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C17 Council

@c17council.bsky.social

An organization composed of the institutionally appointed heads of the sixteen pediatric hematology, oncology, and stem cell transplant programs across Canada. https://www.c17.ca/ https://www.c17.ca/committees/CYP-C/

124 Followers  |  275 Following  |  119 Posts  |  Joined: 27.11.2024  |  1.828

Latest posts by c17council.bsky.social on Bluesky

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a woman is holding a microphone in front of a sign that says " france " ALT: a woman is holding a microphone in front of a sign that says " france "

Going on vacation, see you near the end of the month.

01.08.2025 16:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
https://health-infobase.canada.ca/cancer/clinical-trials/results.html

Children aged 1–9 have the highest clinical trial enrollment for leukemia in Canada.
But enrollment is similar across gender, income, and geographyβ€”a sign of equitable access.
More insights: t.co/k6kiIKXDFo
#HealthEquity #CYPC_CCJC

01.08.2025 14:15 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Sosido Sosido is a network of online communities for healthcare professionals to share research and clinical expertise

Enhancing Engagement to Support Shared Decision Making Within Haemophilia: Development of Materials for People With Haemophilia, Caregivers and Healthcare Professionals app.sosido.com/articles/959...

30.07.2025 19:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

As a parent, build a strong medical team. Ask questions, take notes, and don’t hesitate to seek second opinions. You’re your child’s best advocate. 🩺 #CancerCare #ParentingThroughCancer

29.07.2025 12:57 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Comparison of Contemporary Radiation Therapy Approaches in Combined Modality Treatment on Pediatric High-Risk Classic Hodgkin Lymphoma Study: AHOD 1331 - PubMed Selective use of RT combined with chemotherapy, including brentuximab vedotin, led to excellent outcomes for pediatric patients with high-risk Hodgkin lymphoma. Proton therapy utilization increased du...

Comparison of Contemporary Radiotherapy Approaches in Combined Modality Treatment on Pediatric High-Risk Classic Hodgkin Lymphoma Study: AHOD 1331 pubmed.ncbi.nlm.nih.gov/40588069/

25.07.2025 19:36 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

The Canadian Collaboration for Child Health: Efficiency and Excellence in the Ethics Review of Research (CHEER) July newsletter: mcusercontent.com/bedac0a08eb3...

25.07.2025 18:51 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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COG Care Guidelines - Momcology [...]Read More

The Children’s Oncology Group (COG) Supportive Care Guidelines are rigorously developed evidence-based guidelines. Via Momcology momcology.org/resources/co...

24.07.2025 20:53 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Research Applications :: C17 - Childrens Cancer & Blood Disorders Approved applications, publications, and other materials related to the use of CYP-C data.

Individual level data and aggregate level data may be requested from the CYP-C dataset (0-14 years old from 2001 to 2014; 0-18 years old from 2015 onward). #CYPC_CCJC www.c17.ca/committees/C...

24.07.2025 13:44 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

Factors Associated With Self-Report Symptom Screening Adherence in Pediatric Cancer Patients onlinelibrary.wiley.com/doi/10.1002/...

23.07.2025 17:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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JOB POSTING: Leukemia/Lymphoma Faculty Position, Hospital for Sick Children POSITION: Assistant/Associate/Professor Haematology/Oncology, Section of Leukemia/LymphomaINSTITUTION: Hospital for Sick ChildrenLOCATION: Toronto, Ontario, CanadaPOSTED: 15 July...

JOB POSTING: Leukemia/Lymphoma Faculty Position, Hospital for Sick Children link.sosido.com/yDkK6Q

23.07.2025 16:47 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What factors influence sexual and reproductive health care among adolescent and young adult cancer patients?: a novel serial focus group study Disparities in sexual and reproductive health care at diagnosis and during treatment for adolescent and young adult (AYA, ages 15–39) cancer patients may be linked to various factors, including those ...

What factors influence sexual and reproductive health care among adolescent and young adult cancer patients?: a novel serial focus group study pmc.ncbi.nlm.nih.gov/articles/PMC...

22.07.2025 19:55 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Prioritization of novel agents for further investigation in pediatric non-rhabdomyosarcoma soft tissue sarcomas: A report from the Children's Oncology Group - PubMed Non-rhabdomyosarcoma soft tissue sarcoma (NRSTS) is a group of over 70 tumors that occur across the age range and account for approximately 4 % of childhood cancers. Patients with metastatic or relaps...

Prioritizing #novel agents for #children with soft tissue #sarcoma - an effort to advance drug development & conduct of #clinical trials for this population pubmed.ncbi.nlm.nih.gov/40651390/

18.07.2025 19:01 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Health care’s domino effect: Turning challenges into building blocks - Healthy Debate The very system meant to save our lives is quietly collapsing. This isn’t just a slow-motion crisis. It’s a domino chain already falling.

Health care’s domino effect: Turning challenges into building blocks healthydebate.ca/2025/07/topi... via @healthydebate.bsky.social

17.07.2025 18:41 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Understanding Parental Resilience in the Context of Childhood Leukemia: A Comparative Examination of Mothers and Fathers - PubMed <span><b>Background:</b> Acute lymphoblastic leukemia (ALL) is the most common childhood cancer, causing significant emotional, physical, and mental strain on families. This strain can affect parental...

Understanding Parental Resilience in the Context of Childhood Leukemia: A Comparative Examination of Mothers and Fathers pubmed.ncbi.nlm.nih.gov/40629964/

16.07.2025 17:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
https://pubmed.ncbi.nlm.nih.gov/40622567/

Clinical practice guideline- and care pathway-inconsistent care following implementation of adapted infection management care pathways t.co/m4hLY7dmSO

15.07.2025 18:20 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Welcome! You are invited to join a webinar: ACCESS Presents: Ahead of Their Time - Premature and Accelerated Aging in Survivors of Childhood Cancer. After registering, you will receive a confirmation ... Join us for an insightful talk exploring the late effects experienced by childhood cancer survivors and how these individuals often face premature and accelerated aging compared to their peers. The pr...

ACCESS Presents: Ahead of Their Time - Premature and Accelerated Aging in Survivors of Childhood Cancer ca01web.zoom.us/webinar/regi...

14.07.2025 20:34 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Clinical trial enrollment of children with cancer in Canada | Health Infobase - Public Health Agency of Canada Detailed statistics from the Cancer in Young People in Canada program.

Only 14% of Canadian children with non-CNS solid tumours are enrolled in clinical trials for initial treatment. For leukemia, it's 48%.
Explore the data: health-infobase.canada.ca/cancer/clini...
#ChildhoodCancer #ClinicalTrials #CYPC_CCJC

14.07.2025 17:10 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Great news! Abstract (work/story) submissions to PiPER Research Day 2025 have been extended to July 25, 2025 @ 11:59 PM (EST).

Submit your abstract here: site.pheedloop.com/portal/event...
More info here: site.pheedloop.com/event/PiPER2...

@uhnresearch.ca @uhn.ca

10.07.2025 20:04 β€” πŸ‘ 4    πŸ” 3    πŸ’¬ 0    πŸ“Œ 0
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Time is ticking! There are TWO DAYS LEFT to submit an abstract to PiPER Research Day 2025. Submissions are due on July 11 @ 11:59 PM (EST).

Submit your work/story here: site.pheedloop.com/portal/event...

@uhn.ca @uhnresearch.ca

09.07.2025 17:36 β€” πŸ‘ 3    πŸ” 2    πŸ’¬ 0    πŸ“Œ 0
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Beyond the signature: Is consent truly informed? - Healthy Debate Moving forward, making informed consent truly informed – rooted in both equity and accessibility –  needs to be a priority, not just an ideal.

Beyond the signature: Is consent truly informed? healthydebate.ca/2025/07/topi... via @healthydebate.bsky.social

10.07.2025 13:19 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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What factors influence sexual and reproductive health care among adolescent and young adult cancer patients?: a novel serial focus group study Disparities in sexual and reproductive health care at diagnosis and during treatment for adolescent and young adult (AYA, ages 15–39) cancer patients may be linked to various factors, including those ...

What factors influence sexual and reproductive health care among adolescent and young adult cancer patients?: a novel serial focus group study pmc.ncbi.nlm.nih.gov/articles/PMC...

09.07.2025 17:05 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
https://www.c17.ca/committees/CYP-C/Research

🧠 From incidence trends to treatment outcomes, the CYP-C dataset is a goldmine for pediatric cancer researchers.
Explore how to access and use this powerful resource:
πŸ”— t.co/KjiRh04Aeg
#CYPC_CCJC #HealthData #CancerResearch

04.07.2025 19:25 β€” πŸ‘ 3    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Workplace Violence Prevention: Insights and Innovations | Healthcare Insurance Reciprocal of Canada Learn key takeaways and watch Part 3 of HIROC’s Workplace Violence Prevention in Healthcare series

Workplace Violence Prevention: Insights and Innovations via @hirocgroup.bsky.social www.hiroc.com/news/workpla...

03.07.2025 21:12 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Is peer-review dead? A scientist’s plea to fix a broken system - Healthy Debate Peer-review may not be over, but the era of exploitative, opaque and corporatized gatekeeping should be.

Is peer-review dead? A scientist’s plea to fix a broken system healthydebate.ca/2025/06/topi... via @healthydebate.bsky.social

03.07.2025 13:28 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Blood Podcast Podcast Β· American Society of Hematology Β· The Blood Podcast summarizes content recently published in Blood, the most cited peer-reviewed publication in the field of hematology.

Aggressive non-Hodgkin lymphoma: defining and managing high-risk subsets [PODCAST 41 min] #Lymphoma #PedsOnc open.spotify.com/show/1O2rn5W...

25.06.2025 18:57 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
Research Grants :: C17 - Childrens Cancer & Blood Disorders Over $6,500,000 has been awarded to outstanding C17Β research grants since 2005. Congratulations to all of our awardees!

The C17 Research Network has awarded over $6.5M in grants since 2005 to support groundbreaking work in childhood cancer and blood disorders. www.c17.ca/research-gra...
#PediatricOncology #C17Grants

24.06.2025 19:08 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in Canada Little is known about children with cancer who participate in early phase (phase 1/2) oncology trials toward the end of life (EOL). The authors sought to describe the proportion of Canadian children w...

FULL ARTICLE Early phase study enrollment in Canadian children with cancer near end of life: A retrospective cohort study from Cancer in Young People in Canada #CYPC_CCJC pmc.ncbi.nlm.nih.gov/articles/PMC...

18.06.2025 20:37 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
https://pmc.ncbi.nlm.nih.gov/articles/PMC12138723/

FULL ARTICLE Detecting and Remediating Harmful Data Shifts for the Responsible Deployment of Clinical AI Models t.co/5rVQRaTqeI

13.06.2025 16:42 β€” πŸ‘ 1    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0
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Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials β€” IMPaCTrials Meet the Speakers! Dr. Evdokia Anagnostou is a Child Neurologist and Professor of Pediatrics at the University of Toronto and Vice President of Holland Bloorview’s Research Institute. As a Senior...

Webinar - Key Considerations for Including Pediatric Populations with Neurodevelopmental Conditions in Clinical Trials - June 18, 2025 www.impactrials.ca/events/june-...

11.06.2025 14:24 β€” πŸ‘ 2    πŸ” 1    πŸ’¬ 0    πŸ“Œ 0
https://www.mdpi.com/1718-7729/32/5/253

FULL ARTICLE A Multi-Site Refinement Study of Taking Back Control Together, an Intervention to Support Parents Confronted with Childhood Cancer t.co/bjHS9weaWD

09.06.2025 20:43 β€” πŸ‘ 0    πŸ” 0    πŸ’¬ 0    πŸ“Œ 0

@c17council is following 19 prominent accounts