel yourself- is a distant memory. You donβt dare dream anymore. The unlawful behaviour of LAs and the endless unknown waits break your spirit. Yet you keep going- you have to
09.07.2025 08:31 β π 1 π 0 π¬ 0 π 0Leaders should never avoid critique nor create chambers where they only listen through a filter created by their organisations culture. Courageous leadership embraces the discomfort of different views as a pivot for reflection and change. Innovation and sustainable improvement stems from bravery
08.07.2025 12:22 β π 1 π 1 π¬ 0 π 0@bfn-uk.bsky.social show exactly how much skilled breastfeeding support can contribute to the goals of the #NHS10YearPlan #FitForTheFuture #BreastfeedingMatters
04.07.2025 20:26 β π 2 π 1 π¬ 0 π 0These are wise words β€οΈ Knowing the meaning of someoneβs silence springs from relationship, connection and understanding!
03.07.2025 09:17 β π 2 π 0 π¬ 0 π 0Imagine having all the money in the world and spending $400m on this horrific piece of crap.
01.07.2025 20:29 β π 278 π 72 π¬ 18 π 1
Can't shut off our idea switch - "That is another form of nervous system dysregulation..." Dr Cathleen King.
See longer video, plus to podcast, plus links to resources: How our greediness for creative ideas can support nervous system dysregulation thecreativemind.substack.com/p/how-our-gr...
image shows speech therapist with young boy colourised in bright blue
NEW POST: "Total Communication" is a "cutting-edge" approach to supporting children with #SpeechAndLanguage challenges. It's helping unlock children's potential at Meath School, run by charity, @speechandlanguk.bsky.social www.specialneedsjungle.com/d...
02.07.2025 05:02 β π 3 π 1 π¬ 0 π 0