C17 Council

We’re pleased to share the revised 2025-2029 Strategic Plan!

We’re grateful to our patient and family partners, researchers, institutions, and collaborators who shaped this evolution.

Read the full plan here: static1.squarespace.com/static/662c1...

#RareDiseaseResearch #PediatricRareDiseases

Hyundai Hope on Wheels Canada & C17 Council – 2026 Research Grant Competition c17.ca/committees/r...

The #AYACSM (Adolescent and Young Adult Cancer Societal Movement; founded in 2013) relaunching chats this year.

What We Know (and Still Don’t Know) About Genes and Blood Cancer LLSC is the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients.

On April 24, join the Leukemia & Lymphoma Society of Canada for webcast exploring inherited risk, genetic mutations and what emerging research means for you and your patients. www.bloodcancers.ca/events/what-...

JOB DESCRIPTION: Clinical Trials Regulatory and Finance Assistant, C17 Council Job Title:                        Clinical Trials Regulatory and Finance AssistantFTE:                               1.0  FTEOrganization:                C17 Council, Pediatric Hematology/OncologyL…

We’re Hiring!

Clinical Trials Regulatory and Finance Assistant – C17 Council
Position: Clinical Trials Regulatory and Finance Assistant
Location: Edmonton area (Work From Home)
1.0 FTE
c17blog.wordpress.com/2026/02/24/j...

Feb 28 is Rare Disease Day.

400M people worldwide are impacted by rare diseases, 200M are children. RareKids-CAN is accelerating access to pediatric rare disease trials and treatments across Canada. Find out how at www.rarekidscan.com

#RareDiseaseDay #HealthEquity #PediatricRareDisease

Welcome! You are invited to join a webinar: ACCESS Presents: Psychosocial Screening Recommendations in Pediatric Cancer. After registering, you will receive a confirmation email about joining the webi... Current practice guidelines in pediatric cancer care recommend routine psychosocial screening. However, widespread adoption of systematic screening remains limited, in part due to the large number and...

ACCESS Presents: Psychosocial Screening Recommendations in Pediatric Cancer
Date: Wednesday, February 25, 2026
Time: 12:00 – 1:00 PM ET
ca01web.zoom.us/webinar/regi...

Canada’s too-strict drug price controls are a health hazard | Montreal Economic Institute Without abandoning cost-effectiveness or writing blank cheques, we need to recognize the limits of a model that prioritizes the lowest possible price, regardless of the impact on access and innovation...

Canada’s too-strict drug price controls are a health hazard www.iedm.org/canadas-too-...

First Connection Peer Support Program LLSC is the largest voluntary health organization dedicated to funding research, finding cures and ensuring access to treatments for blood cancer patients.

First Connection Program: peer support for parents @LLSCanada www.bloodcancers.ca/first-connec...

Webinar: Navigating Peadiatric Assent in Canada and Launch of CHEER Assent Materials!
With Katie O'Hearn and
Darlene Durand
February 18, 12.30 - 2.00PM EST
mcusercontent.com/bedac0a08eb3...

C17 Job Postings
Pediatric Hematologist
Location: Stollery Children's Hospital, Edmonton, AB
c17.ca/administrati...

In her latest blog, the Commissioner reflects on IPC’s 2026 Privacy Day and the urgent need for trustworthy AI in health, alongside the launch of new guidance on AI scribes.

Read the Commissioner’s blog and watch the full event webcast: www.ipc.on.ca/en/media-cen...

Pan-Canadian trials to treat baby brain cancer launches, building on research from SickKids hospital in Toronto | Watch News Videos Online Watch Pan-Canadian trials to treat baby brain cancer launches, building on research from SickKids hospital in Toronto Video Online, on GlobalNews.ca

The DECRYPT‑BABYBRAIN clinical trial has hit the news.
Fantastic to see this groundbreaking research gaining the attention it deserves. globalnews.ca/video/116568...

Official website of World Cancer Day by UICC | 4 February An international awareness day led by the Union for International Cancer Control (UICC) to raise worldwide attention and inspire action for a cancer-free future.

World Cancer Day: Cancer is more than just a medical diagnosis – it’s a deeply personal matter. Behind every diagnosis lies a unique human story – stories of grief, pain, healing, resilience, love and more. worldcancerday.org

Canadian clinical trial underway to enhance cancer treatment for young people A first-of-its-kind Canadian clinical trial looks to enhance treatment and quality of life for babies and young children with rare and aggressive brain cancers.

A first-of-its-kind Canadian clinical trial looks to enhance treatment and quality of life for babies and young children with rare and aggressive brain cancers. www.ctvnews.ca/toronto/vide...

The DECRYPT-BABYBRAIN clinical trial brings together leading paediatric centres coast-to-coast to pioneer a radiation-free approach to treat rare and aggressive brain cancers in babies. www.sickkids.ca/decryptbabyb...

Call for Abstracts — 2026 NorthWest SPOR Collaborative Forum

Call for Abstracts! AbSPORU's 2026 Conference on Patient-Oriented Research: People and Partnerships: Powering the Future of Health Research
May 12 - 13, 2026
Chateau Lacombe hotel in Edmonton, Alberta
Abstract submission deadline: Feb 8, 2026 @ 11:59 pm MT whova.com/call_for_spe...

Hyundai Hope On Wheels has committed $750,000 over the next three years to support a national expansion of the STEP 1 Program. www.hyundainews.ca/releases/4469

Hyundai Hope on Wheels (HHOW) has made a committment of $4.1 million in 2026 to help fight paediatric cancer and improve access to life-saving treatments for children and their families. www.hyundainews.ca/releases/4469

Every child deserves the best care. That’s why we connect pediatric oncology centers nationwide to share data, research, and expertise. #PediatricOncology

The Kids with Cancer Society (KWCS) Seed Grants will support pediatric cancer research at the University of Alberta. Funding is available for 2 grants of $70,000 each.
www.ualberta.ca/en/cancer-in...

An Environmental Scan of Services for Adolescents and Young Adults Diagnosed with Cancer Across Canadian Pediatric and Adult Tertiary Care Centres
www.mdpi.com/1718-7729/33...

3CTN developed the Canadian Remote Access Framework for Clinical Trials (CRAFT), a framework which aims to bring high-quality trial options to underserved communities by engaging local care providers and enabling decentralized trial delivery. 3ctn.ca/for-research...

Association Between Distance to Care and Nonmedical Costs Among Families of Children With Cancer app.sosido.com/articles/997...

Canada’s Clinical Research Workforce Strategy:
This new resource highlights key priorities, insights, and tools aimed at strengthening and supporting the clinical research workforce across Canada. n2canada.ca/canadas-clin...

Help Shape How Children Learn About Cancer ACCESS is supporting a research initiative led by its Knowledge Mobilization team to better understand...

Help Shape How Children Learn About Cancer link.sosido.com/mmrzwO

Join for an exciting webinar exploring family and researcher perspectives on assent in child health research — plus the launch of CHEER’s new assent materials!
📅 February 18, 2026
⏰ 12:30–2:00 PM EST
queensu.zoom.us/meeting/regi...

Reform of the EU pharmaceutical legislation | European Medicines Agency (EMA) Information on the upcoming changes introduced by the European Union's (EU) comprehensive overhaul of its pharmaceutical legislation.

The European Parliament and the Council of the European Union have reached political agreement on the reform of the EU pharmaceutical legislation www.ema.europa.eu/en/about-us/...

Where two worlds meet: The importance of cultural sensitivity in medicine - Healthy Debate "I felt not like a physician but more like an interpreter – not of language, but of the space between two worlds."

Where two worlds meet: The importance of cultural sensitivity in medicine

healthydebate.ca/2026/01/topi...

Patient Voices Leading Change
A Call to Action for Careful, Kind, and Connected Patient-Partnered Research in PCORnet® journals.lww.com/lww-medicalc...